PeopleWithMS.com Newsletter

April 1, 2006

PWMS chat ! - Update

Chat has been fun as always. We look forward at the end of day to sitting back and chilling with our friends. Sharing our accomplishments, troubles, and even silly events of the day. Come join us !  It is very relaxing. We chat about everyday stuff. not just M.S. 


PWMS Welcomes . . .

Any chatters touched by M.S. What this means is anyone with M.S., a family member of anyone with M.S., or simply a friend who wants to understand M.S. 


MS WALK!

One of our Room Administrators, Jeff Shepard, will be doing the MS Walk in his area. We have always said when anyone does the MS Walk they do it for all MSER's . If anyone is able to support him with a donation this is how.

CLICK THE SNEAKERS  


 

The National Multiple Sclerosis Society (NMSS) emailed us, asking if we would post information for MS Awareness Week, March 13-17, 2006.  During this week the NMSS will be running special webcasts and local chapters will be holding their own special events.  The NMSS is also initiating an interesting new site on the 13thFaceofMS.org, to tell the personal side of Multiple Sclerosis.  (a somewhat familar concept to PWMS regulars)    Click on either of the images above to learn all about it. 


Montel Williams is promoting the new prescription program " Partnership for Prescription Assistance " :  https://www.pparx.org/

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs


Tysabri Update: FDA Lifts Hold on Clinical Trial

March 24, 2006 - The U.S. Food and Drug Administration has extended the regulatory review period for the reintroduction of Tysabri (natalizumab) for multiple sclerosis (MS) by up to 90 days.

FDA Statement On Tysabri Review Time 

This review is simply to assure there is an updated Risk Management Plan in place for safe use of the product, given the issues.  

Click Here 

to enter Click Here to go to Discussion Board

our new chat

Click Here

Click Here to go to Discussion Boardto enter 

our new chat


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Jeffs and JackIL has room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 

Please help us remember to ask all chatters to sign the guest book.  It's our only way of sending them our  news letter. 


Chat Hosting Schedule

We have no hosting schedule right now. Chat is always open and Guests are always welcome. Someone is in chat from 8 EST on. Feel free to drop in and join us. If you have any ideas please share them.  

If you come in and one of chatters is there, say Hi ! Please wait, they could be away for many reasons. Like getting coffee. Please be patient, they do return.

If you have any interest in hosting please contact us at PWMS@PeopleWithMS.com 


New Stories and Pictures

Jeff

 

My name is Jeff. I have MS. The relapsing remitting type. You know, relapses come and go, then back again someday. I was almost declared secondary progressive. That never happened. Now for a little about me.

I grew up in a small town and graduated high school with 68 students. So small that fun on Halloween was to take a tractor with a manure spreader full of pumpkins down Main Street and toilet people’s car door handles. Woo hoo. Maybe MS is payback hahahha.

I married the girl that went to school with me. It seems odd that were still together for so long. Must be true love. We’ve been thru hell and back, but I suppose its how you pick up the pieces and move on . . .   (more)
 
Rod   We still need your story :(

This could be you !

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.


Recipes    

Check out all of the recipes on our web site. that chatters have shared with us    

Click here  

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


Want to receive our Newsletter ?

Visit our site and sign our Guestbook, including your e-mail.  Or send us a request;  PWMS@PeopleWithMS.com


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