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 PeopleWithMS.com Newsletter


October 17, 2007

Go to Crafts Crafts 
Chat Schedule Women's/Men's Chat Night
ChatStar Trivia
Stories and Pictures Birthdays
Rod's Music Shoppe Famous People
HeadsUp ! Poems
Healthy Eating/Recipes Newsletter Archive

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

We are much bigger family of chatters now. We have combined 2 of the best chats online. We are teaming up so that we can make a larger and better chat. MrRed, WilRat, and I talked about what we could do to make sure everyone was going to be comfortable. No one has to feel that they have been left out. There's so much to do, and the more of us that pitch in, the more fun it will be. Please join in and make it work. Now that everyone knows, let's relax and get to know each other.

One thing that has not been settled yet is hosting => Do we have continue to have hosting or not? No one ever has to host.  Please, let's make that clear. We did scheduled hosting primarily to assure that someone was in room to greet a newcomer.  Volunteering to commit a a couple of hours in chat, on a regular basis, helped do this.  Right now, we have lots of people in chat.  Will we have more or less at any time of the day or night next week ?  Who knows ?  Give us your thoughts? 

We ask for recipes, poems, pictures and your stories. They are for the web site and also our weekly newsletter.  However, the underlying point is to establish the human element, and establish common connections between newcomers and our chatters. 


What's With All The Rooms ?

PWMS

Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.

CoffeeHouse

Grab some friends, have a latte!  No ?   OK, kick back with a Cappuccino.

Lounge The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Trivia

Organized Triva is held 2 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST
Off-Topic

The room for discussions of limited interest subjects.  Computer or other Internet Troubles.  Rebuilding 57 Buick carbs.   Window Treatments.  Care and Feeding of Dust Bunnies.

Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.


 This Week's

ChatStar

Ditto1

 

 

 

I was diagnosed with RRMS in 1997. I worked as a processing supervisor in a commodities yard from 1980 to 1988. Took the whole year of 1989 off to ponder my predicament. Started driving a cab in 1990 and started an AUTOCAD class in 1993. After the class was over I finally got a job as a detailer at an engineering firm in Feb 1995. Was promoted to Designer in Oct. 1995. Quit driving cab in FEB 1995. Ultimately ending up at DANA CORP in Jan 1998.  (more)

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Sumo

Hey folks, I am sumo58. Here's my story. Back in April of '96 I woke up blind in my right eye. I didn't have a clue what was happening. We called the Dr. the next day, who sent me to an eye specialist. He examined me and said I might have MS. Stating 50% of people with optic neuritis have MS. I still didn't believe him. (more)
RJump I HAVE HAD MS NOW FOR 40+YEARS. I WAS DX'D AT THE AGE OF 34. BLADDER ISSUES WERE FIRST SYMPTOMS AND ALSO FATIGUE AND MEMORY. WENT TO NEURO AT THE AGE OF 34 AND WAS DX'D WITH MS. HAS PROBLEMS WITH VISION AND IT ISN'T GETTING ANY BETTER. STILL WORK AT A HOTEL. HE IS A BELLMAN/VAN DRIVER. COURTESY VAN TO AIRPORT AND TAKE GUESTS TO PLACES IN THE AREA.  REALLY ENJOY DOING IT. MARRIED FOR 40+ YEARS.  (more)
Rebeka

Before my story starts I was a typical twenty year old. I enjoyed dancing, going out to clubs, shopping, hanging out with my friends. I had a serious boyfriend, the best friends anyone could ask for, and a family that backed me up no matter what.

I was sick quite often, had a lot of back problems, headaches, and I was always tired. But that was normal for a teenager...wasn't it? I remember the symptom that told me something might be wrong. I was driving home from work one night, I looked down and I got this weird tingling sensation down my spine. I brushed it off as a pinched nerve. I didn't have medical insurance, as Id just started this job, so I waited to go in to the doctor.  (more)

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. 
Everyone's M.S. is different and everyone's story is different. 
Get to know the chatters we chat with. 

Stories and Picture's 

 
To all smart women in the world. 
Subject: The woman who reads

A husband returns the boat to the lakeside cottage after several hours of fishing and decides to take a nap. Although not familiar with the lake, the wife decides to take the boat out. She motors out a short distance, anchors, puts her feet up, and begins to read her book. The peace and solitude are magnificent.

Along comes a Fish and Game Warden in his boat. He pulls up alongside the woman and says,   

"Good morning, Ma'am. What are you doing?" "Reading a book," she replies, (thinking, "Isn't that obvious?")
"You're in a Restricted Fishing Area," he infor ms her.
"I'm sorry, officer, but I'm not fishing. I'm reading."
"Yes, but I see you have all the equipment. For all I know you could start at any moment. I'll have to take you in and write you up."
"If you do that, I'll have to charge you with sexual assault," says the woman.
"But I haven't even touched you," says the Game Warden.
"That's true, but you have all the equipment. For all I know you could start at any moment."
"Have a nice day ma'am," and he left.

MORAL: Never argue with a woman who reads. It's likely she can also think.

Thank you LFShaw

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  

HeadsUp !

PeopleWithMS - Heads Up ! ! !
Why do they ask for pictures and stories? I reason is most of us like to put a face with our chatting. When MSERS are first diagnosed and are searching the web we after many years are way up there. Many people in the world today do not know what MS is AT 3 AM when someone's newly diagnosed looks and sees wow Young people older people. All kind have MS and for some it makes them not feel so alone. Share help a fellow MSER Caregivers we were all there at one time and needed all the help we could get.
We are starting to talk about our May 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.

 

We will be opening 3 new "Groups" branch websites on MSN, Yahoo, and Google shortly.  These will help us reach some people who are more familiar with those particular mini-environments.  If anyone has a particular skill or interest in being the manager of one of the branch Group-sites, please let us know. It is a big job and needs to be watched daily.We have lots of ideas but need some help  - as always LOL!!   There will not be any chats on these sites, only information.

 

"Life is not the way it's supposed to be. It's the way it is. The way
you cope with it is what makes the difference."

 

"Marlene's Discussion Board". Please check it out, and help  her out by contributing any posts you would like to share. Look for her logo on our Home page! Check out the world map let's see who you do live close to! World Map

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

I know it's been a long time coming, but after 2 years "I Dropped My Chicken Soup: Stories about Multiple Sclerosis" is available for sale.

You can order the book directly from the publisher Bookstand Publishing. The cost of the book will be $18.95 + shipping. The website is:

 http://www.bookstandpublishing.com/m/rebekahuggins/

OR

On October 22nd the book will be available through me at a cost of $15 and that will include shipping costs. I will accept money orders or cashier's checks or paypal. Please contact me for the address to send cashier's check or money orders. The e-mail adress for paypal is msstoriesofhope@yahoo.com

PLEASE DO NOT SEND MONEY UNTIL OCTOBER 22nd. I AM NOT TAKING PRE ORDERS. However the book can be bought as of now through the publisher

If your story is in the book please contact me before ordering a book.

Rebeka
www.myspace.com/msstories

Crafts

PeopleWithMS - Crafts

CRAFTERS


Debby is our craft coordinator. Please join her in our craft room. Bring ideas with you on fall crafts. We did get some feedback on what would be interesting in crafts. We are going to do a Fall craft chat this upcoming week and for the month of October. This will include Halloween and Thanksgiving. 

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

 To post crafts EMAIL deb@durgin.net

Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM! AT the same time we have Men's chat in the MEN'S ROOM. We do this for one hour from 8PM till 9PM  EST. Then we join in the main chat room as always. Sue was nice enough to say she would host it. I believe Rod said ok he would host the men's chat as long as he can give baseball scores LOL! What's the topic? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week!  Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room Any one can use this room anytime it is a open room.

Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat

Thursdays

at 8 pm EST

5 pm PST 

  

Saturdays

9pm EST

6 pm PST

Marlene & Rod have been the hosts for our Thursday Night TrivialChat. 

Trivia Thursdays continues as the always wacky and entertaining Bring Yer Own Night

Everyone brings 5 or more questions and answers, ready to copy and paste into chat. The questions need to be multiple choice or true or false   We'll take turns tossing out questions, round-robin.   

I found a great site http://www.funtrivia.com/ that among other things, has an Encyclopedia of Trivia. With a gazillion categories of questions to choose from. Marlene also found a great Trivia site http://www.123facts.com

WELCOME ALL


Gerry & Shimmie & Scottie host our Saturday Night TriviaChat!

Trivia Saturdays, where the hosts ask the questions.

Shimmie Keeps score.

Sit back, relax.  It's Saturday night enjoy!

For the East Coast chatters, it's like a night out!

WELCOME ALL

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

 

Parmesan Chicken:

4 Chicken Breasts
Parmesan Cheese
Egg whites or Egg Beaters


Dip Chicken Breasts into Eggs until all sides are coated.
Dip Chicken Breasts into Parmesan Cheese until all sides are coated.
Bake @ 350 until done about 30 min.

Thank you LIZ

Pumpkin Whoopee Pies:

1 large can pumpkin
4 eggs
4 cups sugar
2 cups vegetable oil
8 cups flour
4 tsp. cinnamon
8 tsp. b. powder
2 tsp. salt
2 tsp. b. soda
4 tsp. milk
Bake at 350 for 20 minutes.

ENJOY THE SAME DIRECTIONS AS THE OTHER WHOOPEE PIES...ENJOY

Thank you Judy!

Berry Cheesecake Brownies

1 (6-ounce) package semi-sweet chocolate, chopped
1/2 cup creamy butter
1 1/4 cups granulated sugar, divided use
4 large eggs, divided use
2 1/2 teaspoons vanilla, divided use
3/4 teaspoon salt
3/4 cup all-purpose flour
1 (8-ounce) package cream cheese
2 tablespoons all-purpose flour
1 tablespoon lemon juice
1 cup fresh or frozen, unthawed raspberries

Preheat oven to 350F.
Butter and flour a 13 x 9 x 2-inch baking pan.
Combine chocolate and butter in a heavy saucepan; melt over low heat, stirring frequently. Cool and pour into a medium mixing bowl. Stir in 3/4 cup sugar. Whisk in 3 eggs, one at a time, 2 teaspoons vanilla and salt. Stir in 3/4 cup flour; mix well and pour into the prepared pan.
In a small mixing bowl beat together cream cheese with 1/2 cup sugar using an electric mixer at medium speed until fluffy. Add 1 egg, 1/2 teaspoon vanilla, 2 tablespoons flour and lemon juice until smooth.
Spread in an even layer over brownie batter; sprinkle with berries.
Bake 35 to 40 minutes, or until top is puffed and tester comes out with crumbs. Cool in pan on rack; refrigerate to set before serving.

Makes 18 bars

Caramel Oatmeal Chewies

1 3/4 Cups Oats
1 1/2 Cups Flour
3/4 Cups Brown Sugar
1/2 Tsp. Baking Soda
1/4 Tsp. Salt
1 1/2 Stick Margarine, melted
1 Cup Chopped Nuts
1 Cup Semi Sweet Chocolate Morsels
14 Ounces Vanilla Caramels
1/4 Cup Water

Heat oven to 350 degrees. Grease a 13x9 inch baking pan. Combine first 5 ingredients. Add the margarine. Mix until crumbly. Reserve 1 cup for topping. Press remaining mixture onto bottom of pan. Bake for 10 minutes. Cool. Top with nuts and chocolate pieces. In medium saucepan, melt the caramels, (you can do this in a double boiler). Stir until smooth. Remove from heat. Drizzle over chocolate pieces to within 1/4 inch of pan edges. Sprinkle with reserved oat mixture. Continue baking for 15 to 18 minutes or until golden brown. Cool, then chill until set. Cut into bars. Makes 32 bars.

Enjoy...

Judy

Poems

PeopleWithMS - Poems

Nature vs Memories

My sentimental journey into yesterday
Takes me to the waltzing trees hard at play
In a summer solstice with its heavy heat
Comes cooling sensations upon my feet

Meandering minds of what is next
And when, where and how
Have to many thoughts to my eyes
Have the sweat upon a third brow

Just close your eyes and think back of those days
When it was nice just to relax
With the simple ness of youth and stress put aside
Enjoying your time to the max
sue eichelberger

 

Stand by me
 

Stand by me my friend
Don't walk away.

Don't leave me my friend
I'm asking you to stay.

I need your shoulder to lean upon
and I'll give you mine.

Tell me that you'll be there
just give me a sign.

Hold me till I sleep in peace
and guide me through the night.

Wake me with love and hope
in the early morning light

 

MS_Kitty70
 
I have a brand new friend!
HAPPY AND THANKFULL

But I am not telling you who
He or she, I want you to guess
They appeared just out of the blue

Wasnt looking to bind and blend
Just happened to my delight
They came to me just when
I was sure I was loosing insight

To a way of making more joy
In my days of gloom and dread
So thank you, you special someone
You have helped clear my heart and head

"sue eichelberger" (Sae What)


Hope For Tomorrow


A twitch in my hand or a tingle in my toes

what happens next nobody knows.

Sometimes we can't remember what we want to say

but we have to carry on from day to day.

The pain we all endure is hard to comprehend

and all we can do is pray for a cure to make the pain end.

Fear of the unknown is always there

and the feelings that some people just don't care.

People can't see what we feel

and some even say it's not even real.

The sadness comes and strangles your heart

and makes the next day hard to start.

But don't give up hope there's always tomorrow

and don't give in to the heartache and sorrow.

We have to believe there's an end in sight

and for our health we'll continue to fight.

                                                                                                                                                Written by Terri House

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's !!!  Check times!

You can also find some of Rockin Rod's music in craft's, in our Fall and Halloween section!

 

Birthdays

PeopleWithMS - Birthdays
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty, Sae What, Linda-NV, JackIL, and Spikers  Marineswife, Shimmie, Joly. room administrators. They have been using the chat.  They can help you if you need help. 


 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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Send us a request;  PWMS@PeopleWithMS.com

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