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 PeopleWithMS.com Newsletter


~ 91,000 Chatters Served ~

June 21, 2008 

Healthy Eating Monday
Chat Schedule Tuesday Night Trivia
ChatStar Women's/Men's Wednesday
Stories and Pictures Thursday Game Night 
Recipes & Healthy Eating Saturday Prayer Chat
HeadsUp ! BoomerGirl's LiteSide
Famous People/Birthdays Poems
Rod's Music Shoppe Newsletter Archive

PeopleWithMS - Intro
PeopleWithMS wants to thank each and every Room Administrator, Host, and Regular Chatter for their continued presence and support of our family of chatters.  It takes all of us working together to make this website and chat successful. Please get involved and make a contribution in whatever way you think will further the goals of the site.
Five Million Retirees and Disabled Vets who may qualify for Tax Rebates will miss out   because they haven't filed tax returns.  Don't you be one of them ! ! !

Retirees and disabled veterans who received at least $3,000 in benefits in 2007 are eligible for a rebate of $300, or $600 for a married couple. To receive the rebate, they must file a 2007 tax return — even if they owed no federal tax last year.  Retirees and veterans don't have to fill out an entire tax return to receive the rebate. They just need to write in a few lines on Form 1040A. The return must be filed before Oct. 15
.  File yours today ! ! !

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

Chat continues to grow at over 1,000 visitors a week!  If you are newly arriving, or a returning friend from MS Watch, MS World, Jooly's Joint, or another chat, let folks know.  It's great to catch up on what old friends have been up to. At the same time, we have seen that the room become more in touch with helping the newbie to feel welcome.   We're getting new chatters weekly and it's very rewarding to see everyone helping out the newcomers to chat.  



Recent events dictate a restatement of certain facts of life about the PeopleWithMS Chat.    

Our primary focus is Multiple Sclerosis and our objective is support.  Not just boring clinical information - support is under a big tent, with broad expanse of fabric.   So we have many rooms to cover the many topics and personal perspectives.  

Remember -This is your house as well as ours.
We donate the chatroom, and solicit no outside sponsors:  We rely on our chatters to volunteer their time and effort to make this the best it can be.  We keep a very open mind about our chat rooms, recognizing that we are catering to a wide audience. We really don't want to make rules about what you think is relevant help. But we do expect some display of common sense and respect.  
  • The Lobby is the Town Common, where people have the least in common.  So exercise restraint and patience!
  • The Rooms List covers some common general interests or attitudes, and special purpose rooms, so if that is what you and other chatters are into, go there, and others may follow.  
  • Private Messages are for quick exchange of private or side-conversation information, like an e-mail address, interesting web site address, or company phone number.
  • Private Discussion of personal, perhaps embarrassing physical or other issues can be taken to a special-purpose room such as the WomenOnly, MenOnly, or OffTopic Room
  • Other Topics simply belong outside this chat.  Dubious personal topics, commercial activities, and proclivities such as media piracy & warez, cybersex, snakeoil miracle cures, etc. have no place in any public or private room on PeopleWithMS.  Please take it out of PeopleWithMS onto an instant messanger. 

Transcripts are maintained for the safety and security of our chatters, just like any other major chat site.  They allow us to identify the IP address and location of problem chatters, who don't might not belong.  When someone reports misbehavior in chat, transcripts allow investigation and substantiation of the accusation.  We don't want to throw anybody out.  However, we also don't want creeps harrassing chatters.  


The Rooms List

Main Chat Room  

(aka " The Lobby ")  This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

CoffeeHouse (rated PG)

Grab some friends, have a latte!  Or kick back with a Cappuccino.

Lounge ( rated R ) Bring your friends in here when the off-color jokes, rowdy discussions, or other topics start offending delicate sensibilities in other rooms. !  If discussion goes XXX, get out of chat and onto IM, or book a hotel.
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 2 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is for Women only!  It can be used anytime at all. We also have Women's Night on Wednesday 8PM EST
Men's Only This room for Men only can be used anytime at all, or on Wednesday 8PM EST (assuming there is anything to talk about)
Off-Topic

The room for discussions of limited interest subjects.  

Prayer Chat BobbyGene and JolyRox have offered to host a Saturday Night Chat focussed on Prayer and Support.    
Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

 

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.


Chat Star

BoomerGirl


My name is Judy and I go by the name of Boomer Girl on chat. I am 57 years old and have been diagnosed with ms since 1979 which makes it 29 years that ms has been with me. I have been married for 34 years and have 4 children. I quit working in 2004 and I'm now on disability. I love watching movies, reading and in the summer working with my flowers, which I never had the time to do before. I have been blessed so far with being able to live an active life and was able participate in my children's lives. I have progressive ms and so far can still walk (although gimpy) and drive. My ms had alway affected my right side, especially my leg. I have always love exercising so when ms came upon me I just learn to adapt and change my routine so that I could still exercise. I always try not to dwell on that which I cannot do anymore and be oh so thankful for that which I can do. I have ms but ms does not have me !!!   (More)


Coordinator of Room Administrators

JolyRox is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at PWMS@PeopleWithMS.com

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

 

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Charles


I was diagnosed with R.R MS in 1/94, after falling in the bathroom after showering and shaving. Had a difficult time being diagnosed. the GP didn't know what it was and then a high school friend I should see a neurologist. I was a computer programmer since high school and had to stop working 10/98. Been on Avonex since it was available but since I have always had a strong reaction to it have stopped using it; Going to talk with my neurologist about trying something else.

Male, 40 YO, North Carolina
 (More)
Jodie

Hi my name is Jodie. I am 26. I have 4 children and loving husband. I first started this journey 3 years ago.  I lost vision in my right eye.  No one could find anything wrong. Then a couple months later the other eye went. Still no answers. Finally all that went away my doctors gave me a pretty good chance that I would have MS within 5 years. Well this past year it went all down hill. My legs started doing funny things. Then other things like my face, side, back and several other weird tingling sensations. I really got scared when my legs felt like they could give out. So back to the doctor I went had another brain MRI and nothing. So finally they done a mid spine MRI and found the lesions there. One thing I have to say is thank GOD they did find what was wrong. I was starting to think I was crazy. So he went ahead and put me on predisones, which has really helped. I am to start copaxone any day now. One thing is for sure I will not let MS control me. I will kick its butt. My kids and husband need me and I intend to stay healthy and strong for them and myself.  (More)
Kace

will send more of a story when i make up some interesting stuff to lie about.....i appreciate all whom i've chatted with so far and find the kinship similar to the environment at MGH ms chat where i chatted from '96 to '02.....i am down to one working hand as i have a virulent strain of chronic-progressive ms.....it has indeed been a disease of attrition for me.....my children and grandchildren are my delight....i am a glad man....thang que, kc   (More)
Sweetness

Well I started having these weird numbness in my left arm and left leg and they lasted for only about 30 seconds or so for about a month or so and this was about 7-8 years ago and I didn’t think much of it; I mean I was a teenager 17 or 18 years old and all I thought about was how to have fun and stuff so I didn’t want that to get me down. I saw a physician whom diagnosed with depression at that time and put me on Paxil. I took Paxil for a month and I was fine and back to normal so I figured oh it was nothing and I really was just depressed. Some years passed and I was just fine for the next 5 upcoming years of my life until the year of my 25th birthday. In October 2008 just two months before I turned 25, one day I woke up getting ready for work and I felt this light pain in my left leg’s calf and I just thought it was only a soar muscle so I got ready and left for work . This continued for a week and half except that my muscle became more soar and my ability to walk with my left leg was decreasing quickly.   (More)
Betrfly

Story to Follow ..........
Story to follow 






This could be you*

Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

HeadsUp !

PeopleWithMS - Heads Up ! ! !
Windows & Internet Explorer Nightmares ?
FireFox 3 is Out Now ! ! !Firefox 3 is out !  A great replacement or alternate to the misbehavior of Internet Explorer.  Over 8 million users downloaded this latest version in the first day of release !  Free, Opensource, Multi-platform

Easy to install in parallel with your existing Internet Explorer
Novell OpenSuse 11.0 Linux is Out Now ! ! !Totally Fed up with Windows ?   Novell's openSUSE 11.0 Linux is the free operating system alternative you have been waiting for.  This is a full, Professional grade replacement for Microsoft's Windows - not some techie geek-crap tinker-toy.  With a free Live-CD so you can take it for a test drive on your computer and see if you like it before you ever even install anything.  Free, Opensource, Multi-platform

Cooling Equipment Distribution

MSAA provides cooling vests (such as the one pictured above) to individuals with MS who qualify for the program.

Many people with multiple sclerosis are heat sensitive. MS research has proven that heat and humidity often aggravate common MS symptoms. MS research has also proven that cooling the body can help lessen the negative effects of heat and humidity on a person with MS.

MSAA's Cooling Equipment Distribution Program is a highly successful branch of the Equipment Distribution Program. In association with the National Aeronautics and Space Administration (NASA), MSAA has conducted extensive research into the effects of moderate, controlled cooling on individuals with heat-sensitive MS. Along with other research studies, results have repeatedly shown that many individuals with heat-sensitive MS find temporary relief of certain symptoms by wearing active cooling garments. Among others, symptom relief may include improvements in energy level, cognitive processing, and motor function through the use of such cooling devices.

The Cooling Equipment Distribution Program provides special cooling apparel at no charge to individuals with MS. "Active Suits" have a separate cooling unit that circulates cool liquid through a vest and cap worn by the user. "Passive" cooling apparel includes vests, collars, bandanas, and wristbands that either hold cool inserts or contain special material that remains cool for up to two hours.

Cooling Collars help regulate body temperature

Active cooling is considered a therapy and requires both a doctor's prescription and supervision for usage. Heat is extracted from the system by re-circulating the fluid through ice. Clinical research has shown that active cooling systems can significantly reduce the temperature in certain areas of the body. When areas of the central nervous system that have been demyelinated are cooled, the conductivity across the damaged area is greatly enhanced. This increased conductivity allows more effective transmission of signals, which can reduce some symptoms.

Passive cooling systems help maintain a cooler body temperature. These can be used outdoors in hot weather or during exercise regimens. These passive systems do not reduce body temperature, and are not considered a therapy. They do provide relief from heat for short periods of time.

To Apply for This Program

Step 1: Click here to view the Cooling Catalog
Step 2: Download the Program Application.
Submit just one application form to cover your selections.
Step 3: Please complete the forms online, print, and sign the forms.
Step 4: Mail the completed forms and any necessary additional documentation (see the Program Application) to:

MSAA
Attn: Program Coordinator - Cooling Equipment Distribution
706 Haddonfield Rd.
Cherry Hill, NJ 08002

 

Montel Williams is promoting the new prescription program 

" Partnership for Prescription Assistance " :  

https://www.pparx.org/

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs

 

Norma alerted us to this important National Multiple Sclerosis Society Program; Direct Assistance. This provides durable medical equipment and other financial aid to those with demonstrated need . Program details vary by chapter.  However, the following will give you an idea of what might be available. Check with your local chapter ( Find Your Chapter ) if you think you might be eligible. A number of our chatters have had luck with this program.

Direct Assistance Now Available

The National MS Society, Michigan Chapter is offering new financial services to address the needs of individuals with multiple sclerosis and their families.

The goal of Direct Assistance is to provide financial assistance to enhance the quality of life and help individuals with MS achieve their highest level of independence.

This program helps chapter members with MS obtain financial assistance in the areas of:

  • Transportation - to and from medical appointments ONLY
  • Home Care - short-term personal care and homemaker/chore services. This service offers assistance in the home with tasks that individuals living with MS are having difficulty completing (meal preparation, light housekeeping, laundry, bathing, and dressing).
  • Respite Care - care when the usual caregiver is temporarily unavailable because of travel, illness or other demands.
  • Short-term counseling - counseling for those facing unexpected challenges as a result of their MS. Limited counseling services are available through in-person and telephone sessions.
  • Medical equipment - the purchase or repair of a variety of equipment such as wheelchairs, walkers and bath equipment.
  • Equipment Loan Closet - for people with MS to borrow, free of charge, equipment that they need for a short period of time.
  • Home & auto modifications - such as lifts, ramps or hand controls.
  • Window air conditioners - limited to no more than one window unit per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Cooling vest - limited to no more thatn one cooling vest per year with a minimum of five years between requests. This service is offered from April 1st - September 30th of each year.
  • Emergency response systems - ensures that adults living at home get quick assistance whenever needed - 24 hours a day, 365 days a year.

All assistance is based on financial need and provided according to a sliding fee scale. To obtain assistance, the Chapter requires:

  • A verification of diagnosis.
  • Completion of a confidential financial assistance application
  • Some items/services also require a physician's prescription

For more information or to apply for financial assistance call  800-344-4867.

Services provided depending on available resources. Advance notice required for all services.

Partial support underwritten by the R.M. Gerstacker Foundation.

 
Summer Cooling Ice Vest Info  

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

So I want to apologize. I haven't been keeping up on on book updates. I've been to preoccupied with my own health, which has been having a few issues and that really hasn't been fair of me. And once again I do want to thank everyone for the Anyways I'm ready to concentrate on book updates

Now on to the book update. The book is going over fairly well. (But don't worry if you haven't purchased your book yet, or you want another copy there are still books for sale. Just go to my websitewww.msstories.zoomshare.com for ordering infomation.)

I've had some really positive reviews which I've posted on my website www.msstories.zoomshare.com. I've also had a lot of people tell me the book hit very close to home, which is what I wanted. I want everyone to know that they are not alone!!! But I am sorry if it was hard for anyone to read. I hope that you also found it informative!!!

Since October I've also had a number of book signings, 1 radio interview and a couple of articles in the news paper. Although I haven't posted copies of the newspaper articles. There are pictures from my book signings and the radio interview. And I will get the newspaper articles on there shortly!!

I love feedback on the book both positive and constructive negative comments. 

I hope everyone is happy and holding steady in their health!!!

Take care!!! 

Rebeka
www.myspace.com/msstories

It is also available at www.amazon.com OR www.target.com OR www.totallywell.com OR
www.wellnessbooks.com OR www.target.com OR www.bordersstores.com


Check out " The Great Tribulation "The Great Tribulation
by Robert Williams, Jr. of Johnston City, Illinois.

The Great Tribulation is a phenomenal, comprehensive book on the end time with a profound, action-packed thriller about life during the end time. Cities leveled by earthquakes, floods, volcanoes, and meteor showers could it really happen?

Tuesday Night Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat


Tuesday

7pm CST

8pm EST

5 pm PST

 

LFShaw hosts our Tuesday Night Trivia!

Trivia Tuesday, where the host ask the questions.

Sit back, relax.  It's Tuesday night.  Enjoy!

Our Trivia will start Tuesday!

Trivia Tuesday June 3rd

Sumo, Boomer (she's a hoot and I loved her poetry), Deena, Hema, Kathlame, Rod, and Jackil were the players.  First round was a bit sluggish (50's music), but 2nd round was a different ball game (60's music)...Deena and Rod swiftly became the front runners with Boomer and Hema hot on their trails.  By 3rd round (70's music) Kathlame gained serious momentum as did Boomer.  

In the end we had a tie for first place:  Boomer and Deena (who taunted each other the entire time LOL) 2nd place went to Rod who trailed by 2 and 3rd place went to the Yensid Queen.  All in all it was a great time


Trivia Tuesday June 10th

Tea, Towers, and Dairy Trivia were the subjects. In the first round, no masters of the tea ceremony emerged.  Once Towers of Trivia were the subject, our Yensid Queen and Man-of-Steel Sumo  took a commanding lead, which continued with their amazing mastery of the Dromedary Dilemmas.  In a last minute Sudden Death, the Yensid Queen again showed why she commands all.  Again taking the Trivia Crown !


Trivia Tuesday June 17th

" It's All About The Bathroom . . . "  The first round on the exciting history of toilet paper demonstrated the intimate knowledge of all players.  When Shampoo became the topic of round Two,  BoomerGirl pulled ahead.  All shivered before her gaze in Round Three, as her expertise in the  amazing history of the toothbrush and implements of Dental Destruction became apparent.  

Womens & Mens Wednesday Nights

PeopleWithMS - Women's & Men's Chat Night

Please welcome our woman's night host's 

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  We'll have a Men's chat at same time when there is a subject of interest.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our woman's night host's Norma & Aileen! 

 
And remember:  Any one can use these rooms at anytime.

Thursday Game Night

PeopleWithMS -Games

Thursdays

8 pm EST

7pm CST

5 pm PST 

Thursday Night Games

We are seeking host volunteers.  If you have an idea for a simple online game we can all play in chat, bring it on !  Hosting is easy & MrRed will help you get set up and will keep score!

Hemastat provided the questions for an exciting re-opening of our Thursday Game Night !  Thanks Hemastat.  

Rod handily regained his crown as master of all things Factious and Craptual

Kathlame will be in on June 26 with Urban Legends

All you need to bring is a sharp mind and a loaded index finger.


Talk to MrRED or send e-mail to
:
PWMS@PeopleWithMS.com

Saturday Prayer Chat

PeopleWithMS -ChurchChat
Prayer & Support Chat

Saturday  8 pm EST  - 7pm CST  -  5 pm PST
Please join BobbyGene and JolyRox on Saturday Nights

BobbyGene has pastoral training with the Assembly of God and has offered to host a chat broadly oriented towards prayer as a support method.  As he has stated, "In my training I've had to learn the in's and outs of many various religions and I believe we could keep the focus on support and prayer when needed."  

We are providing a special interest room for those interested in prayer of whatever fashion, and focussed discussion of prayer as a support mechanism by those so inclined.    

Please seek other forums for spirited theological debates.
. .

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Grilled Steak Wraps with Mushrooms
and Rosemary Recipe



This recipe serves: 4 
Preparation time: 20 minutes
Cooking time: 15 minutes

Ingredients
For the grilled steak:
2 top sirloin steaks, about 8 ounces each
salt to taste
freshly ground black pepper

For the wraps:
1/2 cup fat-free, whipped cream cheese
2 tablespoons chopped, sweet onion
2 tablespoons freshly chopped rosemary
1 teaspoon olive oil
4 button mushrooms, sliced
4 large flour tortillas
4 large lettuce leaves (green leaf, bibb or romaine), shredded

Cooking Instructions
For the grilled steak:
1. Preheat the grill to high.
2. Season the steaks with salt and pepper. Cook them on the grill to the desired doneness, about 6 minutes per side for medium. Transfer the steaks to a cutting board and slice on the bias.

For the wraps:
1. Meanwhile, in a small mixing bowl, combine the cream cheese, onion and rosemary.
2. Heat the olive oil in a non-stick skillet to a medium high heat. Cook the mushrooms until golden brown, about 3-4 minutes.
3. Lay out the tortillas on a work surface in front of you. Divide the cream cheese mixture among the tortillas and spread it out in the center of the tortillas. Divide the lettuce and mushrooms among the tortillas and top with a few slices of steak. Tightly roll the tortillas into a cylinder ending with the seam on the bottom.
4. Slice the wraps on the diagonal and serve.


Nutrition Facts
Serving Size: 1 wrap
Calories 416
Total Fat 11 g
Saturated Fat 4 g
Protein 35 g
Total Carbohydrate 44 g
Dietary Fiber 3 g
Sodium 578 mg
Percent Calories from Fat 23%
Percent Calories from Protein 34%
Percent Calories from Carbohydrate 43%

THANK YOU NELLIE!

Banana-Berry Power Smoothie Recipe



This recipe serves: 1 Preparation time: 5 minutes

 Ingredients 1/4 cup orange juice 1/2 cup plain, low-fat yogurt 1/2 small, peeled ripe banana 1/4 cup stemmed, sliced strawberries honey to taste 1 1/2 tablespoons vanilla soy protein powder Cooking Instructions 1. Place all the ingredients in a blender. Blend on high speed until smooth. Nutrition Facts Serving Size: about 1 cup Calories 195 Total Fat 1 g Saturated Fat 0 g Protein 21 g Total Carbohydrate 36 g Dietary Fiber 2 g Sodium 177 mg Percent Calories from Fat 2% Percent Calories from Protein 48% Percent Calories from Carbohydrate 50% Make it Quicker: Use frozen strawberries, and partially thaw before blending.

 

THANK YOU NELLIE!

Roasted Red Peppers Recipe


This recipe makes: 1 roasted pepper Preparation time: 5 minutes Cooking time: 8 minutes Ingredients 1 whole red or green pepper Cooking Instructions 1. Slice the pepper in half lengthwise and remove the seeds. 2. Place the 2 halves on a cookie sheet and press down so they lie flat with the skin side up. 3. Place the pepper under a hot broiler until the skin is evenly blistered, about 5 to 8 minutes. 4. Carefully remove the pepper from the cookie sheet and place in a bowl. 5. Cover tightly with plastic wrap and let sit for 5 minutes. 6. Uncover and peel off the skin. Nutrition Facts Serving Size: 1 pepper Calories 44 Total Fat 0 g Saturated Fat 0 g Protein 1 g Total Carbohydrate 11 g Dietary Fiber 3 g Sodium 3 mg Percent Calories from Fat 6% Percent Calories from Protein 11% Percent Calories from Carbohydrate 83%

 

THANK YOU NELLIE!

Mixed Berry Smoothie Recipe



This recipe serves: 1 Preparation time: 5 minutes Ingredients 1/4 cup orange juice 1/2 cup plain, low-fat yogurt 1/6 cup washed, stemmed raspberries 1/6 cup washed, stemmed blackberries 1/6 cup washed, stemmed blueberries honey to taste Cooking Instructions 1. Place all the ingredients in a blender. Blend on high speed until smooth. Nutrition Facts Serving Size: about 1 cup Calories 139 Total Fat 0 g Saturated Fat 0 g Protein 6 g Total Carbohydrate 31 g Dietary Fiber 3 g Sodium 70 mg Percent Calories from Fat 3% Percent Calories from Protein 16% Percent Calories from Carbohydrate 81% Make it Quicker: Use frozen raspberries, blackberries and blueberries, and partially thaw them before blending.

THANK YOU NELLIE!

Healthy Eating

PeopleWithMS - Healthy Eating

Monday

7pm CST

8pm EST

5 pm PST

Healthy Eating 

'support group'

Healthy Eating support group has started. We added 3 pages to our web site. You can find a print out journal, recipes, and check out the exercise page. Please join Shelly and Norma in there weekly. Everyone needs extra support . Bring idea's! Join us in getting back on a positive way of eating. 

Submit recipes that will be posted 

Please email them to deb@durgin.net

click here

 

Boomergirls's Lite Side

BoomerGirl's Lite Side
More About BoomergirlBoomergirl's Lite Side

A man walks into a restaurant with a full-grown ostrich behind him. The waitress asks them for their orders.
 
The man says, 'A hamburger, fries and a coke,' and turns to the ostrich, 'What's yours?'
 
'I'll have the same,' says the ostrich.
 
A short time later the waitress returns with the order 'That will be $9.40 please,' and the man reaches into his pocket and pulls out the exact change for payment.
 
The next day, the man and the ostrich come again and the man says, 'A hamburger, fries and a coke.'
 
The ostrich says, 'I'll have the same.'
 
Again the man reaches into his pocket and pays with exact change.

This becomes routine until the two enter again. 'The usual?' asks the waitress.
 
'No, this is Friday night, so I will have a steak, baked potato and a salad,' says the man.
 
'Same,' says the ostrich.
 
Shortly the waitress brings the order and says, 'That will be $32.62. 
 
Once again the man pulls the exact change out of his pocket and places it on the table.
 
The waitress cannot hold back her curiosity any longer. 'Excuse me, sir. How do you manage to always come up with the exact change in your pocket every time?'
 
'Well,' says the man, 'several years ago I was cleaning the attic and found an old lamp. When I rubbed it, a Genie appeared and offered me two wishes. My first wish was that if I ever had to pay for anything, I would just put my hand in my pocket and the right amount of money would always be there.'
 
'That's brilliant' says the waitress. 'Most people would ask for a million dollars or something, but you'll always be as rich as you want for as long as you live!'
 
'That's right. Whether it's a gallon of milk or a Rolls Royce, the exact money is always there,' says the man.
 
The waitress asks, 'What's with the ostrich?'
 
The man sighs, pauses and answers, 'My second wish was for a tall chick with a big butt and long legs who agrees with everything I say.'
 

Visit Boomergirl's Lite Side

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

 

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

Birthdays

PeopleWithMS - Birthdays
 

Linda's Birthday list!

 CLICK HERE CLICK HERE   

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

If your birthday is not on our list please tell Linda when in chat! Linda has been really helping with getting this all organized.

We will post 2 months at a time below!


Sumo's Dawg June 27th
Dennis Anniversary July 7th
Gailpooh MN July 15th
RED JULY 16TH
Sumo's Sister July 17th
Steph July 20th
Pitchmonke Anniversary July 22nd
BobbyGene July 23d
HappyHappy July 23d
PetsRUS6 Laurie July 26th
TruckersWife July 29th
Cfresque July 31st

Thank you Linda!

 
 

 

Poems

PeopleWithMS - Poems


Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

WHAT MS FEELS LIKE....THIS WILL MAKE EVERYONE UNDERSTAND


When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below---


What You Can do To Understand Painful Heavy Legs..

Apply tightly 20 lb ankle weights and 15 lb thigh weights then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? Painful Feet... Put equal or unequal amounts of small pebbles in each shoe then take a walk.


Loss of Feeling in Hands and/or Arms..
.

 Put on extra thick gloves and a heavy coat then try and pick up a pencil, if successful, stab yourself in the arm. 
Loss of Feeling in Feet and/or Legs... Ask a doc for a shot of novocaine in both of your legs and then try and stand up and walk.


TN (Trigeminal Neuralgia).
.

Take an ice pick and jam it into your ear or cheek whenever the wind blows on it, or a stray hair touches it. If you want something easier to do, get someone to punch you in the jaw, preferably daily. 


Uncontrollable Itching... 

Glue or sew small steel wool pads to the inside of your shirt, pants and undergarments wear them for an entire day.
Tingling... Stick your finger in an electrical socket - preferably wet.


Tight Banded Feeling..
.

Put 12 inch wide belt around you and make is as tight as you can and leave it there for the entire day.
Shots... Fill one of our spare needles with saline solution and give yourself a shot every time we do our shot.


Side Effects From the Shot...
 

Bang your head against a wall, wrap yourself in a heating pad, wrap your entire body with an ace bandage tightly then finally treat yourself to some spoiled food or drink.


Trouble Lifting Arms... 

Apply 20 LB wrist weights and try and reach for something on the highest shelf in your house.


Spasticity.

Hook bungee cords to your rear belt loops and rear pant leg cuffs then for your arms hook bungee cords to your shirt collar and cuffs on shirt sleeves then go dancing.


Poor Hearing/Buzzing in Ears...

Put a bee in each ear and then put a plug in each one...bzzzzzzzzzzzzzzzzzz


Balance and Walking Problems... 

Drink 100 proof grain alcohol and then sit and spin in an office chair for 30 minutes, now try and walk.


Urgently Needing to Pee... 

We put a .5 liter remote controlled water bag and drip tube in your pants, we point out 2 restrooms in a crowded mall, then we tell you that you have 30 seconds before we activate the water bag (by remote control) to get to a restroom. Just for spite we may make that 20 seconds without telling you


Bizarre and Inexplicable Sensations... 

Place tiny spiders on your legs or arms and allow them to periodically crawl around throughout the day


Pins and Needles... 

Stab yourself repeatedly with needles all over your body or better yet....Get a large tattoo.


Dizziness (Vertigo)... 

Get on a gently rocking boat all day and all night and take several walks around the deck


Fatigue... 

Stay awake for two full days to induce incredible fatigue and then cook dinner, clean the house, walk the dog and see how you feel.


Bowel Problems... 

Take a 4 day dose of an anti-diarrhea medicine followed directly by a 3 day dose of stool softeners for a minimum of 3 weeks, at the end of 3 weeks sit down on a hard uncushioned chair and stay there till tears appeared. 


Burning Feeling... 

Make a full pot of boiling water and then have someone fill a squirt gun with the boiling water and shoot it at yourself all day long. However, you can give us the pleasure of shooting you instead...optional of course.


Intention Tremor... 

Hook your body to some type of vibrating machine try and move your legs and arms.....hmmm are you feeling a little shaky? 


Buzzing Feeling When Bending Our Heads to Our Chest (L'Hermitte's)... 

Place an electrical wire on your back and run it all the way down to your feet, then pour water on it and plug it in.


Vision Problems (Optic Neuritis)... 

Smear vaseline on glasses and then wear them to read the newspaper.


Memory Issues...

 Have someone make a list of items to shop for and when you come back that person adds two things to the list and then they ask why you didn't get them. When you come back from shopping again they take the list and erase three things and ask why you bought those things.


Foot Drop... 

Wear one swim fin and take about a 1/2 mile walk.


Depression... 

Take a trip to the animal shelter everyday and see all the lonely animals with no home. You get attached to one of the animals and when you come back the next day you come in while they are putting her/him asleep.


Fear... 

Dream that you have lost complete feeling in your feet and when you wake up wiggle your feet, just so happens they don't move. Think about this every night wondering whether something on your body won't work the next day.

 
Swallowing... 

Try swallowing the hottest chili pepper you can find.


Heat Intolerance or Feeling Hot When it's Really Not... 

You are on a nice vacation to Alaska. It's 35° outside and 65° inside. Light a fire for the fireplace and then get into it. Once you have reached about 110° tell me how you feel, even a person without MS would feel bad, now add all of the above symptoms - welcome to our world. 


And Finally... After subjecting yourself to the items above, let everyone tell you that you are just under a lot of stress, it's all in your head and that some exercise and counseling is the answer.

 

 

SHARE THIS WITH YOUR FAMILY'S  THEY MAY UNDERSTAND YOU BETTER !!

 

THANK YOU NANCY HAD GIVEN THIS TO ME MANY YEARS AGO!

BUT YOU LOOK SO GOOD


Oh but you look so good, I heard them say,

Is that me you're talking to? I thank them for the compliment, wishing I felt that way.

I wonder what that phrase is really supposed to mean?

I'm no Marilyn Monroe, and certainly no beauty queen.

I'll admit I've done fairly well, quite the actress I've become.

I try not to discuss my excruciating cranial nerves, or my legs that are often numb.



My family has witnessed the days in which I can hardly hear. Days when fatigue is so consuming.

I don't bother to fix my hair. I'll make it to the shower, a technique to hide the pain, you can't hear me crying and my tears are swallowed by the drain.

Days when I can't budge and I feel frozen in one place, of course, these are the days you won't see my face.



I suspect when you see me out in public, I project a certain glow.

My good days are seldom now, but I'm truly sick you know?

I don't know how to describe the symptoms of a disease so misunderstood.

But, I don't mind hearing, "Oh, but you look so good."



 by Chery Conway

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed JolyRox Coordinator of RAs.  Our current list of room administrators is:  Norma, LFShaw,  Debby, Linda-NV, MS_Kitty70, JackIL, Aileen, Soporific, Pixie_Dust, Barry, and Sumo58.  All host at scheduled times and frequently chat off-hosting hours as well.  They can help you if you need help. 

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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