PeopleWithMS.com Newsletter

March 6, 2004


PeopleWithMS Welcomes 

Chat is growing through the dedication of our regular chatters and new visitors. Thing are jumping most every night from  7PM till at least 12AM EST. 

We want to again stress that people are welcome anytime in chat. In chat we can never have enough information. 

We welcome Tara (aka Linda), RA for another MSDreamchat.  It's so nice to see the sharing, supportive spirit of the broader MS community.  

SteveFl (aka Sonic) is welcomed as a returning chatter from long ago.

SteveNL has also made a surprise return, all the way from Holland.  

JackIL has made a blazing (albeit erratic) return this week after a few days off, with his new big iron PC. 


New Stories and Pictures

Marie

Nurse Marie is donating her time to be in chat, answering your questions, Mondays, Tuesdays, and Thursdays at approximately 7:00pm EST.  And starting Monday, 7-11am EST.  Thank you, Marie !

MUFF

Muff aka Terri is also donating time in chat with us. She has much information on obtaining medical  and general financial support. She also has a wide range of information regarding general disability issues. Just ask and she helps!  Thank You Muff! 
Steve

aka Sonic

Now doing much better on Novantrone.
SteveNL

 

Things are fine in Holland after a 6 month house move-in and renovation. 

New Link Sightings

Every week we'll be adding new link sightings which may be of interest, as reported by our visitors.  This will highlight new links you may want to investigate, before they disappear into the obscurity of some huge link listing.  If you come across any site which you think may be of interest, please e-mail us PWMS@PeopleWithMS.com with the site address and a brief description of what you found interesting on the site.  We'll include it in the next Newsletter.

Dawn's MS Page ** Dawn ** 2/28/04

Dawn stopped by in chat to say hi, and remind us of her own personal web site.  An interesting story there. 

These two links are worth repeating, since they really cover a gamit of things.....

Complementary and Alternative Medicine (CAM) NMSS - Living With MS Marie ** 2/26/04

A collection of links from the National Multiple Sclerosis Society

National Center for Complementary and Alternative Medicine ** Marie ** 2/26/04

Quite an extensive US Government site on Alternative Medicines.  


News Sightings

Biogen and Elan to seek early approval for Antegren Biogen IDEC News Release PWMS 2/26/04
Biogen Idec and Elan Corporation, plc today announced that they expect to submit to the U.S. Food and Drug Administration (FDA) an application for approval of ANTEGREN® (natalizumab) as a treatment for multiple sclerosis (MS). The companies expect to submit the filing mid-year 2004. The decision to file a Biologics License Application (BLA) was made after discussions with the FDA of one-year data from the two ongoing two-year Phase III trials in MS. The companies are committed to completing the two-year trials.....Biogen Idec and Elan are collaborating equally on the development of natalizumab for MS, Crohn’s disease, and rheumatoid arthritis.
NICE (UK) Releases Full Version of National Clinical Guidelines  MS Trust PWMS 2/24/04
The full Guideline was produced by the National Chronic Conditions Collaborating Centre at the Royal College of Physicians. It isn't really clear how this helps the (lack of) medication situation in the UK, but read it and judge for yourself.
Disability profile of MS did not change over 10 years PubMed/National Library of Medicine PWMS 2/24/04
This rather difficult medical abstract is notable in it's findings about the progression of MS.  The study found that the rate of progression from onset or diagnosis to EDSS score of 3 did not affect the rate of further disease progression. However, once an EDSS score of 3 was reached, progression of disability was more likely, and rate of progression increased.  CONCLUSIONS: The distribution of multiple sclerosis disability .... has remained stable for 10 years. Progression of disability for patients with relapsing-remitting multiple sclerosis or secondary progressive multiple sclerosis may be more favorable than reported previously. Once a clinical threshold of disability is reached, rate of progression increased.

New Information

There have been a number of questions about Adware and Spyware software this week.  In short, adware and spyware share the common, undesirable characteristic of tracking and reporting on your movements through pages on the Internet.  Largely for the purpose of presenting you with advertisements, banners, and commercial offers likely to be of interest.  In principle, a noble idea.  In practice, a bandwidth eating vampire, sucking the speed right out of your cable as it constantly reports every little thing back.  

Here are a couple of the better known freeware packages, which we use regularly, and can highly recommend:

Ad-Aware Ad-Aware  (via Download.com) Scans and removes both ad-sponsored software and Spyware.
Spybot - Search and Destroy  Spybot - Search and Destroy (via Download.com) Scans and removes ad-sponsored software, spyware, malware, hijackers, trojans, dialers, trackers, and more.

(both are best available directly, or from Download.com, or many other locations)

Used in combination, these will keep your computer fairly well protected.

In the Utilities section of Download.com you will a variety of similar utilities of the freeware, shareware, and trialware varieties.  They may be better, or different.   We just haven't tried them.


New on the Website

If anyone wants to share there story and picture please send it.

Still wrestling with users problems getting into chat. Thank you for reporting every problem. Its like diagnosing M.S. every little problem helps !

News Letter Archive

Missed something from an old Newsletter?  Find it here !

3-6-04 2-28-04 2-21-04 2-14-04
2-07-04 1-31-04 1-24-04 1-17-04

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