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 PeopleWithMS.com Newsletter


October 27, 2007

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Chat Schedule Tuesday Game Night
ChatStar Women's/Men's Wednesday
Stories and Pictures Trivia Thursday 
Healthy Eating/Recipes Famous People
Birthdays Poems
Newsletter Archive

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PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

It has been very, very busy! WilRat, Red, and I would like to share some numbers with everyone. One night last week we looked, just for the heck of it, to see how many hits (log-ins) there had been to chat.  Over 500  in one day! And that was from around 7 Am till 7 PM. It has been busy, with over 2,000 log-ins in the past week.  If you visited us when we first joined our chats, and were very confused by all of the new chatters, please try it again.  In addition to the fine folks from the Goodwill chat, we've had a large number of folks visiting from some of the other chats.  Some curiosity seekers, some tossed out of other chats and looking for a new home.  In this, we have seen many MSers reunited in our chat after many years. So often folks lose touch with MSers who they chatted with for a real long time. Health troubles, computer troubles, relocations, whatnot.  We have been here for many, many years, and we're not going away. Most of all, we enjoy all of our chatters. 

We have had lots of newer chatters drift off for long times. Some don't come back for hours, some get lost on other Instant Messengers, some multi-task into a parallel universe, and some just don't know how to, or forget to, log off.  Please, if you need to be away more than 15 minutes, log out using the Door with the 'Invisible Green ' Arrow, or the big ' X ' in the top right corner of the Chat Window.  and come back when you can chat.

We have asked chatters to host in the past. And we're again asking if anyone would like to help us out in hosting.  The best way for everyone concerned seems to be 2 hosts or RA's at a time. One can always be ready to help a newbie out, and say hi. Another to act as a RingMaster, directing people to the new rooms we have constructed to reduce the confusion.  There are now 10 rooms - please use them !  Just say "Come join me in the whatever room.   The main room sure gets busy, we all know that.  The CoffeeHouse can be a real sanctuary just down the hall from the Main Chatroom Lobby.

Above all - Have fun & relax! 

Wednesday is Halloween! Everyone wants a Party! So we will have a Party.

By popular demand, we will open a Halloween Room - Just for one night! Come is with any name you want as long as you use the Halloween Room! Have fun ! 


What's With All The Rooms ?

PWMS

Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.

CoffeeHouse

Grab some friends, have a latte!  No ?   OK, kick back with a Cappuccino.

Lounge The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST
Off-Topic

The room for discussions of limited interest subjects.  Computer or other Internet Troubles.  Rebuilding 57 Buick carbs.   Window Treatments.  Care and Feeding of Dust Bunnies.

Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.
 

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.


 This Week's ChatStar 

 

Sumo

Hey folks, I am sumo58. Here's my story. Back in April of '96 I woke up blind in my right eye. I didn't have a clue what was happening. We called the Dr. the next day, who sent me to an eye specialist. He examined me and said I might have MS. Stating 50% of people with optic neuritis have MS. I still didn't believe him. (more)

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
Andrea

I am 46 now and have been living with MS for 4 years. I was a cardio/thoracic surgical ICU nurse with the world ahead of me. When my mother died in 02 I grieved her death miserably. It wasn't long before the death grip of MS would encompass me and change my life forever. My first symptoms were my legs bucking under me, then my eyesight went and along came these excruciating migraine headaches. I soon became confused and lost my ability to form sentences, and walking was a nightmare as I had no balance and my legs were weak. MS seemed to hit me all at once. (more )
Angela

My name is Angela, I am 27, live in PA. I am married to a wonderful man, and I have a beautiful 4 year old little girl, and one adorable pug.. I just found out I have ms this past Wednesday, and I go to the doctor to start treatment this week..... (more )
RubySlipperedOne

story to follow . . . (more )
Flower45 MY NAME IS SANDY AKA FLOWER45. I LIVE IN DUBBERLY LOUISIANA (ABOUT 35 MIN FROM SHREVEPORT) I HAVE RRMS DXS IN MARCH OF 2003 AFTER 5 YEARS OF THINKING I WAS GOING CRAZY. I HAVE BEEN ON REBIF SINCE APRIL OF 2003. I HAVE BEEN VERY LUCKY. AFTER GETTING STABLE I HAVE NOT HAD A RELAPSE SINCE JUNE OF 2006. I DID HAVE A MASSIVE HEART ATTACK AT THE AGE OF 45 ON JUNE 30 2006. NOT RELATED TO MY MS. I ADVICE EVERYONE TO BE CAREFUL. I THOUGHT IT WAS MY MS AND REFUSED TO GO TO THE DOCTOR. AFTER GETTING TO ER THEY TOLD MY HUSBAND 10 MINUTES LATER I WOULD NOT HAVE MADE IT. DO NOT PASS THINGS OVER BECAUSE YOU THINK IT MIGHT BE YOUR MS. (more )
Glenda

MY NAME IS GLENDA LEE I WAS DXED IN 83 24 YRS NOW. I'M 63 AND IN SCOOTER NOW. HAVE 6 GROWN KIDS THEY ARE IN PICTURE. YOUNGEST SON WAS 6 MO OLD WHEN I WAS DXED. I LIVE NEAR PITTSBURGH PA. MY YOUNGEST DAUGHTER LIVES BEHIND ME AND SHE IS MY HELPER. I HAVE 10 GRANDKIDS FROM 22 TO 7 YRS. I HAVE 3 DOGS 3 PYGMY GOATS A LOT OF BIRDS BIG AND SMALL AND ONE BALL PYTHON NAMED LUCY. I ENJOY FLOWERS AND EVERYONE HELPS WITH THEM. (more )
Liz Hello from the historic Hudson Valley, NY. My name is Liz and I have been diagnosed with SPMS since 2003. After many years of probably MS. I am still working and I do not know how but I am. I work withpeople with disabilities and help them in the SSDI process. I try not to let MS stop me but sometimes it is hard not to. I hope to chat with you sometime.  (more )
PixieDust

My name is Penny. I am 28 years old. I live in Vancouver, Washington. I have a son that will be 2 on the 2nd of November, my how time flies...lol. His name is Hunter.

I was born and raised in Canada, and then I moved down here almost 4 years ago. I am currently going through a divorce, and surprisingly it is a good one, no name calling or whatever else I have heard a lot of couples go through.

I don't know what else to say, other than I am glad that I found peoplewithms.com. I have met a lot of nice people on there.
(more )
Scott

 (more )
shimmie

story

to 

follow 

. . .(more )

WilRat & Frances

 story to follow . . . (more )
Audrey

Hi, my name is Audrey and I am from and live in North Carolina. I was diagnosed with MS in June '04. I woke up on a Friday morning with the right side of my tongue feeling numbness. After a week of the numbness still on the right side of my tongue, I got worried. I starting looking around on the internet for some things that could cause numbness of the tongue.

MS popped up...I said OH NO. MS is in my family. I have two genetically close relatives with MS. I went to my MD and told him of my concern. He just patted me on my shoulder and told me the best medicine he could give me was reassurance.....(more )

Joe

great full sized picture, eagerly awaiting story to follow . . . (more )

Virginia

 

I was diagnosed with MS in October 1991, was in denial of the disease for ten years after that until I had to wade out out of the Denial due to continuing medical MS related problems; I now know to know my limits, take care of myself (good nutrition and lots of good rest) sleep at least 7 hours a night; try not to drink too much or stay out too late.  (more )

This could be you*

Send in you Story and Picture by All Hallow's Eve, or expect a personal visit from the PWMS's Chat Zombie.  A Delightfully Decadent sort, ready to extract every bit of life and excitement until a gripping MS Yarn is extracted.  Nothing in your fridge will ever taste the same.  Your couch will never smell the same.  And every TV show will be in Black and White.  

So be safe . . .   Take a page from " The Zombie Survival Guide " => Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 
 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

   

HeadsUp !

PeopleWithMS - Heads Up ! ! !

"Marlene's Discussion Board". Please check it out, and help  her out by contributing any posts you would like to share. Look for her logo on our Home page! Check out the world map let's see who you do live close to! World Map

We are starting to talk about our May 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.

 

We will be opening 3 new "Groups" branch websites on MSN, Yahoo, and Google shortly.  These will help us reach some people who are more familiar with those particular mini-environments.  If anyone has a particular skill or interest in being the manager of one of the branch Group-sites, please let us know. It is a big job and needs to be watched daily.We have lots of ideas but need some help  - as always LOL!!   There will not be any chats on these sites, only information.

 

 

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

I know it's been a long time coming, but after 2 years "I Dropped My Chicken Soup: Stories about Multiple Sclerosis" is available for sale.

You can order the book directly from the publisher Bookstand Publishing. The cost of the book will be $18.95 + shipping. The website is:

 http://www.bookstandpublishing.com/m/rebekahuggins/

OR

On October 22nd the book will be available through me at a cost of $15 and that will include shipping costs. I will accept money orders or cashier's checks or paypal. Please contact me for the address to send cashier's check or money orders. The e-mail adress for paypal is msstoriesofhope@yahoo.com

PLEASE DO NOT SEND MONEY UNTIL OCTOBER 22nd. I AM NOT TAKING PRE ORDERS. However the book can be bought as of now through the publisher

If your story is in the book please contact me before ordering a book.

Rebeka
www.myspace.com/msstories

Pitchmonke's Fall Foilage Adventure Tour

This weekend we went for a ride to get some fall photos, some places are at peak while others are just gone because its been windy. I didn't get to go to my old hunting grounds like I wanted to but we got some good photos. In the one pic. I'm sending is a house we found for my sister in law lol.

 

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Tuesday Game Night

PeopleWithMS - Women's & Men's Chat Night

The 3 word game!

Shimmie

Will be our host!

Tuesday night 8PM EST 

5PM PST

7PM CST

Welcome to our Tuesday night Game night we are starting with the three word game this week! We will take it one week at a time. The three word game sounds like fun. Shimmie has been nice enough to host it.

Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM! AT the same time we have Men's chat in the MEN'S ROOM. We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for another hour feel free to stay. We have had such a great time its seems for some its not long enough.  Then we join in the main chat room as always. Sue was nice enough to say she would host it. I believe Rod said ok he would host the men's chat. What's the topic? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week!  Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room Any one can use this room anytime it is a open room.

Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat

Thursdays

at 8 pm EST

5 pm PST 

  

Saturdays

9pm EST

6 pm PST

Marlene & Red  have are the hosts for our Thursday Night TrivialChat. 

Trivia Thursdays continues as the always wacky and entertaining Bring Yer Own Night

Everyone brings 5 or more questions and answers, ready to copy and paste into chat. The questions need to be multiple choice or true or false   We'll take turns tossing out questions, round-robin.   

I found a great site http://www.funtrivia.com/ that among other things, has an Encyclopedia of Trivia. With a gazillion categories of questions to choose from. Marlene also found a great Trivia site http://www.123facts.com

WELCOME ALL


The next Trivia on Saturday will be November 3RD we have to skip a week.  

Gerry & Shimmie & Scottie host our Saturday Night TriviaChat!

Trivia Saturdays, where the hosts ask the questions.

Shimmie Keeps score.

Sit back, relax.  It's Saturday night enjoy!

For the East Coast chatters, it's like a night out!

WELCOME ALL

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

 

PUMPKIN CAKE

BEAT TOGETHER: MIX TOGETHER:

4 EGGS 2 CUPS FLOUR
3/4 CUP OIL 1 TSP. BAKING SODA
2 CUPS SUGAR 2 TSP. BAKING POWDER
1/2 TSP. SALT
1 TSP. CINNAMON
SIFT ALL THIS TOGETHER AND MIX WELL WITH EGG, SUGAR AND OIL MIXTURE. ADD 1 CAN PUMPKIN PIE FILLING. POUR INTO A GREASED AND FLOURED 13 X 9 CAKE PAN. BAKE AT 350 DEGREES FOR 40 TO 45 MINUTES.

FROSTING:

1 STICK MARGARINE
8 OUNCES CREAM CHEESE
1 POUND CONFECTIONER SUGAR
1 TSP. VANILLA

MIX ALL INGREDIENTS TOGETHER AND MIX WITH MIXER. BLEND WELL. FROST CAKE. TOP WITH CHOPPED WALNUTS.

ENJOY

Thank you Judy !
TRIPLE CHOCOLATE CAKE

1 Duncan Hines Devil's Food cake
1(113 g) pkg. instant chocolate pudding
1 cup sour cream
1/2 cup vegetable oil or canola oil
1/2 cup water
4 eggs
1 (300g) pkg. Chipits, milk chocolate  chips, divided

FROSTING

2/3 cup reserved milk chocolate chips
1/3 cup sour cream

CAKE : combine all ingredients except the  chocolate chips in large mixing bowl. Blend, then beat 4 minutes at medium  speed on electric mixer, Reserve 2/3 cup of Chipits for frosting.  Stir remaining Chipits into the batter. Turn batter into a 12-cup bundt  pan, sprayed with Pam. BAKE at 350F for 50 to 60 minutes, or until a  toothpick inserted in centre comes out clean. Cool 10 minutes in pan, then  remove by turning out on wire rack to cool completely.


FROSTING: 

Melt reserved Chipits. Add sour  cream, stirring til smooth. Drizzle over cool cake.

Deb!
Apple Crisp

4 cups pared, cored sliced baking apples
2/3 to3/4 cup packed brown sugar
1/2 cup flour
1/2 cup rolled oats
3/4 tsp cinnamon 
1/3 cup soft butter
3/4 tsp nutmeg
3/4 tsp cinnamon
1/3 cup soft butter

Place the apples in a greased 8 inch pan or casserole dish. Blend the brown sugar , flour rolled oats, cinnamon nutmeg and butter, until crumbly . Spread over apples . Bake in a 375 degree oven for 30 to 35 minutes. Serve with whipped cream or ice cream.

Deb!

BANANA BREAD

MASH 3 VERY RIPE BANANAS IN A BOWL. ADD...

1 CUP OF WHITE SUGAR, 4 TABLESPOONS OF CRISCO OIL, 1 LARGE EGG

WHISK THEM ALL TOGETHER...OR USE A WOODEN SPOON

IN A SEPARATE BOWL MIX

1 1/2 CUPS OF ALL PURPOSE FLOUR, 1/4 TEASPOON OF SALT, 1 TEASPOON OF BAKING SODA, 1 TEASPOON OF BAKING POWDER

ADD THE DRY INGREDIENTS TO THE OTHERS... AND MIX WELL.  YOU DON'T HAVE TO USE AN ELECTRIC MIXER.  SPRAY YOUR LOAF PAN WITH PAM SPRAY. BAKE AT 350 FOR 45 MINUTES

YOU CAN MIX A BIT OF CINNAMON IN A BOWL WITH SOME SUGAR...AND SPRINKLE ON TOP BEFORE

 IT GOES IN THE OVEN...THAT IS WHAT I DO

Deb!

Poems

PeopleWithMS - Poems

The Hole Truth, nothing but..

Did you clean your room up?
Yes, I did can I go outside now?
Well, let me check it before you leave
Opening his door, her expression was wow!

Up to the ceiling she glanced at the fan
Her eyes searching further cross the room she did pan
The shelf on the wall looked somewhat not right
The trucks seamed so structured, some how to tight

“Why are you jeans there hanging in mid air?”
“Socks on your shelf, do I ask, do I dare?”
He did what she ask but in his own way
No clutter insight, just up and away

        Thank you Sue!

I am not a laureate by choice
by those who will decide
of who will write and voice
their decision by rules applied

Like those many pros of the past
and to those who are with us now,
their writing styles were cast
from others who showed them how.

But remember the thought and feel
that drove the paper with pen,
when deciding who shall get the prize,
you were there once, remember when?

                                                   Thank you Sue!


Dumpling’s no turkey?

Thanksgiving day upon us A memory I recall
Years ago on grandma’s farm I wasn’t very tall

Kath and I went down there To spend this holiday
Mom just had a baby Quiet time, no noise of play

Grandma, she raised chickens We like to feed them corn
They were pretty noisy Except the ones just born

The day had come and finally We could go home to stay
But first there was this fine meal We bowed our heads to pray

Eyes went to the table Where is the big king bird?
A bowl of dumplings just sat there A whisper could be heard

Hey, where’s the turkey I thought but didn’t say
Kath put her head down slowly On the table it did lay

Grandma surely noticed Our faces of despair
She said to count our blessings And remember our last prayer

The years have passed for Kath and me But the memory still so strong
We try to call each other first “Got those dumpling’s on?”

Who would have thought a day of grief? Would bring a thought of pleasure
Each Thanksgiving day I think of it The one I truly treasure

Thank you Sue!


THE OLD MAN


His shoulders are stooped and his hair's getting thin And he can't move as fast as he did But he was the guy who stood seven feet tall When you were a wee little kid In a world full of terrors you always felt safe Long as you had hold of his hand Back then he was Papa or Daddy or Dad But now he is just the old man.

Remember the guy who excused your misdeeds By saying that "Boys will be boys" Who painted your bike and patched your skinned knees And repaired all your broken down toys Remember the guy on whose shoulders you sat So that you could look over the crowd Now don't be ashamed if he tells a tale twice Just say "He's my dad" and be proud
There's the time you went camping and he taught you to fish That summer when you were a lad And you slept 'neath the stars that night, by a stream Just you and your best friend, your dad When the hugs that he gave you, when you were a child Were replaced by the clasp of his hand You knew that he loved you not one bit the less He was still there, he was your old man.

And though there were times when you might disagree You knew he would still back your stand For when push came to shove he was always right there In your corner, there stood the old man But now you've outshone all the things that he's done You've surpassed him in knowledge and wealth Now you are the one who stands straight and tall While he's stooped and failing in health.

So take him to lunch and buy him a beer And call him whenever you can Who knows if he'll even be with you next year And remember, he is The Old Man.


© 1991 A. Lawrence Vaincourt

BILL, ENGLAND..........

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

Birthdays

PeopleWithMS - Birthdays
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty, Sae What, Linda-NV, JackIL, and Spikers  Marineswife, Shimmie, Joly. room administrators. They have been using the chat.  They can help you if you need help. 


 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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