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 PeopleWithMS.com Newsletter


October 13, 2007

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Chat Schedule Women's/Men's Chat Night
ChatStar Trivia
Stories and Pictures Birthdays
Rod's Music Shoppe Famous People
HeadsUp ! Poems
Healthy Eating/Recipes Newsletter Archive

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PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

We have a had a very busy, fun chat. We have gained many new MSers who I believe will be lifelong friends. Red and I want to thank all of you who have greeted these new chatters and made them feel like it is home. It is all of you who make new chatters feel so welcomed that they want to come back. We know how hard some days are;  you just want to stay in bed and forget chat. But you all still come in. We are a TEAM!  Everyone who is in that room becomes part of what makes chat so great! It is the caring and making sure someone feels better if they are not having a great time with their MS. I believe what makes our room so special is we have a blast, go wild, but can also get serious. Everyone helping with hosting is another reason we are a team. The room is yours - we have been in chat everyday, When I am back to work, we won't be in only at night. Please treat it as if it was your room. Many of you have done lots of hosting. Thank you!   

We always need more Hosts => Join our TEAM !

You ask:  "What's a RA ?"   Please read so everyone understands click here >About Chat! 


 This Week's

ChatStar

Linda-NV

 

Hello my name is Linda, and I live in Las Vegas. I moved here in 04 from Kansas City Missouri. Before that I was born and raised in Michigan. I have been married twice and have no children. However I do have an African grey parrot name Miata. He has the brain function of a 7 year old. He talks all the time. Tells me at night “it’s time To go to bed” “good night” and will keep it up till I cover his cage. 

The first time the doctors told me I had MS I was in my early 20’s. However it didn’t rear its Ugly head until I turned 47.. It has changed my life as far as my athletic abilities. But really Who wants to bowl or golf, compete in gymnastics when There are so many casinos to go and play BINGO.. I am now 50 yrs old and loving it. 

I am also on SSDI After trying for 2 and half years.  (more)

 

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Vickey62

Hi my name is Vickey. I am 45 years old. I live in southern Illinois bout an hour east of St Louis. I was dxd 1/06. I have resigned my job with the state I worked at it probably 15 years. I used to help do car titles and registrations. I really didn't have to many prior symptoms when I came down with ms. I was dragging my right leg a little - I had it hurt that summer with a horse accident and i thought it was from that, well surprise -> it wasn't. I have always been an outside kind of person. I grew up on a farm and riding horses all time. those days are over for me, I guess. I can't walk with out my walker right now and I use chair for any distance. I also have lost most of my vision in right eye, it has improved just a tad so I keep hoping it will return. Time will tell. I am single , I have no children, I just moved back to my own place, I was living with my boyfriend of 7 years, thought we would always be together. Joke on me, guess he couldn't take my ms, oh well.. well guess that's my story in a nutshell. think that's all I can think of to write.  (more)
DavidT

My is Dave. I am 42 years old. I have lived in Michigan my entire life, born in Motown . I was diagnosed with RR ms in August of 1997 with a couple of years of various symptoms. I am married to a lovely woman (Darlene), and have two very active boys Jeff is 9 and David who is now a teenager! Lol. I most recently worked as the store manager of a glass and mirror company and fatigue and cognitive functions forced me into an early retirement, and after 3 ˝ years and a few battles with the Social Security Admin. I was finally approved in November of this year. As far as my M.S. is fairing, I consider myself lucky. I have been pretty stable since my D.X. I do use a cane on occasion and have been on Copaxone since 1998. My family and I enjoy spending the summer months at Comerica Park. Home of the Detroit Tigers !! They will be back next year without a doubt. LOL I hope anyway. I also love to spend an occasional morning at one of Detroit's casinos. (just to pass some time) lol .... no addictions here!  (more )
Lorri

bigger picture at link . . . story to follow . . .   (more)
MarinesWife

MY NAME IS GERRY AKA MARINESWIFE I WAS A SURGICAL NURSE WAS MY LAST JOB ALMOST CERTIFIED BUT HAD TO GIVE IT UP 8 YEARS AGO NOT DUE TO MS I DO HAVE ATAXIA ON LEFT HAND THAT'S ANOTHER STORY. I WAS DXD WITH RRMS IN OCT 12 2005 ON A THURSDAY 'N NEXT DAY WAS FRIDAY THE 13TH, MY 15TH WEDDING ANNIVERSARY, FUN ON STERIODS ORAL 'N IV SO HAD OPTICAL NUERITIS SO WAS WEARING A PATCH OVER EYE AND MY TOES AND BOTTOM OF FOOT WAS NUMB AND STILL IS AND WAS FALLING, SO DID NOT WANT TO DO ANYTHING WAS VERY ANGRY DEPRESSED ASK FOR DIVORCE HE SAID "SEMPER FI, THEN SALUTE HIS MARINE FLAG, HIT HIS CHEST, THEN KISSED ME AND SAID WE BEEN THROUGH SO MUCH ALREADY WE WILL GET THROUGH THIS TOO. SO STARTED REBIF AND BEEN ON IT EVERY SINCE.   (more)
Melissa

My name is Melissa and I was dx w/ RR when I was 27. For one year doctors muddled around, said I needed a shrink. I said "well apparently I do cause my body is freaking out!" I had been an athlete my entire life. First, coordination was gone, then tingly in my hands and legs, I couldn't feel anything in my shaky hands, and I thought I was going blind. The pain can be unbearable, but I am treating it any way I can. Now 36, not back to work yet, I never used the amigo or cane the doctor made me get. I ride an adult tryke bicycle, I do yoga, stretch, and walk my dog every day 1/2 mile. Rebif is currently my drug of choice. All the 40 other pills they have me on, are their bright idea. I have had my share of relapses but every time I have fought my way back. I believe it's because I pray, keep as positive as possible, stay physically active, and HOPE. Hope that some day they will quit dragging their ass and cure me, instead of maintaining me. I know how lucky I am, to still be where I am. I thank god everyday for giving me strength to endure. Let's all keep the faith.  (more)
Barry12311

I live in Phoenixville, Pa. I'm 51, married, 2 children I was dx. May 2007. I was a Firefighter until I was dxd. I'm on SSDI now. I enjoy chatting and meeting people, I'm thru the the shock and being angry about this and decided to continue to get on the best I can now. When i was diagnosed i spent a week in the hospital getting steroids every night then spent 2 1/2 weeks in rehab. i had to learn to stand and walk all over again as MS has effected my balance and my right side mainly my right leg. I have toe drop and have a brace for my right leg, I'm mobile walking with a quad cane most days (keeping my walker close by). 

Hope to chat with with you all soon in the room..   (more)

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. 
Everyone's M.S. is different and everyone's story is different. 
Get to know the chatters we chat with. 

Stories and Picture's 

 

Mid-life Crisis

When I was married 25 years, I took a look at my wife one day and said, "Honey, 25 years ago, we had a cheap apartment, a cheap car, slept on a sofa bed and watched a 10-inch black and white TV, but I got to sleep every night with a hot 25 year old blonde. Now, we have a nice house, nice car, big bed and plasma screen TV, but I'm sleeping with a 50 year old woman. It seems to me that you are not holding up your side of things. 

My wife is a very reasonable woman.   She told me to go out and find a hot 25 year old blonde, and she would make sure that I would once again be living in a cheap apartment, driving a cheap car, sleeping on a sofa bed and watching a 10-inch black and white TV. Aren't older women great? They really know how to solve a mid-life crisis.

 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  

HeadsUp !

PeopleWithMS - Heads Up ! ! !

We are starting to talk about our May 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.

 

 

We will be opening 3 new "Groups" branch websites on MSN, Yahoo, and Google shortly.  These will help us reach some people who are more familiar with those particular mini-environments.  If anyone has a particular skill or interest in being the manager of one of the branch Group-sites, please let us know. It is a big job and needs to be watched daily. Any thoughts on a singles chat? We have lots of ideas but need some help  - as always LOL!!   

 

OK WHAT'S UP WITH THIS? LOL

 

Visit Spiker's Disney Page !!!Visit Spiker's Disneyland PageVisit Spiker's Disney Page !!!

 

"Marlene's Discussion Board". Please check it out, and help  her out by contributing any posts you would like to share. Look for her logo on our Home page! Check out the world map let's see who you do live close to! World Map

"I Dropped My Chicken Soup: Stories about Multiple Sclerosis"

 

I know it's been a long time coming, but after 2 years "I Dropped My Chicken Soup: Stories about Multiple Sclerosis" is available for sale.


You can order the book directly from the publisher Bookstand Publishing. The cost of the book will be $18.95 + shipping. The website is:


 http://www.bookstandpublishing.com/m/rebekahuggins/

OR

On October 22nd the book will be available through me at a cost of $15 and that will include shipping costs. I will accept money orders or cashier's checks or paypal. Please contact me for the address to send cashier's check or money orders. The e-mail adress for paypal is msstoriesofhope@yahoo.com

PLEASE DO NOT SEND MONEY UNTIL OCTOBER 22nd. I AM NOT TAKING PRE ORDERS. However the book can be bought as of now through the publisher


If your story is in the book please contact me before ordering a book.


Rebeka
www.myspace.com/msstories

 

Crafts

PeopleWithMS - Crafts

CRAFTERS


Debby is our craft coordinator. Please join her in our craft room. Bring ideas with you on fall crafts. We did get some feedback on what would be interesting in crafts. We are going to do a Fall craft chat this upcoming week and for the month of October. This will include Halloween and Thanksgiving. 

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

 To post crafts EMAIL deb@durgin.net

Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM! AT the same time we have Men's chat in the MEN'S ROOM. We do this for one hour from 8PM till 9PM  EST. Then we join in the main chat room as always. Sue was nice enough to say she would host it. I believe Rod said ok he would host the men's chat as long as he can give baseball scores LOL! What's the topic? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week!  Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room.

Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat

Tuesdays

and

Thursdays

at 8 pm EST 

for some fun.  

Marlene & Rod have been the hosts for our Thursday Night Trivial Chat. 

Trivia is expanding this week with two exciting nights:

Tuesdays:  Trivia Theme Night

Thursdays:  Bring Yer Own Trivia


Trivia Tuesday Theme Night will be based on some central topic, theme, or common thread and provided by the evening's Trivia Host.

All you need to bring is a thinking cap or propeller beanie


Trivia Thursdays continues as the always wacky and entertaining Bring Yer Own Night

Everyone brings 5 or more questions and answers, ready to copy and paste into chat. 

The questions need to be multiple choice or true or false   We'll take turns tossing out questions, round-robin.   

I found a great site http://www.funtrivia.com/ that among other things, has an Encyclopedia of Trivia. With a gazillion categories of questions to choose from. Marlene also found a great Trivia site http://www.123facts.com

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

 

Chicken Spinach Parmesan

1/2 cup grated parmesan cheese
1/2 teaspoon oregano
3-4 whole boneless chicken breasts
1/2 cup chopped green onions (scallions)
1/4 cup margarine
2 tablespoons flour
1 cup lowfat milk
1/2 bad fresh spinach


Combine parmesan cheese and oregano in small bowl
Roll chicken pieces in mixture to coat lightly, set remaining mixture aside ..arrange pieces in a 13x 9 baking dish.


In small pan cook onion in margarine until tender, stir in milk and flour, cook and stir until bubbly, stir in spinach.
Spoon spinach mixture over chicken, sprinkle with remaining cheese mixture.

Bake uncovered @ 350 for 30-40 minutes or until tender.
We serve it with a vegetable, salad and crusty bread....and wine :)

Thank you Citrine

Pumpkin Recipe! 

Don't throw out that old pumpkin, 
it has another use
Cut it like a jack-o-lantern,
clean out all the juice

Make the soup as follows,
potatoes, should be pared
Celery, onions, garlic,
this should be just layered

Stew meat for your pleasure,
I would boil first
Bay leafs to be added,
to make your senses burst

One can of tomatoes,
whole would be the choice
Now that, you can blend well,
the smell will be a voice

That you can share with others,
you may add your own
ideas to the mixture,
the recipe has grown

Pour in your pumpkin gently,
and put the lid on tight
Wipe pumpkin down with oil,
and don't worry it won't light

Put pumpkin in a deep pan,
and to the oven it goes
Three fifty for just two hours,
you'll swear that it just glows

You'll be the hit of the party,
for this centerpiece so fine
It came from someone close to me, 
it belongs to them, not mine

REAL RECIPE: Make any soup you want and put into a pumpkin shell, then put
the lid back on and wipe down with any oil. Cook for two hours on 350..until
brown and shiny (The soup will Not take on pumpkin taste) ..it is so pretty
to look at for fall.. I have made pumpkin pie in another dish and added to the
cleaned out pumpkin to finish and followed the same as the soup direction.
Then cut pie crust into squares and backed and use for dippers…toooo cute..

Thank You SAEWHAT

Salmon Pea Wiggle

2 cans salmon (drained & flaked)
3 cups whole milk
1 can baby peas (drained)
3 tablespoons all purpose flour
salt & Pepper

Place milk in large saucepan over medium heat.
Bring just to boiling point, stirring constantly. Gradually whisk in flour and continue cooking and stirring until slightly thickened.
Stir in the peas and let mixture come back to simmer stirring constantly, stir in the salmon and season with salt and pepper. Continue cooking until thick and heated through.

Serve over toast points, or mashed potatoes.

Carol

Berry Cheesecake Brownies

1 (6-ounce) package semi-sweet chocolate, chopped
1/2 cup creamy butter
1 1/4 cups granulated sugar, divided use
4 large eggs, divided use
2 1/2 teaspoons vanilla, divided use
3/4 teaspoon salt
3/4 cup all-purpose flour
1 (8-ounce) package cream cheese
2 tablespoons all-purpose flour
1 tablespoon lemon juice
1 cup fresh or frozen, unthawed raspberries

Preheat oven to 350°F.
Butter and flour a 13 x 9 x 2-inch baking pan.
Combine chocolate and butter in a heavy saucepan; melt over low heat, stirring frequently. Cool and pour into a medium mixing bowl. Stir in 3/4 cup sugar. Whisk in 3 eggs, one at a time, 2 teaspoons vanilla and salt. Stir in 3/4 cup flour; mix well and pour into the prepared pan.
In a small mixing bowl beat together cream cheese with 1/2 cup sugar using an electric mixer at medium speed until fluffy. Add 1 egg, 1/2 teaspoon vanilla, 2 tablespoons flour and lemon juice until smooth.
Spread in an even layer over brownie batter; sprinkle with berries.
Bake 35 to 40 minutes, or until top is puffed and tester comes out with crumbs. Cool in pan on rack; refrigerate to set before serving.

Makes 18 bars.

Thank you Judy !

Poems

PeopleWithMS - Poems

Find ME.



Find me beneath all these outward things you see,
Look deep within my heart and soul and tell me now do
you see me?
Don't stare at my w/c, or cane, or walker, or braces
that I have to use to walk,
They don't have feelings that can be felt nor can they
even talk.
Look at the smile on my face that I wear proudly
everyday,
Stop and talk to me not act like im not there and
stare while you walk away.
M.S. isn't something that I asked for or did anything
wrong to end up with,
Nor would I wrap it up with a pretty bow to give to
you as a gift,
Is it really that hard to see I'm the same as you and
have feelings to?
Surprising isn't it that even with M.S. I still have
needs, wants, hopes, and dreams to.
All I'm asking is to not look at the stigmatism
society has placed on me because of my disabilities,
Look past the disabilities, Look Inside my heart and
soul and Please Find ME.....

written by Debbie Frensley November 07, 2002



*On Every Journey There Is A Meaning*

 

Walking


Walking

Took a walk today, down the road
Along the way I see not a toad
But a deer in the distance, standing so still
It stood there so silent, I thought it not real

I walked down the dirt road, away from my home
Away from that ho hum, I walked all alone
I walked through the creek, that was visibly low
The leaves in the water, moved visibly slow

I walked up that back hill, where we would mow hay
I walked down the pasture, where I sometimes lay
I walked back to my home, to the bedroom I went
Thinking of my walk, and the time that I spent

This was a daydream, of time that has past
Legs are too weak now, to move near that fast
But daydreams are fun when the subject is clear
Of memories you treasure and hold oh so dear

Sue Eichelberger..Bless us all

 

The Gift of The Five Senses

Smell can be our favorite, the flowers or perfume
A place or just a person, when they walk into a room
Bad smell can also, take our memory far
Smell can be our friend or create a mental jar

Taste can give us pleasure, from food or drink so fine
Those tasty treats or grand meals, that pleasure is sure mine
Bad taste can bring us laughter, or make our mouth sure frown
You look for the drink or something nice to quickly wash it down

Hearing brings such soothing, the music from a room
From modern to the classics, your choice of which shall loom
Bad sounds will let us know quick, when we're needed now!
Usually turns out all right, lowering that brow

Touch, oh touch, how many
does it take to know just when
It feels so right, and yet we ask
, how long has it really been?
Bad touch can bring a pain, from an unknown source
Pay attention always, you should always stay the course

Seeing would be my favorite, the colors and the sight
of God's creation of the world, I see his wonderful might
Sight for me the blessing, to help me through each day
The only time I don't mind, to close my eyes to pray
Seeing only bad things, this person will never be
If you look for the bad and not the good that's all you'll ever see

THANK YOU SUE


JUST A COMMON SOLDIER
(A Soldier Died Today)
by A. Lawrence Vaincourt

He was getting old and paunchy and his hair was falling fast,
And he sat around the Legion, telling stories of the past
Of a war that he had fought in and the deeds that he had done,
In his exploits with his buddies; they were heroes, every one.

And tho' sometimes, to his neighbors, his tales became a joke,
All his Legion buddies listened, for they knew whereof he spoke.
But we'll hear his tales no longer for old Bill has passed away,
And the world's a little poorer, for a soldier died today.

He will not be mourned by many, just his children and his wife,
For he lived an ordinary and quite uneventful life.
Held a job and raised a family, quietly going his own way,
And the world won't note his passing, though a soldier died today.

When politicians leave this earth, their bodies lie in state,
While thousands note their passing and proclaim that they were great.
Papers tell their whole life stories, from the time that they were young,
But the passing of a soldier goes unnoticed and unsung.

Is the greatest contribution to the welfare of our land
A guy who breaks his promises and cons his fellow man?
Or the ordinary fellow who, in times of war and strife,
Goes off to serve his Country and offers up his life?

A politician's stipend and the style in which he lives
Are sometimes disproportionate to the service that he gives.
While the ordinary soldier, who offered up his all,
Is paid off with a medal and perhaps, a pension small.

It's so easy to forget them for it was so long ago,
That the old Bills of our Country went to battle, but we know
It was not the politicians, with their compromise and ploys,
Who won for us the freedom that our Country now enjoys.

Should you find yourself in danger, with your enemies at hand,
Would you want a politician with his ever-shifting stand?
Or would you prefer a soldier, who has sworn to defend
His home, his kin and Country and would fight until the end?

He was just a common soldier and his ranks are growing thin,
But his presence should remind us we may need his like again.
For when countries are in conflict, then we find the soldier's part
Is to clean up all the troubles that the politicians start.

If we cannot do him honor while he's here to hear the praise,
Then at least let's give him homage at the ending of his days.
Perhaps just a simple headline in a paper that would say,
Our Country is in mourning,
for a soldier died today.

© 1987 A. Lawrence Vaincourt

BILL, FROM ENGLAND..........

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's !!!  Check times!

You can also fond some of Rockin Rod's music in craft's, in our Fall and Halloween section!

 

Birthdays

PeopleWithMS - Birthdays
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty, Sae What, Linda-NV, JackIL, and Spikers room administrators. They have been using the chat.  They can help you if you need help. 


 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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