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 PeopleWithMS.com Newsletter


October 6, 2007

Go to Crafts Crafts 
Chat Schedule Women's/Men's Chat Night
ChatStar Trivia
Stories and Pictures Birthdays
Rod's Music Shoppe Famous People
HeadsUp ! Poems
Healthy Eating/Recipes Newsletter Archive

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

We have a lot of new chatters in PWMS . It has been nice and busy. Linda-NV is now hosting. Please come in and meet her => she is a very nice Lady from NV. We are starting to talk about our May 2008 Get Together. It is still too early to make any solid plans, but keep it in mind. We will be opening 3 new "Groups" branch websites on MSN, Yahoo, and Google shortly.  These will help us reach some people who are more familiar with those particular mini-environments.  If anyone has a particular skill or interest in being the manager of one of the branch Group-sites, please let us know. It is a big job and needs to be watched daily. Any thoughts on a singles chat? We have lots of ideas but need some help has always LOL!!    

PWMS Welcomes Linda NV She is now one of our new Room Administrators. Linda is on dial up and will be upgrading.  Be patient with her if she has to go in and out. 

You ask:  "What's a RA ?"   Please read so everyone understands click here >About Chat! 


 

 

 ThisWeek's ChatStar

Rod

 

 

 

A few things about Rod  . . .

  • The hardest thing about M.S. has probably giving up playing sports in the local mens leagues. 
  • The two things I couldn't do as a child are drive an automobile and make my own decisions. 
  • If had a yacht, it would be named S.S. HOPEITDOESNTSINK. 
  • Since I've been DX'd, in my free time I like to watch sports, play with the computer, and swim. 
  • What is my idea of perfect happiness? Is there perfect happiness? I'm pretty happy no matter what......things could always be worse. 
  • I haven't ever been mistaken for anyone famous.
  (more)

 

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Ditto1

I was diagnosed with RRMS in 1997. I worked as a processing supervisor in a commodities yard from 1980 to 1988. Took the whole year of 1989 off to ponder my predicament. Started driving a cab in 1990 and started an AUTOCAD class in 1993. After the class was over I finally got a job as a detailer at an engineering firm in Feb 1995. Was promoted to Designer in Oct. 1995. Quit driving cab in FEB 1995. Ultimately ending up at DANA CORP in Jan 1998.  (more)
.bette42

I AM BETTE. I WAS DIAGNOSED @ 38 AND AM NOW 46. I HAD WHAT I BELIEVE MY FIRST ATTACK @36 BUT THEY BASICALLY THOUGHT IT WAS JUST A VERY BAD MIGRAINE AT THE MASS GENERAL IN BOSTON. I WAS EXTREMELY TIRED AND FAINTED. WHILE THERE I HAD THE FIRST OF MANY MRI'S . THAT FIRST ONE SAID ?MS NOTHING WAS SAID TO ME ABOUT ?MS I MOVED ON AND JUST KEPT WORKING MY 60-70 HOURS WEEKS. I WAS A SINGLE MOM OF 2 SMALL GIRLS SO I HAD NO CHOICE BUT TO WORK THAT MANY HOURS. IRONICALLY I WAS A RN WHO WORKED WITH MS PATIENTS. I THOUGHT I KNEW EVERYTHING ABOUT MS THERE WAS TO KNOW!!!! ARROGANT HUH?   (more)
Kimberly

Where do I begin? This seems like it has been a long journey. I am a single mother of two teen boys. My oldest has Noonans Syndrome and required a lot of care. I have raised my boys on my own now for 12 years. I am a Correctional Officer in a Federal Institution. Before that I worked at Costco. I guess that where it began. I would get so tired after a shift. I thought I has a cyst in my wrist and had problems with my knees and shoulders hurting. I went for many x- rays and nothing showed up. I would get dizzy and see spots in my vision. My hands would shake and when I went to put on my eye make up, my neck would shake. I knew something was wrong. After going to see my family quack many times, he just thought I was nuts and said I had suppressed trauma! What the heck was that?? He is an idiot.   (more)

Linda-NV

Hello my name is Linda, and I live in Las Vegas. I moved here in 04 from Kansas City Missouri. Before that I was born and raised in Michigan. I have been married twice and have no children. However I do have an African grey parrot name Miata. He has the brain function of a 7 year old. He talks all the time. Tells me at night “it’s time To go to bed” “good night” and will keep it up till I cover his cage. 

The first time the doctors told me I had MS I was in my early 20’s. However it didn’t rear its Ugly head until I turned 47.. It has changed my life as far as my athletic abilities. But really Who wants to bowl or golf, compete in gymnastics when There are so many casinos to go and play BINGO.. I am now 50 yrs old and loving it. 

I am also on SSDI After trying for 2 and half years.  (more)

Helene

I am 58 years old. I have primary progressive MS. I was diagnosed fifteen years ago when I my legs suddenly became numb and fatigue was also a sudden problem. I have gone from cane to walker and for the last seven years a  wheelchair. Now my hands are nearly as bad as my legs. This is not fun.

I am married to a wonderful, supportive man for 36 years, we have two grown and flown children. I was a graphic artist and an art teacher.  Now that my hands are nearly useless I do my creating on my computer with Adobe programs, it helps keep me sane. I love art, gardening, reading and the beautiful world around me but I hate not being able to participate in it any more.'

I hope I can get this chat-room thing right and look forward to meeting all of you.                   Helene :)
(more)

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. 
Everyone's M.S. is different and everyone's story is different. 
Get to know the chatters we chat with. 

Stories and Picture's 

Who are these chatters ? No one will tell you till Wednesday night chat after Woman and Mens chat!!! 

Who owns these cute kids!

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  

HeadsUp !

PeopleWithMS - Heads Up ! ! !

Citrine is a Grandma! Dylan Scott 5lbs.10oz

Mommy and baby are doing great!

CONGRATULATIONS CITRINE!


Welcome home Truckerswife!

We all missed our new chatter Truckerswife! We are happy to say she is back! We hope recovery is fast cause she is a blast!!!! 

Visit Pitchmonke's Jousting Adventures Page

My wife and I go to the Michigan Renaissance festival every year and there are lots of things to see. One of the best things we like is the full contact joust. These guy's are trained professionals and do a real good job at jousting. First they get introduced to the crowd and do some rally calls. Then they joust and fight.  For those of you who don't know what a joust is, they take long poles known has jousting poles then they charge each other on horse back. They try and knock each other off the horse and then they put on a fight. It's a very good show lots of fun.

 

Argh, Mateys  ! 

If you come in chat on Wednesday and Captain Jack is in:   beware !   LOL you're in for a good laugh. We have warned you we are a MS chat . . . but do we chat about MS? Only when we need to, and ask away when needed. Most of the time we get silly and have a lot of fun.

 .

 
We are regrettably removing the links on our home page to the Australian and Canadian sections of our site. We simply didn't get enough participation from resident's of these countries. While we will continue to welcome any and all visitors from these locales, we will just be expanding our focus in different directions.

"Marlene's Discussion Board". Please check it out, and help  her out by contributing any posts you would like to share. Look for her logo on our Home page! Check out the world map let's see who you do live close to! World Map

"I Dropped My Chicken Soup: Stories about Multiple Sclerosis"

 

I know it's been a long time coming, but after 2 years "I Dropped My Chicken Soup: Stories about Multiple Sclerosis" is available for sale.


You can order the book directly from the publisher Bookstand Publishing. The cost of the book will be $18.95 + shipping. The website is:


 http://www.bookstandpublishing.com/m/rebekahuggins/

OR

On October 22nd the book will be available through me at a cost of $15 and that will include shipping costs. I will accept money orders or cashier's checks or paypal. Please contact me for the address to send cashier's check or money orders. The e-mail adress for paypal is msstoriesofhope@yahoo.com

PLEASE DO NOT SEND MONEY UNTIL OCTOBER 22nd. I AM NOT TAKING PRE ORDERS. However the book can be bought as of now through the publisher


If your story is in the book please contact me before ordering a book.


Rebeka
www.myspace.com/msstories

 

Crafts

PeopleWithMS - Crafts

c

CRAFTERS


Debby is our craft coordinator. Please join her in our craft room. Bring ideas with you on fall crafts. We did get some feedback on what would be interesting in crafts. We are going to do a Fall craft chat this upcoming week and for the month of October. This will include Halloween and Thanksgiving. 

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

 To post crafts EMAIL deb@durgin.net

Debby's meetings will be on Tuesday's at 8PM EST for some fun!

Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM! AT the same time we have Men's chat in the MEN'S ROOM. We do this for one hour from 8PM till 9PM  EST. Then we join in the main chat room as always. Sue was nice enough to say she would host it. I believe Rod said ok he would host the men's chat as long as he can give baseball scores LOL! What's the topic? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week! If you come in chat and Donny Doormat is there its Red to greet you and show you the way LOL

Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat

Marlene & Rod have been the hosts for our Thursday Night Trivial Chat. 

Trivia washed out this week due to other chatter's commitments  

Stay tuned this week, same Batty-Time, same Batty-Chat-Room


* * * Your Trivia Night * * *

Trivia has an entirely twisted new game plan . . . . . . . . . . Bring Yer Own Trivia ! ! !

So we don't burden our Trivia Mistress and Master, we're holding ' bring your own ' Trivia nights.   Everyone brings 5 or more questions and answers, ready to copy and paste into chat. 

The questions need to be multiple choice or true or false   We'll take turns tossing out questions, round-robin.   

I found a great site http://www.funtrivia.com/ that among other things, has an Encyclopedia of Trivia. With a gazillion categories of questions to choose from. Marlene also found a great Trivia site http://www.123facts.com  

Thursdays at 8 pm EST for some fun.  

Recipes

PeopleWithMS - Recipes
An easy chicken recipe for crock pot or slow cooker.

INGREDIENTS:

6 boneless chicken breast halves, skin removed 
6 slices Swiss cheese 
1 can cream of mushroom soup 
2 cups stuffing mix 
1/2 cup butter or margarine, melted

PREPARATION:

Wash chicken pieces and pat dry. Lightly grease slow cooker or spray with cooking spray. Place chicken breasts in pot. Top with the Swiss cheese. Spoon soup over cheese then sprinkle with stuffing mix. 
Drizzle stuffing w/ melted butter and cook on low 6-7 hrs (high 3-4 hrs but i think it's better cooked at low temp. Serves 6

Thank you Lynne!

Sugar cookies

sugar cookies- these are real good yr around this is a triple batch at Xmas you can put color sugar on top

4 sticks of real butter - soft
2 -cups of white sugar
2 -cups of cofer sugar
2 cups of oil
4 - large eggs
2 - teas of lemon juice
mix
9 - cups of flour
2 -teas of baking power
2 - teas of cream of tarter

mix all together
I use a small cookie scope make into balls and 
put oil in bowl and another with sugar
dip a small glass up side down in to oil and then sugar, press down
you won't have to dip into oil
just dip into sugar.

bake 350 , 10 to 12 , if you want crisper bake lower 

Thank you Linda!

 
ROCKY ROAD FUDGE

2 CUPS SEMI SWEET CHOCOLATE CHIPS
ONE 14 OZ CAN SWEETENED CONDENSED MILK
ONE TEASPOON VANILLA
THREE CUPS OF MINI MARCH MALLOWS
1 1/4 CUPS CHOPPED WALNUTS

IN A SAUCEPAN COMBINE THE CHOCOLATE CHIPS AND THE SWEETENED CONDENSED MILK
OVER MED-LOW HEAT. STIR INTIL SMOOTH AND CHIPS ARE MELTED. ADD VANILLA, STIR,
AND REMOVE FROM HEAT

ADD THE MINI MARSHMALLOWS AND THE CHOPPED NUTS. STIR TO COMBINE WELL. POUR
INTO A FOIL LINED 13 X 9 PAN. MAKE SURE THE FOIL HAS BEEN LIGHTED GREASED WITH
PAM OR BUTTER. COOL COMPLETELY IN FRIDGE. AFTER COOL, REMOVE FROM PAN AND CUT
INTO SQUARES. ENJOY!!!!!!

This is one of mine, easy I like :) 

Thank you Linda!

 

Whoopee Pies:

1 1/2 cup Crisco
4 cups sugar
4 eggs
8 cups flour
6 tbs. cocoa
6 tsp. b. powder
2 tsp. b. soda
4 tsp. salt
4 tsp. vanilla
4 cups milk

Scoop on cookie sheet the size of an ice cream scoop. Cool. Then spread frosting on one cookie and put other cookie on top of frosting. There, now you have a WHOOPIE PIE...ENJOY.

Bake at 350 degrees for 20 minutes.

Frosting:
3 cups Crisco
3 cups confectioner sugar
2 cups marshmallow
6 tsp. vanilla

Thank you Judy !

 

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Poems

PeopleWithMS - Poems

FIRST HALLOWEEN APART

The end of October, thought Henry with glee
Scary ghost stories for Rebecca and me
But she had grown up now and had a date that same night
Not knowing the meaning it scared him with fright

EXPLAINING THE STORY
Rebecca moved into her new home late today
Being just nine, she wanted to play
Her bedroom upstairs was not her first choice
Up the staircase she went, when she heard a small voice
She jumped into bed, under the blanket she went
The tears close behind, from the eyes they were sent
A small voice was heard 'Little girl, what is wrong?'
The voice was so gentle, more like a song
Rebecca sat up to see who was there
A spirit, an angel, with bright golden hair
'My name is Henry, and this was my room'
She almost felt better, and not full of doom
'How did you get here, and where do you live?'
Rebecca ask Henry, with caring and give
'I will tell you tomorrow when there is more rest.
But now you must lay down and think of the best.'
They had no idea, their friendship would grow
Their stories of future, the highs and the low
But for now these two children would peacefully sleep
Dreams full of splendor, in their minds slowly creep
The story will go on for decades to come
This friend ship of two, slowly merged into one

© 2006 saeich48 -

Up the stairs came Rebecca her face all a glow
Thinking of Dane, he was her first beau
Henry came into her room with a smile
He told her of children all dressed up in style
Some he said sweetly, were not scary at all
But others he ran from and was hurt from a fall
But Rebecca was not listening to his talking ways
Her hands with its ring, in the air how it sways
She finally looked over to Henry and stared
She needed to listen and show that she cared

She realized his feelings were hurt and let down
She noticed his face from a smile to a frown
Poor Henry still nine and a child filled with fun
Had only Rebecca, his friend and his sun

So they sat on the floor and she listened with thought
How happy this made him, her attention he sought
They carved the fat pumpkin the face was a sight
Rebecca and Henry watched it glow till midnight

So that night would end and as usual indeed
With each one just knowing of the others real need
Rebecca and Henry, their lives would take turns
Leaving memories behind, in their hearts slowly burn

Thank you Sue

 

(The Musings of an Old Soul)

Don't patronize me and remind me
Of how very old my age,
Don't smile knowingly and nod,
As if you can gauge my stage.

Often times I quite forget
How really old I am,
'Till someone comes along and says,
"You're doing what? At your age, Ma'am!"

Woops! What am I thinking of?
I must have just forgot,
Old folks are s'posed to sit and rock,
And rock, and rock, and rock.

Oh, sure I need help from time to time,
As so do you, young friend,
But I've also learned to do without,
So please don't condescend.

My peers often drive me crazy,
But that's my problem; it's not yours,
I do the same to them sometimes,
But that's my right, as well as theirs.

I haven't lost my marbles yet,
Though some may be misplaced,
Don't make me older than I am,
Let me age at my own pace.

Don't roll your eyes and heave a sigh,
And tell me that you understand,
(I didn't just get off the boat,)
You don't, you won't, and you never can.

At least, not yet, my well-meaning friend,
You need a few more years,
And though I'd not wish them on you,
You may even need a few more tears.

Your heart is good, I know this,
And your intentions, too,
But patience is the virtue
That I wish the most for you.

Slow down and match my gait,
So we can walk together,
And should I lean upon you,
I hope my weight is like a feather.

If I take your hand, embrace me,
I'm not too fragile for a hug,
And it's okay to laugh and squeeze me,
I won't break; I'll just feel loved.

You're young, you're strong, you're bright, you're quick,
I'm old, I'm weak, I'm slow,
We can't compete, but we can meet,
With mutual respect, you know.

Make me glad our paths have crossed,
I'll do the same for you,
And, Lord willing, I'll make heaven
Long before you do.

Then I'll tell God about you,
Though He'll already know,
Still a word in your behalf can't hurt.
So be good to me before I go!

Virginia (Ginny) Ellis
Copyright March 2004
http://poetrybyginny.com

Once In A Lifetime

Once in a lifetime,
You find someone,
Who touches not only your heart,
But also your Soul.


Once in a lifetime,
You discover someone,
Who stands by you, not over you.
You find someone,
Who loves you for who you are,
Not for who you could be.


Once in a lifetime,
If you are lucky,
You find someone,
As we have found each other!

REDNDEB'S WEDDING POEM


On your day just want to say
That you can count on me
To be your friend until the end:
Just wait and you will see!

I know that you would be as true
To me for just as long.
No "if" or "but," no matter what,
Our friendship will be strong.

So, my dear, I'm glad you're here
To share my joy and pain.
I care so much, so keep in touch--
I'll talk to you again!

by Nicholas Gordon

THANK YOU BILL FROM ENGLAND

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's !!!  Check times!

You can also fond some of Rockin Rod's music in craft's, in our Fall and Halloween section!

 

Birthdays

PeopleWithMS - Birthdays
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty, Sae What, Linda-NV, JackIL, and Spikers room administrators. They have been using the chat.  They can help you if you need help. 


 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

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