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 PeopleWithMS.com Newsletter


~ 88,000 Chatters Served ~

June 1, 2008 

Healthy Eating Monday
Chat Schedule Tuesday Night Trivia
ChatStar Women's/Men's Wednesday
Stories and Pictures Thursday Game Night 
Recipes & Healthy Eating Saturday Prayer Chat
HeadsUp ! BoomerGirl's LiteSide
Famous People/Birthdays Poems
Rod's Music Shoppe Newsletter Archive

PeopleWithMS - Intro
Finally !  The long awaited PWMS Newsletter arrives in your mailbox !

It's been a busy month for many at PWMS.  Road Trips, Surgery of this and that sort, Doctor's visits galore sprinkled through the month for many of our chatters!  Through it all, the good PeopleWithMS have kept things going, and kept each other in fine spirits. We want to thank all the hosts and chatters who have pitched in to keep things going.  

Our thanks would not be complete without recognition of the efforts of our compatriots in other chats, coming in to visit and fill any gaps in conversation.  The continued success of our cozy little chat would not be possible without the unfaltering assistance, support, and generally entertaining presence of those from other better ( and lesser ) known chats.

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

Chat continues to grow at over 1,000 visitors a week!  If you are newly arriving, or a returning friend from MS Watch, MS World, Jooly's Joint, or another chat, let folks know.  It's great to catch up on what old friends have been up to. At the same time, we have seen that the room become more in touch with helping the newbie to feel welcome.   We're getting new chatters weekly and it's very rewarding to see everyone helping out the newcomers to chat.  



Recent events dictate a restatement of certain facts of life about the PeopleWithMS Chat.    

Our primary focus is Multiple Sclerosis and our objective is support.  Not just boring clinical information - support is under a big tent, with broad expanse of fabric.   So we have many rooms to cover the many topics and personal perspectives.  

Remember -This is your house as well as ours.
We donate the chatroom, and solicit no outside sponsors:  We rely on our chatters to volunteer their time and effort to make this the best it can be.  We keep a very open mind about our chat rooms, recognizing that we are catering to a wide audience. We really don't want to make rules about what you think is relevant help. But we do expect some display of common sense and respect.  
  • The Lobby is the Town Common, where people have the least in common.  So exercise restraint and patience!
  • The Rooms List covers some common general interests or attitudes, and special purpose rooms, so if that is what you and other chatters are into, go there, and others may follow.  
  • Private Messages are for quick exchange of private or side-conversation information, like an e-mail address, interesting web site address, or company phone number.
  • Private Discussion of personal, perhaps embarrassing physical or other issues can be taken to a special-purpose room such as the WomenOnly, MenOnly, or OffTopic Room
  • Other Topics simply belong outside this chat.  Dubious personal topics, commercial activities, and proclivities such as media piracy & warez, cybersex, snakeoil miracle cures, etc. have no place in any public or private room on PeopleWithMS.  Please take it out of PeopleWithMS onto an instant messanger. 

Transcripts are maintained for the safety and security of our chatters, just like any other major chat site.  They allow us to identify the IP address and location of problem chatters, who don't might not belong.  When someone reports misbehavior in chat, transcripts allow investigation and substantiation of the accusation.  We don't want to throw anybody out.  However, we also don't want creeps harrassing chatters.  


The Rooms List

Main Chat Room  

(aka " The Lobby ")  This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

CoffeeHouse (rated PG)

Grab some friends, have a latte!  Or kick back with a Cappuccino.

Lounge ( rated R ) Bring your friends in here when the off-color jokes, rowdy discussions, or other topics start offending delicate sensibilities in other rooms. !  If discussion goes XXX, get out of chat and onto IM, or book a hotel.
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 2 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is for Women only!  It can be used anytime at all. We also have Women's Night on Wednesday 8PM EST
Men's Only This room for Men only can be used anytime at all, or on Wednesday 8PM EST (assuming there is anything to talk about)
Off-Topic

The room for discussions of limited interest subjects.  

Prayer Chat BobbyGene and JolyRox have offered to host a Saturday Night Chat focussed on Prayer and Support.    
Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

 

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.


Chat Star

L8GR8DB8


 I'm Ken. I've had MS for 12 years or so. Stress from a few different things seemed to bring on my symptoms, which were mild at first, but a few years after my dx, my symptoms were so mild (and the idea of injecting myself scared me) so I blew off available injectable meds... then I had my first major exacerbation. I spent 6 days in the hospital getting IV Solumedrol. Suddenly, injecting meds didn't seem like such a bad idea. I started on Copaxone, then after neuro (I think of him as the Yoda of neuros) interviewed me for a couple of hours, he showed me research demonstrating that Beta Seron took effect sooner, so I switched to Beta. Not long after that, Beta didn't seem to work so well, so I switched to Rebif, which I've been on since December of 02. After I started shooting up (I like to be as dramatic as possible) I learned of MSWatch, a cool website that also had a chatroom I started visiting regularly. Eventually the MSWatch chatroom shut down, and a friend started her own chatroom called GG's Place. Lots of friends from MSWatch gravitated toward GG's place, and now some of us come here, to PeopleWithMS, which has the best emoticons I've ever seen! lol... and the people here are pretty darn cool too!!!   (More)


Coordinator of Room Administrators

JolyRox is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at PWMS@PeopleWithMS.com

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

 

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Alex

I was diagnosed with Chronic Progressive M.S. in 1980 (soon after I got working full-time). I’ve been paraplegic since 1985, I was fortunate to find full-time night shift work with insurance before my diagnosis. I was a solo telephone operator at Philadelphia’s Graduate Hospital responsible for assembling code, trauma, and operating room teams. I drive a converted van (my third ) right from my wheelchair. I used quiet moments at night to write and work on my award-winning disABILITY resource web site at http://www.netreach.net/~abrejcha/ or http://disabilityhelper.org/ (first better as otherwise .org site keeps showing in URL window). In terms of writing, I started with newspaper and magazine work and my first three books were published in 2004 and they & other work of mine is listed on my bibliography at http://www.netreach.net/~abrejcha/biblio.htm (including links to reprints). My employer of 27 years (23 in wheelchair) closed 2007 and I was unable to find another accessible night shift job - necessary due to my attendant care availability – but I was fortunate to get approved for S.S.D. – admittedly happy to stop a 66 mile daily commute. Now I write motivational pieces and some fiction and do peer counseling.  (More)
Kathlame

BIRTH WAS 04/29/60.  2ND TRIP TO HOSPITAL WAS 9 MO LATER.  FROM WHAT I WAS TOLD HIGH FEVER.  LAST CHILD OF 6 DYSFUNCTIONALS ( BUT AREN'T WE ALL? ) 

MS REARED IT'S UGLY HEAD ( OBVIOUSLY )  OR I WOULDN'T BE WRITING THIS. AS MANY DO, ALWAYS BLAME ANYTHING BUT MS ON THE SYMPTOMS. 

MET IAN ONLINE FROM A MUTUAL FRIEND IN A CHAT RM. AS GETTING ALONG WITH ANYTHING IS DIFFICULT, THINK OUR 5YRS IS WORTH AT LEAST 10! GUESS KNOWING YOU NEED SOMEONE HELPS THAT WELL 

THINK I SAID IT ALL - WANNA KNOW ANYTHING MORE ? ASK ME IN CHAT  (More Pics)

cfresque
cfresque in action !
I am a 35 year old male from NC, diagnosed in 2008 after optic neuritis showed up. It turned out that I had been missed diagnosed for many years. After 2 wks of testing my neuro, optic neuro and another neuro that my neuro called in, confirmed in April of 2008 I have RRMS. I was scared at first as a career firefighter I didn't want to loose my job that I dearly love. I just put my faith in God and accepted the fact that I have MS. My wife of 12 yrs Kathryn had a harder time accepting it than I did, we are still learning. Doc has me on steroids to get a handle on my ON. As my wife says I need to slow down, but I don't know how to. So I am going back to built furniture in my spare time, you don't rush craftsmanship and my 8 year old son enjoys being in the shop with me.  (Action Pic)

Tazzy69

MY NAME IS TAMMY AKA TAZZY69 AND I LIVE IN WISCONSIN. I AM MARRIED, HAVE 2 BOYS LUCAS 13, WILLIAM 19, AND A BOSTON TERRIER, BRUTUS, 7 YRS OLD. 

I WAS DIAGNOSED WITH MS MARCH 14, 1997 THE DAY I FINALLY HAD AN ANSWER. IT TOOK THE DR'S OVER 3 YRS TO REALIZE THAT THERE WAS SOMETHING REALLY WRONG WITH ME, AND IT WASN'T ALL IN MY HEAD! I STARTED ON BETASERON THE WEEK FOLLOWING MY DIAGNOSIS. THAT LASTED ABOUT A YEAR OR SO. MY BODY REACTED TO THE POINT WHERE I WAS PUT IN THE HOSPITAL AND IN A COMA FOR 9 DAYS. AFTER RECOVERING, I THEN WENT ON AVONEX, WHICH WAS A HUGE NONO , AS I LASTED ONLY 1 MONTH (4 INJECTIONS) ON THAT.  (More)


MS_Kitty780's Latest Litter

Lucky aka MrMan
It Came From Another Planet . . .
It Came From Another Planet . . .
RubySlipperedOne's Bubba

In Memory of.Bubba
In Loving Memory of Bubba August 14, 1997- April 15, 2008

When God had made the earth and sky, the flowers and the trees,
He then made animals, the fish, the birds and bees.

And when at last He'd finished, not one was quite the same.
He said, "I'll walk this world of mine and give each one a name."

And so He traveled far and wide and everywhere He went,
a little creature followed Him until it's strength was spent.

When all were named upon the earth, and in the sky and sea,
the little creature said, "Dear Lord, there's not one left for me."

Kindly the Father said to him, "I've left you to the end,
I've turned my own name back to front and called you dog, my friend."

Author Unknown

This could be you*

Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

HeadsUp !

PeopleWithMS - Heads Up ! ! !

Cooling Equipment Distribution

MSAA provides cooling vests (such as the one pictured above) to individuals with MS who qualify for the program.

Many people with multiple sclerosis are heat sensitive. MS research has proven that heat and humidity often aggravate common MS symptoms. MS research has also proven that cooling the body can help lessen the negative effects of heat and humidity on a person with MS.

MSAA's Cooling Equipment Distribution Program is a highly successful branch of the Equipment Distribution Program. In association with the National Aeronautics and Space Administration (NASA), MSAA has conducted extensive research into the effects of moderate, controlled cooling on individuals with heat-sensitive MS. Along with other research studies, results have repeatedly shown that many individuals with heat-sensitive MS find temporary relief of certain symptoms by wearing active cooling garments. Among others, symptom relief may include improvements in energy level, cognitive processing, and motor function through the use of such cooling devices.

The Cooling Equipment Distribution Program provides special cooling apparel at no charge to individuals with MS. "Active Suits" have a separate cooling unit that circulates cool liquid through a vest and cap worn by the user. "Passive" cooling apparel includes vests, collars, bandanas, and wristbands that either hold cool inserts or contain special material that remains cool for up to two hours.

Cooling Collars help regulate body temperature

Active cooling is considered a therapy and requires both a doctor's prescription and supervision for usage. Heat is extracted from the system by re-circulating the fluid through ice. Clinical research has shown that active cooling systems can significantly reduce the temperature in certain areas of the body. When areas of the central nervous system that have been demyelinated are cooled, the conductivity across the damaged area is greatly enhanced. This increased conductivity allows more effective transmission of signals, which can reduce some symptoms.

Passive cooling systems help maintain a cooler body temperature. These can be used outdoors in hot weather or during exercise regimens. These passive systems do not reduce body temperature, and are not considered a therapy. They do provide relief from heat for short periods of time.

To Apply for This Program

Step 1: Click here to view the Cooling Catalog
Step 2: Download the Program Application.
Submit just one application form to cover your selections.
Step 3: Please complete the forms online, print, and sign the forms.
Step 4: Mail the completed forms and any necessary additional documentation (see the Program Application) to:

MSAA
Attn: Program Coordinator - Cooling Equipment Distribution
706 Haddonfield Rd.
Cherry Hill, NJ 08002

 

Montel Williams is promoting the new prescription program 

" Partnership for Prescription Assistance " :  

https://www.pparx.org/

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs

 

Norma alerted us to this important National Multiple Sclerosis Society Program; Direct Assistance. This provides durable medical equipment and other financial aid to those with demonstrated need . Program details vary by chapter.  However, the following will give you an idea of what might be available. Check with your local chapter ( Find Your Chapter ) if you think you might be eligible. A number of our chatters have had luck with this program.

Direct Assistance Now Available

The National MS Society, Michigan Chapter is offering new financial services to address the needs of individuals with multiple sclerosis and their families.

The goal of Direct Assistance is to provide financial assistance to enhance the quality of life and help individuals with MS achieve their highest level of independence.

This program helps chapter members with MS obtain financial assistance in the areas of:

  • Transportation - to and from medical appointments ONLY
  • Home Care - short-term personal care and homemaker/chore services. This service offers assistance in the home with tasks that individuals living with MS are having difficulty completing (meal preparation, light housekeeping, laundry, bathing, and dressing).
  • Respite Care - care when the usual caregiver is temporarily unavailable because of travel, illness or other demands.
  • Short-term counseling - counseling for those facing unexpected challenges as a result of their MS. Limited counseling services are available through in-person and telephone sessions.
  • Medical equipment - the purchase or repair of a variety of equipment such as wheelchairs, walkers and bath equipment.
  • Equipment Loan Closet - for people with MS to borrow, free of charge, equipment that they need for a short period of time.
  • Home & auto modifications - such as lifts, ramps or hand controls.
  • Window air conditioners - limited to no more than one window unit per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Cooling vest - limited to no more thatn one cooling vest per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Emergency response systems - ensures that adults living at home get quick assistance whenever needed - 24 hours a day, 365 days a year.

All assistance is based on financial need and provided according to a sliding fee scale. To obtain assistance, the Chapter requires:

  • A verification of diagnosis.
  • Completion of a confidential financial assistance application
  • Some items/services also require a physician's prescription

For more information or to apply for financial assistance call  800-344-4867.

Services provided depending on available resources. Advance notice required for all services.

Partial support underwritten by the R.M. Gerstacker Foundation.

 
Summer Cooling Ice Vest Info  

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

So I want to apologize. I haven't been keeping up on on book updates. I've been to preoccupied with my own health, which has been having a few issues and that really hasn't been fair of me. And once again I do want to thank everyone for the Anyways I'm ready to concentrate on book updates

Now on to the book update. The book is going over fairly well. (But don't worry if you haven't purchased your book yet, or you want another copy there are still books for sale. Just go to my websitewww.msstories.zoomshare.com for ordering infomation.)

I've had some really positive reviews which I've posted on my website www.msstories.zoomshare.com. I've also had a lot of people tell me the book hit very close to home, which is what I wanted. I want everyone to know that they are not alone!!! But I am sorry if it was hard for anyone to read. I hope that you also found it informative!!!

Since October I've also had a number of book signings, 1 radio interview and a couple of articles in the news paper. Although I haven't posted copies of the newspaper articles. There are pictures from my book signings and the radio interview. And I will get the newspaper articles on there shortly!!

I love feedback on the book both positive and constructive negative comments. 

I hope everyone is happy and holding steady in their health!!!

Take care!!! 

Rebeka
www.myspace.com/msstories

It is also available at www.amazon.com OR www.target.com OR www.totallywell.com OR
www.wellnessbooks.com OR www.target.com OR www.bordersstores.com


Check out " The Great Tribulation "The Great Tribulation
by Robert Williams, Jr. of Johnston City, Illinois.

The Great Tribulation is a phenomenal, comprehensive book on the end time with a profound, action-packed thriller about life during the end time. Cities leveled by earthquakes, floods, volcanoes, and meteor showers could it really happen?

Tuesday Night Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat


Tuesday

7pm CST

8pm EST

5 pm PST

 

LFShaw hosts our Tuesday Night Trivia!

Trivia Tuesday, where the host ask the questions.

Sit back, relax.  It's Tuesday night.  Enjoy!

Our Trivia will start Tuesday!

BOOMER'S ODE TO TRIVIA

Everyday Tuesday is trivia night,
And much to my delight,
I actually won the right,
To claim the trivia crown.

Alas, no squeaky sure win,
I'll take it anyway I can

For little did anyone know,
That my little song solo would go,
And mess up the sixties round so.

And so it was to be
That the win was given to me:

TO BE THE MAY 13TH TRIVIA QUEEN


May 20th Trivia

LFShaw and Rod provided an entertaining evening of trivia ( facilitated by MrRed's absence )  Strawberries, Hamburgers, and Memorial Day were the Multiple Choice.  
Results:


JackIL & Rod tied for First Place
Nancy wrestled Yensid Queen Hemastat to a tie for Second Place
Boomergirl locked up Third Place


In the May 2
7
th match-up, Boomergirl did it again ! ! !
Besting all comers n three diverse rounds of Oddities , Urban Legends , and Nasty Predicaments

Stallward Scorekeeper
MrRed again secured last place as most confused of the evening.

BOOMER'S ODE TO TRIVIA II

I can't believe I did it,
And it wasn't even by default,
For just last Tuesday nite,
A true Travia Queen has evolved,
For Boomer Girl's answers were right.

Now I give you my solemn vow,
That this is the last poem I'll write,
For to gloat is not really how,
I wish (May 27th) memories to be but......
To me my win was just DYNAMITE!!!!!!!!!!!!!


Womens & Mens Wednesday Nights

PeopleWithMS - Women's & Men's Chat Night

Please welcome our woman's night host's 

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  We'll have a Men's chat at same time when there is a subject of interest.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our woman's night host's Norma & Aileen! 

 
And remember:  Any one can use these rooms at anytime.

Thursday Game Night

PeopleWithMS -Games

Thursdays

8 pm EST

7pm CST

5 pm PST 

Thursday Night Games

We are seeking a host volunteer.  If you have an idea for a simple online game we can all play in chat, bring it on !  Hosting is easy & MrRed will keep score!

All you need to bring is a sharp mind and a loaded index finger.


Talk to MrRED or send e-mail to
:
PWMS@PeopleWithMS.com

Saturday Prayer Chat

PeopleWithMS -ChurchChat
Prayer & Support Chat

Saturday  8 pm EST  - 7pm CST  -  5 pm PST
Please join BobbyGene and JolyRox on Saturday Nights

BobbyGene has pastoral training with the Assembly of God and has offered to host a chat broadly oriented towards prayer as a support method.  As he has stated, "In my training I've had to learn the in's and outs of many various religions and I believe we could keep the focus on support and prayer when needed."  

We are providing a special interest room for those interested in prayer of whatever fashion, and focussed discussion of prayer as a support mechanism by those so inclined.    

Please seek other forums for spirited theological debates.
. .

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Roasted Red Pepper Vinaigrette Recipe


This recipe serves: 8 
Preparation time: 10 minutes
Cooking time: 8 minutes

Ingredients
1 red pepper
1/2 teaspoon kosher salt
2 tablespoons Dijon mustard
2 tablespoons verjus, white or red
2 tablespoons red wine vinegar
2 tablespoons extra virgin olive oil
4 tablespoons chicken stock
1 tablespoon chopped chives
freshly ground black pepper

Cooking Instructions
1. Preheat the broiler.
2. Slice the pepper in half lengthwise and remove the seeds. Place the 2 halves, skin side up, on a cookie sheet and press down so they lie flat.
3. Place the pepper under the broiler until the skin is evenly blistered, about 5 to 8 minutes.
4. Carefully remove the pepper from the cookie sheet and place in a bowl. Cover tightly with plastic wrap and let sit for 5 minutes. Uncover, peel off the skin and discard.
5. Puree the roasted red pepper and salt in a food processor.
6. Add the mustard and puree. Add the verjus and vinegar by the tablespoon, pureeing after each addition.
7. With the motor running, add the olive oil and stock slowly through the feed tube.
8. Stir in the chives and pepper. Adjust the salt and pepper to taste.


Nutrition Facts
Serving Size: 2 tablespoons
Calories 42
Total Fat 4 g
Saturated Fat 1 g
Protein 0 g
Total Carbohydrate 1 g
Dietary Fiber 0 g
Sodium 216mg
Percent Calories from Fat 84%
Percent Calories from Protein 4%
Percent Calories from Carbohydrate 12 %

 

THANK YOU NELLIE!

Maple Angel Cake Recipe

This recipe serves: 14 
Preparation time: 10 minutes
Cooking time: 1 hour

Ingredients
1 cup cake flour
1 1/2 cups superfine granulated sugar
1 1/4 cups egg whites (about 10 large eggs whites), at room temperature
1 1/4 teaspoons cream of tartar
1/4 teaspoon salt
1/2 teaspoon vanilla extract
1/2 teaspoon maple extract

Cooking Instructions
1. Preheat the oven to 350°F.
2. Add 1/2 cup of the sugar to the flour and sift twice.
3. With an electric mixer on high speed, beat the egg whites, cream of tartar and salt until soft peaks form when the mixer is removed from the batter.
4. Add half of the remaining sugar and beat for 1 minute. Add the remaining sugar, 2 tablespoons at a time, beating after each addition.
5. Stir in the vanilla and maple extract.
6. Fold the flour and sugar mixture into the egg whites, 1/4 cup at a time, just until incorporated.
7. Put the batter in an ungreased 10" tube pan and bake until the cake is light golden brown and springy to the touch, about 1 hour. Invert the pan and let the cake cool completely before removing from the pan.


Nutrition Facts

Serving Size: 1 slice (1/14 of cake)
Calories 129
Total Fat 0 g
Saturated Fat 0 g
Protein 3 g
Total Carbohydrate 29 g
Dietary Fiber 0 g
Sodium 78 mg
Percent Calories from Fat 1%
Percent Calories from Protein 89%
Percent Calories from Carbohydrate 10%

THANK YOU NELLIE!

Steve Raichlen's Ricotta Cheesecake Recipe


This recipe serves: 12 
Preparation time: 20 minutes
Cooking time: 60 minutes

Ingredients
1/4 cup Marsala wine, or other sweet wine
1/2 cup golden raisins
1/2 pound low-fat cream cheese, at room temperature
2 pounds low-fat ricotta cheese
1 cup sugar
3 tablespoons flour
1/4 teaspoon salt
2 eggs
5 egg whites
2 teaspoons grated lemon zest
2 teaspoons grated orange zest
1 tablespoon vanilla extract
1/4 cup diced candied orange peel, lemon peel, or a mixture of both
1/4 cup toasted pine nuts

Cooking Instructions
1. Pour the Marsala over the raisins in a small bowl and let soak until soft, about 10 minutes. Drain well.
2. Preheat the oven to 350°F. (The rack should be set in the upper third of the oven.) Bring 1 quart water to a boil. Wrap a piece of foil around the bottom and sides of the springform pan. (This prevents water from leaking in.)
3. Puree the ricotta in the food processor, scraping down the sides several times. Add the cream cheese and puree until smooth. Add the sugar, 2 tablespoons of the flour, and salt and puree. Add the eggs, egg whites, lemon and orange zest, and vanilla and puree. Toss the raisins and candied orange peel with the remaining 1 tablespoon flour in a small bowl. Add the raisins, candied peel, and pine nuts to the batter and run the machine in short bursts to mix. (Do not puree: you want these ingredients to remain whole.) Pour the mixture into the prepared pan. Tap the pan a few times on the work counter to knock out any bubbles.
4. Set the springform pan in a roasting pan in the oven. Add 1 inch boiling water to the roasting pan and bake the cheesecake until set, 40 to 60 minutes. To test for doneness, gently poke the side — when the top no longer jiggles, the cheesecake is cooked. Another test: an inserted skewer will come out clean when the cheesecake is cooked. Do not overcook or the cheesecake will become watery.
5. Transfer the cheesecake to a cake rack to cool to room temperature, then refrigerate until cold. To serve, run the tip of a small knife around the inside of the pan. Unfasten the sides. Cut into wedges for serving.


Nutrition Facts
Serving Size: 1 slice
Calories 340
Total Fat 12 g
Saturated Fat 6 g
Protein 19 g
Total Carbohydrate 35 g
Dietary Fiber 1 g
Sodium 224 mg
Percent Calories from Fat 34%
Percent Calories from Protein 23%
Percent Calories from Carbohydrate 42%


Make it Lower Fat: Use fat-free ricotta cheese and substitute 1 cup plus 2 tablespoons of egg substitute for the 2 eggs and 5 egg whites. This lowers the fat to 5.6 grams and the saturated fat to 1.7 grams.

THANK YOU NELLIE!

Healthy Eating

PeopleWithMS - Healthy Eating

Monday

7pm CST

8pm EST

5 pm PST

Healthy Eating 

'support group'

Healthy Eating support group has started. We added 3 pages to our web site. You can find a print out journal, recipes, and check out the exercise page. Please join Shelly and Norma in there weekly. Everyone needs extra support . Bring idea's! Join us in getting back on a positive way of eating. 

Submit recipes that will be posted 

Please email them to deb@durgin.net

click here

 

Boomergirls's Lite Side

BoomerGirl's Lite Side
More About BoomergirlBoomergirl's
Lite
Side
I stayed up all night playing poker with tarot cards. I got a full house and four people died.
Steven Wright

One time I was riding an escalator and I tripped. I fell down the stairs for an hour and a half.
Demetri Martin
Churches In Vegas

This may come to a surprize to those of you not living in Vegas, but there are more Catholic Churches than casinos.

But surprizingly, some worshippers at Sunday Services will give casino chips rather than cash when the bucket is passed.

Since they get their chips from many different casinos, the church have devised a method to collect their offerings.

The churches send all their collected chips to a nearby Francisan Monastary for sorting and then the chips are taken to the casino or their origin and cashed in.

This is done by the "CHIP MONKS."
HIPPOCRATIC OAFS


Some writers use a nom de plume instead of their real names, I took my younger brother to a dentist who should try a nom de doctor. The nameplate outside his office read "General Dentistry, Dr. Will Hurt." 

Miguel Castillo



My husband had an eye infection that was diagnosed as ocular herpes. His physician wasn't about to let him live that one down. "So, Fred," he joked, "been looking for love in all the wrong places?" 

1) Hale Business Systems, Mary Kay Cosmetics, Fuller Brush, and W.R. Grace Co- -will merge and become: Hale, Mary Fuller, Grace

2) Poly Gram Records, Warner Brothers and Zest Crackers--join forces and become Poly, Warner, Cracker

3) 3M will merge with Goodyear and become MMM Good

4) Zipper Manufacturing, Audi Motors, Dofasco and Dakota Mining will merge and become Zip Audi Do Da

5) FedEx is expected to join its competitor UPS and become Fed Up

6) Fairchild Electronics and Honeywell Computers will become Fairwell Honeychild

7) Grey Poupon and Docker Pants are expected to become Poupon Pants

8) Knots Berry Farm and the National Organization of Women will become Knott Now





I used to eat a lot of natural foods until I learned that most people die from natural causes. anonymous

GASOLINE HUMOR

Just a little humor to help ease the pain of your next trip to the pump.

Comparisons With gasoline..
Think Gasoline is expensive
This makes you think and also put things in perspective.

  • Diet Snapple 16oz. $1.29=$10.32 per gallon
  • Lipton Ice Tea 16 oz. $1.19=$9.52 per gallon
  • Gatorade 20 oz. $1.59=$10.17 per gallon
  • Ocean Spray 16oz. $1.29= $10.00 per gallon
  • Brake Fluid 12oz. $3.15=33.60 per gallon
  • Vicks Nyquil 6oz. $8.35=$178.13 per gallon
  • Pepto Bismol 4oz. $3.85=$123.20 per gallon
  • White Out 7oz. $1.39=$25.42 per gallon
  • Scope 1.5 oz. $0.99=$84.48 per gallon

And this is the REAL KICKER!!!!!

Evian Water 9oz $1.49=$21.19 per gallon $21.19 for WATER - and the buyers don't even know the source (EVIAN spelled backwards is NAIVE.)

So the next time you're at the pump, be glad you're car doesn't run on water or Scope,a White Out, or God forbid, Pepto Bismol or NyQuil.


Cats are smarter than dogs, you can't get eight cats to pull a sled through snow.
Jeff Valdez
BREAKING NEWS:

CNN reports that gas stations will start showing PORN movies on the screens of the pumps, so that you can see someone else get screwed at the same time you do.....

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

 

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

Birthdays

PeopleWithMS - Birthdays
 

Linda's Birthday list!

 CLICK HERE CLICK HERE   

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

If your birthday is not on our list please tell Linda when in chat! Linda has been really helping with getting this all organized.

We will post 2 months at a time below!


Kathie May 30th
Debby June 5th
LADY/Marlene June 9th
LISA JUNE 14TH
Kerri? KERRI 4776  Anniversary June 20th
Ditto Anniversary June 20th
Dennis Anniversary July 7th
Gailpooh MN July 15th
RED JULY 16TH
Steph July 20th
Pitchmonke Anniversary July 22nd
HappyHappy July 23d
PetsRUS6 Laurie July 26th
TruckersWife July 29th

Thank you Linda!

 
 

 

Poems

PeopleWithMS - Poems


Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

There are a lot of things I could do,
at least according to you.
Where there's a will, there's a way,
and I won't plan a strenuous day.

I appreciate the offer,
but I'm afraid I'm going to pass.
Like the gauge that reads empty,
the car starts, but soon runs out of gas.

I know it's hard to understand,
but some things are beyond me today.
At times I hardly make a move,
and just barely get through the day.

Sometimes walking across the room,
is a mental and physical strain.
I know I would enjoy myself,
but I wouldn't enjoy the pain.
You think I'm being difficult.
Believe me, that isn't true.
You can't begin to imagine,
all the things I'd like to do.

Nobody willingly gives up,
all the pleasures of the past.
We fight to hold on to them,
wishing forever they would last.

My life now has limitations,
far more than you can see.
If My "No" disappoints you,
Imagine, how it's affecting me! 

Thank you for sharing this poem with us

Randall Taylor (pitchmonke)

 

A twitch in my hand or a tingle in my toes

what happens next nobody knows.

Sometimes we can't remember what we want to say

but we have to carry on from day to day.

The pain we all endure is hard to comprehend

and all we can do is pray for a cure to make the pain end.

Fear of the unknown is always there

and the feelings that some people just don't care.

People can't see what we feel

and some even say it's not even real.

The sadness comes and strangles your heart

and makes the next day hard to start.

But don't give up hope there's always tomorrow

and don't give in to the heartache and sorrow.

We have to believe there's an end in sight

and for our health we'll continue to fight.

                                                                                                                                                Written by Terri House

 

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed JolyRox Coordinator of RAs.  Our current list of room administrators is:  Norma, LFShaw,  Debby, Linda-NV, MS_Kitty70, JackIL, Aileen, Soporific, Pixie_Dust, Barry, and Sumo58.  All host at scheduled times and frequently chat off-hosting hours as well.  They can help you if you need help. 

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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Send us a request;  PWMS@PeopleWithMS.com

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