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November 17, 2007

HeadsUp !
Chat Schedule Tuesday Game Night
ChatStar Women's/Men's Wednesday
Stories and Pictures Trivia Thursday 
Healthy Eating/Recipes Famous People
Birthdays Poems
Rod's Music Shoppe Newsletter Archive


PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

The three word game was lots of fun this week. Trivia has some better changes for Saturday. Thursday's Trivia went great. It's getting colder so grab some Tea or Cocoa! Give it a try, have some fun with us!  

One thing that we have changed is what to do with unappreciated  conversation in the main room!  Whenever the Chatroom Lobby's conversation is offensive, too frantic, or simply boring,  look to one of the many other rooms.  That's why they are there. Many RA's have helped a lot, suggesting to the more reserved; "Hey, let's grab a danish at the CoffeeHouse" or, for evening ribaldry; "Let's go to the Lounge.

When someone new and newly diagnosed comes in, they can be a bit panicked and frustrated by all the action.  Try getting them into the "Newly Diagnosed Room." Or if they have trouble understanding how to switch rooms, try a couple of PMs to conversation leaders to shuttle some of the regulars off to another room.  

MS makes good and bad days! Be aware of who is in chat and what their mood is like. What makes a great joke one day can be incredibly insensitive or offensive the next.  No one is perfect.  So you might put your foot in your mouth, or feel somebody has just kicked you somewhere bad.  Before you get aggravated, or haul off with some select words, think about it . . . 

the 20 Second Rule
Take 20 Seconds when departing chat to allow for goodbyes, any last minute questions, whatever . . .

What's With All The Rooms ?


Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.


Grab some friends, have a latte!  No ?   OK, kick back with a Cappuccino.

Lounge The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.

Special Rooms 

Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST

The room for discussions of limited interest subjects.  Computer or other Internet Troubles.  Rebuilding 57 Buick carbs.   Window Treatments.  Care and Feeding of Dust Bunnies.


No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.

 This Week's ChatStar 

WilRat & Frances



 After I was diagnosed with MS, shortly after my legs began to check out, I was taking my second series of IV Solumedrol steroids and first of chemotherapy to salvage my nervous system.  While in the "White Hotel", TV was one of the only things I could do.  I couldn't dance, and certainly lacked the control to walk the floor.  The john was more challenge than the nurse's urinal on my nightstand offered, so oft as it occurred, I took the coward's way out ("Nussie, can you help me?" worked well).

During this exacerbation, the second outbreak of Mad Cow disease was hitting the news, and I was amazed at the similarity between the stumbling, sprawling bovine victims, and my own failing ambulatory attempts.  Of course, this Mad Cow disorder is caused by cannibalism (not that any cow ever though of eating another until man intervened with waste minimization, and food-processing technology).  Just a flash of coincidental curiosity, no deeper consideration occurred until recently.  (more  

Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


PeopleWithMS - Stories and Pictures



Hi guys, my nickname is Deena, given to me by my oldest sister when I was brought home from the hospital from birth, It seems to fit me better then real name Bernadine. I have primary progressive ms for about 13 years, but I remember a few problems way before that (like falling on level ground) thought it was me and my walking. I was dx 4-13-01 with PPMS after 7 yrs of not knowing what was wrong, went to lots of drs they saw damage in brain but none thought ms, finally went to a DR who wanted spinal tap done and proved ms, PPMS from start. I have all the symptoms like the rest of you guys but mine is always with me (some days better then others).  (more )

Apache Gal


My name Sha'na (apache gal and tw) I am 39 years but feel much older.
I am a ex-cop, ex-preschool teacher, ex-torpedomans mate, ex-assisted living aid, ex-janitor and now a full time TV watcher and ms suffer with attitude.
I had sx for 14 years but only dx this year. I am an exosted gym rat. I go to gym 6 days a week when I don't have doctor appointments. I do this to help with fatigue but that plan is not working for me. It is helping with the stress of MS.
I also have Celiac Sprue and had a Gastric Bypass on 1 October 2007 this year for Gastorperisis. (not for weight loss)
I hate doctors!!!!!   (more )


(more )


Hello from the historic Hudson Valley, NY. My name is Liz and I have been diagnosed with SPMS since 2003. After many years of probably MS. I am still working and I do not know how but I am. I work with people with disabilities and help them in the SSDI process. I try not to let MS stop me but sometimes it is hard not to. I hope to chat with you sometime. (more )


My name is Dora Laudenslager. I am 42 yrs old, I’ve been married for 15 yrs,and I have one wonderful son, who is 19. I had my first symptoms 3 yrs ago...all short term memory, dizziness, ringing in the ears, eyes super sensitive to light, walking like I was drunk, eyes bulging like I smoked a pound of weed lol. I WAS TESTED FOR EVERYTHING KNOWN TO MAN...except MS. After 2 months, they determined that I had Lyme Disease (even though both Lyme tests came out negative). A year later, I started having issues with my right leg...I just figured it was residuals from Lyme Disease. (more )  



After I was diagnosed with MS, shortly after my legs began to check out, I was taking my second series of IV Solumedrol steroids and first of chemotherapy to salvage my nervous system.  While in the "White Hotel", TV was one of the only things I could do.  I couldn't dance, and certainly lacked the control to walk the floor.  The john was more challenge than the nurse's urinal on my nightstand offered, so oft as it occurred, I took the coward's way out ("Nussie, can you help me?" worked well).

During this exacerbation, the second outbreak of Mad Cow disease was hitting the news, and I was amazed at the similarity between the stumbling, sprawling bovine victims, and my own failing ambulatory attempts.  Of course, this Mad Cow disorder is caused by cannibalism (not that any cow ever though of eating another until man intervened with waste minimization, and food-processing technology).  Just a flash of coincidental curiosity, no deeper consideration occurred until recently.  (more

This could be you*

Just send your name, story, and photo along to:

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 


PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.


HeadsUp !

PeopleWithMS - Heads Up ! ! !
Just a reminder as you Doctor if you need a Flu shot!

More important ask if you need a pneumonia shot!

Please Join the posting and information in Marlene's Message board!

"Marlene's Discussion Board". Please check it out, and help  her out by contributing any posts you would like to share. Look for her logo on our Home page! 

We are starting to talk about our May 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.



We will be opening 3 new "Groups" branch websites on MSN, Yahoo, and Google shortly.  These will help us reach some people who are more familiar with those particular mini-environments.  If anyone has a particular skill or interest in being the manager of one of the branch Group-sites, please let us know. It is a big job and needs to be watched daily.We have lots of ideas but need some help  - as always LOL!!   There will not be any chats on these sites, only information.



"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"


I know it's been a long time coming, but after 2 years "I Dropped My Chicken Soup: Stories about Multiple Sclerosis" is available for sale.

You can order the book directly from the publisher Bookstand Publishing. The cost of the book will be $18.95 + shipping. The website is:


On October 22nd the book will be available through me at a cost of $15 and that will include shipping costs. I will accept money orders or cashier's checks or paypal. Please contact me for the address to send cashier's check or money orders. The e-mail adress for paypal is

PLEASE DO NOT SEND MONEY UNTIL OCTOBER 22nd. I AM NOT TAKING PRE ORDERS. However the book can be bought as of now through the publisher

If your story is in the book please contact me before ordering a book.


Visit Shimmie's Fall Spectacular


PeopleWithMS - Crafts


Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 


Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions


Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in CONTACT ME:  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL

Tuesday Game Night

PeopleWithMS - Women's & Men's Chat Night

The 3 word game!


Will be our host!

Tuesday night 8PM EST 



Welcome to our Tuesday night Game night ! The three word game has been played. It was so much fun last week it will go on again this week.

Shimmie is our host but we have a back up as we do with most things. Lynne.

Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM with our host RubySlipperedOne! AT the same time we have Men's chat in the MEN'S ROOM. We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for another hour feel free to stay. We have had such a great time its seems for some its not long enough.  Then we join in the main chat room as always. What are the topics? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week!  Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room Any one can use this room anytime it is a open room.


PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat


8 pm EST

7pm CST

5 pm PST 






8pm CST

9pm EST

6 pm PST

Marlene & Red  have are the hosts for our Thursday Night TrivialChat. 

This week's Winner:  First-Time's-A-Charm-Doraann 

Trivia Thursdays continues as the always wacky and entertaining Bring Yer Own Night  

Everyone brings 5 or more questions and answers, ready to copy and paste into chat. The questions need to be multiple choice or true or false   We'll take turns tossing out questions, round-robin.   

I found a great site that among other things, has an Encyclopedia of Trivia. With a gazillion categories of questions to choose from. Marlene also found a great Trivia site


Gerry & Shimmie & Scottie host our Saturday Night TriviaChat!

Trivia Saturdays, where the hosts ask the questions.

Sit back, relax.  It's Saturday night enjoy!

For the East Coast chatters, it's like a night out!






PeopleWithMS - Recipes
Click here

for Recipes


Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 



Please Email us with any recipes you would like to share with us 
Wet Rub for Meats & Poultry
Adobo Mojado

Want to learn to season your meats, with that added Spanish flavor, well, here it is:

12 cloves garlic, peeled
1 〓 tablespoons fine sea or kosher salt
1 tablespoon black peppercorns
2 tablespoons dried oregano
2 tablespoons olive oil
2 tablespoons white wine vinegar
The salt keeps the garlic from flying all over the place as you pound them together.

Pound the garlic cloves and salt to a paste using a mortar and pestle. Add the peppercorns and oregano, pounding well after each to incorporate them into the paste. Stir in the olive oil and vinegar.
Wet adobo will keep 5 to 6 days in the refrigerator, which gives you a chance to try it on anything you like from fish fillets and pork chops to turkey cutlets and steaks.

Thank you Nellie xxoo


These simple Quesadillas can be filled with nearly any cooked meat, and vegetables or black beans can be used instead of meat for a vegetarian treat. Using leftovers, you can make an easy meal in minutes!

1/2 cup cooked chicken, diced small
1/2 cup mild salsa
1/4 cup corn kernels, fresh or frozen
1/2 tsp. ground cumin
4 six-in. flour tortillas
Olive oil and chili powder
1/2 cup grated cheese (such as mozzarella, Monterey Jack, Mexican white cheese, or mild cheddar)

Easy Directions

-Preheat the oven to 450°F.
-In a small mixing bowl, combine the chicken, salsa, corn, and cumin.
-Put on two tortillas on an ungreased baking sheet. Spread the chicken mixture evenly over each tortilla and sprinkle the cheese over the chicken mixture. Top with a second tortilla and press down slightly.
-Brush the top of the tortillas with olive oil and sprinkle with a pinch of chili powder.
-After the Quesadillas have cooled slightly, cut into wedges and serve hot.

Thank you Nellie xxoo

Italian Sausage Rotini

1 package favorite Italian sausage
1/2 cup water
2-3 cloves minced garlic
1 red pepper cut into chunks
2 tbs of olive oil
26 oz can of your favorite spaghetti sauce
1 lb package of rotini noodles

Heat a skillet to medium heat. Add 1/2 cup of water and sausages. Cover and cook 10 minutes. Turn sausages once, cook another 10 minutes uncovered. Cut sausages into coin size pieces and set aside. In a large skillet add olive oil and garlic. Saute for about 30 seconds then add chunked red pepper and saute till slightly softened. Add spaghetti sauce and sausage pieces and simmer for 15 min.

Cook pasta according to directions.

You can either combine everything when done or serve separately.
Enjoy with a salad and some nice Italian bread.
Very simple, very easy.

Thank you Lynn xxoo


PeopleWithMS - Poems

Her Name was Just Mary

one missed mother

Her name was just Mary, so common a name
Mary and goodness were one in the same

Bud was he called, who loved Mary dear
Remembering her beauty for many a year

Sixty to total, a life time for sure
Not always so pleasant, not always so pure

The days of the past told different by some
To Mary and Bud, the difference was one

Memories recalled, he told with a sigh
Told different by each, till the final goodbye

                  Thank you Sue xxoo

He Didn’t Whittle (the way he spelled it)

Grand pap sat on that old wooden porch

In his white tee and faded blue pants

His features were strong from his Indian roots

You thought he would break out in chants 

Small in his stature, white hairs of few

Eyes squinted to whistle a little

He’d pull out his knife to clean his old nails

But I never saw him whittle 

Disappointed in this I ask him one day

“Hey, Grandpa, want me to get you some wood?”

“What for”, he replied and he looked at his hands

Steady no more to master that task, and he knew they never would 

So to make him feel better, I got him a glass

with ice and fresh brewed tea

We sat on that porch, that hot summer day

Just grand pap, the dog and me

Thank you  Sue 


The year has turned its circle,
The seasons come and go.
The harvest all is gathered in
And chilly north winds blow.
Orchards have shared their treasures,
The fields, their yellow grain,
So open wide the doorway-
Thanksgiving comes again!

--Author unknown

Thank you Lynn

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us


PeopleWithMS - Birthdays



Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

 If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing



Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's



Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's !!!  Check times!

You can also find some of Rockin Rod's music in craft's, in our Fall and Halloween section!


Famous People

PeopleWithMS - Famous People

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them:




General Information

PeopleWithMS Newsletter 08-19-07


Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, LF Shaw  Debby, MS_Kitty, Linda-NV, JackIL, and Spikers  Marineswife, Shimmie, Joly, David, Pixie Dust. room administrators. They have been using the chat.  They can help you if you need help. 


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

If anyone has anything they think ought to be added to the weekly news letter, please email me at

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