Chat Login   top Newsletter

January 19, 2008

Healthy Eating Monday
Chat Schedule Tuesday Night Trivia
ChatStar Women's/Men's Wednesday
Stories and Pictures Thursday Game Night 
Recipes & Healthy Eating
HeadsUp ! Saturday Pets Chat
Famous People/Birthdays Poems
Rod's Music Shoppe Newsletter Archive


PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 
Red & Deb want to thank you all for all of the prayers and best wishes for Lisa. She seems to be on the right road at last. We want to thank all who stepped up and made this MS family a stronger one.

PeopleWithMS appreciates all who have volunteered to host, or help support our hosts.   What's hosting?  You don't have to be an MS expert;  just greet people, help orient the new chatters, focus on their concerns, keep the conversation going, and going in a good direction  (Positive Attitude, rather than moaning and groaning).  

We try to cover as much time as we can, but there are daytime holes and later nights (when the really kewl west coasters and late nighters come in) aren't well covered. Please check the chat hosting schedule below to see if you can fill a spot. 

WilRat, Red, Gerry and Deb want to thank those of you who hosting or come in to help hosts.  



Take 20 Seconds when departing chat to allow for goodbyes, any last minute questions, whatever . . .

What's With All The Rooms ?


Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.


( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.


( rated R )

The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.

Special Rooms 

Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST

The room for discussions of limited interest subjects.  Chia wrangling.  Pasta farming.  Furniture Refinishing Techniques.   Snow Salad Preparation.  Zombie Containment and retraining.

BikerBar HarleyVickie had the idea, and we made it a reality.  Now it's up to you to keep the room filled with lively discussions of whatever seems appropriate.  

Join PetsRUs6 in the PetShop on Saturdays nights for discussion about all things pet.


No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.

Chat Star


Hi I am Diane a.k.a. wcgirl. I am 40 yrs. young live in NJ & have SPMS that has paralyzed my body, but not my life.

I had lots of symptoms as a child & saw lots of specialists in N.Y.C. but never told anything. My exacerbation in ‘88 paralyzed my left side just 6 months before my wedding. My Dr. assured me it  was safe to go ahead with my wedding plans, my spinal fluid was negative & M.R.I. was thought to be a stroke. I recovered to walking with a straight cane in 6 months, it was a huge challenge but I honestly believe that “If God brings you to it, God will bring you through it.” I got married to my high school sweetheart in ’89. In ’93 I had  an exacerbation that  paralyzed my right side.

My husband left in ‘95 after my Dx. While I was still in rehab. This fact is of no importance to me, I included it just to let others know they aren’t alone.  (more )

Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  


Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


PeopleWithMS - Stories and Pictures

Hello, my name is Jen, aka stampingtowardsacure.  I was diagnosed with MS in June of 2001.  It has been a long journey thats for sure.  The doctors had a hard time in the beginnng detecting what it was that was wrong with me.  

The first signs I did have was the sensation in my legs were all backwards I guess you could say.  I would notice when I was in the shower the water would be warm, but as soon as it hit my legs it felt cold.  Then, just the opposite with cold water, I was out in our driveway washing the car using the hose outside the house, and that water felt hot when it hit my legs, and it really was very cold water.  Well, my sister said, it sounded like a pinch nerve problem and I should go see the chiropractor.  So, I made an appointment, and he looked me over.  Seeing it was my first time ever at the chiropractor, there was lots to be done.  So, he had me come in every week three times.  Some aggressive ajustments he put me threw too.  Well, the first week was the worse, I was in more and more pain, every time he worked on me.  Well, I was eventually to the point where I was bedredden.  My chiropractor then, ordered a MRI and I went to that; results came back they didn't spot anything unusual.  So, I was back home, tried to see the chiropracter, but that was very unlikely with the pain I was in.  So, thing began to get worse even yet, now I was experiencing my abdomenal balloning out, and my legs were getting weaker, starting to have bladder problems. (not being able to pass urine).  So, my chiropractor saw me at home, saw what kind of shape I was in.    (more ) 


Hi I'm Michelle Kaufman when I started in High school I develop migraines and went to neurologist he treated me for migraines after awhile I started with blurred vision and falls and numb he sent me to Presbyterian Plano hospital I was there for 2 weeks and they ran tests Feb, 2006 they diagnosed me with MS. I was very upset and deviated I had MS, I was dog sitting working at a vet, which I still do now but its hard to deal with having MS and a learning disability, but I stay active positive and do not let anything get in the way of disability. I have been diagnosed 1 year 1/2 . My family and friends and everyone has been very supportive and helpful. I have a cocker spaniel Honey who keeps me going everyday. I still live at home with family. I'm 28 single. I volunteer at hospital and soon starting to volunteer with NMSS. By the way NMSS and all MS organizations have helped and are perfect.  (more ) 


To start off I'm 31 F live in GA

Back in Feb 2006 I started doing some confusing stuff, like getting lost while driving and poking my husband on the chest asking him where Harold was and he would say baby it's me right here, everyone thought I was on drugs, And after 5 hospitals they found out I have RRMS.

Well that ain't even the bad part I was 30 mins away from home from the last hospital and my then 12 year old daughter left me to go live with her real father that didn't hardly have anything to do with her for 12 years.  She is 13 now,. And she don't even contact me much now, But heck don't none of my old friends contact me - I guess they think MS is catchy.

But I have a great husband and in laws.

 (more ) 

  Guess Who . . . .

This could be you*

Just send your name, story, and photo along to:

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 


PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

HeadsUp !

PeopleWithMS - Heads Up ! ! !





The National MS Society is kicking off our annual MS Walk. I am planning to be a part of that event and I am asking you to join me in the fight against MS by making a contribution to support my effort.

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. They simultaneously fund research for a cure while also helping people who currently live with MS lead more fulfilling lives. I believe in the work they do, and I invite you to see for yourself all the good they've done for the MS community. More than 400,000 Americans live with MS, and your support can and will make changes in their lives.

Please help by making a donation - large or small - to fight MS. Or, why not join me on the day of the event? Become a participant and side by side, as teammates, we can work together to raise the funds to make a difference.

Click Here to go to learn more about Norma's MS WalkClick here to learn more about supporting Norma's WalkClick Here to go to Norma's MS Walk Page

Montel Williams is promoting the new prescription program 

" Partnership for Prescription Assistance " :

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs


Norma alerted us to this important National Multiple Sclerosis Society Program; Direct Assistance. This provides durable medical equipment and other financial aid to those with demonstrated need . Program details vary by chapter.  However, the following will give you an idea of what might be available. Check with your local chapter ( Find Your Chapter ) if you think you might be eligible. A number of our chatters have had luck with this program.

Direct Assistance Now Available

The National MS Society, Michigan Chapter is offering new financial services to address the needs of individuals with multiple sclerosis and their families.

The goal of Direct Assistance is to provide financial assistance to enhance the quality of life and help individuals with MS achieve their highest level of independence.

This program helps chapter members with MS obtain financial assistance in the areas of:

  • Transportation - to and from medical appointments ONLY
  • Home Care - short-term personal care and homemaker/chore services. This service offers assistance in the home with tasks that individuals living with MS are having difficulty completing (meal preparation, light housekeeping, laundry, bathing, and dressing).
  • Respite Care - care when the usual caregiver is temporarily unavailable because of travel, illness or other demands.
  • Short-term counseling - counseling for those facing unexpected challenges as a result of their MS. Limited counseling services are available through in-person and telephone sessions.
  • Medical equipment - the purchase or repair of a variety of equipment such as wheelchairs, walkers and bath equipment.
  • Equipment Loan Closet - for people with MS to borrow, free of charge, equipment that they need for a short period of time.
  • Home & auto modifications - such as lifts, ramps or hand controls.
  • Window air conditioners - limited to no more than one window unit per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Cooling vest - limited to no more thatn one cooling vest per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Emergency response systems - ensures that adults living at home get quick assistance whenever needed - 24 hours a day, 365 days a year.

All assistance is based on financial need and provided according to a sliding fee scale. To obtain assistance, the Chapter requires:

  • A verification of diagnosis.
  • Completion of a confidential financial assistance application
  • Some items/services also require a physician's prescription

For more information or to apply for financial assistance call  800-344-4867.

Services provided depending on available resources. Advance notice required for all services.

Partial support underwritten by the R.M. Gerstacker Foundation.


NEXT LIVE SHOW: Thursday, January 24, 2008
Complementary Treatments for MS

Have you tried acupuncture for spasticity, or started vitamin D supplements? Are you wondering how to tell if any of these non- conventional treatments are effective or even safe? 

Tune in on Thursday, January 24 as we enter the uncertain world of complementary treatments for MS and its symptoms. From basics like physical therapy and regular exercise to more dramatic choices like high-dose vitamin D and anti-inflammatory diets, we will discuss many of the popular alternatives and get an expert’s take on their efficacy.

And, as always, you'll have a chance to ask the experts your questions. 

BONUS: Attend the live show online for your chance to win one of three newly redesigned iPod nanos. Use your new nano to download all the latest MS podcasts now available at!

Date:  Thursday, January 24, 2008
Time: 5:30 p.m. PST / 6:30 p.m. MST / 7:30 p.m. CST / 8:30 p.m. EST
Location: On the Internet at index.cfm

How to participate online: It’s okay if you haven’t registered prior to the show – we’d still love for you to attend. On Thursday, January 24 approximately 10 minutes prior to show time, access the following Web address from any computer: http://
Be sure to install Media Player for Mac or Windows and test it before the show.  Find easy download instructions at http:// 

Thank you for tuning in! 

We wish you and your family the best of health, 
The HealthTalk Multiple Sclerosis Team 

We are starting to talk about our JUNE 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.


Questions To Ask Your Doctor About Influenza

Are there risks in getting the vaccination?

Are there any symptoms that a doctor should be notified about?

What are the chances of developing a secondary infection?

Should I take amantadine or rimanadine? 

Check out this web site to learn more and find out if the flu is in your area: 




"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"


Hey everyone,

Just to give you a quick book update. Things are going well. The book has been out for approx. 2 months now. I've had a few book signings and general interest seems to be going well.

There are now a few additional places you can purchase the book. It is still available through me at

It is also available at OR OR OR OR OR

Just a reminder the book is called "I Dropped My Chicken Soup: Stories about Multiple Sclerosis."

I hope everyone has a happy and healthy holiday season!

Rebeka Huggins



PeopleWithMS - Crafts


Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 


Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions


Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in CONTACT ME:  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL

Tuesday Night Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat


7pm CST

8pm EST

5 pm PST

Gerry & Deb host our Tuesday Night Trivia!

Trivia Tuesday, where the host ask the questions.

Sit back, relax.  It's Tuesday night.  Enjoy!

Our Trivia will start Tuesday!

Topic 'Singing Bee' Gerry will start the song you finish it !

Scoring is first one to answer correctly gets a point!

Trivia will be January 22TH 

Womens & Mens Wednesday Nights

PeopleWithMS - Women's & Men's Chat Night

Please welcome our woman's night host Citrine! 

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  At the same time we have Men's chat in the MEN'S ROOM.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our woman's night host Citrine! 

Donny Doormat mans the doorway, 

ready to greet you and 

guide you into the right room. 

And remember:  Any one can use these rooms at anytime.

Thursday Game Night

PeopleWithMS -Games


8 pm EST

7pm CST

5 pm PST 


ChiChi & Mr Red host Fact or Crap! ?

our Thursday Game Night

Citrine was the big winner of this weeks exciting contest!

Join guest hostess Doraann promptly at 8pm EST this Thursday for another thrilling game

All you need to bring is a sharp mind and a loaded index finger.

We need your Game Night ideas !
Talk to MrRED or send e-mail to

Saturday Pets Chat

PeopleWithMS -petrus chat


8 pm EST

7pm CST

5 pm PST 

Pets-R-US Chat

Please welcome Petrus she will be hosting our Tips and Tricks for pet owners.

Petsrus has been dog grooming many years and has seen and worked with all breeds of cats and dogs. She has a font of knowledge that she would like to share with us. Please join her in the PetShop chatroom! 

Bring your pet questions!


PeopleWithMS - Recipes
Click here

for Recipes


Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 



Please Email us with any recipes you would like to share with us 

Healthy Italian Meatballs and Spaghetti
with Tomato-Garlic Sauce Recipe

This recipe serves: 4 
Preparation time: 20 minutes
Cooking time: 15 minutes

For the meatballs:
1/3 cup milk
1/3 cup breadcrumbs
2 teaspoons olive oil
2/3 large yellow onion, finely diced
2/3 red pepper, finely diced
salt to taste
freshly ground black pepper
1/3 pound ground lean beef sirloin
1/3 pound ground lean turkey
1 small egg
2 1/2 tablespoons fresh chopped parsley
1 pinch ground nutmeg

For the sauce and spaghetti:
2 teaspoons olive oil
2/3 small yellow onion, finely chopped
2 1/2 cloves garlic, finely chopped
1/3 teaspoon dried oregano
1 1/3 cups tomato sauce
2/3 pound spaghetti
Parmesan cheese, for sprinkling on top

Cooking Instructions
For the meatballs:
1. In a small bowl, mix the milk and bread crumbs together with a fork. When the bread has softened, squeeze out most of the milk with your hands. Discard the milk.
2. Heat the olive oil in a large skillet over medium heat. Add the onion and red pepper and season with a light pinch of salt and pepper. Cook until the vegetables soften, about 5 or 6 minutes, and set aside to cool.
3. Combine the beef, turkey, bread crumbs, onion-pepper mixture, egg, 2 tablespoons parsley, nutmeg and 1 teaspoon salt in a medium-size bowl. Work the mixture with your hands unit it has an even consistency. With wet hands, shape the mixture into 12 meatballs. (This can be done 1 day in advance and stored in the refrigerator in one layer, tightly wrapped, until you are ready to cook them. The meatballs can be cooked in the time it takes to boil the spaghetti.)

For the sauce and spaghetti:
1. Heat the olive oil in a large skillet over medium heat. Add the onion and cook. When the onion begins to sizzle, add the meatballs, shaking the pan to keep them from sticking. Using tongs or a wooden spoon, gently turn and toss the onions and meatballs so they brown lightly.
2. Add the garlic and cook for 2 minutes more. Add the oregano and tomato sauce and the remaining 2 tablespoons parsley. Season with salt and pepper to taste. Simmer gently, uncovered, stirring the meatballs to coat them with sauce. Cook until the meatballs are cooked through. Keep warm.
3. Bring a large pot of well salted water to a boil. Add the spaghetti and cook until it is al dente, about 8 to 10 minutes. Drain the spaghetti and place it in a warmed pasta bowl. Pour the meatballs and sauce over the pasta. Serve with Parmesan cheese.

Nutrition Facts
Serving Size: 1 bowl of spaghetti with 2 meatballs
Calories 590
Total Fat 18 g
Saturated Fat 5 g
Dietary Fiber 4 g
Sodium 436 mg

Thank You Nellie!

Hungarian Beef Stew Recipe

This recipe serves: 4 
Preparation time: 20 minutes
Cooking time: 1 hour 30 minutes

1 1/2 pounds lean beef stew meat (top round), cut into 2-inch cubes
salt to taste
freshly ground black pepper
flour for dredging
1 tablespoon vegetable oil
1 small yellow onion, diced
1/2 red bell pepper, seeded and chopped
1/2 yellow bell pepper, seeded and chopped
1/2 green bell pepper, seeded and chopped
1 cup quartered mushrooms
2 cloves garlic, minced
1 bay leaf
1 1/2 tablespoons sweet, Hungarian paprika
1/2 cup dry red wine
1 cup diced, canned tomatoes
2 cups low-sodium beef broth

Cooking Instructions
1. Season the beef with salt and pepper. Dredge it in flour and shake off the excess.
2. Heat the oil in a heavy soup pot or Dutch oven over medium-high heat. Sear the meat on all sides. Adjust the heat so that the meat browns well, but does not burn.
3. Add the onions, peppers, mushrooms, garlic and bay leaf and cook 2 minutes more. Sprinkle the paprika into the pot and stir well to combine.
4. Add the red wine. Stir with a wooden spoon to release any caramelized bits that may be stuck to the bottom of the pan and cook until the wine is almost completely evaporated.
5. Add the tomatoes and the beef broth and bring to a boil. Adjust the heat so that the stew simmers and cook until the meat is tender, about 1 hour.
6. Adjust the seasoning with salt and pepper, remove the bay leaves and serve in a deep tureen.

Nutrition Facts

Serving Size: 1 bowl
Calories 454
Total Fat 13 g
Saturated Fat 4 g
Protein 60 g
Total Carbohydrate 17 g
Dietary Fiber 4 g
Sodium 418 mg
Percent Calories from Fat 26%
Percent Calories from Protein 53%
Percent Calories from Carbohydrate 15%

Thank You Nellie!

Grouper Parmesan
2 lbs. grouper fillets, fresh or frozen
1 c. light sour cream
1/4 c. Parmesan cheese
1 tbsp. fresh lemon juice
1 tbsp. grated onion
1/2 tsp. salt
1/8 tsp. liquid hot pepper sauce
Chopped fresh parsley for garnish
Thaw fish if frozen.  Cut fish into serving-size portions.  Place fish in a single layer in a well-greased baking dish, 12 X 8 X 2 inches.  Combine remaining ingredients except paprika and parsley.  Spread sour cream mixture over fish.  Sprinkle with paprika.  Bake at 350 degrees for 25-30 minutes or until fish flakes easily when tested with a fork.  Garnish with parsley.
Makes 6 servings.
This dish is very yummy with an Italian pasta dish on the side (spaghetti, lasagna, penne vodka, etc.) and a salad.  Very simple.

Thank you, LFShaw

1 tbsp BUTTER


Thanks, DennisWW

Healthy Eating

PeopleWithMS - Healthy Eating


7pm CST

8pm EST

5 pm PST

Healthy Eating 

'support group'

Healthy Eating support group has started. We added 3 pages to our web site. You can find a print out journal, recipes, and check out the exercise page. Please join Shelly and Norma in there weekly. Everyone needs extra support . Bring idea's! Join us in getting back on a positive way of eating. 

Submit recipes that will be posted 

Please email them to

click here


Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's



Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  


Famous People

PeopleWithMS - Famous People

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them:





PeopleWithMS - Birthdays



 LindaNV is now in charge of getting our chatters Birthdays! Please email her you birthday if its not in here already. Please don't give her a hard time.   

PeopleWithMS - Birthdays, Anniversaries, Etc.

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!




PeopleWithMS - Poems


Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us

General Information

PeopleWithMS Newsletter 08-19-07


Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, LF Shaw  Debby, Linda-NV, JackIL, Spikers, AMarineswife, David.  and JolyRox room administrators. They have been using the chat.  They can help you if you need help. 


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

If anyone has anything they think ought to be added to the weekly news letter, please email me at

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