PeopleWithMS.com Newsletter

April 16, 2004


PeopleWithMS Welcomes 

Chat is jumping most every night starting 7PM EST.  Promptly ! ! !  

Remember:  This is an open chat about Multiple Sclerosis.  We welcome all who wish to visit and talk about MS.  And sometimes the subject drifts, gets a bit ribald, or downright goofy.  Humor is good therapy, be it racy or ridiculous.  However, this is a group chat, not a site for one-on-one private messaging.  And it's rude to pop into chat, and then start up extended private discussions which exclude the others in chat.  Please keep that on instant messengers.  

Audrianna dx '03, on Copaxone, stopped in from Paintsville, KY.

Delbert is on the road in Washington state this week. WheelsofHope needs your support ! Track his progress across the 48 continental United States; http://www.wheelsofhope.net/  

PeopleWithMS.com needs chat hosts ! ! ! Donate a couple hours during the day or evening to host, on a regular basis, and we'll make you famous !  If your focus is a particular topic or aspect of MS, just let us know and we'll post that in the Newsletter, too.  

Share is joining us as a new mid-day host on Mondays @1:00pm, EST and popping in at various other times as her schedule permits.

Muff continues as our stalwart host for many hours during the day.  Just waiting for your visit.  Whenever you see her in chat, with an afk next to her name, she's probably off making herself some tea.  Just say hi, and she'll pop back.


New Stories and Pictures

ThisCouldBeYou

?

Anyone who wants to share there story and picture can have their name in spotlights right in our weekly newsletter.  Please send it to: PWMS@PeopleWithMS.com

MUFF

Muff aka Terri donates mucho time to the chat day and night. If you need a link, a supportive listener, or just a buddy, she's the lady.  Thank You Muff! 

PS - Whenever Muff is listed in chat with an "AFK" next to her name, it just means she is "Away From Keyboard" but will probably be right back.  So sit down, say Hi, and have a sip of tea......


New Link Sightings

Every week we'll be adding new link sightings which may be of interest, as reported by our visitors.  This will highlight new links you may want to investigate, before they disappear into the obscurity of some huge link listing.  If you come across any site which you think may be of interest, please e-mail us PWMS@PeopleWithMS.com with the site address and a brief description of what you found interesting on the site.  We'll include it in the next Newsletter.

State Pharmaceutical Assistance Programs

National Conference of State Legislatures

Muff 4/13/04
29 states have current programs in action, and another 8 in progress, to aid seniors, disabled, uninsured and others.  This a very handy reference site to check out for anyone who has significant pharmaceutical needs.  Worth noting for reference. 

Americans with Disabilities Act

ADA.gov/

Muff 4/13/04
Information and Technical Assistance on the Americans with Disabilities Act.  This is where it all starts when it comes to anything concerning disabilities and the, laws, and the government in the USA.  If you think you have an issue, check here first !   

How to build a wheelchair ramp

Wt

M 4/2/04
If you need a wheelchair ramp built at your home, read this article and find out how to build one yourself.  This is a really great little article on the guidelines for building a wheelchair ramp.  No legal crap -> this is pure How-to, Do-it-yourself reading. 

MS-Library Archive

International MS Support Foundation

MrRED 4/15/04
Multiple Sclerosis Information and Resources.  And one heck of a lot of them! This library (as yet unexplored) covers many different aspects of MS in a well organized, obvious, and easy-to-use format.  Worth exploring.

Stannah Stairlifts

Stannah Stairlifts

JackIL 4/2/04
Home of the world's leading stairlifts.  This is the high end solution to the mobility problems of a multi-level home.  Even if your needs or means are more modest, this is the place to start.   

PHYSICIANS DESK REFERENCE

PDRHealth

Muff 4/12/04
"Your starting point for getting well and staying well." The PDR is one of the standard medical tests in any doctor's office. 

Lumbar Puncture

Medicinenet.com

Muff 4/13/04
A good overview of a painful subject. 

News Sightings

To put it bluntly, there's no news that's new this week.  We won't bore you with a rehash of re-releases of old stuff. 


New Information

Tips and Tricks

The simpler things - overlooked and under-appreciated time and labor savers. 

  • A thermos at bedside can keep water or hot tea at that perfect temperature all night long.  MrRED
  • Backyard cooling ?  That old spray bottle makes a great personal spritzer when it's getting just a little too hot.  The water evaporting off your head, arms, or body can make a lot more difference than you'd think. MrRED

New on the Website

McAfee Personal Firewall seems to be a problem child.  Ditzidee, aka Diane, has reported incompatibilities with AOL, difficulties with getting into chat, and difficulties even uninstalling it when she gave up.  Tip:  Read the system requirements and limitations very carefully before you buy one of these packages.  Despite software manufacturer's best efforts and intentions, and generally high quality, they cannot accommodate every user's software environment.  Compatibility with a relatively minor league product like Dreamchat or some game site is unlikely to be either mentioned or assured. And make sure there is a plausible refund policy.  That $49 closeout special is no bargain if you get stuck with a sack of sh*&^*($()t.

DreamChat Trivia (repeated by popular demand)

  • How do you do those neat little smileys and pictures in the text? Easy, here's a Cheat Sheet:

:) Smile   :* Kiss
:( Sad >-- Rose
;) Wink <love> Love
;} Wry <strobe> Strobe
:p Tongue <nuke> Nuke
:o Gasp <boom> Boom
:# Mad <star> Star
  • How do I copy and paste something?  Mark it as you usually would with the mouse.  Then use CTRL-C to copy it, and CTRL-v to paste it in the message window.

  • I'm a member.  I uploaded my avatar, and nothing happened.  What's up with that?  Even if your avatar is the specified 50 * 50 pixels, and no bigger than 15KB, there is no confirmation.  Apparently because DreamChat personnel review all permanent member's avatars to make sure they are acceptable.  (Whatever that means.)  If they are, they send back an approval in a day or so, and the next time you sign in, "poof" your new avatar appears.

  • That DreamChat Discussion Board . . . . . is a real nice idea.  However, visitors have discovered, as we did, that you must be a DreamChat Community Member to post.  That's not too nice.  You can visit in chat as often as you like, for free, and there's no reason you should have to pay them to express your opinion.  So we're thinking on workarounds or alternatives.  If you have any suggestions of non-commercial Discussion Boards or Forums, let us know.    

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