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 PeopleWithMS.com Newsletter


April 21, 2007

News
Chat Schedule Stories and Pictures
MS DownUnder ChatStar
MSGroup4You Birthdays
MS Canada Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

Trivia Night in the PeopleWithMS Chat

 

Marlene will be our Mistress of Trivia ( MissTrivia for short ), hosting our first Trivial Chat this coming Thursday, April 26th starting at 7:00 pm EST, 6 CST, 5 RMT, 4PST.  And a perky 9am in Australia, or Midnight in the UK. It's not just about having the answers . . .  it's about guessing who is most likely to have those answers.  And who will be crowned as our resident 'Font of Irrelevant Knowledge'

Last weekend Deb an I attended a local MS Seminar on Avonex and Tysabri.  And ran into an informative MSer;  Thomas Cote, organizer of a number of MS get-togethers around the country for the Red Boa Society.  Author of  ' Click Here to go to Chat15 Do's and Don'ts for Living( see below ).  And involved with CLAMS ;  Computer Literate Advocates for Multiple Sclerosis©   Thomas also introduced us to Beejet, another very active MSer, and recent chat visitor, with his own informative web site;  Beejet.com  Beejet is active on Internet Relay Chat (IRC), which may be relevant to those with more limited computing resources.

PWMS Chat Update:

Kanga and Debby's Chat time-slot is growing night & day!   They are hosting the late-shift nightly chats starting at 10:00pm EST, Which are also the mid-day Aussie chats (from noon to 2pm on Monday, Tuesday, and Wednesday - Victoria Time)  We want to thank all those supporting from out west, in the Canadian midwest, and really way, way out west in Oz.
MS Downunder Snowdogs, also from the state of Victoria, downunder, is hosting Aussie-afternoon chats on Thursdays and Saturdays from 4 to 6 pm.  (That's an eye-opening 7am for the UK, and a perfect 11pm Wednesday and Friday for the West Coast Night Owls

Early-Bird Hosts:   Grab your coffee & danish and join our hosts!   Rod on Saturdays 8 to 10am.  Nancy on Monday's & Friday's from 9 to 11 am EST.   RonB on Wednesday from 9 to 11 am EST.  Blak on Thursdays from 9 to 11 am EST.  Tuesday morning is calling someone's name for hosting => and it's probably you !

We also want to thank the many others helping out just with their presence, interest, and behind the scenes help.  

Techie Tips for Chat
 

 Java SE Runtime Environment Version 6 , Update 1 

Those of you with your systems set to "Automatic Update" may have seen the notice of this new version.  To set your mind at rest, this new version works just fine with chat.  

Caveat:  You SHOULD NOT enable the Google Toolbar or Desktop for automatic installation with the upgrade.  

 
Nancy had a recent problem getting into chat. . .

Suddenly her computer didn't want to work in chat using Internet Explorer.  She'd log in, type a few characters, hit the spacebar, and lose everything, or poof-be-gone. None of the usual suspects (pop-ups, multiple copies of Java) seemed to be the cause.  

We installed as a chat-only browser, and had her in chat within a half hour.  

What's important to learn from this ?  Installing and using a different browser for chat and visiting "trusted sites" may avoid some of the complications of browser add-ons.  It's not difficult, and need not interfere with your regular usage of Internet Explorer, or another browser your ISP may have provided. 

Bigger Fonts, Fast Scrolling, and &)$&($)*$#)! !! !!! Flashing Avatars! &)$&($)*$#)! !! !!! Flashing Avatars!

Move your mouse cursor up into gray chat text area and right click your mouse to display a very useful pop up menu.  

  • Select a font face like Arial Black if you want to easily read everything.

  • Select a bigger font size

  • Rapid Scrolling chatter, caused partly by those big flashing images

is easily controlled by un-checking the avatars and emoticons items on this menu.


Chat Hosting Schedule 

The Chat Schedule has been revised to shows times, time zones, and even the day of the week when chatters have volunteered to host chat on a regular basis.  This makes a chat more successful; people knowing there is someone available to provide support at dependable, specific local times.  

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

Chat Coordinator!

Norma is coordinating all chats please contact her for any changes. All you have to do is look below and find a place that fits  when hosting is good for you. Just let her know what you choose! 

Contact us at PWMS@PeopleWithMS.com if you'd like to host on a regular basis. 

 
Norma's 

MS 

Walk 

The National MS Society is kicking off our annual MS Walk. I am planning to be a part of that event and I am asking you to join me in the fight against MS by making a contribution to support my effort.

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. They simultaneously fund research for a cure while also helping people who currently live with MS lead more fulfilling lives. I believe in the work they do, and I invite you to see for yourself all the good they've done for the MS community. More than 400,000 Americans live with MS, and your support can and will make changes in their lives.

Please help by making a donation - large or small - to fight MS. Or, why not join me on the day of the event? Become a participant and side by side, as teammates, we can work together to raise the funds to make a difference.

Click Here to go to learn more about Norma's MS WalkClick here to learn more about supporting Norma's WalkClick Here to go to Norma's MS Walk Page

Marlene is challenging anyone to match her donation!!


Steph has ( 2 ) new Rebif auto-injectors.  Contact PWMS@PeopleWithMS.com if you are in need of one.

Stories and Pictures

MSers Meeting MSers

This Friday PhilNE 

finally makes the long awaited journey from Nebraska . . .

. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . to Connecticut to meet Shar.

 

 
Emma's Fourth Birthday

Jack's niece . . . . age 4 . . . aging rapidly. 

Check it out before she starts acting her age 

   

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 
We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.

.

 

This Week's Chat Star

BonBon1

 

 I had my first bad ms attack August of 1993. Had a pain in my head for three days and I went blind while driving!  I was dx'd 10 years later with r/r ms. I take Betaseron and try to stay positive." Hope" is the word I carry with me always. I am married and have two grown children. I live in Tennessee. Have all my life. I don't eat grits! I try to stay active. With my body and mind. I am very out going and have to watch that I don't do too much. I'm afraid if I don't use it I'll lose it. I love nature and try to be outside most times. If it's not too hot! I do crafts and make crystal bracelets. 

I have a little shelty named Richochet. He is my shadow. I love love people and love to talk. I love chocolate! And eat it as often as I can.  (more )

 


     
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
FancyStuff April 19th
RonB April 20 TH
Rod May 11th
James May 11th
Kathie May 30th

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 
     

Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Discussion Boardto enter 

our new chat



 Preface . . . 

"WE GO TO THESE ROOMS TO HELP THOSE THAT NEED IT AND TO FORGET OUR OWN TROUBLES.  IT IS NOT A REFERENDUM FOR POLITICAL, RELIGIOUS, OR MEDICAL DEBATE. HAVE AN OPEN MIND...WHAT WORKS FOR YOU MAY NOT FOR ANOTHER." ©copyright 2004 JLS (JEFFS)


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 


.

PWMS & MSGROUP4YOU working together :)

MSgroup4You
Many of you have met Marlene in chat she has a  MSN group! She is supporting our chat by having all members use our chat room. Please support her MSN group. You can have your own mailbox and have some real fun. 

Please sign up today !  


PWMS Welcomes MSer's from all over

MS DownUnder  MS Downunder

Mentioning Stuff

The latest online edition of Kanga's Australian Newsletter, Mentioning Stuff, is on our newstand ! 

Kanga is publishing a great newsletter with tons of local color and international contributions.  You will all be seeing Kanga more in chat. You can read it here http://PeopleWithMS.com/OZ/

This is the week we've started on the OzLinks page.  If you have any favorite links to resources, now's the time to mention it. . . Post us at PWMS@PeopleWithMS.com 
Kanga, Snowdogs, and Wayno are organizing and advertising some Down-Under chats fitting the topsy-turvy times.  Mid-Day chats pretty much continue right along from our North American evening chats.  So hang around chat a bit on those nights to help Kanga, Snowdogs, and Wayno welcome newcomers.

MS Canada

If you are interested in lending a hand on starting a Canadian Newsletter, let us know.  Or let us know where you have seen information we should add to help us build up the Canadian portion of the web site. 

PeopleWithMS - Canada

COME ON CANADA - HELP US OUT HERE!


Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!

MS BRACELETS OF HOPE

One of our chatters is making MS Bracelets of Hope.  She is selling them and donating part of the proceeds to the MS Society.  I have to say, they are the very best I have ever seen.  Excellent quality sterling silver with Swarovski crystals.  The Women's one is shown to the left.  The Men's one is sterling silver with wooden beads.  She has started a web site http://www.freewebs.com/msthings/   If her web site is down you can email her at leachl@limestone.on.ca 


Poems       We added another new poem from Sue this week

Check it out on our inspirational Poetry Pages Click Here to go to Discussion Board

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com 


Tom Cote's 15 Do's and Don'ts

FIFTEEN DOs & DONíTs FOR LIVING

  1. DONíT worry, for worry is the most unproductive of all human activities.
  1. DO often try to help people. Helping someone adds to your feeling of independence, and relieves stress.
  1. DONíT be afraid, for most of the things we fear never come to pass.
  1. DO face each problem as it comes. You can handle only one at a time, anyway.
  1. DONíT cross bridges before you get to them, for no one yet has succeeded in accomplishing this.
  1. DO count your blessings, never overlooking the small ones, for a lot of small blessings add up to a big one.
  1. DONíT try to relive yesterday for good or ill Ė it is gone. Concentrate on what is happening in your life today.
  1. DO spend as much time as possible with children. Playing their simple games is a great way of relieving stress. The hugs do this also.
  1. DONíT take problems to bed with you for they make very poor bedfellows.
  1. DO be a good listener, for only when you listen do you hear ideas different from your own. Itís very hard to learn something new when youíre talking.
  1. DONíT borrow other peopleís problems. They can take better care of them than you can.
  1. DONíT ever feel embarrassment, for it is only stress in disguise. If you feel embarrassment, think about something else.
  1. DO be patient. Rushing causes stress. If itís not an emergency, it is better to let it go if you donít have the time or energy.
  1. DONíT become bogged down by frustration, for 90% of it is rooted in self pity and it only will interfere with positive action.
  1. (and most important) DO have fun whenever possible, and it usually is.

Thomas.m.cote@sbcglobal.net (860) 236-2751

 


Our Wednesday evening > Healthy Eating support group has started out so well  that we added 3 pages to our web site, and more to the pages. You can find a print out journal, recipes, and check out the exercise page. 

click here

 We will meet every Wednesday evening - check below for your local time 

EST CST MST PST
8PM-9PM 7PM-8PM 6PM-7PM 5PM-6PM

Recipes         An Exciting New Healthy Eating MEXICAN PIZZA Recipe

" Half nacho, half pizza, this Mexican-inspired recipe is ideal for

 an after-school snack, prank, or a midday pick-it-up-and-fling-it ! "

NEW RECIPES IN BOTH CATEGORIES!

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them (like 'The Wild West's Infamous Egg Poacher ' )  PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS   


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, JeffS, JackIL, PhilNE, Kanga, and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


(click on the logo)

Breaking News

Jeffs is at the helm of our bold new daily news effort for PeopleWithMS.  Jeffs energy in researching, digging, and news follow-up is amazing. 

If you spot something new before Jeffs gets it listed, send the link along to him: NewsWire@PeopleWithMS.com

(click on the logo)

 If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

Our Latest Newsletter Click Here to go to Discussion Board


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Missed something from an old Newsletter?  Find it here !


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