PeopleWithMS.com Newsletter

April 2,2005

What's new in chat ? 

PWMS Would like to thanks Jeff and Jack for all of the MS news. They keep us updated daily. Thank you Jeff and Jack :)

A number of our other regular chatters have installed and are using and the Firefox browser in chat with great success.  So we're adding information to our Computer Tips on obtaining, installing, and configuring Firefox.

We have had a few new chatters in and out. Please, if no one is in chat, come back. We always have chatters in chat after 7PM  EST every night. We stay in chat till at least 10pm EST nightly.

We do have some hosted chats during the day - check it out. Plan on a chat during the day. Hosting Schedule !

If anyone needs information on how a Baclofen pump works and helps, ask Dream. She would be more than happy to help. 


New Link Sightings

Avonex

Biogen Idec's multiple sclerosis drug Avonex might cause severe liver damage in rare cases, the company and the Food and Drug Administration said yesterday. More information here Biogen and F.D.A. Issue Drug Warning

Brain Trauma Drug to be Tried in MS.

Neuren Pharmaceuticals has signed a development agreement with the Walter Reed Army Institute of Research, giving hope to millions worldwide affected by brain disease and injury. More information hereUS signs up for NZ brain drug

M.S. Researchers Uncover Clues to Inner Workings of MS

A pair of recent studies is providing insight into the underlying mechanisms of multiple sclerosis (MS).1,2 These discoveries and others like them could help shed light on the unknowns behind the disorder and lead to better treatments for patients someday. More information here Immune Attack Gone Awry

Tysabri

MIAMI After five tough years fighting multiple sclerosis with current drugs, Carmen Chediak had just received her first infusion of a new one, Tysabri.. More information here  Sclerosis patients yearn for new drug. 

DIRECTORS of Elan

The Irish drug company that hauled itself back from the brink of insolvency only to stumble again, are considering a break-up of the business in response to its latest crisis. More information here Elan directors look into break- up as crisis looms

Third tysabri case 

Biogen, Elan Uncover Third Illness in Tysabri Review 

More information here The companies said they continue to examine clinical trial data

StemCells optimistic on 'Batten' trial

NEW YORK (Reuters) - StemCells Inc. Thursday said it plans to re-submit its application to conduct a clinical trial of its experimental treatment for a progressive brain disease in children after receiving "supportive and encouraging" feedback from the U.S. Food and Drug Administration. More information here Company says improved relations with FDA inject new life into possible treatment for Batten disease

Protein might support brain healing

CAMBRIDGE, Mass., Mar 29, 2005 (United Press International via COMTEX) -- In a step towards being able to treat brain damage, Massachusetts scientists have identified a molecule key to helping stem cells survive in one's brain. More information here If they are correct, the protein could offer an avenue to treat brain dysfunction

Tysabri 

Tysabri Voluntarily Suspended from Market. Check our News Flash page's added links for the latest breaking information.

What FDA approval means.

What exactly does it mean when a drug wins Food and Drug Administration approval? Isn't it supposed to mean that the medication is absolutely safe? That the FDA knows of all possible side affects? That it's better than older drugs on the market? The answer is NO, no and no. click here for more information. No guarantees .


New Link Sightings Latest Links 

News Sightings  Always check out the News Page for the latest, breaking news.

Every week we add new link sightings which may be of interest, as reported by our visitors.  This will highlight new links you may want to investigate, before they disappear into the obscurity of some huge link listing.  If you come across any site which you think may be of interest, please e-mail us PWMS@PeopleWithMS.com with the site address and a brief description of what you found interesting on the site.  We'll include it in the next Newsletter.


Recipes:   

If you have a favorite recipe you'd like to share, e-mail us;  PWMS@PeopleWithMS.com 

All of the recipes are saved on our web site! Check for more here.  click here


COMPUTER TIPS!

We need to get tips on computer issues, especially as they relate to chat on PeopleWithMS.com Tips will be put in the news letter for one week, then put on the links page of our web site so we can share with others.  Please email any tips you think may help others PWMS@PeopleWithMS.com 

The most common problem with chat is getting in ! ! !  Many people have been thwarted in configuring the Internet Explorer Browser, contending with spyware and adware hijackers and Pop-Ups, and dealing with the various add-on's Pop-Up blockers. 

The Firefox browser or the Mozilla suite (from the same folks) is an effective end-run around the Internet Explorer problems - either simply to get into chat, or as a replacement for Internet Explorer. This software is in the public domain, so it's . . . 

FREE ! ! !   

More importantly, it appears to be an easy fix to the many aggravations chatters experience.  

Check out our page for the full scoop on Mozilla.org's extremely popular public domain alternatives to learn more.  Mozilla & Firefox


New Stories and Pictures

 This

Could

Be 

You

Your name, story, and photo in the spotlight, right here in our weekly newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the Every day life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. Stories and Picture's Stories and Picture's  


We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com .


Chat Hosting Schedule

Our revised schedule can be always be found via the schedule link on the chat login page. We will keep it updated as soon as we get any change's. Hosting Schedule !

Keep in mind our chat is always open. Guests are welcome anytime of day or night. 

If you come in and one of our hosts or chatters is there, say Hi ! If it says AFK next to their name this means they are away from their keyboard. Please wait, they could be away for many reasons. Like getting coffee. Please be patient, they do return as soon as AFK next to their name this means they are away from their keyboard. Please wait, they could be away for many reasons. Like getting coffee. Please be patient, they do return as soon as AFK next to their name this means they are away from their keyboard. Please wait, they could be away for many reasons. Like getting coffee. Please be patient, they do return as soon as possible.  

If you have any interest in hosting please contact us at  PWMS@PeopleWithMS.com 

Join us in chat. We have chatters in and out all day and night! 

Enter name below, select an avatar

Can't get into Chat?  Help is a click away ! ! !

If all else fails . . . try Firefox as your browser

(it's totally free.  See our Computer Tips)

If anyone has any ideas on hosting daily or nightly Topic chats please contact us at PWMS@PeopleWithMS.com 

Please help us remember to ask all chatters to sign the guest book.  It's our only way of sending them our weekly news letter. 


Want to receive our Newsletter each week ?

Visit our site and sign our Guestbook, including your e-mail.  Or send us a request;  PWMS@PeopleWithMS.com

News Letter Archive

Missed something from an old Newsletter?  Find it here !

04-02-05 03-26-05 03-17-05 03-06-05
02-26-05 02-19-05 02-08-05 01-30-05
01-23-05 01-08-05 01-01-05 12-25-04
12-18-04 12-11-04 12-04-04 11-27-04
11-20-04 11-13-04 11-06-04 10-30-04
10-23-04 10-09-04 8-29-04 8-1-04
7-9-04 7-2-04 6-26-04 6-11-04
5-31-04 5-21-04 5-15-04 5-7-04
5-1-04 4-23-04 4-16-04 4-10-04
4-2-04 3-27-04 3-20-04 3-13-04
3-6-04 2-28-04 2-21-04 2-14-04
2-07-04 1-31-04 1-24-04 1-17-04

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