Chat Login   top

 PeopleWithMS.com Newsletter


~ 92,000 Chatters Served ~

June 29, 2008 

Healthy Eating Monday
Chat Schedule Tuesday Night Trivia
ChatStar Women's/Men's Wednesday
Stories and Pictures Thursday Game Night 
Recipes & Healthy Eating Saturday Prayer Chat
HeadsUp ! BoomerGirl's LiteSide
Birthdays Poems
Rod's Music Shoppe Newsletter Archive

PeopleWithMS - Intro
Sumo sez .......Sumo sez..........
 
" MS is like a bully that takes your toys away "
Deb sez .......Deb sez..........
 
"He who finds another way to play wins ! "

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

Chat continues to grow at over 1,000 visitors a week!  If you are newly arriving, or a returning friend from MS Watch, MS World, Jooly's Joint, or another chat, let folks know.  It's great to catch up on what old friends have been up to. At the same time, we have seen that the room become more in touch with helping the newbie to feel welcome.   We're getting new chatters weekly and it's very rewarding to see everyone helping out the newcomers to chat.  



Chat Star

Kathlame

BIRTH WAS 04/29/60.  2ND TRIP TO HOSPITAL WAS 9 MO LATER.  FROM WHAT I WAS TOLD HIGH FEVER.  LAST CHILD OF 6 DYSFUNCTIONALS ( BUT AREN'T WE ALL? ) 

MS REARED IT'S UGLY HEAD ( OBVIOUSLY )  OR I WOULDN'T BE WRITING THIS. AS MANY DO, ALWAYS BLAME ANYTHING BUT MS ON THE SYMPTOMS. 

MET IAN ONLINE FROM A MUTUAL FRIEND IN A CHAT RM. AS GETTING ALONG WITH ANYTHING IS DIFFICULT, THINK OUR 5YRS IS WORTH AT LEAST 10! GUESS KNOWING YOU NEED SOMEONE HELPS THAT WELL 

THINK I SAID IT ALL - WANNA KNOW ANYTHING MORE ? ASK ME IN CHAT  (More Pics)



Coordinator of Room Administrators

JolyRox is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at PWMS@PeopleWithMS.com

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

 

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Deanna72

Hello my name is Deanna. I live in Ohio with my 2 children. I am 36. This is my MS story. It all started back in 1995. I had met my now ex-husband, we were a young couple just starting out when I got pregnant with our first child. In November of that year we were blessed with a little girl.

Shortly after coming home with her I noticed that my left leg was going numb. It had lasted any where from a few hours to a few days.  Not knowing why it was happening, I went to see the doctor.  He said that the baby had put a lot of pressure on my leg and it would go away, just to give it time.  So I did.  After a while, I kept noticing that it would come back.  Again a new visit to the doctors.  After many tests I was just told it was nothing.  (More)

LinnAnn50

Story to follow 
Who do these dogs belong to ???

 


 



Georgia Genetic Engineering Experiment Exposed !

Georgia Genetic Engineering Experiment Exposed !
Ask Ronb !

Ask RonB

This could be you*

Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

HeadsUp !

PeopleWithMS - Heads Up ! ! !
Windows & Internet Explorer Nightmares ?
FireFox 3 is Out Now ! ! !Firefox 3 is out !  A great replacement or alternate to the misbehavior of Internet Explorer.  Over 8 million users downloaded this latest version in the first day of release !  Free, Opensource, Multi-platform

Easy to install in parallel with your existing Internet Explorer
Novell OpenSuse 11.0 Linux is Out Now ! ! !Totally Fed up with Windows ?   Novell's openSUSE 11.0 Linux is the free operating system alternative you have been waiting for.  This is a full, Professional grade replacement for Microsoft's Windows - not some techie geek-crap tinker-toy.  With a free Live-CD so you can take it for a test drive on your computer and see if you like it before you ever even install anything.  Free, Opensource, Multi-platform
Ask MrRed about these if you are curious
 

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

Just go to my websitewww.msstories.zoomshare.com for ordering infomation.)

I've had some really positive reviews which I've posted on my website www.msstories.zoomshare.com. I've also had a lot of people tell me the book hit very close to home, which is what I wanted. I want everyone to know that they are not alone!!! But I am sorry if it was hard for anyone to read. I hope that you also found it informative!!!

Rebeka
www.myspace.com/msstories

It is also available at www.amazon.com OR www.target.com OR www.totallywell.com OR
www.wellnessbooks.com OR www.target.com OR www.bordersstores.com


Check out " The Great Tribulation "The Great Tribulation
by Robert Williams, Jr. of Johnston City, Illinois.

The Great Tribulation is a phenomenal, comprehensive book on the end time with a profound, action-packed thriller about life during the end time. Cities leveled by earthquakes, floods, volcanoes, and meteor showers could it really happen?

Tuesday Night Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat


Tuesday

7pm CST

8pm EST

5 pm PST

 

LFShaw hosts our Tuesday Night Trivia!

Trivia Tuesday, where the host ask the questions.

Sit back, relax.  It's Tuesday night.  Enjoy!

Our Trivia will start Tuesday!

Trivia Tuesday June 24th

Sumo, Boomer, Rod, Jackil, and MrRed were the players.  The First round was an epic battle between Rod and MrRed over "Things that Fly".  The Second Round continued the theme with " Flying Physics " and fierce competition, with Rod and MrRed carrying a narrow lead despite JackIL's special expertise.  "Flyin' Fairies " was the third Round theme, with MrRed breaking out in the final guesses for a victory ! ! !


Womens & Mens Wednesday Nights

PeopleWithMS - Women's & Men's Chat Night

Please welcome our woman's night host's 

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM !

Come on bring a Topic! 

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our woman's night host's Norma & Aileen! 

 
And remember:  Any one can use these rooms at anytime.

Thursday Game Night

PeopleWithMS -Games

Thursdays

8 pm EST

7pm CST

5 pm PST 

Thursday Night Games

We are seeking host volunteers.  If you have an idea for a simple online game we can all play in chat, bring it on !  Hosting is easy & MrRed will help you get set up and will keep score!

Kathlame hosted a thrilling, fast moving game on June 26 with Urban Legends 

Sumo58 had little trouble besting all other competitors from the start with his amazing knowledge of Urban Legends

All you need to bring is a sharp mind and a loaded index finger.


Talk to MrRED or send e-mail to
:
PWMS@PeopleWithMS.com

Saturday Prayer Chat

PeopleWithMS -ChurchChat
Prayer & Support Chat

Saturday  8 pm EST  - 7pm CST  -  5 pm PST
Please join BobbyGene and JolyRox on Saturday Nights

BobbyGene has pastoral training with the Assembly of God and has offered to host a chat broadly oriented towards prayer as a support method.  As he has stated, "In my training I've had to learn the in's and outs of many various religions and I believe we could keep the focus on support and prayer when needed."  

We are providing a special interest room for those interested in prayer of whatever fashion, and focussed discussion of prayer as a support mechanism by those so inclined.    

Please seek other forums for spirited theological debates.
. .

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Dump Cake (or Easy Cobbler)

Preheat Oven: 350° 

Dump one can cherry pie filling into a 9x13 baking dish
Dump in one can pineapple tidbits (undrained).
Dump in a handful of chopped nuts
Stir
Dump one yellow cake mix (straight from the box) over the filling. 
Dot generously with butter/margarine (about 1/2 cup). 

Bake at 350 until the cake mix is golden brown.

Of course you really want to 'sprinkle' the cake mix fairly evenly over the cake, not just dump it all in one spot but don't worry about lumps or uneven spots. The thin spots get yummy crisp and crunchy while the lumps and thicker spots turn out a little more cakey-crusty.

For potluck dinners, double the recipe and use
a large disposable roasting pan and you don't have to worry about carrying your dish home ... just toss it!

Thank you Audrey :o)

Pan-Roasted Scallops Recipe

This recipe serves: 4 Preparation time: 5 minutes Cooking time: 5 minutes

 Ingredients 1 pound bay scallops salt to taste freshly ground black pepper 1 tablespoon olive oil Cooking Instructions.

1. Season the scallops with salt and pepper. 

2. Add the oil to a sauté pan and heat over high heat.

 3. Add the scallops to the hot pan and sear for about 2 minutes on each side.

 Nutrition Facts Serving Size: about 4 ounces scallops Calories 130 Total Fat 4 g Saturated Fat 1 g Protein 19 g Total Carbohydrate 3 g Dietary Fiber 0 g Sodium 369 mg Percent Calories from Fat 30% Percent Calories from Protein 61% Percent Calories from Carbohydrate 9%

Thank you Nellie!

Healthy Eating

PeopleWithMS - Healthy Eating
 

 

Healthy Eating 

We added 3 pages to our web site. You can find a print out journal, recipes, and check out the exercise page. Please Everyone needs extra support . Join us in getting back on a positive way of eating. If anyone has any interest in hosting or any ideas on a one hour Monday night chat! Please share the ideas. 

Submit recipes that will be posted 

Please email them to deb@durgin.net

click here

 

Boomergirl's Lite Side

BoomerGirl's Lite Side
More About BoomergirlBoomergirl's Lite Side

[an error occurred while processing this directive]

Visit Boomergirl's Lite Side

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

 

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Birthdays

PeopleWithMS - Birthdays
 

Linda's Birthday list!

 CLICK HERE CLICK HERE   

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

If your birthday is not on our list please tell Linda when in chat! Linda has been really helping with getting this all organized.

We will post 2 months at a time below!


Sumo's Dawg June 27th
LinnAnn50July 1st
Dennis Anniversary July 7th
Gailpooh MN July 15th
RED JULY 16TH
Sumo's Sister July 17th
Steph July 20th
Pitchmonke Anniversary July 22nd
BobbyGene July 23d
HappyHappy July 23d
PetsRUS6 Laurie July 26th
TruckersWife July 29th
Cfresque July 31st

Thank you Linda!

 
 

 

Poems

PeopleWithMS - Poems


Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

MY MS INTRODUCTION
by Boomer Girl


I woke up one morning all set to go.
But for some reason my body said no.
Okay let's see this cannot be.
No not my body not working for me.

A call to the doctor immediately was made.
Now calm down, calm down and explain to him--don't be afraid.
Hmm he said, "I just don't know."
"To the emergency room you must go."

Okay now this surely doesn't sound good.
Calm down, calm down ya right as if I could.
Don't be afraid the doctors there know what do.

Just explain to them without much ado.
Yeah right they'll also have not really a clue.
Hmm, said the doctors, "We just don't know."
Checked into a hospital room you must go.

Oh boy come on this truly can't be happening, it's too much on my mind.
Calm down, calm down--no way not this time.
Ahh but a hospital no better place to be.
More tests we will run and blood work done for thee.

So in my room I patiently wait and wait.
To see exactly what will be my fate.
Hurry, hurry don't they realize and know.
My life direction I just need go.

Okay here it comes, the final decision.
The disease name I never envisioned.
So it's call MS--hmm who would have guessed.
That these two words would make my life such a mess.


Calm down, calm down I was always told.
Huh not me...my life it's now on hold???????


by Boomer Girl

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed JolyRox Coordinator of RAs.  Our current list of room administrators is:  Norma, LFShaw,  Debby, Linda-NV, MS_Kitty70, JackIL, Aileen, Soporific, Pixie_Dust, Barry, and Sumo58.  All host at scheduled times and frequently chat off-hosting hours as well.  They can help you if you need help. 

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

Our Latest Newsletter Click Here to go to Discussion Board


Newsletter Archive

PeopleWithMS - Newsletter Archive

News Letter Archive

Missed something from an old Newsletter?  Find it here !


StumblinStyle.com - Handpainted and Customized Canes

©copyright 2004 PeopleWithMS.com