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 PeopleWithMS.com Newsletter


December 8, 2007

HeadsUp !
Chat Schedule Tuesday Game Night
ChatStar Women's/Men's Wednesday
Stories and Pictures Trivia Thursday 
Healthy Eating/Recipes Famous People
Birthdays Poems
Rod's Music Shoppe Newsletter Archive

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

Chat has been busy and a lot of fun! Check out Rod's Christmas Songs below it will help get you in the mood. We are looking for help has always! Come on do some hosting contact Norma with times! About all those names you have LOL ! Please stick with the same name don't change it weekly. Some of our chatters have 3 different names. it really makes it so confusing to all chatters. MS is confusing enough. 

   Join us New Years Eve. Bring in the New Year with us  !   
 
We need 25 Avatars for our New Years Eve Party! 50x50 pixels and under 24KB in size. Animated woman and men dressed for New Year's of any era!  For example, Mr Red & Deb will both use the same Avatar!  But we don't need pairs. So hurry now we will pick the best 24 out of what we get! email them to deb@durgin.net 
  

the 20 Second Rule
Take 20 Seconds when departing chat to allow for goodbyes, any last

minute questions, whatever . . .    


What's With All The Rooms ?

PWMS

Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.

CoffeeHouse

( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.

Lounge

( rated R )

The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST
Off-Topic

The room for discussions of limited interest subjects.  Chia wrangling.  Pasta farming.  Furniture Refinishing Techniques.   Snow Salad Preparation.  Zombie Containment and retraining.

Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.
 

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.

Chat Star

Barry12311

 

I live in Phoenixville, Pa. I'm 51, married, 2 children I was dx. May 2007. I was a Firefighter until I was dxd. I'm on SSDI now. I enjoy chatting and meeting people, I'm thru the the shock and being angry about this and decided to continue to get on the best I can now. When i was diagnosed i spent a week in the hospital getting steroids every night then spent 2 1/2 weeks in rehab. i had to learn to stand and walk all over again as MS has effected my balance and my right side mainly my right leg. I have toe drop and have a brace for my right leg, I'm mobile walking with a quad cane most days (keeping my walker close by). 

Hope to chat with with you all soon in the room..   (more)

 


Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at PWMS@PeopleWithMS.com

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures
DennisWW

I'm not good at this stuff but I'll give it my best shot.  My name is Dennis (also known as DennisWW). Well to start out with, I was a CNC programmer for almost 30 years. Then I became a single dad of my daughter Sammie, the best thing that ever happened to me. I was so happy and proud.  She was 2 at the time and I had my hands full, but it was worth ever second.  Sammie is 9 now and a little angel.  Well when I got Sammie I had to change my life around a lot cause the job I had I worked like 20 hours a day and it was not good for raising a 2 year old.  So I did some house buying and fixing up and selling, made more money then I ever did.  Things were going great. I use to get would like lost my balance and fell didn't go to doc because I just thought I over did it,  got better and I met this fantastic woman.  We dated for a year and got married July 4'th 2006. Sammie and her got along great, and me and my wife's son hit it off.  We were all happy - one big happy family.  I started working for JB Hunt driving a tractor trailer (18 wheeler).  Everything was fine.  I just had to deliver to all the Walmart on the east coast.  (Much more )
Grace

Hi, my name is Grace and I was diagnosed with PPMS in June of 2003. I was involved in a water aerobics class and at the end of class got out of the pool and couldn't feel my left leg. It was as thought it weren't even there, not even a part of my body. I didn't think too much about it and then severe headaches began. I went to my local physician who said, let's run some tests...it could be ALS, leukemia, a lot of different things. We won't know until all these tests come back. Sent me to a neurologist who did all the tests, including the lumbar puncture. That neuro sent me to another who was a complete jerk. His attitude was so awful and he made me feel like I was nothing more than the dirt under his fingernails. He told me that it was all psychological and that there was nothing wrong with me and sent me home. I was in tears when I left his office. I called my local physician and he told me to come right into the office. His nurse scheduled an appointment right away with Mayo Clinic. The team of neurologists concurred that I did indeed have MS and said we were just going to watch and see what happened. So for 2 yrs I waited and watched...had a couple exacerbations that hospitalized me. In Nov. 2006 was the worse one. After being released from the hospital, I contracted an upper respiratory infection then in Feb. had a kidney stone. I have been out of work most of this year. I began injection therapy with betaseron in January of 2007. After getting my health back to baseline, I started working part time as a secretary again and it felt so good.   (Much more )
HarleyVickie

I'm Vickie, I live in west central Pennsylvania with my dog Princess. I was dx'd in 1999 with RR MS. Like most of us I had symptoms for a long time before that. When I was a child I had leg problems that no one could explain. But like all of you we learn to live with the cards we are dealt. I'm a firm believer in nothing is by chance. There is a plan for us. I've said often to others who struggle with MS or anything for that matter. "If the reason I have MS is to meet you then I'm glad i have it". (Much more )
Zody

HELLO MY NAME IS BRIAN, AKA ZODY. I AM THIRTY YEARS OLD. I LIVE IN NORTH CAROLINA WITH MY GIRLFRIEND, HER SON JORDAN, OUR TWO DAUGHTERS, ONA AND TRINITY. I HAVE RRMS. I WAS DIAGNOSED IN 2003 BUT HAD SYMPTOMS SINCE 1996. I COME IN CHAT, JUST NOT MUCH ON SUNDAYS DURING NFL SEASON, GO PANTHERS! I ENJOY WRITING AND DRAWING. AND IF YOU ARE WONDERING ABOUT THE PICTURE I AM A ZOMBIE NUT. MY FAVORITE MOVIE IS NIGHT OF THE LIVING DEAD. THAT LOVE FOR ZOMBIES HAS INSPIRED ME TO CREATE ZODY THE ZOMBIE THE COMIC STRIP.  (more )

This could be you*

Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

   

HeadsUp !

PeopleWithMS - Heads Up ! ! !
Barry, this week's ChatStar, recently attended the blockbuster 2007 Greater Delaware Valley  MS Conference & Expo  Education on Demand.  Much of the information is available on-line . . . 

The world's largest gathering for people living with MS.   The movement and the learning continue, at the conference’s online home.

Click here to watch video of Richard Cohen's keynote address, Researching the Cures, with Dr. John R. Richert, a speech by Chapter President John H. Scott and the Greater Delaware Valley Chapter's annual meeting.

Click here for audio of 11 of the best workshops we’ve ever presented, including:

  • Researching the Cures
  • Dialogue with the Doctors - Treatment Options
  • Dialogue with the Doctors - When MS Progresses
  • Living Well with MS
  • MS and the Mind
  • The Caregiver’s Journey
  • Adjusting to a New Diagnosis
  • Joining the Movement: The Value of Volunteering
  • Complementary and Alternative Therapies
  • A Caregiver’s Guide to Recognizing Cognitive Changes
  • Approaching Your Career Crossroads

 

Exercise Program*

Here is an exercise program for those of us whose wisdom exceeds our
ambition. The doctor told me "Physical exercise is good for you." I know
that I should do it, but my body is out of shape, so I have worked out this
easy daily program I can do anywhere. If I can do it, you can do this, too.


Monday:

Beat around the bush.
Jump to conclusions.
Climb the walls.
Wade through paperwork.

Tuesday:
Drag my heels.
Push my luck.
Make mountains out of molehills.
Hit the nail on the head.

Wednesday:

Bend over backwards.
Jump on the bandwagon.
Balance the books.
Run around in circles.

Thursday:
Toot my own horn.
Climb the ladder of success.
Pull out the stops.
Add fuel to the fire.

Friday:
Open a can of worms.
Put my foot in my mouth.
Start the ball rolling.
Go over the edge.

Saturday:
Pick up the pieces.

We are starting to talk about our JUNE 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.

 

 


Questions To Ask Your Doctor About Influenza

Are there risks in getting the vaccination?

Are there any symptoms that a doctor should be notified about?

What are the chances of developing a secondary infection?

Should I take amantadine or rimanadine? 


Check out this web site to learn more and find out if the flu is in your area:

fluFacts.com 

 


 

 

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

Hey everyone,

Just to give you a quick book update. Things are going well. The book has been out for approx. 2 months now. I've had a few book signings and general interest seems to be going well.

There are now a few additional places you can purchase the book. It is still available through me at
www.msstories.zoomshare.com

It is also available at www.amazon.com OR www.target.com OR www.totallywell.com OR
www.wellnessbooks.com OR www.target.com OR www.bordersstores.com

Just a reminder the book is called "I Dropped My Chicken Soup: Stories about Multiple Sclerosis."

I hope everyone has a happy and healthy holiday season!

Rebeka Huggins

 


Rebeka
www.myspace.com/msstories

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Tuesday Game Night

PeopleWithMS -Games

 


Welcome to our Tuesday night Game night ! 

We need idea's for games we can play on Tuesday nights? 

Some quick little fun games we can play on those long, cold, winter nights. Help us out here !  Post your ideas in the Trivia & Games Room   

We need your ideas !


the card table
Tuesday night
8PM EST

5PM PST

7PM CST



Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  At the same time we have Men's chat in the MEN'S ROOM.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

What are the topics? We have been picking a topic as we go along. It's been a blast and has made us women really bond. Please join us I think it's the best night of the week!  Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room. 

And remember:  Any one can use these rooms at anytime.

Trivia

PeopleWithMS - Trivia Night

Trivia Nights in the PeopleWithMS Chat


Saturdays

8pm CST

9pm EST

6 pm PST


Thursdays

8 pm EST

7pm CST

5 pm PST 

  



Gerry & Shimmie & Scottie host our Saturday Night TriviaChat!

Trivia Saturdays, where the hosts ask the questions.

Sit back, relax.  It's Saturday night enjoy!

For the East Coast chatters, it's like a night out!

LAST WEEKS WINNER! LGODIVIA!

 

SATURDAY, DECEMBER 8th TRIVIA WILL BE HOSTED BY AMARINESWIFE & FRANCES.
THE TOPIC IS “60's & 70's MOTOWN”

GOOD LUCK EVERYBODY 

LET'S HAVE SOME FUN!!!!!! 


Red hosts our Thursday Night TrivialChat 

This week's Winner:  Ditto1  !!! 

Trivia Thursdays Bring Yer Own:

80's Music Trivia Night  

How to Play:  Everyone brings 5 or more questions and answers, ready to copy and paste into chat. The questions need to be multiple choice or true or false.     We'll take turns tossing out questions, round-robin.   

No Skating-By with Late 70's, early 90's, or anything non-musical this week ! ! !

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Ravioli with Bell Pepper Sauce Recipe


This recipe serves: 4 
Preparation time: 10 minutes
Cooking time: 25 minutes

Ingredients
1 1/2 teaspoons olive oil
2 cloves garlic, minced
1 small onion, chopped
2 small green bell peppers, chopped
1 cup tomato sauce
16 ounces fresh cheese ravioli
salt to taste
freshly ground black pepper
2 tablespoons freshly grated Parmesan cheese

Cooking Instructions
1. Bring a large pot of salted water to a simmer.
2. In a large skillet, heat the oil over medium heat. Add the garlic, stirring, until fragrant, about 1 minute. Add the onion and peppers and cook until the vegetables begin to soften, about 5 minutes.
3. Add the tomato sauce and bring to a simmer. Cook until the vegetables are tender, about 5 to 10 minutes. Season with salt and pepper.
4. Meanwhile, cook the ravioli in the simmering water until they float, about 5 to 7 minutes. Drain and toss with the sauce. Sprinkle with the Parmesan cheese and serve immediately.


Nutrition Facts
Serving Size: 4 oz. ravioli with sauce
Calories 201
Total Fat 7 g
Saturated Fat 2 g
Protein 9 g
Total Carbohydrate 28 g
Dietary Fiber 5 g
Sodium 450 mg
Percent Calories from Fat 29%
Percent Calories from Protein 17%
Percent Calories from Carbohydrate 54%                        

THANK YOU NELLIE!

 
 

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

 

 

 

 

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

You can also find some of Rockin Rod's Christmas music

Please click here for Rod's Christmas collection!

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, LF Shaw  Debby, MS_Kitty, Linda-NV, JackIL, and Spikers  Marineswife, Shimmie,  David, Pixie Dust. room administrators. They have been using the chat.  They can help you if you need help. 

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

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