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December 1, 2007

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PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

December already! Chat has been going really well. We want to thank you all. Lots of fun and lots of support!  If anyone in chat has any problem with anything going on in chat, anything being discussed, or anyone in particular, please click on an RA = RED HAT chatters and let them know of your concerns. We all do our very best to make the room comfortable for everyone.

Also keep in mind that everyone is different. The Lobby is our DMZ, the other rooms are for more rousing or specific discussions.  
So sometimes the thing to do is private message a few friends
in chat that feel the same as you do, and ask them to come join you in another room. Don't leave chat - just change rooms and make yourselves comfortable with your own topic. 

We have said many times => we can provide the chat space. It is up to all of you to use it!

 

Assistance Update . . . We first want to thank those who have taken the time to try to help ! Our chatter using Dragon Naturally Speaking has made some partial progress. They are using the Vista upgrade of Preferred Version 9. Using " the Dictation Box " they can manage to chat for a while. Then Dragon starts echoing prior chat and interjecting it's own comments. Using Vista's native speach recognition capabilities they have been even less successful working with our particular chat's software. Anyone having any experience using Dragon with any Java-based chat please contact us PWMS@PeopleWithMS.com so perhaps we can give Dragon users a more enjoyable chat experience.
  

the 20 Second Rule
Take 20 Seconds when departing chat to allow for goodbyes, any last minute questions, whatever . . .

What's With All The Rooms ?

PWMS

Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.

CoffeeHouse

( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.

Lounge

( rated R )

The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST
Off-Topic

The room for discussions of limited interest subjects.  Chia wrangling.  Pasta farming.  Furniture Refinishing Techniques.   Snow Salad Preparation.  Zombie Containment and retraining.

Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.
 

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.

Chat Star

Dora

 

My name is Dora Laudenslager. I am 42 yrs old, I�ve been married for 15 yrs, and I have one wonderful son, who is 19. I had my first symptoms 3 yrs ago...all neurological...no short term memory, dizziness, ringing in the ears, eyes super sensitive to light, walking like I was drunk, eyes bulging like I smoked a pound of weed lol. I WAS TESTED FOR EVERYTHING KNOWN TO MAN...except MS. After 2 months, they determined that I had Lyme Disease (even though both Lyme tests came out negative). A year later, I started having issues with my right leg...I just figured it was residuals from Lyme Disease. (more

 


Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at PWMS@PeopleWithMS.com

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures

Scott


I was hard working and was determined to make something of myself even though I was working in an odd field. I was really into Forestry and logging. The problems with MS started with tingling in my fingers that when consulted the Dr. s did not even send me for tests. Then I had blurred vision. After several Visits to the DR.s, it turned out to be optic neuritis and I was sent to see neurologist’s .They never even hinted to me that it could be MS. Then I began having problems walking and got steroids that really helped. I was sent an MRI, and sure enough they found lesions. I was completely unaffected for years after that. The Neurologist had told me that I may never have another relapse and to go ahead and live my life. So i went on and lived my life. (more )
Hazelicious
 
More About Hazelicious
I woke up one morning with Optic Neuro. I've never heard of MS before and went to the optomitrist... she checked me out gave me an emergency referral to the ER for an MRI... well first she said it was nothing but come on now... EMERGENCY MRI...wth? anyhow, five hours later i have lesions. still not knowing what it was i didn't pay no mind. I went to see a Neurologist... for the first time ever and low and behold i have this thing called MS. NOW i have a reason for my valley girl memory, my drunkin slurs, my air headed balance and my matrix feeling of being. Was cool when it was the other. This was June of 2006. Recently, I've experienced ants under the skin.... NERVE DAMAGE... but whatever.  (more More about Hazelicious)

Ted

My Name is Ted Breslin I will start medicare in January. I’ve been married to my wife Jane for 39 years. We don’t have any children. I was dxed with late onset MS in Nov of of ’05. I was immediately put on Copaxone. I have not had any flares since.  (more )

This could be you*

Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

HeadsUp !

PeopleWithMS - Heads Up ! ! !

Please Join the posting and information in Marlene's Message board!

"Marlene's Discussion Board". Please check it out, and help  her out by contributing any posts you would like to share. 

Look for her logo on our Home page! 

We are starting to talk about our May 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.

 

HELP!

We HAVE opened 3 new "Groups" branch websites on MSN, Yahoo, and Google.  These will help us reach some people who are more familiar with those particular mini-environments.  If anyone has a particular skill or interest in being the manager of one of the branch Group-sites, please let us know. It is a big job and needs to be watched daily. We have lots of ideas but need some help  - as always LOL!!   There will not be any chats on these sites, only information.

 

 

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

I know it's been a long time coming, but after 2 years "I Dropped My Chicken Soup: Stories about Multiple Sclerosis" is available for sale.

You can order the book directly from the publisher Bookstand Publishing. The cost of the book will be $18.95 + shipping. The website is:

 http://www.bookstandpublishing.com/m/rebekahuggins/

OR

The book is available through me at a cost of $15 and that will include shipping costs. I will accept money orders or cashier's checks or paypal. Please contact me for the address to send cashier's check or money orders. The e-mail adress for paypal is msstoriesofhope@yahoo.com

Rebeka
www.myspace.com/msstories



Just a reminder that winter is on the way. could be a good guess who this is lol.

WHO IS THIS ?  ===>

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Tuesday Game Night

PeopleWithMS -Games

 


Welcome to our Tuesday night Game night ! 

We need idea's for games we can play on Tuesday nights? 

Some quick little fun games we can play on those long, cold, winter nights. Help us out here !  Post your ideas in the Trivia & Games Room   

We need your ideas !


the card table
Tuesday night
8PM EST

5PM PST

7PM CST



Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  At the same time we have Men's chat in the MEN'S ROOM.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

What are the topics? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week!  Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room. 

And remember:  Any one can use these rooms at anytime.

Trivia

PeopleWithMS - Trivia Night

Trivia Night in the PeopleWithMS Chat

Thursdays

8 pm EST

7pm CST

5 pm PST 

  

 

 

 

Saturdays

8pm CST

9pm EST

6 pm PST

Marlene & Red  have are the hosts for our Thursday Night TrivialChat. 

This week's Winner:  Rod! 

Trivia Thursdays continues as the always wacky and entertaining Bring Yer Own Night  

Everyone brings 5 or more questions and answers, ready to copy and paste into chat. The questions need to be multiple choice or true or false   We'll take turns tossing out questions, round-robin.   

I found a great site http://www.funtrivia.com/ that among other things, has an Encyclopedia of Trivia. With a gazillion categories of questions to choose from. Marlene also found a great Trivia site http://www.123facts.com

WELCOME ALL    


Gerry & Shimmie & Scottie host our Saturday Night TriviaChat!

Trivia Saturdays, where the hosts ask the questions.

Sit back, relax.  It's Saturday night enjoy!

For the East Coast chatters, it's like a night out!

WELCOME ALL

SATURDAY, DECEMBER 1ST TRIVIA WILL BE HOSTED BY AMARINESWIFE & FRANCES.
THE TOPIC IS “ORIGINAL CLASSIC CHRISTMAS MOVIES”


Hemastat was last weeks winner! 

GOOD LUCK EVERYBODY & LET'S HAVE SOME FUN!!!!!! 

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Basic Turkey Meatloaf Recipe


This recipe serves: 6 
Preparation time: 15 minutes
Cooking time: 1 hour

Ingredients
nonstick cooking spray
1 egg
1/2 cup grated onion
1 cup bread crumbs
1 3/4 pounds lean ground turkey
1 cup low-sodium ketchup
1/4 cup chopped fresh parsley
1/4 cup diced red bell pepper
salt to taste
freshly ground black pepper
1/2 cup water

Cooking Instructions
1. Spray a baking pan with nonstick spray and preheat the oven to 350°F.
2. In a large mixing bowl, thoroughly combine the egg, onion and bread crumbs. Add the ground turkey, 1/2 cup of ketchup, red pepper, parsley, salt and pepper and mix to combine.
3. Form the meat mixture into a loaf and place it on the prepared pan. Spread a 1/4 cup of the remaining ketchup on top of the meatloaf and bake until cooked through, about 45 minutes to 1 hour. Remove from the oven and let stand for 10 minutes before serving.


Nutrition Facts
Serving size: 2 slices
Calories 335
Total Fat 13 g
Saturated Fat 4 g
Protein 29 g
Total Carbohydrate 26 g
Dietary Fiber 2 g
Sodium 482 mg
Percent Calories from Fat 34%
Percent Calories from Protein 35%
Percent Calories from Carbohydrate 31%         

                                            Thank you very much Nellie!!

No Bake Cookies

Ingredients 
1 stick butter

1/2 cup regular milk "not 2%"

1/3 cup unsweetened cocoa

2 cups sugar

Directions 
cook on medium heat in sauce pan stirring constantly until boiling. Then remove from heat. add quickly one at a time

1/3 cup peanut butter

2 teaspoons vanilla

3 cups (1 minute) oatmeal

drop mixture by spoon onto wax paper that's on a cookie sheet. After filling up cookies on the wax paper covered cookie sheet set in refrigerator for about an hour to an hour and a half to let harden. Keep refrigerated any leftovers until all is used up.    

                            Thank you Nellie!

Classic Roast Tenderloin of Beef Recipe

This recipe serves: 10 
Preparation time: 10 minutes
Cooking time: 45 minutes

Ingredients
1 trimmed beef sirloin, about 3 pounds
1 tablespoon olive oil
freshly ground black pepper
salt to taste

Cooking Instructions
1. Preheat the oven to 425°F.
2. Rub the tenderloin with olive oil and sprinkle it with a generous amount of black pepper. Place the tenderloin on a rack in a shallow roasting pan or baking sheet.
3. Roast the tenderloin for 30 minutes before sprinkling it with a generous amount of salt. Return it to the oven and continue to cook for 10 to 20 minutes more, depending on the exact size and the desired degree of doneness.
4. Remove it from the oven and let rest for at least 10 minutes before slicing. Serve the beef warm, at room temperature or cold.               

                          Thank you Nellie

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

 

 

 

 

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

You can also find some of Rockin Rod's Christmas music

Please click here for Rod's Christmas collection!

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, LF Shaw  Debby, MS_Kitty, Linda-NV, JackIL, and Spikers  Marineswife, Shimmie, Joly, David, Pixie Dust. room administrators. They have been using the chat.  They can help you if you need help. 

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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