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 PeopleWithMS.com Newsletter


December 29, 2007

HeadsUp !
Chat Schedule Tuesday Game Night
ChatStar Women's/Men's Wednesday
Stories and Pictures Trivia Thursday 
Recipes & Healthy Eating Famous People
Poems
Rod's Music Shoppe Newsletter Archive

Chat

PeopleWithMS Newsletter 08-19-07 PWMS Chat Update: 

This is the time of year when we review the past year at PeopleWithMS. We are happy to say we have grown into a much bigger group.  We have welcomed and adopted many from other MS chats.  Since the Goodwill chat joined PeopleWithMS, many others have followed from other chats.  As the year closes, we are seeing 300 or more visitors walk through the front door of the chat each day!

Time has proven this was the best move PeopleWithMS has made in quite a while. Chat is now far more active both at night, and during the daytime.  Many longtime chatters visiting are rediscovering lost friends from chats-gone-by. Newcomers are finding that PeopleWithMS is a place where MSers can learn, get advice, sympathy, and support. Or just escape and goof around for a little bit.

We see everyone helping everyone, in matters large and small.  Everyone needs to be heard, and we all need to lend an ear and listen.  Help as we can.  Let's keep the circle growing bigger and bigger.  

Deb, MrRed, Gerry, and Wilrat

Join us New Years Eve.
Bring in the New Year with us  ! 

We will change our avatars on Monday December 31st and they will stay that way through New Years day! We have dancers from many eras! Yes, Elvis, is with us LOL! Please have fun -  Just keep in mind what rooms are for what!  

Thank you!

 

 

the 20 Second Rule
Take 20 Seconds when departing chat to allow for goodbyes, any last

minute questions, whatever . . .    


What's With All The Rooms ?

PWMS

Main Chat Room

aka " The Lobby "

This a main chat room for all chatters. The best place to start at any time of the day or night. Some stay in here always. 

But now you can head off to another room, the choices are below.

CoffeeHouse

( rated PG )

Grab some friends, have a latte!  Or kick back with a Cappuccino.

Lounge

( rated R )

The place for racy jokes, rowdy discussions, and topics which might offend sensitivities in other rooms. Bring friends in here!
No Graphics

This is the place to hang out if your eyes just can't deal with fast-moving chat text and flashing graphics. Please turn off Avatars and Emoticons to eliminate flashing and conserve display space.


Special Rooms 


Special Rooms 

Newly Diagnosed RA's, Hosts, or any concerned chatter should suggest newly diagnosed chatters head into this quieter, special purpose room.  There should be no casual or off topic discussions here => the focus is on the questions, concerns, and fears of that new person. 
Trivia & Games

Organized Triva and Games are held 3 nights a week. However, you can organize games anytime you want.  Or leave a trivia question and play tag.

Women Only This room is only for Women! It can be used anytime at all. We do have Women's Night  Wednesday 8PM EST
Men's Only This room is only for Men! It can be used anytime at all. We do have Men's Night  Wednesday 8PM EST
Off-Topic

The room for discussions of limited interest subjects.  Chia wrangling.  Pasta farming.  Furniture Refinishing Techniques.   Snow Salad Preparation.  Zombie Containment and retraining.

BikerBar HarleyVickie had the idea, and we made it a reality.  Now it's up to you to keep the room filled with lively discussions of whatever seems appropriate.  
Connections

No one in chat, or the room you are interested in chatting in ?  Leave a message. They will catch you later.

Staff Lounge A closed room for occasional staff meetings.
 

Who's Chatting Where?  Plus Signs to the left of room names click-expand to show who's in there !

Who's logging in and out ?  Regular users should only see those logging into and out of a particular room.  RAs see all  entry-exit so they can greet newcomers.


 

Chat Star

Ted

My Name is Ted. I will start medicare in January. I’ve been married to my wife Jane for 39 years. We don’t have any children. I was dxed with late onset MS in Nov of of ’05. I was immediately put on Copaxone. I have not had any flares since.   (more )

 


Coordinator of Room Administrators

AMarinesWife is coordinating all Room Administrators Please contact her with any problems. She may make some suggestions about how to be a more effective Room Administrator. Work with her she has some very good ideas. We need Team work! She will help with anything she can when it comes to helping others in chat.  

Or contact us at PWMS@PeopleWithMS.com

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET  

 

Chat Hosting Schedule                                                                                                      

The Chat Schedule breaks things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 
.
Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat

Stories

PeopleWithMS - Stories and Pictures

ktcreek

Hello ya'll! My name is KT & I was diag. with RRMS. 3 year's ago. I have been on Betaseron for 21/2 year's.

Let's see I really can't recall any problem's till I woke up one day with a very blurry left eye. Went to a eye doctor (OD, FAAO) & he said "Well it's either a braintumor or MS" I said "OH Boy do I get to chose?" He sent me for an MRI & to a Neuro. The first Neuro. was very abrupt about telling me about MS. He didn't make me feel hopeful....So I found a new doctor who comes up to our little town from Atlanta twice a month. He is great! I use a cane out of the house & a WC for mall's car show's, ect.  

OK Now for some personal stuff.... I have been married for 26 year's to my high school sweetheart!! He spoil's me rotten!! We have 2 boy's who are 21 & 19. The oldest is in the A.F. up in Dover, Del. The youngest work's with my hubbie in the Industrial Floor Coating business & still lives at home.

We used to do a lot of tent camping till it got to be too much so last year hubbie bought us a pop-up camper with AC. Then this year he bought us a Boston Whaler boat so we could still fish together! Can't walk the creek's trout fishing anymore might fall in the creek! LOL!! Told ya he spoil's me!!

I will add some pics later when I'm on other puter....

Ya'll take care keep hopeful!!

(Much more and pictures to follow )

Joy


Hi, My name is Joy and I was diagnosed with MS in November 2005. It started out with numbness in hands and feet. So far I’m coping pretty well with it but I do have my days as you probably well know. I have a supportive family and friends and that is what keeps me from freaking out LOL. I live in Florida and I am still working full time so I’m thankful for that. I have tried two MS therapies Rebif and Betaseron and could not tolerate them well because of elevated liver enzymes. Plus I felt pretty awful most of the time that I was on them.

Right now I am on an investigative drug study (FTY720) Fingolimod which is a MS modifying drug in pill form. The study I am in is a pill (Fingolimod) once a day and injection once a week (Avonex). One of them is Placebo. I honestly can’t tell which one is Placebo. It would be great to just take a pill once a day wouldn’t it. Well I hope to make lots of friends here at People with MS. I will be chatting with you.  (More )

MO


Hello everyone, 

My name is Cir aka MO. Sometimes, but rarely, do I use Tobor. I'm 48 years old. I've been married for 25 years. We have 3 children. two girls and one boy. Oh yesm how can I forget my two lady friends. My bass guitars Mya and Amy. I love music.  My friends and my bass guitars are a joy to me and a great help for me in so many ways.

I was dxed in the fall of '92. It wasn't a shock to me mainly because there was something wrong with me and now I had a name to it. You see, my first notice of something not right is during a gun safety course I was taking when I was about 17 years old. I can remember taking the physical portion of the exam and barely getting through it because of extreme weakness and imbalanced feelings. I did pass and boy I was glad of that and also grateful no one got hurt. We had to shoot clay pigeons as a part of the test. It seems like I remember reading where one of our vice presidents shot one of his pals on a hunting trip hmmmmm lol. The man is ok thank goodness.  (More )

This could be you*

Just send your name, story, and photo along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS.  Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

 

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life.

 Anyone who wants to add Pictures or update their story, please do so.

   

HeadsUp !

PeopleWithMS - Heads Up ! ! !

NEXT LIVE SHOW: Thursday, January 24, 2008
Complementary Treatments for MS


Have you tried acupuncture for spasticity, or started vitamin D supplements? Are you wondering how to tell if any of these non- conventional treatments are effective or even safe? 

Tune in on Thursday, January 24 as we enter the uncertain world of complementary treatments for MS and its symptoms. From basics like physical therapy and regular exercise to more dramatic choices like high-dose vitamin D and anti-inflammatory diets, we will discuss many of the popular alternatives and get an expert’s take on their efficacy.

And, as always, you'll have a chance to ask the experts your questions. 

BONUS: Attend the live show online for your chance to win one of three newly redesigned iPod nanos. Use your new nano to download all the latest MS podcasts now available at HealthTalk.com!


Date: 
Thursday, January 24, 2008

Time:
5:30 p.m. PST / 6:30 p.m. MST / 7:30 p.m. CST / 8:30 p.m.

EST

Location:
On the Internet

http://www.healthtalk.com/multiplesclerosis/programs/10_917/ index.cfm

How to participate online:

It’s okay if you haven’t registered prior to the show – we’d still love for you to attend. 

On Thursday, January 24 approximately 10 minutes prior to show time, access the following Web address from any computer: http:// www.healthtalk.com/multiplesclerosis/programs/10_917/index.cfm
Be sure to install Media Player for Mac or Windows and test it before the show. Find easy download instructions at http:// www.healthtalk.com/wmpdownload.cfm. 


Thank you for tuning in! 

We wish you and your family the best of health, 
The HealthTalk Multiple Sclerosis Team 

 
We are starting to talk about our JUNE 2008 Get Together. 

It is still too early to make any solid plans, but keep it in mind.

 

 


Questions To Ask Your Doctor About Influenza

Are there risks in getting the vaccination?

Are there any symptoms that a doctor should be notified about?

What are the chances of developing a secondary infection?

Should I take amantadine or rimanadine? 


Check out this web site to learn more and find out if the flu is in your area:

fluFacts.com 

 


 

 

"I Dropped My Chicken Soup:

Stories about Multiple Sclerosis"

 

Hey everyone,

Just to give you a quick book update. Things are going well. The book has been out for approx. 2 months now. I've had a few book signings and general interest seems to be going well.

There are now a few additional places you can purchase the book. It is still available through me at
www.msstories.zoomshare.com

It is also available at www.amazon.com OR www.target.com OR www.totallywell.com OR
www.wellnessbooks.com OR www.target.com OR www.bordersstores.com

Just a reminder the book is called "I Dropped My Chicken Soup: Stories about Multiple Sclerosis."

I hope everyone has a happy and healthy holiday season!

Rebeka Huggins


Rebeka
www.myspace.com/msstories

Crafts

PeopleWithMS - Crafts

CRAFTERS

Everyone will have a place to post there crafts so others can see them. This link will stay on our web site and also can be found on our links page. Click yarn ball for fall music, crafts, and more!

Click here for our chatters Craft's and more 

 

Judy is selling her dish cloths. They are made of cotton and she's selling them for $2.00 per towel plus shipping. It's a great deal! They last a real long time and make great gifts!! 

Email Judy for orders or questions judydionne@verizon.net

 

Busy Bees Nursery...Where Dreams Come True 

Hello. My name is Audrey and I am the artist here at Busy Bees Nursery. I have been creating these precious reborn babies for about 2 years, and I truly have a love for what I do. It is very rewarding, and I enjoy making people happy with my Reborn Babies! It is such a joy to create and reborn each baby, as they seem to develop their very own personalities and characteristics.

I am proud to say I am a Award 

Winner in RebornArtistry.com CONTACT ME: Audbug2410@aol.com.  

BusyBeesNursery...Where Dreams Come True:

 To post crafts EMAIL deb@durgin.net

Tuesday Game Night

PeopleWithMS -Games

 


Welcome to our Tuesday night Game night ! 

We need idea's for games we can play on Tuesday & Thursday nights 

Some quick little fun games we can play on those long, cold, winter nights. Help us out here !  Post your ideas in the Trivia & Games Room   

We need your ideas !

Remember, Trivia Thursday Bring Yer Own is on hiatus until January 10, 2008

ard table

Tuesday night
8PM EST

5PM PST

7PM CST



Womens & Mens Nights

PeopleWithMS - Women's & Men's Chat Night

 

 Woman's night & Men's night! 

Wednesday's we have Woman's chat in our WOMAN'S ROOM 

  At the same time we have Men's chat in the MEN'S ROOM.  

We do this for one hour from 8PM till 9PM  EST. If anyone wants to stay in the woman's room for longer,   feel free to stay. We have had such a great time it seems for some it's not long enough.  Then we rejoin in the main chat room as always.

Please welcome our new woman's night host Citrine! last week was more fun then any other woman's night Thank you Citrine

Donny Doormat is there manning the doorway, ready to greet you and guide you into the right room. 

And remember:  Any one can use these rooms at anytime.

Trivia

PeopleWithMS - Trivia Night

Trivia Nights in the PeopleWithMS Chat

Saturdays

8pm CST

9pm EST

6 pm PST

Gerry & Shimmie & Scottie host our Saturday Night TriviaChat!

Trivia Saturdays, where the hosts ask the questions.

Sit back, relax.  It's Saturday night enjoy!

For the East Coast chatters, it's like a night out!

LAST WINNER! 

Citrine!

Trivia Saturday's is on hiatus until January 12, 2008

Thursdays

8 pm EST

7pm CST

5 pm PST 

  

Red hosts our Thursday Night TrivialChat 

This week's Winner:  

Trivia Thursday is on hiatus until January 10, 2008
Feel free to set up your own disorganized games at any time, and invite folks in. Or just post a question in the Trivia & Games Room. The last 10 lines are remembered.

Recipes

PeopleWithMS - Recipes
Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 
Crispy Flounder Fillets Recipe


This recipe serves: 4 
Preparation time: 10 minutes
Cooking time: 20 minutes

Ingredients
4 flounder fillets, about 4 ounces each
1/2 cup all-purpose flour
salt and pepper to taste
2 eggs beaten with 1 tablespoon water
1 cup dry bread crumbs
2 tablespoons vegetable oil

Cooking Instructions
1. Place the flour in a bowl and season with salt and pepper. In a second bowl, whisk the eggs with the water and place the bread crumbs in a third, shallow bowl.
2. Dip each flounder fillet in flour. Pat off excess flour, dip in egg and then bread crumbs, coating evenly.
3. Lightly coat a skillet with vegetable oil and place over medium-high heat. Fry cutlets in a single layer, until golden on both sides, about 2 minutes per side.
4. Drain on paper towels.


Nutrition Facts
Serving size: 1 fillet
Calories 243
Total Fat 8 g
Saturated Fat 2 g
Protein 20 g
Total Carbohydrate 21 g
Dietary Fiber 1 g
Sodium 334 mg

Percent Calories from Fat 31%
Percent Calories from Protein 33%
Percent Calories from Carbohydrate 36%                             

Thank You Nellie!
Daily Dish
Crown Roast of Pork


The star of any Christmas dinner is, arguably, a mouthwatering main course. Turkey and ham are common, but this pork crown roast from The South Beach Diet Parties & Holidays Cookbook will make a stunning centerpiece at your upcoming Christmas dinner.

Makes 16 to 20 chops

Description
This regal dish is easy to make. Ask the butcher to trim the fat, french the bones to expose the tips, and tie the rack into a crown.

Ingredients
2 tablespoons plus 2 teaspoons extra-virgin olive oil
2 garlic cloves, minced
2 tablespoons chopped fresh sage
2 tablespoons chopped fresh oregano, or 2 teaspoons dried oregano
1/2 teaspoon freshly ground black pepper
1/4 teaspoon salt
1 (6- to 7-pound) crown roast of pork, fat trimmed and bones frenched
4 celery stalks, cut into 1 1/2–inch pieces
2 medium onions, quartered
2 medium carrots, cut into 1 1/2–inch pieces
1/4 cup plus 2 tablespoons water
1/4 cup red wine

Instructions
1. Whisk together 2 teaspoons of the oil, garlic, sage, oregano, pepper, and salt in a small bowl. Rub pork all over with garlic mixture. Cover pork with plastic wrap and refrigerate for 8 hours or overnight.
2. Position rack in lower third of oven and heat oven to 425°F.
3. Toss celery, onions, and carrots with remaining 2 tablespoons of oil in a roasting pan; set pork on top. Wrap bone tips with foil to prevent burning.
4. Roast pork for 30 minutes, then reduce heat to 350°F and continue roasting, turning pan halfway through, until thermometer inserted in the thickest part of a few of the chops reads between 155° and 160°F, about 1 1/4 to 1 1/2 hours.
5. Remove roast from oven and remove foil from bone tips. Carefully transfer roast to a platter, loosely cover with foil, and let rest for 20 minutes.
6. While roast is resting, remove vegetables from pan and discard. Place roasting pan over low heat and add water and wine. Bring to a simmer and, using a wooden spoon, scrape browned bits of pork from the bottom of the pan. Simmer until you have a flavorful juice, 3 to 4 minutes.
7. Carve roast into thick chops and serve with pan juices.

Nutritional Information:
170 calories
9 g total fat (2.5 g sat)
0 g carbohydrate
19 g protein
0 g fiber
75 mg sodium 

           Thank You Nellie!
Tomato Soup

Description
If you like tomato soup, try this take on the old classic. The fiber-rich chickpeas and ham provide lean protein that truly satisfies your appetite — and your taste buds!

Ingredients
1 small onion, chopped
1/4 cup sliced mushrooms
3 ounces diced ham
1/4 teaspoon extra-virgin olive oil
1 clove garlic, minced
1/8 teaspoon sweet paprika
Dash allspice
1 can (14.5 ounces) fat-free chicken broth
1 can (15 ounces) chickpeas
3 whole tomatoes, peeled

Instructions
1. Add the onion, mushrooms, ham, oil, garlic, paprika, and allspice to a large pot. Cook for 1 minute.
2. Add the chicken broth, chickpeas, and tomatoes. Cover and simmer for 15 minutes.
3. Puree the soup in a blender and serve.

Nutritional Information:
404 calories
7 g total fat (2 g sat)
25 mg cholesterol
58 g carbohydrate
29 g protein
12 g fiber
1,341 mg sodium

Thank You Nellie!
HONEY BUN COFFEE CAKE


1 YELLOW CAKE MIX WITH PUDDING IN IT

1 CUP OF BUTTERMILK (OR 8OZ. OF YOGURT)

3 EGGS

3/4 CUP OF VEGETABLE OIL

1 CUP OF BROWN SUGAR (LIGHT OR DARK)

1 TSP. CINNAMON

COMBINE CAKE MIX, EGGS, OIL AND BUTTER MILK AND SET IT ASIDE

IN ANOTHER BOWL MIX SUGAR AND CINNAMON (SET ASIDE ALSO)

IN A GREASED & FLOURED 9X13 CAKE PAN POUR HALF THE BATTER......TOP WITH
HALF THE SUGAR/CINNAMON MIXTURE

TOP THAT WITH THE REST OF THE CAKE BATTER AND THE REST OF THE
SUGAR/CINNAMON MIXTURE

TAKE A KNIFE AND SWIRL THE SUGAR MIXTURE THROUGH THE BATTER (5 SWIRLS)

BAKE @ 350 DEGREES FOR 35 TO 40 MINUTES

COOL AND GLAZE IF DESIRED

GLAZE MIX
1 CUP OF POWDERED SUGAR
2 TBSP MILK
1 TSP VANILLA
MIX THOUROUGHLY AND DRIZZLE ON A COOL CAKE

Thank You Rod!

Rod's Music Shoppe

PeopleWithMS - Rod's Music Shoppe

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  

 

Famous People

PeopleWithMS - Famous People
 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  

 

 

Poems

PeopleWithMS - Poems

Someone cares

A friendly word can mean so much,
A kindly deed, an encouraging touch.

If I could but reach across the miles,
To lend a hand, or to bring a smile.

Would it lift the spirit, strengthen the heart,
To hear, I love you though we're far apart?

My friend, these are only simple things,
But there are times when they make us sing.

Sometimes our days with pain are filled,
To just make it through takes all our will.

And so, my friend, I send to you,
These humble words, though they are true.

Words of hope, my thoughts and prayers,
That you would know that someone cares.

AUTHOR

                              THANK YOU RJUMP!


 

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

General Information

PeopleWithMS Newsletter 08-19-07

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, LF Shaw  Debby, Linda-NV, JackIL, Spikers, AMarineswife, Shimmie,  David.  room administrators. They have been using the chat.  They can help you if you need help. 

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.  

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existence, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on web cam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own web server, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

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