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 PeopleWithMS.com Newsletter


January 12, 2008

Healthy Eating Monday
Chat Schedule Tuesday Night Trivia
ChatStar Women's/Men's Wednesday
Stories and Pictures Thursday Game Night 
Recipes & Healthy Eating
HeadsUp ! Saturday Pets Chat
Famous People Poems
Rod's Music Shoppe Newsletter Archive

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 
PeopleWithMS is asking for volunteers to host.

What's hosting?
 You don't have to be an MS expert;  just greet people, help orient the new chatters, focus on their concerns, keep the conversation going, and going in a good direction  (Positive Attitude, rather than moaning and groaning).  

We try to cover as much time as we can, but there are daytime holes and later nights (when the really kewl west coasters and late nighters come in) aren't well covered. Please check the chat hosting schedule below to see if you can fill a spot. 

WilRat, Red, Gerry and Deb want to thank those of you who hosting or come in to help hosts.  

 

the
20
Second
Rule

Take 20 Seconds when departing chat to allow for goodbyes, any last minute questions, whatever . . .

What's With All The Rooms ?

PWMS

Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.

CoffeeHouse

( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.

Lounge

( rated R )

The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST
Off-Topic

The room for discussions of limited interest subjects.  Chia wrangling.  Pasta farming.  Furniture Refinishing Techniques.   Snow Salad Preparation.  Zombie Containment and retraining.

BikerBar HarleyVickie had the idea, and we made it a reality.  Now it's up to you to keep the room filled with lively discussions of whatever seems appropriate.  
PetShop

Join PetsRUs6 in the PetShop on Saturdays nights for discussion about all things pet.

Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.
 

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.


 

Chat Star

GeorgieD

 

 

 
Hi Everyone, 

My name is Georgie aka GG and I'm from Bayside New York. I have had MS for 33 years now...my first MS exacerbation was when I was 27...it was very dramatic as I was paralyzed from the arms pits down...As you may know there were no meds for MS in 1977 and the only test they had was a spinal, so I was not diagnosed at that time. I was going through a lot of stress at the time and I believe that is what brought on that exacerbation. I divorced my husband and lost my father and brother- in- law all in a matter of 3 months. I have 3 small boys to take care of and a business to help run with my mother. Not a good time, I can tell ya...Anyway it took the exacerbation about 3 months to remit and I can only say I was blessed from that time on. My MS remained mild and I could function normally and raise my boys and I met a wonderful man named Joseph and we were married very happily for 23 years. (more )

 

 


Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at PWMS@PeopleWithMS.com

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

 

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Ruby Slippered One My name is Cindy. I am 45 years old. I'm the mother of 3 children, the best things that ever happened to me, a daughter 27 and 2 sons 23 and 16.

I was dx'd with ms in July of 2006, after over 15 yrs of being very sick, and lots of incompetent doctors. At first I was dx'd with postpartum depression, since my first big flare struck 2 months after the birth of my last child. No doctor could ever precisely pinpoint what the real problem was. I think my most favorite thing a doctor told me was, "You are the healthiest sick person I've ever seen". DOCTORS!!!! , Don't you just love em? Also, I find that people, doctors included, just love to tell you how "good" you look, I'll bet a lot of you have heard that one. I think that's why sometimes we are so often misdiagnosed. We just look so darn good , lol.   
(more ) 

Jen
aka
stampingtowardsacure

Hello, my name is Jen, aka stampingtowardsacure.  I was diagnosed with MS in June of 2001.  It has been a long journey thats for sure.  The doctors had a hard time in the beginnng detecting what it was that was wrong with me.  

The first signs I did have was the sensation in my legs were all backwards I guess you could say.  I would notice when I was in the shower the water would be warm, but as soon as it hit my legs it felt cold.  Then, just the opposite with cold water, I was out in our driveway washing the car using the hose outside the house, and that water felt hot when it hit my legs, and it really was very cold water.  Well, my sister said, it sounded like a pinch nerve problem and I should go see the chiropractor.  So, I made an appointment, and he looked me over.  Seeing it was my first time ever at the chiropractor, there was lots to be done.  So, he had me come in every week three times.  Some aggressive ajustments he put me threw too.  Well, the first week was the worse, I was in more and more pain, every time he worked on me.  Well, I was eventually to the point where I was bedredden.  My chiropractor then, ordered a MRI and I went to that; results came back they didn't spot anything unusual.  So, I was back home, tried to see the chiropracter, but that was very unlikely with the pain I was in.  So, thing began to get worse even yet, now I was experiencing my abdomenal balloning out, and my legs were getting weaker, starting to have bladder problems. (not being able to pass urine).  So, my chiropractor saw me at home, saw what kind of shape I was in.    (more ) 


MichelleHoney6
Hi I'm Michelle Kaufman when I started in High school I develop migraines and went to neurologist he treated me for migraines after awhile I started with blurred vision and falls and numb he sent me to Presbyterian Plano hospital I was there for 2 weeks and they ran tests Feb, 2006 they diagnosed me with MS. I was very upset and deviated I had MS, I was dog sitting working at a vet, which I still do now but its hard to deal with having MS and a learning disability, but I stay active positive and do not let anything get in the way of disability. I have been diagnosed 1 year 1/2 . My family and friends and everyone has been very supportive and helpful. I have a cocker spaniel Honey who keeps me going everyday. I still live at home with family. I'm 28 single. I volunteer at hospital and soon starting to volunteer with NMSS. By the way NMSS and all MS organizations have helped and are perfect.  (more ) 

RyansDad


Hi everyone! My name is Randy (RD_NS), I live in Ohio, 40 miles north of Dayton (near Piqua). I'm happily married and have 2 wonderful kids, a 25 year old daughter and a 8 year old son. My son is what keeps me going! He's a "Gift from God"! When our daughter was born we were told we wouldn't be able to have any more kids so we just accepted that and went on. So needless to say we were "SHOCKED" when we found out we were expecting a baby, 18 years later! Our daughter was ready to enter college! I do believe God had a plan as Ryan gives me a reason and the desire to live! I'm sure I'm not the only one that has enough of this MS "crap" every now and then! I was diagnosed with RRMS in 98 (same year Ryan was born) and was let go from my job in 2001 (I was a short haul truck driver)  (more ) 

This could be you*

Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

HeadsUp !

PeopleWithMS - Heads Up ! ! !
Norma alerted us to this important National Multiple Sclerosis Society Program; Direct Assistance. This provides durable medical equipment and other financial aid to those with demonstrated need . Program details vary by chapter.  However, the following will give you an idea of what might be available. Check with your local chapter ( Find Your Chapter ) if you think you might be eligible. A number of our chatters have had luck with this program.

Direct Assistance Now Available

The National MS Society, Michigan Chapter is offering new financial services to address the needs of individuals with multiple sclerosis and their families.

The goal of Direct Assistance is to provide financial assistance to enhance the quality of life and help individuals with MS achieve their highest level of independence.

This program helps chapter members with MS obtain financial assistance in the areas of:

  • Transportation - to and from medical appointments ONLY
  • Home Care - short-term personal care and homemaker/chore services. This service offers assistance in the home with tasks that individuals living with MS are having difficulty completing (meal preparation, light housekeeping, laundry, bathing, and dressing).
  • Respite Care - care when the usual caregiver is temporarily unavailable because of travel, illness or other demands.
  • Short-term counseling - counseling for those facing unexpected challenges as a result of their MS. Limited counseling services are available through in-person and telephone sessions.
  • Medical equipment - the purchase or repair of a variety of equipment such as wheelchairs, walkers and bath equipment.
  • Equipment Loan Closet - for people with MS to borrow, free of charge, equipment that they need for a short period of time.
  • Home & auto modifications - such as lifts, ramps or hand controls.
  • Window air conditioners - limited to no more than one window unit per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Cooling vest - limited to no more thatn one cooling vest per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Emergency response systems - ensures that adults living at home get quick assistance whenever needed - 24 hours a day, 365 days a year.

All assistance is based on financial need and provided according to a sliding fee scale. To obtain assistance, the Chapter requires:

  • A verification of diagnosis.
  • Completion of a confidential financial assistance application
  • Some items/services also require a physician's prescription

For more information or to apply for financial assistance call  800-344-4867.

Services provided depending on available resources. Advance notice required for all services.

Partial support underwritten by the R.M. Gerstacker Foundation.

 

NEXT LIVE SHOW: Thursday, January 24, 2008
Complementary Treatments for MS


Have you tried acupuncture for spasticity, or started vitamin D supplements? Are you wondering how to tell if any of these non- conventional treatments are effective or even safe? 

Tune in on Thursday, January 24 as we enter the uncertain world of complementary treatments for MS and its symptoms. From basics like physical therapy and regular exercise to more dramatic choices like high-dose vitamin D and anti-inflammatory diets, we will discuss many of the popular alternatives and get an expert’s take on their efficacy.

And, as always, you'll have a chance to ask the experts your questions. 

BONUS: Attend the live show online for your chance to win one of three newly redesigned iPod nanos. Use your new nano to download all the latest MS podcasts now available at HealthTalk.com!


Date:  Thursday, January 24, 2008
Time: 5:30 p.m. PST / 6:30 p.m. MST / 7:30 p.m. CST / 8:30 p.m. EST
Location: On the Internet at http://www.healthtalk.com/multiplesclerosis/programs/10_917/ index.cfm

How to participate online: It’s okay if you haven’t registered prior to the show – we’d still love for you to attend. On Thursday, January 24 approximately 10 minutes prior to show time, access the following Web address from any computer: http:// www.healthtalk.com/multiplesclerosis/programs/10_917/index.cfm
Be sure to install Media Player for Mac or Windows and test it before the show.  Find easy download instructions at http:// www.healthtalk.com/wmpdownload.cfm. 

Thank you for tuning in! 

We wish you and your family the best of health, 
The HealthTalk Multiple Sclerosis Team 

 
We are starting to talk about our JUNE 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.

 


Questions To Ask Your Doctor About Influenza

Are there risks in getting the vaccination?

Are there any symptoms that a doctor should be notified about?

What are the chances of developing a secondary infection?

Should I take amantadine or rimanadine? 


Check out this web site to learn more and find out if the flu is in your area:

fluFacts.com 

 


 

 

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

Hey everyone,

Just to give you a quick book update. Things are going well. The book has been out for approx. 2 months now. I've had a few book signings and general interest seems to be going well.

There are now a few additional places you can purchase the book. It is still available through me at
www.msstories.zoomshare.com

It is also available at www.amazon.com OR www.target.com OR www.totallywell.com OR
www.wellnessbooks.com OR www.target.com OR www.bordersstores.com

Just a reminder the book is called "I Dropped My Chicken Soup: Stories about Multiple Sclerosis."

I hope everyone has a happy and healthy holiday season!

Rebeka Huggins


Rebeka
www.myspace.com/msstories

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Tuesday Night Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat

Tuesday

7pm CST

8pm EST

5 pm PST

Gerry & Deb host our Tuesday Night Trivia!

Trivia Tuesday, where the host ask the questions.

Sit back, relax.  It's Tuesday night.  Enjoy!

Our Trivia will start Tuesday!

Topic 'Singing Bee' Gerry will start the song you finish it !

Scoring is first one to answer correctly gets a point!

Trivia will be January 15TH 

Womens & Mens Wednesday Nights

PeopleWithMS - Women's & Men's Chat Night

Please welcome our woman's night host Citrine! 

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  At the same time we have Men's chat in the MEN'S ROOM.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our woman's night host Citrine! 

Donny Doormat mans the doorway, 

ready to greet you and 

guide you into the right room. 


And remember:  Any one can use these rooms at anytime.

Thursday Game Night

PeopleWithMS -Games

Thursdays

8 pm EST

7pm CST

5 pm PST 

  

ChiChi & Mr Red host Fact or Crap! ?our Thursday Game Night
Hemastat was the big winner of our first big suspense-packed, nail-biting, game of chills, thrills, and excitement, due to her intimate medical knowledge of tridecaphobia!

Join us promptly at 8pm EST this Thursday for another exciting game. 

All you need to bring is a sharp mind and a loaded index finger.

We need your Game Night ideas !
Talk to MrRED or send e-mail to
:
PWMS@PeopleWithMS.com

Saturday Pets Chat

PeopleWithMS -petrus chat

Saturday

8 pm EST

7pm CST

5 pm PST 

 

Pets-R-US Chat

Do to the passing of Pets best friend and Boss, Barb. There wont be a scheduled chat this week. We offer our condolences.

Please welcome Petrus she will be hosting our Tips and Tricks for pet owners.

Petsrus has been dog grooming many years and has seen and worked with all breeds of cats and dogs. She has a font of knowledge that she would like to share with us. Please join her in the PetShop chatroom! 

Bring your pet questions!

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

spicy, smoky cauliflower mash


serves: 6
prep time: 10 min
cook time: 15 min

ingredients
4 cups cauliflower florets (about 1 large head)
1 cup grated mozzarella cheese
1/2 cup milk
3 tablespoons sour cream
1 tablespoon lime juice (about 1/2 lime)
Salt and freshly ground black pepper Fresh cilantro, chopped, for garnish

instructions

Steam the cauliflower in a steamer insert set over boiling water, covered, until it is very soft, 15 to 20 minutes. Transfer the steamed cauliflower to a blender and puree with the cheese, milk, sour cream and lime juice until smooth, scraping down the sides of the blender jar as necessary. Add the salt and pepper to taste, pulse a couple more times and transfer to a serving bowl. Sprinkle with cilantro and serve.

Thank You Nellie!

Chocolate Pudding with Fresh Raspberries Recipe


This recipe serves: 8 


Preparation time: 5 minutes
Cooking time: 15 minutes

Ingredients
1 large egg
1 1/2 tablespoons cornstarch
pinch of salt
1/2 teaspoon vanilla extract
1 tablespoon butter
1/2 cup dark brown sugar
1 cup low-fat milk
6 ounces good quality semisweet chocolate, broken into pieces
granulated sugar (optional)
4 cups fresh raspberries, rinsed

Cooking Instructions
1. In a 1 or 2-quart stainless-steel saucepan, whisk the egg, cornstarch, salt and vanilla together for 2 minutes. Set aside.
2. Melt the butter in another saucepan. Stir in the brown sugar. Cook over low heat until the butter and sugar blend together. Add the milk and heat until the sugar dissolves. (The sugar will get hard when the milk is added; it will melt again as the milk heats.)
3. Whisk a few tablespoons of the hot milk mixture into the egg mixture. Gradually whisk in the rest of the milk mixture.
4. Over medium heat, whisk the combined mixture constantly until it comes to a boil. Immediately remove from the heat. Stir chocolate pieces into the warm pudding mixture until smooth.
5. Pour into a bowl. (If you don't want a skin to form on the top of the pudding, sprinkle it lightly with granulated sugar.) Refrigerate. Cover with plastic wrap when cool.
6. Place 1/2 cup of raspberries into each of 8 serving bowls. Top with a few tablespoons of pudding.


Nutrition Facts
Serving Size: 1/2 cup of berries and 3 tablespoons of pudding
Calories 228
Total Fat 11 g
Saturated Fat 6 g
Protein 4 g
Total Carbohydrate 34 g
Dietary Fiber 5 g
Sodium 51 mg
Percent Calories from Fat 41%
Percent Calories from Protein 6%
Percent Calories from Carbohydrate 53%

 

Thank You Nellie!

Healthy Eating

PeopleWithMS - Healthy Eating

Monday

7pm CST

8pm EST

5 pm PST

Healthy Eating 

'support group'

Healthy Eating support group has started. We added 3 pages to our web site. You can find a print out journal, recipes, and check out the exercise page. Please join Shelly and Norma in there weekly. Everyone needs extra support . Bring idea's! Join us in getting back on a positive way of eating. 

Submit recipes that will be posted 

Please email them to deb@durgin.net

click here

 

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

Poems

PeopleWithMS - Poems
Stand by me
Stand by me my friend
Don't walk away.

Don't leave me my friend
I'm asking you to stay.

I need your shoulder to lean upon
and I'll give you mine.

Tell me that you'll be there
just give me a sign.

Hold me till I sleep in peace
and guide me through the night.

Wake me with love and hope
in the early morning light
 
MS_Kitty70

 


 

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, LF Shaw  Debby, Linda-NV, JackIL, Spikers, AMarineswife, David.  and JolyRox room administrators. They have been using the chat.  They can help you if you need help. 

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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