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November 24, 2007

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Chat Schedule Tuesday Game Night
ChatStar Women's/Men's Wednesday
Stories and Pictures Trivia Thursday 
Healthy Eating/Recipes Famous People
Birthdays Poems
Rod's Music Shoppe Newsletter Archive


PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 


Seeking Assistance . . . One of our chatters is using Dragon Naturally Speaking to type in chat.  And  having a devil of a time!  Echoes, repeated phrases, and totally berzerk behavior.  They are using the Vista upgrade of Preferred Version 9.   Anyone having any experience using Dragon with any Java-based chat please contact us so perhaps we can give Dragon users a more enjoyable chat experience.  


the 20 Second Rule
Take 20 Seconds when departing chat to allow for goodbyes, any last minute questions, whatever . . .

What's With All The Rooms ?


Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.


( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.


( rated R )

The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.

Special Rooms 

Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST

The room for discussions of limited interest subjects.  Chia wrangling.  Pasta farming.  Furniture Refinishing Techniques.   Snow Salad Preparation.  Zombie Containment and retraining.


No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.



Hi guys, my nickname is Deena, given to me by my oldest sister when I was brought home from the hospital from birth, It seems to fit me better then real name Bernadine. I have primary progressive ms for about 13 years, but I remember a few problems way before that (like falling on level ground) thought it was me and my walking. I was dx 4-13-01 with PPMS after 7 yrs of not knowing what was wrong, went to lots of drs they saw damage in brain but none thought ms, finally went to a DR who wanted spinal tap done and proved ms, PPMS from start. I have all the symptoms like the rest of you guys but mine is always with me (some days better then others).  (more )


Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


PeopleWithMS - Stories and Pictures


My theory on how I got MS, My ex husband gave it to me!!! June 28Th, 2001, I kicked my husband out, because he wouldn't get a job. The next day at work, I was standing there talking to a client and all on a sudden my left side went numb and I felt really strange, I must have looked odd to, because the client asked "Are you O.K.? I said "hum...I don't know?" After she left I started staggering all over and couldn't hardly pick up me feet to walk. I told my boss something is very wrong, I'm going to finish my work (I still had 2 dogs to finish grooming) and then I need to go home. I barely finished those dogs and went home, I laid down on the sofa, and couldn't get back up, no energy what so ever . I literally crawled to the bathroom to go! (more )


I'm Linda from , Eastern Canada ( Nova Scotia ).Married to my high school hunny and we have two grown boys. One is still at home and the other is now a daddy himself as of Sept 15th /2007.My grandsons name is Ethan.

I never heard of or paid attention to this disease tell back in 1997.I had a car accident , totaled my Toyota T-100 , and just after that I woke up one morning with pain , waist down. I couldn't walk very well either. We were in the process of moving also about 4 hours away , so my hubby wasn't home at the time . The night before I did alot of leg exercises & stretches and thought I pulled something. Went to the doctor , he sent me to another , than he sent me to another.Seems I was shifted from one to another , we moved , things got worse , I was bed ridden , ( 6 months ) . They dx'd me as having RSD ( reflex sympatric dystrophy ).New doctors , in a new town , I was lost . Than I was sent for a MRI , and it came back MS. Gosh I was too old to get MS , that only happened to people younger than 40 , ( and I was 41 ).Since April 1998 , I've been on Rebif . My first symptoms have never gone away . I call them KILLER FEET.When your feet hurt , so does your legs & back . I've tried many pain meds , but nothing helps.It's like 24-7 , now 10 years . It's easier to go to sleep and forget about it . But I plug on , keeping busy , now even going back to work , a few months ago , doing payroll etc. I had worked in a Bank for 15 years , and this isn't my cup of tea , but gonna stick with it to keep my mind active, ( as I have very good memory).  (more )


Hello, my name is Heather. I am 37 years old and I was diagnosed with ms on Mother’s Day of 2003.. As I have told many others, I sometimes wonder if I truly have this disease, because the only thing that I deal with constantly is Optic Nueritis, and Spastic Bladder.  (more )


Story to follow shortly (more )


story to follow . . . (more )


This could be you*

Just send your name, story, and photo along to:

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 


PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.


HeadsUp !

PeopleWithMS - Heads Up ! ! !

Please Join the posting and information in Marlene's Message board!

"Marlene's Discussion Board". Please check it out, and help  her out by contributing any posts you would like to share. Look for her logo on our Home page! 

We are starting to talk about our May 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.



We will be opening 3 new "Groups" branch websites on MSN, Yahoo, and Google shortly.  These will help us reach some people who are more familiar with those particular mini-environments.  If anyone has a particular skill or interest in being the manager of one of the branch Group-sites, please let us know. It is a big job and needs to be watched daily.We have lots of ideas but need some help  - as always LOL!!   There will not be any chats on these sites, only information.



"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"


I know it's been a long time coming, but after 2 years "I Dropped My Chicken Soup: Stories about Multiple Sclerosis" is available for sale.

You can order the book directly from the publisher Bookstand Publishing. The cost of the book will be $18.95 + shipping. The website is:


On October 22nd the book will be available through me at a cost of $15 and that will include shipping costs. I will accept money orders or cashier's checks or paypal. Please contact me for the address to send cashier's check or money orders. The e-mail adress for paypal is

PLEASE DO NOT SEND MONEY UNTIL OCTOBER 22nd. I AM NOT TAKING PRE ORDERS. However the book can be bought as of now through the publisher

If your story is in the book please contact me before ordering a book.


Just a reminder that winter is on the way. could be a good guess who this is lol.


PeopleWithMS - Crafts


Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 


Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions


Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in CONTACT ME:  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL

Tuesday Game Night

PeopleWithMS - Women's & Men's Chat Night


Will be our host!

Tuesday night 8PM EST 



Welcome to our Tuesday night Game night ! 

Shimmie is our host but we have a back up as we do with most things. Lynne.

Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  At the same time we have Men's chat in the MEN'S ROOM.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for another hour feel free to stay. We have had such a great time its seems for some its not long enough.  Then we join in the main chat room as always. What are the topics? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week!  Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room Any one can use this room anytime it is a open room.


PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat


8 pm EST

7pm CST

5 pm PST 






8pm CST

9pm EST

6 pm PST

Marlene & Red  have are the hosts for our Thursday Night TrivialChat. 

This week's Winner:  First-Time's-A-Charm-Doraann 

Trivia Thursdays continues as the always wacky and entertaining Bring Yer Own Night  

Everyone brings 5 or more questions and answers, ready to copy and paste into chat. The questions need to be multiple choice or true or false   We'll take turns tossing out questions, round-robin.   

I found a great site that among other things, has an Encyclopedia of Trivia. With a gazillion categories of questions to choose from. Marlene also found a great Trivia site


Gerry & Shimmie & Scottie host our Saturday Night TriviaChat!

Trivia Saturdays, where the hosts ask the questions.

Sit back, relax.  It's Saturday night enjoy!

For the East Coast chatters, it's like a night out!





Hemastat was last weeks winner! 



PeopleWithMS - Recipes
Click here

for Recipes


Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 



Please Email us with any recipes you would like to share with us 

Black Beans

• 1 (16 ounce) can black beans
• 1 small onion, chopped
• 1 clove garlic, chopped
• 1 tablespoon chopped fresh cilantro
• 1/4 teaspoon cayenne pepper
• salt to taste

• In a medium saucepan, combine beans, onion, and garlic, and bring to a boil. Reduce heat to medium-low. Season with cilantro, cayenne, and salt. Simmer for 5 minutes, and serve.

Can be served over rice.

Nutrition Information
Servings Per Recipe: 4
Amount Per Serving

• Calories: 112
• Total Fat: 0.4g
• Cholesterol: 0mg
• Sodium: 510mg
• Total Carbs: 20.7g
• Dietary Fiber: 8.2g
• Protein: 7.1g                                                                                             Thank You Nellie!

Yellow Rice with Corn
Arroz Amarillo con Maiz

1/2 cup *Achiote Oil
1/2 cup *Sofrito
2 cups fresh or frozen corn kernels
1/2 cup alcaparrado or coarsely chopped pimiento-stuffed olives
2 to 3 tablespoons salt
1 teaspoon ground cumin
1 teaspoon ground black pepper
2 bay leaves
3 cups long grain white rice Homemade or canned chicken broth as needed (about 4 cups)

*Achiote Oil
Aceite de Achiote

Annatto seeds, known as achiote in Spanish, are small irregularly shaped, deep reddish colored seeds about the size of a lentil. They grow in pods but are sold loose in jars in the spice aisle. Steeping annatto (achiote) seeds in hot olive oil for a few minutes will do more than give the oil a brilliant orange-gold color.
1 cup olive oil
2 tablespoons achiote (annatto) seeds

What sofrito does is add freshness, herbal notes and zing to dishes -- you can do that with the onion, garlic, bell pepper, cilantro and tomato alone.

1. Heat the achiote oil in a heavy 4- to 5-quart pot with a tight-fitting lid over medium heat. Stir in the sofrito and cook until most of the water is evaporated. Add the alcaparrado or olives, salt, cumin, pepper, and bay leaves, stirring to combine. When the mixture is bubbling, add the rice, stirring to coat and to fix the color to the rice. Pour in enough chicken broth to cover the rice by the width of two fingers. Bring to a boil and boil until the broth reaches the level of the rice.

2. Stir the rice once, reduce the heat to low, cover, and cook for 20 minutes, without opening the pot or stirring. Gently fluff the rice up by scooping the rice from the bottom to the top. Serve hot.

                                             Thank You Nellie

Chicken Gumbo Recipe

2 tablespoons olive oil
1 pound boneless, skinless chicken thighs
flour for dredging
salt to taste
freshly ground black pepper
1/4 pound low-fat spicy chicken sausage, such as anduoille or chorizo, cut into small pieces
1 medium yellow onion, finely chopped
1 green pepper, finely chopped
4 ribs celery, finely chopped
16 whole okra, thinly sliced
2 15-ounce cans chopped low sodium tomatoes
2 cups low-sodium chicken broth
2 bay leaves
1/2 teaspoon dried thyme
Tabasco sauce to taste
filé gumbo powder
2 cups hot, steamed rice

Cooking Instructions
1. Heat the olive oil in a deep skillet over medium heat. Add the sausage and brown on all sides.
2. Season the chicken thighs with salt and pepper and dredge them in flour. Turn the heat to medium-high, add the chicken to the skillet and brown on both sides. Transfer the sausage and chicken to a platter once they are nicely browned.
3. Turn the heat down to medium and add the onion, celery, green pepper, okra and a pinch of salt. Cook, stirring occasionally until the vegetables soften, about 8 to 10 minutes.
4. Add the tomatoes, chicken broth, bay leaves, thyme, sausage and chicken and bring to a simmer. Turn the heat to low, cover and cook for 30 minutes.
5. Season to taste with Tabasco, salt and pepper.
6. Ladle the gumbo into serving bowls, sprinkle each serving with filé powder and add a spoonful of rice.

This recipe serves: 4 
Preparation time: 15 minutes
Cooking time: 30 minutes

Thank you Nellie xxoo

Traditional Pumpkin Pie

1. 1 cup packed light brown sugar
2. 1 tablespoon cornstarch
3. 1/2 teaspoon salt
4. 1 teaspoon ground ginger
5. 1 teaspoon ground cinnamon
6. 1/8 teaspoon ground cloves
7. 1 1/2 cups fresh Pumpkin Puree or canned
8. 3 large eggs, lightly beaten, plus
9. 1 egg for glaze
10. 1 1/2 cups evaporated milk
11. 1 tablespoon heavy cream

Cooking Directions

1. Preheat oven to 425 degrees F. Line a baking sheet with parchment paper; set aside. In a large bowl, combine sugar, cornstarch, salt, ginger, cinnamon, cloves, pumpkin puree, and 3 eggs. Beat well. Add evaporated milk, and combine. Set aside.
2. Between two pieces of plastic wrap, roll pate brisee into a 12-inch circle. Fit pastry into a 9-inch glass pie plate; trim dough evenly along edge, leaving about a 1/2-inch overhang. Pinch to form a decorative edge. If the dough begins to soften, chill for 15 minutes.
3. Make the glaze: Beat the remaining egg, and combine with heavy cream. Brush glaze very lightly on edges of pie shell. Fill pie shell with pumpkin mixture. Transfer to prepared baking sheet.
4. Bake for 10 minutes. Reduce heat to 350 degrees F, and continue baking for 30 minutes more. Cool on a wire rack.

Yield: 8 servings

Thank you Nellie xxoo

Crust less Pumpkin Pie

15 oz can pumpkin
12 oz can evaporated skim milk
3 egg whites
1/2 tsp. salt
3 tsp. pumpkin pie spice
1 tsp. vanilla
2/3 cup Splenda (or to taste)

1. Combine all ingredients and beat until smooth.
2. Pour into sprayed (Pam) 9" pie plate

Bake at 400 degrees for 15 minutes; bake at 325
degrees for 45 minutes or until knife comes out clean.

Serves 6 Pts per serving - 1

Thank you Dora! xxoo

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's



Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

You can also find some of Rockin Rod's Christmas music

Please click here for Rod's Christmas collection!


Famous People

PeopleWithMS - Famous People

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them:




General Information

PeopleWithMS Newsletter 08-19-07


Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, LF Shaw  Debby, MS_Kitty, Linda-NV, JackIL, and Spikers  Marineswife, Shimmie, Joly, David, Pixie Dust. room administrators. They have been using the chat.  They can help you if you need help. 


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

If anyone has anything they think ought to be added to the weekly news letter, please email me at

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