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 PeopleWithMS.com Newsletter


September 15, 2007

Go to Crafts Crafts 
Chat Schedule Women's/Men's Chat Night
ChatStar Trivia
Stories and Pictures Birthdays
Rod's Music Shoppe Famous People
Healthy Eating Poems
Recipes Newsletter Archive

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

Let's hope we are all back to what passed for normal.  Before vacations, kids out of school, medical crisis, getting kids ready for back-to-school, and whatever else. We want to thank all the chatters who pitched in help out during the last confusing few weeks.  

We ask all chatters who host to please stay their scheduled times => it's a two hour hosting.  If you can't do it, please tell Norma. With that said, give her some time to try and replace you. We really appreciate all the hosting that's being done it keep our chat going so we all benefit from it.  please. 


 

 

 ThisWeek's ChatStar

Spikers


Well, my MS story starts when I was thirty and got chicken pox for the first time.( I just turned 41 ) After being bed ridden for 2 months I slowly recovered. About3 years later i started haveing numbness in my fingers and toes. This progressed to one half of my body being numb. 

 (more)

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

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to enterClick Here to go to Chat

our new chat

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Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Gailpooh Hello! I’m Gail aka gailpooh MN—from Minnesota. I was diagnosed with this MS thing in 1987. I was in a car accident the year before (1986), which brought out all my symptoms. And by 1999, MS just wasn’t enough for me so I took on breast cancer. And after a mastectomy and some chemo, I’ve proven to be the winner so far. I am presently not searching for anymore diseases, honest!!! I put my faith in God and take it one day at a time. And I love the new family I’ve found in PWMS chat.

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  

Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. 
Everyone's M.S. is different and everyone's story is different. 
Get to know the chatters we chat with. 

Stories and Picture's 

Who are these chatters ? No one will tell you till Wednesday night chat after Woman and Mens chat!!! 

Who are these chatters?

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  

HeadsUp

PeopleWithMS - Heads Up ! ! !
Heads Up ! ! !

Hemastat is back after a 5,000 miles drive! to visit family and friends. She was able to meet Gail Pooh and took a picture for us. Thank you Hemastat. Everyone truly missed you. 

 .

Crafts

PeopleWithMS - Crafts

c

CRAFTERS


Debby is our craft coordinator. Please join her in our craft room. Bring ideas with you. what do you know how to do. And what would you like to learn how to do.

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page.

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions jdionne@usadatanet.net 

 To post crafts EMAIL deb@durgin.net

Click here for our chatters Craft's and more 

Debby's meetings will be on Tuesday's at 8PM EST for some fun!

Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM! AT the same time we have Men's chat in the MEN'S ROOM. We do this for one hour from 8PM till 9PM  EST. Then we join in the main chatroom as always. Sue was nice enough to say she would host it. I believe Rod said ok he would host the men's chat as long as he can give baseball scores LOL! What's the topic? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week! If you come in chat and Donny Doormat is there its Red to greet you and show you the way LOL

Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat

Marlene & Rod have been the hosts for our Thursday Night Trivial Chat. 

LFShaw is our Trivia Queen this week! Citrine still awaits her crown . . .


* * * Your Trivia Night * * *

Trivia has an entirely twisted new game plan . . . . . . . . . . Bring Yer Own Trivia ! ! !

So we don't burden our Trivia Mistress and Master, we're holding ' bring your own ' Trivia nights.   Everyone brings 5 or more questions and answers, ready to copy and paste into chat. The questions need to be multiple choice or true or false   We'll take turns tossing out questions, round-robin.   I found a great site http://www.funtrivia.com/ that among other things, has an Encyclopedia of Trivia. With a gazillion categories of questions to choose from. Marlene also found a great Trivia site http://www.123facts.com  

Thursdays at 8 pm EST for some fun.  

Recipes

PeopleWithMS - Recipes
Baked Beans

1 pound dry red kidney beans (pinto or navy)
1/4 pound salt pork
1/4 cup brown sugar
1/4 cup molasses
1 tablespoon dry mustard
1 onion cut in large pieces

Pick beans over, rinse, and cover beans with cold water and soak overnight.
Cut salt pork in small chunks and brown in small pan, then add to the beans in the beanpot.
Add brown sugar, molasses, and dry mustard to the beans in the bean pot, stir and cover.

Bake in oven @ 300 for 5-6 hours, keep checking throughout baking to see if you need to add water.


Carol
(Citrine)
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Poems

PeopleWithMS - Poems

My Grandmothers Eyes

Grandma Neace and others

by saeich48



It wasn't that cook stove, that was always alit
It wasn't that house dress, with tattered old slit
It wasn't that hair, that turned slowly gray
It wasn't the verses she always would say

It was the tilt of her head, no maybe not so
Maybe the bare feet, with one crooked toe
I'm sure it was her soft voice, we found oh so sweet
When calling for dinner, at the door we would meet

Her smile oh so tender, loving and kind
Not a hint of her sadness or overworked mind
She always came running, when hearing our cries
But you always felt better, when you looked in her eyes

Dear Diary..one more thing 


Today was a fine day indeed for me
The weather was at its best
Cleaned house, got food and the usual things
Got home and took a small rest

Read emails and news on the computer tonight
Watched a movie and looked at some pics
Family and friends, some trips and our life
While some in your memory just stick

I just want to tell you again one more time
Before you go back on your shelf
About my best friend that I found long ago
And that friend would be myself

Now before you make judgment, on
And think “Oh my, the conceit”
Just following advice of the doctors you see
Like yourself first before others you meet

Thank you mom and dad for a well-rounded life and making us kids stand on our own.

Suzi 

Growing Up
I planted a seed, or so I thought.
Now, only five, thank her I'm alive.
If never we meet
I know I'll survive.
I planted a seed, or so I thought.
How gentle the night, the soft glowing light.
Will we ever see Rio?
Who gave you the right?
I planted a seed, or so I thought.
He never left home.
He's never seen Rome.
Let him have wheels dripping with chrome!
I planted a seed, or so I thought.
There's always tomorrow
For your time to borrow.
You level my mind
And suffer my sorrow.
Lynne Frances Smith

Copyright ©2007 Lynne Frances Smith


Mothers Who are No Longer Among Us  

In tears we saw you sinking,
And watched you pass away.
Our hearts were almost broken,
We wanted you to stay.
But when we saw you sleeping,
So peaceful, free from pain,
How could we wish you back with us,
To suffer that again.
It broke our hearts to lose you, 
But you did not go alone,
For part of us went with you,
The day God took you home.

If Roses grow in Heaven,
Lord please pick a bunch for me,
Place them in my Mother's arms
and tell her they're from me.
Tell her I love her and miss her,
and when she turns to smile,
place a kiss upon her cheek
and hold her for awhile.
Because remembering her is easy,
I do it every day,
but there's an ache within my heart 
that will never go away.

Don't think of her as gone away
Her journey's just begun
Life holds so many facets
This earth is only one
Just think of her as resting
From the sorrows and the tears
In a place of warmth and comfort
Where there are no days and years
Think how she must be wishing
That we could know, today
Now nothing but our sadness
Can really pass away
And think of her as living
In the hearts of those she touched
For nothing loved is ever lost
And she is loved so very much.

Anonymous

BILL......... ENGLAND.

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's !!!  Check times!

 

Birthdays

PeopleWithMS - Birthdays
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty,  JackIL,  Eddie, Sae What and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existance, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on webcam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own webserver, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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