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January 26, 2008

Healthy Eating Monday
Chat Schedule Tuesday Night Trivia
ChatStar Women's/Men's Wednesday
Stories and Pictures Thursday Game Night 
Recipes & Healthy Eating
HeadsUp ! Saturday Pets Chat
Famous People/Birthdays Poems
Rod's Music Shoppe Newsletter Archive


PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 
PWMS thanks all of you who have been putting in extra chat time to host or help out our hosts while Deb and Red have been dealing with a number of simultaneous family crisis.

Recent events dictate a restatement of certain facts of life about the PeopleWithMS Chat.    

Our primary focus is Multiple Sclerosis and our objective is support.  Not just boring clinical information - support is under a big tent, with broad expanse of fabric.   So we have many rooms to cover the many topics and personal perspectives.  This is your place as well as ours. We keep a very open mind about our chat rooms, recognizing that we are catering to a wide audience. We really don't want to make rules about what you think is relevant help. But we do expect some display of common sense and respect.  
  • The Lobby is the Town Common, where people have the least in common.  So exercise restraint and patience!
  • The Rooms List covers some common general interests or attitudes, and special purpose rooms, so if that is what you and other chatters are into, go there, and others may follow.  
  • Private Messages are for quick exchange of private or side-conversation information, like an e-mail address, web site address, or company phone number.
  • Private Discussion of personal, perhaps embarrassing physical or other issues can be taken to a special-purpose room
  • Other Topics simply belong outside this chat.  Dubious personal topics, commercial activities, and proclivities such as media piracy & warez, cybersex, snakeoil miracle cures, etc. have no place in any public or private room on PeopleWithMS.  Please take it to a instant messanger. 

Transcripts are maintained for the safety of our chatters, just like any other major chat site.  They allow us to identify the IP address and location of problem chatters, who don't might not belong. We don't look at transcripts to be nosey, we have much better things to do.  However, if someone reports misbehavior in chat, transcripts allow investigation of the specifics of a report.  

The Rooms List


Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.


( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.


( rated R )

Bring your friends in here when the off-color jokes, rowdy discussions, or other topics start offending delicate sensibilities in other rooms. !  If discussion goes XXX, get out of chat and onto IM, or book a hotel.
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.

Special Rooms 

Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST

The room for discussions of limited interest subjects.  Computer repair.  Pasta farming.  Furniture Refinishing Techniques.  

BikerBar HarleyVickie had the idea, and we made it a reality.  Now it's up to you to keep the room filled with lively discussions of whatever seems appropriate.  

Join PetsRUs6 in the PetShop on Saturdays nights for discussion about all things pet.  All Animals, Anytime !


No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.

Chat Star




My name is Cindy. I am 45 years old. I'm the mother of 3 children, the best things that ever happened to me, a daughter 27 and 2 sons 23 and 16.

I was dx'd with ms in July of 2006, after over 15 yrs of being very sick, and lots of incompetent doctors. At first I was dx'd with postpartum depression, since my first big flare struck 2 months after the birth of my last child. No doctor could ever precisely pinpoint what the real problem was. I think my most favorite thing a doctor told me was, "You are the healthiest sick person I've ever seen". DOCTORS!!!! , Don't you just love em? Also, I find that people, doctors included, just love to tell you how "good" you look, I'll bet a lot of you have heard that one. I think that's why sometimes we are so often misdiagnosed. We just look so darn good , lol.   
(more )

Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  


Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


PeopleWithMS - Stories and Pictures

What's Up with the bird ?
What's Up With The Bird ?

Who Could it Be ?
Who's this ?

This could be you*

Just send your name, story, and photo along to:

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 


PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

HeadsUp !

PeopleWithMS - Heads Up ! ! !

Don't Spend Your Recession Rebate Check Before it's Real !

The broad rebate in motion in Congress sounds like it will apply widely to the working and middle class American family.  A good thing for many of us with higher than average medical expenses.  Ambiguous statements so far suggest that to qualify for a rebate, a person ( or couple filing jointly) must only have "made" $3000 or more (in Adjusted Gross Income) on which taxes could be due, before deductions and exemptions. Not specifically wages, which is good, because many on disability aren't wage earners.  A modest stock, mutual fund, real estate, rental property, or capital gain on selling that antique car would also do the trick.  So for most people this will simply be a matter of " how much ? "  $300 ?  $600  $1200 with the spouse  $300 per kid bonus booty . . .

But there's a gotcha for many of us:  AARP has flagged as a big question whether anyone receiving SSA Disability or Retirement benefits as their sole income qualifies for the Rebates.  Retirement and Disability benefits are not be subject to taxes unless other qualifiying income was already present.  So no money is " made " on which tax might normally be due.

*** No Tax Payment so far seems to mean No Rebate  ***

The Senate version is open to possible clarification or revision in the next two or three weeks to address this issue.  However, in the rush to get a resolution signed and cash out the door to the most people, this might be missed.  And that means the check in your mailbox is surely missed !    

Do not assume that a newspaper or television broadcast's general statements are going to apply to your specific financial situation.  Read the fine print of the final agreement to make sure what applies to you, before commiting any funds.






The National MS Society is kicking off our annual MS Walk. I am planning to be a part of that event and I am asking you to join me in the fight against MS by making a contribution to support my effort.

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. They simultaneously fund research for a cure while also helping people who currently live with MS lead more fulfilling lives. I believe in the work they do, and I invite you to see for yourself all the good they've done for the MS community. More than 400,000 Americans live with MS, and your support can and will make changes in their lives.

Please help by making a donation - large or small - to fight MS. Or, why not join me on the day of the event? Become a participant and side by side, as teammates, we can work together to raise the funds to make a difference.

Click Here to go to learn more about Norma's MS WalkClick here to learn more about supporting Norma's WalkClick Here to go to Norma's MS Walk Page





Texas, San Antonio - MS Walk 2008

delta SA

Delta Society of San Antonio is an all volunteer organization dedicated to the human-animal bond which promotes good health and healing through our therapy animals. We are an affiliate chapter of the national Delta Society.

Our Animal Ambassador teams visit people in many health care facilities, such as hospitals, nursing homes, assisted living centers, and rehabilitation centers in the San Antonio and surrounding areas.

As the sponsor for Fiesta Pooch Parade, an official Fiesta event, Delta SA highlights the benefits of the human/animal connection. All proceeds from the event go to the support of our local programs. for more information.

Join our team as a walker or a volunteer! Make a donation online! Send in a check! There are so many ways to make a difference in the fight against MS, and it all begins right here.


Click Here to go to learn more about Norma's MS WalkClick here to learn more about supporting Laurie's WalkClick Here to go to Norma's MS Walk Page

Montel Williams is promoting the new prescription program 

" Partnership for Prescription Assistance " :

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs


Norma alerted us to this important National Multiple Sclerosis Society Program; Direct Assistance. This provides durable medical equipment and other financial aid to those with demonstrated need . Program details vary by chapter.  However, the following will give you an idea of what might be available. Check with your local chapter ( Find Your Chapter ) if you think you might be eligible. A number of our chatters have had luck with this program.

Direct Assistance Now Available

The National MS Society, Michigan Chapter is offering new financial services to address the needs of individuals with multiple sclerosis and their families.

The goal of Direct Assistance is to provide financial assistance to enhance the quality of life and help individuals with MS achieve their highest level of independence.

This program helps chapter members with MS obtain financial assistance in the areas of:

  • Transportation - to and from medical appointments ONLY
  • Home Care - short-term personal care and homemaker/chore services. This service offers assistance in the home with tasks that individuals living with MS are having difficulty completing (meal preparation, light housekeeping, laundry, bathing, and dressing).
  • Respite Care - care when the usual caregiver is temporarily unavailable because of travel, illness or other demands.
  • Short-term counseling - counseling for those facing unexpected challenges as a result of their MS. Limited counseling services are available through in-person and telephone sessions.
  • Medical equipment - the purchase or repair of a variety of equipment such as wheelchairs, walkers and bath equipment.
  • Equipment Loan Closet - for people with MS to borrow, free of charge, equipment that they need for a short period of time.
  • Home & auto modifications - such as lifts, ramps or hand controls.
  • Window air conditioners - limited to no more than one window unit per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Cooling vest - limited to no more thatn one cooling vest per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Emergency response systems - ensures that adults living at home get quick assistance whenever needed - 24 hours a day, 365 days a year.

All assistance is based on financial need and provided according to a sliding fee scale. To obtain assistance, the Chapter requires:

  • A verification of diagnosis.
  • Completion of a confidential financial assistance application
  • Some items/services also require a physician's prescription

For more information or to apply for financial assistance call  800-344-4867.

Services provided depending on available resources. Advance notice required for all services.

Partial support underwritten by the R.M. Gerstacker Foundation.

We are starting to talk about our JUNE 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.


"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"


So I want to apologize. I haven't been keeping up on on book updates. I've been to preoccupied with my own health, which has been having a few issues and that really hasn't been fair of me. And once again I do want to thank everyone for the Anyways I'm ready to concentrate on book updates

Now on to the book update. The book is going over fairly well. (But don't worry if you haven't purchased your book yet, or you want another copy there are still books for sale. Just go to my for ordering infomation.)

I've had some really positive reviews which I've posted on my website I've also had a lot of people tell me the book hit very close to home, which is what I wanted. I want everyone to know that they are not alone!!! But I am sorry if it was hard for anyone to read. I hope that you also found it informative!!!

Since October I've also had a number of book signings, 1 radio interview and a couple of articles in the news paper. Although I haven't posted copies of the newspaper articles. There are pictures from my book signings and the radio interview. And I will get the newspaper articles on there shortly!!

I love feedback on the book both positive and constructive negative comments. 

I hope everyone is happy and holding steady in their health!!!

Take care!!! 


It is also available at OR OR OR OR OR


PeopleWithMS - Crafts


Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 


Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions


Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in CONTACT ME:  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL

Tuesday Night Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat


7pm CST

8pm EST

5 pm PST

Gerry & Deb host our Tuesday Night Trivia!

Trivia Tuesday, where the host ask the questions.

Sit back, relax.  It's Tuesday night.  Enjoy!

Our Trivia will start Tuesday!


Trivia will be January 29TH 

Womens & Mens Wednesday Nights

PeopleWithMS - Women's & Men's Chat Night

Please welcome our woman's night host Citrine! 

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  At the same time we have Men's chat in the MEN'S ROOM.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our woman's night host Citrine! 

Donny Doormat mans the doorway, 

ready to greet you and 

guide you into the right room. 

And remember:  Any one can use these rooms at anytime.

Thursday Game Night

PeopleWithMS -Games


8 pm EST

7pm CST

5 pm PST 


ChiChi & Mr Red host Fact or Crap! ?

our Thursday Game Night

Hemastat pulled out another victorious game.  Hostess Doraann perservered under adverse technical conditions.  LFShaw boldly avoided winning a closing moments point in order to secure a decisive defeat !

Join guest hostess Doraann promptly at 8pm EST this Thursdayfor another thrilling game.  Doraann and MrRed promise to have the technical difficulties resolved so a swift and exciting game is had by all.  

All you need to bring is a sharp mind and a loaded index finger.

We need your Game Night ideas !
Talk to MrRED or send e-mail to

Saturday Pets Chat

PeopleWithMS -petrus chat


8 pm EST

7pm CST

5 pm PST 

Pets-R-US Chat

Please welcome Petrus she will be hosting our Tips and Tricks for pet owners.

Petsrus has been dog grooming many years and has seen and worked with all breeds of cats and dogs. She has a font of knowledge that she would like to share with us. Please join her in the PetShop chatroom! Bring your pet questions!

Pets is also doing a weekly newsletter for us with Tips and Tricks!

Click here for Pet Shop Talk!


PeopleWithMS - Recipes
Click here

for Recipes


Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 



Please Email us with any recipes you would like to share with us 

Strawberry Sundae Recipe

This recipe serves: 2 
Preparation time: 10 minutes

1 1/2 cups strawberries, washed, hulled and sliced
1/4 cup sugar, or to taste
4 scoops vanilla non-fat frozen yogurt
2 teaspoons walnuts, chopped
2 teaspoons semisweet chocolate shavings or sprinkles

Cooking Instructions
1. In a small bowl, sprinkle the sliced strawberries with sugar.
2. Puree half of the strawberries in a food processor to make a strawberry sauce. Reserve the sauce and the remaining sliced strawberries in the refrigerator until ready to use.
3. Pour a few teaspoons of strawberry sauce into the bottom of each sundae glass. Add a scoop of frozen yogurt to each and drizzle with more strawberry sauce. Add another scoop of frozen yogurt and top with the remaining sauce and sliced strawberries.
4. Decorate each sundae with nuts and chocolate shavings.

Nutrition Facts

Serving Size: 1 sundae
Calories 322
Total Fat 3 g
Saturated Fat 1 g
Protein 8 g
Total Carbohydrate 71 g
Dietary Fiber 3 g
Sodium 82 mg
Percent Calories from Fat 8%
Percent Calories from Protein 9%
Percent Calories from Carbohydrate 84%

Thank You Nellie!

Ginger-Honey Glazed
Barbecued Pork Chops Recipe

This recipe serves: 6 
Preparation time: 15 minutes
Cooking time: 10 minutes

1/3 cup honey
1/3 cup low-sodium soy sauce
1/3 cup rice vinegar
2 cloves garlic, crushed
1 tablespoon freshly grated ginger
6 center-cut, boneless pork loin chops, about 1 inch thick

Cooking Instructions
1. Combine the honey, soy sauce, vinegar, garlic and ginger in a small saucepan. Cook over high heat until the mixture reduces by half. Let cool.
2. Spray the grill grate with non-stick spray (or oil it well) and preheat the grill to medium- high.
3. Season the pork chops with salt and pepper.
4. Grill the chops on each side, about 4 to 6 minutes per side, depending on thickness. Brush them on both sides with the honey mixture, then grill 2 to 3 minutes more on each side.
5. Drizzle the pork with the remaining honey mixture and serve.

Nutrition Facts

Serving Size: 1 pork chop
Calories 216
Total Fat 6 g
Saturated Fat 2 g
Protein 23 g
Total Carbohydrate 17 g
Dietary Fiber 0 g
Sodium 515 mg
Percent Calories from Fat 25%
Percent Calories from Protein 43%
Percent Calories from Carbohydrate 32%

Thank You Nellie!


1 tbsp BUTTER


Thanks, DennisWW

Healthy Eating

PeopleWithMS - Healthy Eating


7pm CST

8pm EST

5 pm PST

Healthy Eating 

'support group'

Healthy Eating support group has started. We added 3 pages to our web site. You can find a print out journal, recipes, and check out the exercise page. Please join Shelly and Norma in there weekly. Everyone needs extra support . Bring idea's! Join us in getting back on a positive way of eating. 

Submit recipes that will be posted 

Please email them to

click here


Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's



Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  


Famous People

PeopleWithMS - Famous People

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them:





PeopleWithMS - Birthdays

Linda's Birthday list!


 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

If your birthday is not on our list please tell Linda when in chat! Linda has been really helping with getting this all organized.

We will post 2 months at a time below!

Thank you Linda!

JolyRox January 2nd
Ted  January 2nd
Eddie January 2nd
Bette42 January 9th
Randy/ ryans Dad January 11th
MrsKelli357 Birthday and Anniversary January 21st
Fugarazi January 22nd
Wil Rats January 25th
SteveNL January 26th
Soporific January 27th
Harley Vicky January 27th
Biz January 31st
Norma & Bob Anniversary February 10th
Judy Feb 11TH
Candy49 Febuary 13th
Lauri February 16th
Marlene & Jimmy's Anniversary February 20th
Karen1 Febuary 20th
Deena/Bernadine Febuary 21st
Jeffs & Tami Anniversary February 24th
Glenda Lee   Anniversary Febuary 24th


PeopleWithMS - Poems


Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us

I look great, How do I Feel......

When I woke up this morning
Just like I always do,
I found that this was different
I was really feeling blue.
I know there's nothing I can do
To make myself feel fine.
I'll simply try the best I can
To work and not to whine.
My torment in my body,
No one can understand.
They look at me, I'm lookin good,
I must be feeling grand.
To look so hale and hearty,
I must be feeling great.
The way my body treats me,
They cannot estimate.
For one to look so healthy,
With good colour and a smile,
They think I'd like to have some fun
And maybe walk a mile.
They cannot know what's going on
Inside my body now.
I may look strong and healthy
And could even lift a cow.
But that's not how it is with me,
I struggle to get dressed.
My buttons give me lots of time
To really get depressed.
I cannot do the simple things
An eight year old can do.
I can't do up my buttons
Or even tie my shoe.
Frustration is my daily pal.
Stays with me all my life.
Expecially when I try to eat
And cut things with my knife.
Sometimes this makes me cranky,
And 'bout you I don't care;
Cause all of this frustration
Is more than I can bear.
I do not want to be a crank
Or even a complainer.
What's going on, You cannot know,
Even if you had a trainer.
Try getting dressed with mitts on.
It'll make you feel lots older;
Or walk a hundred yards or so,
Your leg tied to a boulder.
Try talking to your friends about
The things you do and see.
Especially when you can't speak right
As "fifty" comes out "free".
You know the things you want to say
They just don't seem to come.
Good thing it's only now and then
Or they'd all think you're dumb.
But that's not hard to live with,
As friends, they all know you.
And when the times get really tough,
They're there to see you through.
It's really not demeaning
On someone to depend,
For most of us can find someone
Who'll help us as a friend. 
Some understand the turmoil
We go through day by day;
They help us when we need it
And get us on our way.
Those friends do understand MS
And what it does to us.
But some cannot understand
Why so often we do fuss.
About the feeling we'll explode,
Or half your body's numb,
Or that your brain's not up to par
And you feel really dumb.
Who cares you ran the hundred
In seven seconds flat.
Your ball days too are over,
You can't even hold a bat.
So you lose your temper
Every now and then!
It really doesn't matter much
Cause you don't e'en know when.
That's what happens with MS.
You're full of ups and downs.
But people always notice that
You've got more smiles than frowns.
You think you cannot handle it,
You're wrong, you're wrong my friend.
We, all of us, can handle it,
So let us not pretend.
Of course it's not a fun disease,
But name me one that is.
And I'm sure to give you full marks
For being such a whiz.
It's hard when on the inside
You feel less than you should.
But look upon the bright side,
Hey! You're really looking good!

David Fraser
Prince Edward Island Canada




General Information

PeopleWithMS Newsletter 08-19-07


Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, LFShaw,  Debby, Linda-NV, JackIL, AMarineswife, DavidT, JolyRox, Barry, and RubySlipperedOne. room administrators.  All host at schedculed times and frequently chat off-hosting hours as well.  They can help you if you need help. 


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

If anyone has anything they think ought to be added to the weekly news letter, please email me at

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