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 PeopleWithMS.com Newsletter


April 7, 2007

News
Chat Schedule Stories and Pictures
MS DownUnder ChatStar
MSGroup4You Birthdays
MS Canada Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

(click on the logo)

Breaking News

Jeffs is taking the helm in a bold new daily news effort for PeopleWithMS.  Jeffs energy in researching, digging, and news follow-up is amazing. 

 

This re-engineered portion of the site provides an easily accessible, comprehensive posting of all the news out there to be found, and includes our own Customed search engine  ! ! !

If you spot something new before Jeffs gets it listed, send the link along to him: NewsWire@PeopleWithMS.com

(click on the logo)

 

PWMS Chat Update:

Rockin' Rod's first Saturday morning coffee chat (from 8 to 10 am Eastern Standard Time) was a smashing success!  Join him this Saturday for more early morning action and amusement.

Snowdogs, from the state of Victoria, downunder, is starting hosting afternoon Aussie-time chats on Thursdays and Saturdays from 4 to 6 pm.  (That's an eye-opening 7am for the UK, and a perfect 11pm Wednesday and Friday for the West Coast Night Owls

Kanga's mid-day Aussie chats from noon to 2pm Victoria Time on Monday, Tuesday, and Wednesday fit smoothly into North American evening prime-time ( right after the East Coast starts to roll up the sidewalks ).  Perfect for the Rocky Mountain & West Coast night shift on Sundays, Mondays, and Tuesdays.  An ideal chance for you to volunteer to co-host some nights with Kanga. 

Early-Birds:  You Know Who You ARE ! Support Nancy on Monday's & Friday's from 9 to 11 am EST.  Grab your coffee & danish and join our hosts.  RonB is off on a family vacation this week, but he does the Wednesday morning shift from 9 to 11 am EST.  If you are an early-bird, too, consider volunteering to host or co-host some morning during the week while you smell the coffee.

We also want to thank the many others who helping out by hosting, with their presence, or behind the scenes help.  

GrannyBJ (Betty) recently switched over to a new Apple MacIntosh.  And has absolutely no trouble getting into chat.  I cajoled her into writing up a story on her iMac system, to assure our chatters that an iMac is most certainly capable of getting into chat, without any special problems.

In fact, most of us would count ourselves lucky to have such a nice machine !

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

Norma's 

MS 

Walk 

The National MS Society is kicking off our annual MS Walk. I am planning to be a part of that event and I am asking you to join me in the fight against MS by making a contribution to support my effort.

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. They simultaneously fund research for a cure while also helping people who currently live with MS lead more fulfilling lives. I believe in the work they do, and I invite you to see for yourself all the good they've done for the MS community. More than 400,000 Americans live with MS, and your support can and will make changes in their lives.

Please help by making a donation - large or small - to fight MS. Or, why not join me on the day of the event? Become a participant and side by side, as teammates, we can work together to raise the funds to make a difference.

Click Here to go to learn more about Norma's MS WalkClick here to learn more about supporting Norma's WalkClick Here to go to Norma's MS Walk Page


Stories and Pictures

cbee

Hi there. I'm Claire (cbee on the site), from Nottinghamshire UK. I am 27 now, but dx 6 years ago. I had a rough time at the start and was kept in hospital for 4 months as I was paralised down the left hand side of my body. During my stay in hospital I also got married. I cant remember anything about the day really apart from what I've been told and the video. My marriage didn't last long (not even to 2nd anniversary).

I have been on betaferon for a few years and it was working fine until my consultant decided having double the dose would benefit my health. That was a year ago and within that year I have gone down hill and now back at square 1. (more )
shar

Hi, my name is Sharon but 'Shar' (as in the word 'share'), for short. I was dx'ed on Feb. 18th, 1997 (ironically my ex husband's birthday - figures!). I was dx'ed with RR, I've been taking neuron tin for the past 7 years and have been on/off of Copaxone. I have to admit I don't like injections, but I know when PhilNE comes to stay with me soon, he'll make sure that I take them. Ahh yes, the things we do for love.

I have been divorced for 18 years, I have one son who will be 22 on April 10, 2007. I have a dog, a cat and a fish. I love just about all kinds of music, in my 'younger' years I had been a singer in a band. 
(more )
Snowdogs HI GLAD TO BE ABOARD LOVE THE CHAT MY NAME IS GLENNIS TAYLOR I LIVE IN CENTRAL VICTORIA AUSTRALIA AGE 52 WAS DIAGNOSED FOR R/R IN 20005 BUT I WAS MIS-DIGANOSED WITH RSD IN 1998 AND LOOKS LIKE IT WAS M.S BUT THE DR SAID EVEN THOUGH THE MRI SHOWED MS LESIONS CLINICALLY I DID NOT HAVE MS IN 2000,

SO WENT TO ANOTHER NERUO WHO TOLD ME I DO HAVE MS AND PUT ME ON BETAERFRON HAD A FEW ATTACKS BEFORE I WAS PUT ON INJECTIONS AND ALSO HAD A FEW WHILE ON INJECTIONS.
(more )
JackIL

Click Here to go to Norma's MS Walk PageJack's niece has a birthday cake !             

What do you think, she was asked .............. 

Check it out. Ask Jack !

This could be you

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 
We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.

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This Week's Chat Star

Mike B

 

MikeB

Well, my MS story starts when I was thirty and got chicken pox for the first time.( I just turned 41 ) After being bed ridden for 2 months I slowly recovered. About3 years later i started haveing numbness in my fingers and toes. This progressed to one half of my body being numb. 
  
After a lot of Doctors and test i was DX with MS. I started taking AVONEX injection, and had no other symptoms untill this past year. I am just getting the feeling back in my feet.

I am still working and driving, I ride horses, motor cycles and fish and hunt. I have a hot rod frame shop and build dragsters on the side. I have a daughter I love and a wife of 15 years who is my best friend.

NEVER GIVE UP, NEVER SURRENDER !   (more)

 

 


     
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
Norma April 7 TH
Debbie  April 13 TH
RonB April 20 TH

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 
     

FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them (like 'World Renowned Chia Rancher ' )  PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  


Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Discussion Boardto enter 

our new chat



 Preface . . . 

"WE GO TO THESE ROOMS TO HELP THOSE THAT NEED IT AND TO FORGET OUR OWN TROUBLES.  IT IS NOT A REFERENDUM FOR POLITICAL, RELIGIOUS, OR MEDICAL DEBATE. HAVE AN OPEN MIND...WHAT WORKS FOR YOU MAY NOT FOR ANOTHER." copyright 2004 JLS (JEFFS)


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 


Those Darned &)$&($)*$#)! !! !!! Flashing Avatars!

If those flashing avatars and emoticons bother you, you can easily turn them off.  Just move your mouse cursor up into gray chat text area and right click your mouse to display a pop up menu.  In middle of the menu are two lines with check-boxes for "Show Avatars" and "Show Emoticons."  Uncheck the boxes, and the flashing will stop.


Chat Coordinator!

Norma is coordinating all chats please contact her for any changes. All you have to do is look below and find a place that fits  when hosting is good for you. Just let her know what you choose! 


Chat Hosting Schedule 

The Chat Schedule has been revised to shows times, time zones, and even the day of the week when chatters have volunteered to host chat on a regular basis.  This makes a chat more successful; people knowing there is someone available to provide support at dependable, specific local times.  

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

Following is just a sample showing the chat times in major time zones and across days (the different colos)

North America

http://PeopleWithMS.com/images/

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST
8.00 7.00 6.00 5.00 0 8.00 9.00 10.00
4:00 PM 5:00 PM 6:00 PM 7:00 PM 12:00 AM 8:00 AM 9:00 AM 10:00 AM  
Deb & MrRED   5:00 PM 6:00 PM 7:00 PM 8:00 PM 1:00 AM 9:00 AM 10:00 AM 11:00 AM   Deb & MrRED
Deb & MrRED   6:00 PM 7:00 PM 8:00 PM 9:00 PM 2:00 AM 10:00 AM 11:00 AM 12:00 PM   Deb & MrRED
Kanga   7:00 PM 8:00 PM 9:00 PM 10:00 PM 3:00 AM 11:00 AM 12:00 PM 1:00 PM   Kanga
Kanga   8:00 PM 9:00 PM 10:00 PM 11:00 PM 4:00 AM 12:00 PM 1:00 PM 2:00 PM   Kanga

Contact us at PWMS@PeopleWithMS.com if you'd like to host on a regular basis. 


.

PWMS & MSGROUP4YOU working together :)

MSgroup4You
Many of you have met Marlene in chat she has a  MSN group! She is supporting our chat by having all members use our chat room. Please support her MSN group. You can have your own mailbox and have some real fun. 

Please sign up today !  


PWMS Welcomes MSer's from all over

MS DownUnder

MS Downunder

Wayno has returned from his exotic cruise in the South Pacific this week.  He ought to have some great sea and sand stories to share over the next few nights.  

Mentioning Stuff

The latest online edition of Kanga's Australian Newsletter, Mentioning Stuff, is on our newstand ! 

Kanga is publishing a great newsletter with tons of local color and international contributions.  You will all be seeing Kanga more in chat. You can read it here http://PeopleWithMS.com/OZ/

This is the week we've started on the OzLinks page.  If you have any favorite links to resources, now's the time to mention it. . . Post us at PWMS@PeopleWithMS.com 
Wayno and Kanga are going to start organizing and advertising some Down-Under chats fitting the topsy-turvy times.  Their Mid-Day chats are going to pretty much continue right along towards the end of our evening chats.  So hang around chat a bit on those nights to help Kanga and Wayno welcome newcomers.

MS Canada

If you are interested in lending a hand on starting a Canadian Newsletter, let us know.  Or let us know where you have seen information we should add to help us build up the Canadian portion of the web site. 

PeopleWithMS - Canada

COME ON CANADA - HELP US OUT HERE!


 

Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!

MS BRACELETS OF HOPE

One of our chatters is making MS Bracelets of Hope.  She is selling them and donating part of the proceeds to the MS Society.  I have to say, they are the very best I have ever seen.  Excellent quality sterling silver with Swarovski crystals.  The Women's one is shown to the left.  The Men's one is sterling silver with wooden beads.  She has started a web site http://www.freewebs.com/msthings/   If her web site is down you can email her at leachl@limestone.on.ca 


Poems        NEW POEM THIS WEEK!

Inspirational pages called thePoetry Pages Click Here to go to Discussion Board

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com 

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Our Wednesday evening > Healthy Eating support group has started out so well  that we added 3 pages to our web site, and more to the pages. You can find a print out journal, recipes, and check out the exercise page. 

click here

 We will meet every Wednesday evening - check below for your local time 

EST CST MST PST
8PM-9PM 7PM-8PM 6PM-7PM 5PM-6PM

Recipes         NEW RECIPES IN BOTH CATEGORIES!

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, JeffS, JackIL, PhilNE, Kanga, and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


 


 If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

Our Latest Newsletter Click Here to go to Discussion Board


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