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December 15, 2007

HeadsUp !
Chat Schedule Tuesday Game Night
ChatStar Women's/Men's Wednesday
Stories and Pictures Trivia Thursday 
Recipes & Healthy Eating Famous People
Rod's Music Shoppe Newsletter Archive


PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

What's With All The Hats in the Chat ?

We've finally gotten a neat feature of our chat  apparently  working correctly.  So we've been able to add Green Hats for all of our regular, Registered Chatters.  What's it all mean ?  

  • You get to reserve your chat name.  
  • Usually it remembers your avatar and font selection.  
  • Hopefully people will realize you aren't new and won't subject you to the " Newly Diagnosed Interrogation ' for the 14th time ! ! !  

Just click on the Orange Link below or on the Login Page;  

Register & Reserve Your UserName Here

 If you have any trouble, e-mail and we'll get you set up.

We want to thank you all! It has been a very busy time of year. Some of us dealing with a lot of ICE and SNOW! Some have none. Perhaps it's time for a weather exchange ?

   Join us New Years Eve. Bring in the New Year with us  !   
We need 25 Avatars for our New Years Eve Party ! 50 x 50 pixels and under 24KB in size. Animated woman and men dressed for New Year's of any era!  For example, Mr Red & Deb will both use this same Avatar!  But we don't need pairs. Just find one that looks nice and is the right size.  Right-Click on it and Save As to put it on your own computer.  Attach it to an e-mail and send it along to !  Hurry now: we will pick the best 24 out of what we get! 

We haven't gotten any help, so we haven't put up any avatars yet

the 20 Second Rule
Take 20 Seconds when departing chat to allow for goodbyes, any last

minute questions, whatever . . .    

What's With All The Rooms ?


Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.


( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.


( rated R )

The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.

Special Rooms 

Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST

The room for discussions of limited interest subjects.  Chia wrangling.  Pasta farming.  Furniture Refinishing Techniques.   Snow Salad Preparation.  Zombie Containment and retraining.

BikerBar HarleyVickie had the idea, and we made it a reality.  Now it's up to you to keep the room filled with lively discussions of whatever seems appropriate.  

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.

Chat Star


The MS hasn't changed or even changed me, I have always been positive about things including life, what will be, will be, I started in 1990 with progressive but after getting a heavy attack in December 2002 the neurologist started me on daily Copaxone injections (not scared of needles) I am please to say, he also re-graded my MS to R/R and now it is as I write this March 2004, the MS seems suppressed, Copaxone seems to be doing what it is supposed to do and me, well as always just getting on with life and enjoying what I can do the best way I can, life is fun, life can be fun, make the best of it and be positive........ More )


Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


PeopleWithMS - Stories and Pictures


Hello ya'll! My name is KT & I was diag. with RRMS. 3 year's ago. I have been on Betaseron for 21/2 year's.

Let's see I really can't recall any problem's till I woke up one day with a very blurry left eye. Went to a eye doctor (OD, FAAO) & he said "Well it's either a braintumor or MS" I said "OH Boy do I get to chose?" He sent me for an MRI & to a Neuro. The first Neuro. was very abrupt about telling me about MS. He didn't make me feel hopeful....So I found a new doctor who comes up to our little town from Atlanta twice a month. He is great! I use a cane out of the house & a WC for mall's car show's, ect.  

OK Now for some personal stuff.... I have been married for 26 year's to my high school sweetheart!! He spoil's me rotten!! We have 2 boy's who are 21 & 19. The oldest is in the A.F. up in Dover, Del. The youngest work's with my hubbie in the Industrial Floor Coating business & still lives at home.

We used to do a lot of tent camping till it got to be too much so last year hubbie bought us a pop-up camper with AC. Then this year he bought us a Boston Whaler boat so we could still fish together! Can't walk the creek's trout fishing anymore might fall in the creek! LOL!! Told ya he spoil's me!!

I will add some pics later when I'm on other puter....

Ya'll take care keep hopeful!!

(Much more and pictures to follow )

This could be you*

Just send your name, story, and photo along to:

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 



PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.


HeadsUp !

PeopleWithMS - Heads Up ! ! !



China & Miss Molly 

Wish you all a very Merry Christmas!

Covered in ribbons and bows and shiny paper,
Here I was, alone, but with plenty of possible capers.
Presents abound in all shapes and sizes,
What would you do, with a mischievous side?

I unwrapped all the presents and chewed the bows,
I ate all the goodies, and the tree, I disrobed.
My curly tail got hung up in the lights,
You could just imagine what a sight!
I played with everything and the time finally came,
Mommy's new coat got a new coat of rain!
Couldn't help it! I had to go!
I knew they would be mad if I peed on the floor..

The whole living room was such a mess,
What should I do? Then I heard a noise...
Daddy got up to surprise Mommy with a present for her stocking,
Boy was he surprised when he turned on the light!

Everything unwrapped, bows everywhere,
The tree was naked and the stockings were not there.
He looked over at me and Mommy came behind,
She wanted to see what it was he did find.

There I was, looking cute as can be,
All covered in wrapping paper and ribbons.
"You didn't have to wrap her!" Mommy exclaimed
I guess I looked real cute under that naked Christmas tree!!

( "Wasn't there.. Didn't do it!")

We are starting to talk about our JUNE 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.



Questions To Ask Your Doctor About Influenza

Are there risks in getting the vaccination?

Are there any symptoms that a doctor should be notified about?

What are the chances of developing a secondary infection?

Should I take amantadine or rimanadine? 

Check out this web site to learn more and find out if the flu is in your area: 




"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"


Hey everyone,

Just to give you a quick book update. Things are going well. The book has been out for approx. 2 months now. I've had a few book signings and general interest seems to be going well.

There are now a few additional places you can purchase the book. It is still available through me at

It is also available at OR OR OR OR OR

Just a reminder the book is called "I Dropped My Chicken Soup: Stories about Multiple Sclerosis."

I hope everyone has a happy and healthy holiday season!

Rebeka Huggins




PeopleWithMS - Crafts


Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 


Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions


Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in CONTACT ME:  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL

Tuesday Game Night

PeopleWithMS -Games


Welcome to our Tuesday night Game night ! 

We need idea's for games we can play on Tuesday & Thursday nights 

Some quick little fun games we can play on those long, cold, winter nights. Help us out here !  Post your ideas in the Trivia & Games Room   

We need your ideas !

Remember, Trivia Thursday Bring Yer Own is on hiatus until January 8, 2008

ard table

Tuesday night



Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night


 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  At the same time we have Men's chat in the MEN'S ROOM.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our new woman's night host Citrine! last week was more fun then any other woman's night Thank you Citrine

Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room. 

And remember:  Any one can use these rooms at anytime.


PeopleWithMS - Trivia Night

Trivia Nights in the PeopleWithMS Chat


8pm CST

9pm EST

6 pm PST


Gerry & Shimmie & Scottie host our Saturday Night TriviaChat!

Trivia Saturdays, where the hosts ask the questions.

Sit back, relax.  It's Saturday night enjoy!

For the East Coast chatters, it's like a night out!















8 pm EST

7pm CST

5 pm PST 


Red hosts our Thursday Night TrivialChat 

This week's Winner:  Nobody ! ! !

A few loyal players showed up, one by one, around the right time, but not enough to form a game.  So it was called off.

Trivia Thursday Bring Yer Own is on hiatus until January 8, 2008
Feel free to set up your own disorganized games at any time, and invite folks in. Or just post a question in the Trivia & Games Room. The last 10 lines are remembered.


PeopleWithMS - Recipes
Click here

for Recipes


Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 



Please Email us with any recipes you would like to share with us 

Bibb Lettuce with Grilled Tuna, Black Beans, Avocado and Cilantro Vinaigrette Recipe

This recipe serves: 4 
Preparation time: 20 minutes
Cooking time: 15 minutes

For the cilantro vinaigrette:
1 tablespoon finely chopped shallot
2 tablespoons white wine vinegar
1 1/2 tablespoons olive oil
1 teaspoon freshly chopped cilantro
salt to taste
freshly ground black pepper

For the grilled tuna:
4 tuna steaks, about 4 to 5 ounces each
nonstick cooking spray

For the green salad:
8 cups bibb lettuce, washed and torn into bite-sized pieces
1 cup canned black beans, drained and rinsed
1 avocado, peeled, pitted and sliced

Cooking Instructions
For the cilantro vinaigrette:
1. Place the shallots and the vinegar in a small mixing bowl and whisk to combine. Continue whisking and slowly add the olive oil and cilantro. Season to taste with salt and pepper.

For the grilled tuna:
1. Spray the grill grate with nonstick cooking spray and then preheat the grill to medium-high.
2. Season the tuna steaks with salt and pepper.
3. Grill the tuna on both sides until it is cooked through, about 4 to 5 minutes per side, depending on the thickness of the tuna steaks.

For the green salad:
1. Slice the tuna into strips and place them in a mixing bowl. Add the black beans and half of the vinaigrette.
2. Place the lettuce in a separate salad bowl and toss it with the remaining vinaigrette. Arrange the tuna and black bean mixture on top. Garnish with avocado slices.

Nutrition Facts

Serving size: 1 tuna fillet with salad
Calories 465
Total Fat 17 g
Saturated Fat 3 g
Protein 58 g
Total Carbohydrate 21 g
Dietary Fiber 6 g
Sodium 380 mg
Percent Calories from Fat 33%
Percent Calories from Protein 49%
Percent Calories from Carbohydrate 18%

Hot Mulled Apple Cider
(Low in calories)

Makes 4 servings
Sugar-free apple cider drink mix
1 quart (4 cups) water
4 cinnamon sticks
1 whole nutmeg
2 tablespoons lemon juice
1 teaspoon grated lemon peel
2 oranges
2 teaspoons cloves, whole

1. Following the directions on the package, combine the appropriate amount of sugar-free apple cider drink mix with 4 cups of water in a large, heavy saucepan.
2. Add the cinnamon, nutmeg, lemon juice, and lemon peel. Keep the oranges whole and leave the peel on. Press 1 teaspoon of cloves into each orange and add them to the pot. Bring to a simmer over high heat; simmer 10 minutes.
3. Remove from heat; let steep 5 minutes. Using a slotted spoon, lift out oranges and discard.

Nutritional Information:
2 calories
0 g fat
0 mg cholesterol
0 g carbohydrate
0 g protein
0 g fiber
5 mg sodium

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe





Rockin' Rod's



Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

You can also find some of Rockin Rod's Christmas music

Please click here for Rod's Christmas collection!


Famous People

PeopleWithMS - Famous People

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them:





PeopleWithMS - Poems

The Caregiver

Two words that come together
When you speak of someone dear.

It is that special person
If you call, they're always near.

You'll see that in a 'CareGiver'
Love comes from in their Heart.

With loving hands and guidance
They help each new day start.

Caring for the fragile soul,
Giving day to day.

They meet the needs of loved one's
Spreading love along the way.

A gentle touch, a helping hand,
A glow that makes you smile.

Always near to comfort
And go that extra mile.

They want no fame or glory,
And it puts their mind at ease,

To know they've helped a loved one
Deal with their disease.

So show a little kindness
To Care Givers across this land.

You may be the one someday
Who needs a helping hand.

With Peace and Understanding,
Throughout the ends of time.

There's someone who will care for you
And make your Spirit shine...The Caregiver...

You do it for Love

You give of your heart, your love, and your life,
To a grandparent, parent, husband or wife.

You dress and you feed them, you clean up the mess.
For months, maybe years, you give of your best.

At times you can laugh, more often there's tears,

As you watch them decline year after year.
So often you feel like there's nobody there,
No one to talk to, there's no one who cares.

Then late at night, you'll sit and just cry,
"It all seems so hopeless, so why do I try?"

And then comes a voice, so soft and so clear,
You look all around you, but no one is near.

Again comes the voice, as soft as can be,
"You know why you try, just look and you'll see."

"You do it for love, you know that is true."
"This love that you have, will help see you through."

"You're not alone, there's someone who'll share."
"The burden you carry, I'll help you bear."

Then in the darkness, a warmth you can feel,
A soft gentle presence, you know it is real.

As you drop off to sleep, the angels above,
Echo the words...."You do it for love."



I'm Still The Child

A child shall lead them I had heard it said.
The thought, Lead who? went through my head.
Childish thoughts that now seem strange,
Looking back, how things have changed.

My parents are strong, they'll always be there.
Dad looked so wise sitting in his chair.
To raise their children, the patience it took.
But they had had it, when they got that look.

We look back now, and laugh and cry.
Sometimes we'll give a wistful sigh.
The good old days? Not true, we know.
But they were there to help us grow.

Now I'm grown and it falls on me.
Am I really the child she hoped I'd be?
I get impatient and want to scream.
Some days seem like a horrible dream.

I help her stand, then guide her feet.
I cook her food, then help her eat.
A child shall lead them, and yes it's true.
I'm still the child, and so are you.



We are not a Machine

We are the caregivers, but wait, there is more.
So please, hear us out before closing the door.

No we're not perfect, but we're doing our best.
We just want to get some things off our chests.

When was the last time you tried to come by,
Or the last time you called, if only to say hi?

Do you really realize just what we do here,
And just how often we are driven to tears?

Our loved ones and we are in worlds far apart,
And their illness and pain can tear at the heart.

Their physical care can at times be a pain.
And the emotional struggle can be quite a drain.

What is it exactly, we are trying to say?
What would it take to really brighten our day?

A card in the mail, I'm thinking of you.
Or a phone call to ask, Hey! What can I do?

Even better, a visit from family and friends,
To laugh, to talk, and smile once again.

We must be honest, we don't want to demean.
But please understand, we are not a machine.





Someone cares

A friendly word can mean so much,
A kindly deed, an encouraging touch.

If I could but reach across the miles,
To lend a hand, or to bring a smile.

Would it lift the spirit, strengthen the heart,
To hear, I love you though we're far apart?

My friend, these are only simple things,
But there are times when they make us sing.

Sometimes our days with pain are filled,
To just make it through takes all our will.

And so, my friend, I send to you,
These humble words, though they are true.

Words of hope, my thoughts and prayers,
That you would know that someone cares.


                              THANK YOU RJUMP!


A Parent's Prayer

Author Unknown

Now I lay me down to sleep,
I pray my sanity to keep.
For if some peace I do not find,
I'm pretty sure I'll lose my mind.

I pray I find a little quiet,
Far from the daily family riot.
May I lie back and not have to think
About what they're stuffing down the sink,

Or who they're with, or where they're at
And what they're doing to the cat.
I pray for time all to myself
(did something just fall off a shelf?)

To cuddle in my nice, soft bed
(Oh no, another goldfish--dead!)
Some silent moments for goodness sake
(Did I just hear a window break?)

And that I need not cook or clean
(well heck, I've got the right to dream)
Yes now I lay me down to sleep,
I pray my wits about me keep,
But as I look around I know,
I must have lost them long ago!

Bill......... ENGLAND........

Three Finger Crash

Author Unknown

Don't you wish when life is bad
and things just don't compute,
That all we really had to do
was stop and hit reboot?

Things would all turn out ok,
life could be so sweet
If we had those special keys
ctrl-and alt-delete

Your boss is mad, your bills not paid
your wife, well she's just mute.
Just stop and hit those wonderful keys
that make it all reboot.

You'd like to have another job,
you fear living in the street?
You solve it all and start anew
with ctrl and alt delete

Bill...... England

A Different Version of The Night Before Christmas

The embers glowed softly, and in their dim light, I gazed round the room and I cherished the sight. 
My wife was asleep, her head on my chest, My daughter beside me, angelic in rest. 
Outside the snow fell, a blanket of white, Transforming the yard to a winter delight. 
The sparkling lights in the tree I believe, Completed the magic that was Christmas Eve. 
My eyelids were heavy, my breathing was deep, Secure and surrounded by love I would sleep. 
In perfect contentment, or so it would seem, So I slumbered, perhaps I started to dream. 
The sound wasn't loud, and it wasn't too near, But I opened my eyes when it tickled my ear. 
Perhaps just a cough, I didn't quite know, Then the sure sound of footsteps outside in the snow. 
My soul gave a tremble, I struggled to hear, And I crept to the door just to see who was near. 
Standing out in the cold and the dark of the night, A lone figure stood, his face weary and tight. 
A soldier, I puzzled, some twenty years old, Perhaps a Marine, huddled here in the cold. 
Alone in the dark, he looked up and smiled, Standing watch over me, and my wife and my child. 
"What are you doing?" I asked without fear, "Come in this moment, it's freezing out here! 
Put down your pack, brush the snow from your sleeve, You should be at home on a cold Christmas Eve!" 
For barely a moment I saw his eyes shift, Away from the cold and the snow blown in drifts.. 
To the window that danced with a warm fire's light Then he sighed and he said "Its really all right, 
I'm out here by choice. I'm here every night." 
"It's my duty to stand at the front of the line, That separates you from the darkest of times. 
No one had to ask or beg or implore me, I'm proud to stand here like my fathers before me. 
My Gramps died at ' Pearl on a day in December," Then he sighed, "That's a Christmas 'Gram always remembers." 
My dad stood his watch in the jungles of ' Nam ', And now it is my turn and so, here I am. 
I've not seen my own son in more than a while, But my wife sends me pictures, he's sure got her smile. 
Then he bent and he carefully pulled from his bag, The red, white, and blue... an American flag. 
I can live through the cold and the being alone, Away from my family, my house and my home. 
I can stand at my post through the rain and the sleet, I can sleep in a foxhole with little to eat. 
I can carry the weight of killing another, Or lay down my life with my sister and brother.. 
Who stand at the front against any and all, To ensure for all time that this flag will not fall." 
"So go back inside," he said, "harbor no fright, Your family is waiting and I'll be all right." 
"But isn't there something I can do, at the least, "Give you money," I asked, "or prepare you a feast? 
It seems all too little for all that you've done, For being away from your wife and your son." 
Then his eye welled a tear that held no regret, "Just tell us you love us, and never forget. 
To fight for our rights back at home while we're gone, To stand your own watch, no matter how long. 
For when we come home, either standing or dead, To know you remember we fought and we bled. 
Is payment enough, and with that we will trust, That we mattered to you as you mattered to us."

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us

General Information

PeopleWithMS Newsletter 08-19-07


Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, LF Shaw  Debby, MS_Kitty, Linda-NV, JackIL, Spikers, AMarineswife, Shimmie,  David, and Pixie_Dust. room administrators. They have been using the chat.  They can help you if you need help. 


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

If anyone has anything they think ought to be added to the weekly news letter, please email me at

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