PeopleWithMS.com Newsletter

February 24, 2006

PWMS chat ! - Update

Chat has been fun as always. We look forward at the end of day to sitting back and chilling with our friends. Come join us !  It is very relaxing. We chat about everyday stuff. not only M.S. 


The National Multiple Sclerosis Society (NMSS) emailed us, asking if we would post information for MS Awareness Week, March 13-17, 2006.  During this week the NMSS will be running special webcasts and local chapters will be holding their own special events.  The NMSS is also initiating an interesting new site on the 13thFaceofMS.org, to tell the personal side of Multiple Sclerosis.  (a somewhat familar concept to PWMS regulars)    Click on either of the images above to learn all about it. 


Montel Williams is promoting the new prescription program " Partnership for Prescription Assistance " :  https://www.pparx.org/

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it out Patient Assistance Programs


Tysabri Update: FDA Lifts Hold on Clinical Trial

February 15, 2006 - The U.S. Food and Drug Administration has lifted the hold it had placed on clinical trials involving Tysabri® (natalizumab) after safety concerns led to the drug’s withdrawal from the market in February 2005. The drug’s sponsors, Biogen Idec and Elan Corporation, have announced intentions of resuming clinical trial dosing in multiple sclerosis in persons who were previously involved in Phase 3 clinical trials with specific plans for closer monitoring of patients.  Read more here Tysabri  


THREE PATIENTS WITH MULTIPLE SCLEROSIS (MS) SHOW FAVORABLE RESULTS AFTER STEM CELL/ PLACENTA IMPLANT

Las Vegas, Nevada 2/7/2006 10:58 PM GMT (TransWorldNews)

Three MS patients, all wheelchair bound, have reported the following results 4-6 days after the stem cell / placenta implant

  1. Cold feet needing various forms of heating during the night become warm with no need of heating.

  2. Substantial improvement or disappearance of spasticity.

  3. Being able, while in the wheelchair, to move their legs with relative ease.

  4. Urinary frequency markedly reduced.

STEMCELL PHARMA, Inc. is a biotechnology/pharmaceutical corporation that has acquired world wide rights of a proprietary technology titled: Amnion Stem Cells Telomerase Enhanced Placenta Implant. The Implant that had shown promising preliminary results in certain conditions including Multiple Sclerosis (MS) also in symptoms and diseases associated with aging. While the initial purpose of Stem Cell Pharma was to apply to the Nevada legislators to approve a Stem Cell clinic in Las Vegas, presently obtained results might encourage us to change strategy and apply to the FDA for approval to start certain clinical trials. In the meantime Nevada physicians are carrying out "the Implant" procedure in their offices and private practices, and the results obtained might be used for future FDA endeavors. In a following news release certain non-confidential information regarding "the Implant" will be released that will show that this technique is entirely different from the stem cell techniques used elsewhere.

For more information please contact:

Alfred T. Sapse MD (ret) c/o
Stem Cell Pharma Inc.,
Las Vegas, NV
Phone: (702) 383-5892 
Fax: (702) 733-9505

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OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Jeffs and JackIL has room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 

Please help us remember to ask all chatters to sign the guest book.  It's our only way of sending them our  news letter. 


Chat Hosting Schedule

We have no hosting schedule right now. Chat is always open and Guests are always welcome. Someone is in chat from 8 EST on. Feel free to drop in and join us. If you have any ideas please share them.  

If you come in and one of chatters is there, say Hi ! Please wait, they could be away for many reasons. Like getting coffee. Please be patient, they do return.

If you have any interest in hosting please contact us at PWMS@PeopleWithMS.com 


New Stories and Pictures

Jeff   We need your story :( 
Rod   We need your story :(

This could be you !

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.


Recipes    

Check out all of the recipes on our web site. that chatters have shared with us    

Click here  

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


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