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 PeopleWithMS.com Newsletter


~ 84,000 Chatters Served ~

May 3d, 2008 

Healthy Eating Monday
Chat Schedule Tuesday Night Trivia
ChatStar Women's/Men's Wednesday
Stories and Pictures Thursday Game Night 
Recipes & Healthy Eating
HeadsUp ! Saturday Prayer Chat
Famous People/Birthdays Poems
Rod's Music Shoppe Newsletter Archive

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

Chat continues to grow at over 1,000 visitors a week!  If you are newly arriving, or a returning friend from MS Watch, MS World, Jooly's Joint, or another chat, let folks know.  It's great to catch up on what old friends have been up to. At the same time, we have seen that the room become more in touch with helping the newbie to feel welcome.   We're getting new chatters weekly and it's very rewarding to see everyone helping out the newcomers to chat.  



Recent events dictate a restatement of certain facts of life about the PeopleWithMS Chat.    

Our primary focus is Multiple Sclerosis and our objective is support.  Not just boring clinical information - support is under a big tent, with broad expanse of fabric.   So we have many rooms to cover the many topics and personal perspectives.  

Remember -This is your house as well as ours.
We donate the chatroom, and solicit no outside sponsors:  We rely on our chatters to volunteer their time and effort to make this the best it can be.  We keep a very open mind about our chat rooms, recognizing that we are catering to a wide audience. We really don't want to make rules about what you think is relevant help. But we do expect some display of common sense and respect.  
  • The Lobby is the Town Common, where people have the least in common.  So exercise restraint and patience!
  • The Rooms List covers some common general interests or attitudes, and special purpose rooms, so if that is what you and other chatters are into, go there, and others may follow.  
  • Private Messages are for quick exchange of private or side-conversation information, like an e-mail address, interesting web site address, or company phone number.
  • Private Discussion of personal, perhaps embarrassing physical or other issues can be taken to a special-purpose room such as the WomenOnly, MenOnly, or OffTopic Room
  • Other Topics simply belong outside this chat.  Dubious personal topics, commercial activities, and proclivities such as media piracy & warez, cybersex, snakeoil miracle cures, etc. have no place in any public or private room on PeopleWithMS.  Please take it out of PeopleWithMS onto an instant messanger. 

Transcripts are maintained for the safety and security of our chatters, just like any other major chat site.  They allow us to identify the IP address and location of problem chatters, who don't might not belong.  When someone reports misbehavior in chat, transcripts allow investigation and substantiation of the accusation.  We don't want to throw anybody out.  However, we also don't want creeps harrassing chatters.  


The Rooms List

PWMS

Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.

CoffeeHouse

( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.

Lounge

( rated R )

Bring your friends in here when the off-color jokes, rowdy discussions, or other topics start offending delicate sensibilities in other rooms. !  If discussion goes XXX, get out of chat and onto IM, or book a hotel.
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 2 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is for Women only!  It can be used anytime at all. We also have Women's Night on Wednesday 8PM EST
Men's Only This room is for Men only! It can be used anytime at all. We also have Men's Night on Wednesday 8PM EST (assuming there is anything to talk about)
Off-Topic

The room for discussions of limited interest subjects.  Computer repair.  Pasta farming.  Furniture Refinishing Techniques.  

BikerBar HarleyVickie had the idea, and we made it a reality.  Now it's up to you to keep the room filled with lively discussions of whatever seems appropriate.  
Prayer ChatBobbyGene and JolyRox have offered to host a Saturday Night Chat focussed on Prayer and Support.    
Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.
 

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.


Chat Star

Aileen

I've had 4 definite flares with MS since 81 but wasn't dxed till Nov. 2001. The 1st episode was terrific fatigue and numb feet for several wks that eventually eased up over several mths then optic neuritis in 83 in both eyes. Then in 88 vertigo from hell with flipping vision, it was horrible. Then in 2001 I was under a terrific amount of stress. Well actually the entire decade had been stressful. Both parents had died from cancer, got married again, had 2 more children, personal troubles, etc. & kids were telling me I seemed to be sleep walking. Then 1 early morning I had a grand mal seizure & was taken to emerg. CT scan shows possible stroke but they want to send me for an MRI. Later that day neuro walks in to tell me it's not a stroke but I do have MS. I always suspected I had MS & even said MS at the same time he did. So now it's confirmed.  (More)


Coordinator of Room Administrators

JolyRox is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at PWMS@PeopleWithMS.com

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

 

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Boomer Girl

My name is Judy and I go by the name of Boomer Girl on chat. I am 57 years old and have been diagnosed with ms since 1979 which makes it 29 years that ms has been with me. I have been married for 34 years and have 4 children. I quit working in 2004 and I'm now on disability. I love watching movies, reading and in the summer working with my flowers, which I never had the time to do before. I have been blessed so far with being able to live an active life and was able participate in my children's lives. I have progressive ms and so far can still walk (although gimpy) and drive. My ms had alway affected my right side, especially my leg. I have always love exercising so when ms came upon me I just learn to adapt and change my routine so that I could still exercise. I always try not to dwell on that which I cannot do anymore and be oh so thankful for that which I can do. I have ms but ms does not have me  (More)

firecat


story to follow ...
K-Mart's Proudest Arkansas Moment - RonB graces ' Da Place "K-Mart's Finest

RonB has successfully moved into his new digs, and will return to chat next Tuesday, assuming the Cable Guy does his thing !
SEA2006

SEA2006 aka Sharon
I'm Sharon (sea2006), and I was dx'd with Chronic Progressive MS in 1989. From the time they started it took five years to get my diagnosis, but had a lot of problems even before that.

I have a husband of 40 years and two great "kids" - (ages 34 & 37), and a wonderful little Granddogter who just turned two on the weekend.

I live in a rural area of New Brunswick, Canada where the deer roam around my backyard and nature is all around me. Birds, racoons, deer, meese (the plural of moose), the odd fox, and lots of bunnies.  
(Photos)

ChickenMama

 
 It started so innocen tly . . .(It started so innocently . . . . more)
What's Up ?What's Up ?


This could be you*

Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

HeadsUp !

PeopleWithMS - Heads Up ! ! !

Cooling Equipment Distribution

MSAA provides cooling vests (such as the one pictured above) to individuals with MS who qualify for the program.

Many people with multiple sclerosis are heat sensitive. MS research has proven that heat and humidity often aggravate common MS symptoms. MS research has also proven that cooling the body can help lessen the negative effects of heat and humidity on a person with MS.

MSAA's Cooling Equipment Distribution Program is a highly successful branch of the Equipment Distribution Program. In association with the National Aeronautics and Space Administration (NASA), MSAA has conducted extensive research into the effects of moderate, controlled cooling on individuals with heat-sensitive MS. Along with other research studies, results have repeatedly shown that many individuals with heat-sensitive MS find temporary relief of certain symptoms by wearing active cooling garments. Among others, symptom relief may include improvements in energy level, cognitive processing, and motor function through the use of such cooling devices.

The Cooling Equipment Distribution Program provides special cooling apparel at no charge to individuals with MS. "Active Suits" have a separate cooling unit that circulates cool liquid through a vest and cap worn by the user. "Passive" cooling apparel includes vests, collars, bandanas, and wristbands that either hold cool inserts or contain special material that remains cool for up to two hours.

Cooling Collars help regulate body temperature

Active cooling is considered a therapy and requires both a doctor's prescription and supervision for usage. Heat is extracted from the system by re-circulating the fluid through ice. Clinical research has shown that active cooling systems can significantly reduce the temperature in certain areas of the body. When areas of the central nervous system that have been demyelinated are cooled, the conductivity across the damaged area is greatly enhanced. This increased conductivity allows more effective transmission of signals, which can reduce some symptoms.

Passive cooling systems help maintain a cooler body temperature. These can be used outdoors in hot weather or during exercise regimens. These passive systems do not reduce body temperature, and are not considered a therapy. They do provide relief from heat for short periods of time.

To Apply for This Program

Step 1: Click here to view the Cooling Catalog
Step 2: Download the Program Application.
Submit just one application form to cover your selections.
Step 3: Please complete the forms online, print, and sign the forms.
Step 4: Mail the completed forms and any necessary additional documentation (see the Program Application) to:

MSAA
Attn: Program Coordinator - Cooling Equipment Distribution
706 Haddonfield Rd.
Cherry Hill, NJ 08002

 

Montel Williams is promoting the new prescription program 

" Partnership for Prescription Assistance " :  

https://www.pparx.org/

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs

 

Norma alerted us to this important National Multiple Sclerosis Society Program; Direct Assistance. This provides durable medical equipment and other financial aid to those with demonstrated need . Program details vary by chapter.  However, the following will give you an idea of what might be available. Check with your local chapter ( Find Your Chapter ) if you think you might be eligible. A number of our chatters have had luck with this program.

Direct Assistance Now Available

The National MS Society, Michigan Chapter is offering new financial services to address the needs of individuals with multiple sclerosis and their families.

The goal of Direct Assistance is to provide financial assistance to enhance the quality of life and help individuals with MS achieve their highest level of independence.

This program helps chapter members with MS obtain financial assistance in the areas of:

  • Transportation - to and from medical appointments ONLY
  • Home Care - short-term personal care and homemaker/chore services. This service offers assistance in the home with tasks that individuals living with MS are having difficulty completing (meal preparation, light housekeeping, laundry, bathing, and dressing).
  • Respite Care - care when the usual caregiver is temporarily unavailable because of travel, illness or other demands.
  • Short-term counseling - counseling for those facing unexpected challenges as a result of their MS. Limited counseling services are available through in-person and telephone sessions.
  • Medical equipment - the purchase or repair of a variety of equipment such as wheelchairs, walkers and bath equipment.
  • Equipment Loan Closet - for people with MS to borrow, free of charge, equipment that they need for a short period of time.
  • Home & auto modifications - such as lifts, ramps or hand controls.
  • Window air conditioners - limited to no more than one window unit per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Cooling vest - limited to no more thatn one cooling vest per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Emergency response systems - ensures that adults living at home get quick assistance whenever needed - 24 hours a day, 365 days a year.

All assistance is based on financial need and provided according to a sliding fee scale. To obtain assistance, the Chapter requires:

  • A verification of diagnosis.
  • Completion of a confidential financial assistance application
  • Some items/services also require a physician's prescription

For more information or to apply for financial assistance call  800-344-4867.

Services provided depending on available resources. Advance notice required for all services.

Partial support underwritten by the R.M. Gerstacker Foundation.

 
Summer Cooling Ice Vest Info  

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

So I want to apologize. I haven't been keeping up on on book updates. I've been to preoccupied with my own health, which has been having a few issues and that really hasn't been fair of me. And once again I do want to thank everyone for the Anyways I'm ready to concentrate on book updates

Now on to the book update. The book is going over fairly well. (But don't worry if you haven't purchased your book yet, or you want another copy there are still books for sale. Just go to my websitewww.msstories.zoomshare.com for ordering infomation.)

I've had some really positive reviews which I've posted on my website www.msstories.zoomshare.com. I've also had a lot of people tell me the book hit very close to home, which is what I wanted. I want everyone to know that they are not alone!!! But I am sorry if it was hard for anyone to read. I hope that you also found it informative!!!

Since October I've also had a number of book signings, 1 radio interview and a couple of articles in the news paper. Although I haven't posted copies of the newspaper articles. There are pictures from my book signings and the radio interview. And I will get the newspaper articles on there shortly!!

I love feedback on the book both positive and constructive negative comments. 

I hope everyone is happy and holding steady in their health!!!

Take care!!! 

Rebeka
www.myspace.com/msstories

It is also available at www.amazon.com OR www.target.com OR www.totallywell.com OR
www.wellnessbooks.com OR www.target.com OR www.bordersstores.com

Tuesday Night Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat


Tuesday

7pm CST

8pm EST

5 pm PST

 

LFShaw hosts our Tuesday Night Trivia!

Trivia Tuesday, where the host ask the questions.

Sit back, relax.  It's Tuesday night.  Enjoy!

Our Trivia will start Tuesday!

Yensid Queen Hemastat defeated all comers in our Trivial Match of April 22.  And repeated her performance on April 29th ! ! !

Sharpen your wits for the May 6th match

Womens & Mens Wednesday Nights

PeopleWithMS - Women's & Men's Chat Night

Please welcome our woman's night host's 

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  We'll have a Men's chat at same time when there is a subject of interest.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our woman's night host's Norma & Aileen! 

 
And remember:  Any one can use these rooms at anytime.

Thursday Game Night

PeopleWithMS -Games

Thursdays

8 pm EST

7pm CST

5 pm PST 

Fact or Crap! ?

Our Thursday Game Night is seeking a new host volunteer. Contact MrRed 

All you need to bring is a sharp mind and a loaded index finger.

We need your Game Night ideas !
Talk to MrRED or send e-mail to
:
PWMS@PeopleWithMS.com

Saturday Prayer Chat

PeopleWithMS -ChurchChat
Prayer & Support Chat

Saturday  8 pm EST  - 7pm CST  -  5 pm PST
Please join BobbyGene and JolyRox on Saturday Nights

BobbyGene has pastoral training with the Assembly of God and has offered to host a chat broadly oriented towards prayer as a support method.  As he has stated, "In my training I've had to learn the in's and outs of many various religions and I believe we could keep the focus on support and prayer when needed."  

We are providing a special interest room for those interested in prayer of whatever fashion, and focussed discussion of prayer as a support mechanism by those so inclined.    

Please seek other forums for spirited theological debates.
. .

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Turkey and Mushroom
Stroganoff Recipe


This recipe serves: 4 
Preparation time: 10 minutes
Cooking time: 20 minutes

Ingredients
1 pound turkey cutlets, sliced into thin, 1-inch strips
salt to taste
freshly ground black pepper
2 tablespoons olive oil
1 medium onion, sliced
2 cloves garlic, minced
1 pound fresh mushrooms, sliced
1 cup non-fat sour cream
1/2 cup chopped tomatoes, canned or fresh
1 tablespoon Worcestershire sauce
1/4 teaspoon hot sauce, such as Tabasco
2 cups cooked, hot egg noodles

Cooking Instructions
1. Season the turkey strips with salt and pepper. Heat the olive oil in a large skillet over high heat. Add the turkey and brown on all sides, about 6 to 7 minutes total. Set the turkey on a plate and keep warm.
2. Reduce the heat to medium and add the onion. Season lightly with salt and pepper and cook, stirring occasionally, until the onions begin to soften, about 5 minutes. Add the mushrooms and cook until they are soft, about 7 more minutes. Add the garlic and cook for 1 minute more.
3. Add the sour cream, tomatoes, Worcestershire and hot sauces. Combine well and heat thoroughly. Add the turkey and any juices. Taste and adjust the salt and pepper.
4. Divide the egg noodles among 4 plates so that they form a small ring on the plate. Spoon the stroganoff mixture into the center of each ring and serve.

Nutrition Facts
Serving Size: 1 plate with noodles
Calories 467
Total Fat 16 g
Saturated Fat 3 g
Protein 36 g
Total Carbohydrate 43 g
Dietary Fiber 3 g
Sodium 462 mg
Percent Calories from Fat 32%
Percent Calories from Protein 31%
Percent Calories from Carbohydrate 37%

Make it Quicker: Substitute 2 6-ounce cans of sliced mushrooms for the fresh mushrooms.

THANK YOU NELLIE!

Border Grill's Mango Liquado Recipe

This recipe serves: 6 Preparation time: 5 minutes

 Ingredients 4 cups cubed, ripe mango 3 cups water 1/4 cup sugar, or to taste juice of 1 lemon lime wedges for garnish

 Cooking Instructions 1. In a blender, combine the mango and water and puree at high speed until smooth. Thin with more water if desired, and add sugar and lemon juice to taste. Blend again and serve in tall glasses over ice with a wedge of lime. 

Nutrition Facts Serving Size: 1 tall glass Calories 106 Total Fat 0 g Saturated Fat 0 g Protein 1 g Total Carbohydrate 28 g Dietary Fiber 2 g Sodium 2 mg Percent Calories from Fat 2% Percent Calories from Protein 2% Percent Calories from Carbohydrate 96%

THANK YOU NELLIE!

TRIPLE CHOCOLATE CAKE

1 Duncan Hines Devil's Food cake
1(113 g) pkg. instant chocolate pudding
1 cup sour cream
1/2 cup vegetable oil or canola oil
1/2 cup water
4 eggs
1 (300g) pkg. Chipits, milk chocolate  chips, divided

FROSTING

2/3 cup reserved milk chocolate chips
1/3 cup sour cream

CAKE : combine all ingredients except the  chocolate chips in large mixing bowl. Blend, then beat 4 minutes at medium  speed on electric mixer, Reserve 2/3 cup of Chipits for frosting.  Stir remaining Chipits into the batter. Turn batter into a 12-cup bundt  pan, sprayed with Pam. BAKE at 350F for 50 to 60 minutes, or until a  toothpick inserted in centre comes out clean. Cool 10 minutes in pan, then  remove by turning out on wire rack to cool completely.


FROSTING: 

Melt reserved Chipits. Add sour  cream, stirring til smooth. Drizzle over cool cake

TRY IT ITS MINE DEB XOX

Healthy Eating

PeopleWithMS - Healthy Eating

Monday

7pm CST

8pm EST

5 pm PST

Healthy Eating 

'support group'

Healthy Eating support group has started. We added 3 pages to our web site. You can find a print out journal, recipes, and check out the exercise page. Please join Shelly and Norma in there weekly. Everyone needs extra support . Bring idea's! Join us in getting back on a positive way of eating. 

Submit recipes that will be posted 

Please email them to deb@durgin.net

click here

 

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

 

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

Birthdays

PeopleWithMS - Birthdays
 

Linda's Birthday list!

 CLICK HERE CLICK HERE   

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

If your birthday is not on our list please tell Linda when in chat! Linda has been really helping with getting this all organized.

We will post 2 months at a time below!

ROD May 11th
JAMES62 May 11th
Kathie May 30th

Thank you Linda!

 
 

 

Poems

PeopleWithMS - Poems


Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

DISTANCE AND TIME

Been a real bad day
Ainít been a good week
The lifeboat Iím floatin in
Sprung a leak

Nasty circumstance
Has fallen in to my lap
Gonna keep on sinkin
ĎTil I can fill the gap

Sirenís warning came much too late
Next thing Iím driftin at sea
All I can do is shoot off my signal gun
Distance and time will hold the key

Shouldíve paid attention
To the shot fired across my bow
Didnít seem like much when I hit the iceberg
But look at me now

As Iím driftin down
To the bottom of the sea
Can only think of a couple of things
I mightíve done differently

Probably shouldíve
Relearned to swim
Instead of just hangin on
To the first thing floatin by

Shouldnít panic
When things go dim
Distance and time will make it all seemÖ
Like there was a point

Cast away the things that weigh ya down
Otherwise you will sink just like a stone
A safety device is always nice
But youíre better off, if ya can make it on your own

Thereís a possibility
Be it ever so remote
If we can patch these holes
The thing may float

I hung on to that notion
Though it began to slip
Finally from the frozen deep
I did abandon ship

As I made my way back to the surface
I wasnít sure if Iíd drown, or maybe freeze
Every day I get further away, putting
Distance and time between me andÖ
Stormy seas

 

THANK YOU KEN AKA  L8GR8DB8

THE LONELY SIDE OF TOWN 

The skyís a dull gray
Itís another cold day
More than leaves have fallen to the ground
Theyíve all lost their way
Now they will stay
On the lonely side of town

The 3 am crowd
Tattered yet proud
Await a bus thatís nowhere to be found
No busses run that time of night
Itís just another depressing sight
On the lonely side, the lonely side,
The lonely side of town

You ask for spare change
And I wonder are ya deranged
A dollar sends you on your way
Iíd like to help you
But there ainít much that I can do
Not a word I can say
So I must look away

I will be careful thereís no doubt
But my luck may run out
And Iíll find that Iíve fallen out of bounds
Itís my one greatest fear
That Iíll wind up right here
The lonely side of town
The lonely side, the lonely side, lonely side of town.

 

THANK YOU KEN AKA  L8GR8DB8

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed JolyRox Coordinator of RAs.  Our current list of room administrators is:  Norma, LFShaw,  Debby, Linda-NV, MS_Kitty70, JackIL, Aileen, Soporific, Pixie_Dust, Barry, and Sumo58! .  All host at scheduled times and frequently chat off-hosting hours as well.  They can help you if you need help. 

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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