PeopleWithMS.com Newsletter

May 1, 2004


PeopleWithMS Welcomes 

Chat is jumping most every night starting 7PM EST.  Promptly ! ! !  In addition, Muff is often in during the day, so stop by and say Hi if you are on-line.  

Lesley Anne joins us as a Chat Host Wednesdays, 11 am - 1 pm EST.  Stop in for a visit and some Canadian-style chat, eh ?

Kris, joined us from Idaho.  She's been on Copaxone three years.  And she's a friend of Judy's. What more need we say?

Paul G3PCT is joining us from Kingswear, England.  He has primary progressive MS. Plus an interest in radio and yachting.

JimSoup, with secondary progressive MS, popped in from Scotland

Wayne, from Washington State has RRMS, post Polio, and ADD.  Sounds like a lot, but he still has a good attitude.

Winkie joins us from Oregon.  She was dx'd 4-24-01 with RRMS, And also known as Lisa in JJ's

CarolPA, another long-ago chatter, rejoined us from Pennsylvania.  A great person to get to know.

Delbert should be moving through Montana and Wyoming this week. WheelsofHope needs your support ! Track his progress across the 48 continental United States; http://www.wheelsofhope.net/  

PeopleWithMS.com needs chat hosts ! ! ! Donate a couple hours during the day or evening to host, on a regular basis, and we'll make you famous !  If your focus is a particular topic or aspect of MS, just let us know and we'll post that in the Newsletter, too.  

Muff continues as our stalwart host for many hours during the day.  Just waiting for your visit.  Whenever you see her in chat, with an afk next to her name, she's probably off making herself some tea.  Just say hi, and she'll pop back.


PeopleWithMS.com Hot News Contest

This Month's Contest Prize

A Hand-Painted Cane from our sponsor, StumblinStyle

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The first sharp-eyed news maven to report the latest breakthrough news or research to PeopleWithMS wins a prize ! ! !  (click here for details . . .)


New Stories and Pictures

We've had some new guests and returning friends this week.  But no new stories to share just yet.

ThisCouldBeYou

?

Anyone who wants to share there story and picture can have their name in spotlights right in our weekly newsletter.  Please send it to: PWMS@PeopleWithMS.com

New Link Sightings

Every week we'll be adding new link sightings which may be of interest, as reported by our visitors.  This will highlight new links you may want to investigate, before they disappear into the obscurity of some huge link listing.  If you come across any site which you think may be of interest, please e-mail us PWMS@PeopleWithMS.com with the site address and a brief description of what you found interesting on the site.  We'll include it in the next Newsletter.

The Expanded Disability Status Scale (EDSS)

Kurtzke

MUFF 4/21/04
The EDSS is a classification scheme (Rating Scale) that insures all participants in clinical trials are in the same class, type, or phase of MS. It is also used by Neurologists to follow the progression of Multiple Sclerosis disability and evaluate treatment results, for similar groupings of people. This is one of those basic measurements used in the diagnosis and tracking of the progression of disability.  

News Sightings

Advanced Pain Management Techniques: An Overview of Neurostimulation Medscape Neurology & Neurosurgery PWMS 4/28/04
"Neurostimulation is the application of precise targeted electrical stimulation on nociceptive pathways. Electric stimulation has a long history in medicine for treating various ailments. Beyond the application of electrodes on the skin such as in transcutaneous electrical nerve stimulation (TENS), electrodes have been applied directly to nociceptive pathways. What does this mean to you?  If you experience pain, and a TENS doesn't cut the mustard, this implant might mean a more effective method of treatment. Simple enough to be done on an outpatient basis.  You'll need to register on this site for access to the article, but it's worth the effort.
Alzheimer's Drug May Help Memory in MS Patients Medscape Neurology & Neurosurgery PWMS 4/27/04
"April 27, 2004 (San Francisco) Donepezil (Aricept), a drug used to treat dementia in patients with Alzheimer's disease, improved memory and cognition deficits in patients with multiple sclerosis (MS), according to clinical trial research presented here at the American Academy of Neurology (AAN) annual meeting."  What does this mean to you?  As stated in the article; "Half of patients with multiple sclerosis will face some degree of cognitive impairment, with 10% having severe cognitive impairment." Furthermore;  "The benefit of donepezil over placebo remained significant after controlling for age, EDSS, baseline SRT score, reading ability, education, MS subtype, sex, and the simultaneous use of interferon-beta therapy." This wasn't a huge study, but the results were definitive and somewhat surprising.  You'll need to register on this site for access to the article.
Epstein-Barr virus in pediatric multiple sclerosis Medscape Neurology & Neurosurgery PWMS 4/27/04
Infection with common viruses, particularly Epstein-Barr virus (EBV), has been postulated to contribute to the pathobiology of multiple sclerosis (MS). The link between EBV and MS is often misrepresented as a possibly causal one, where exposure to EBV potentially causes MS.  This recent study finds that there is certainly an association between EBV and MS.  It does not say that EBV causes MS.  You'll need to register on this site for access to the article.

New Information

Book Suggestion:  

"Alternative Medicine and Multiple Sclerosis" by Allen C. Bowling.  Suggested by JackIL as a good text on alternative medicine.

Read a good book on MS ?  Let us how the title and author, we'll pass the word along.

More ambitious ?  Write a little book review and we'll pop it up on it's own page, with your by-line.


New on the Website

DreamChat Trivia (repeated by popular demand)

  • New to Dreamchat and wondering how to make those neat little smileys and pictures in the text? Easy, here's the Cheat Sheet:

:) Smile   :* Kiss
:( Sad >-- Rose
;) Wink <love> Love
;} Wry <strobe> Strobe
:p Tongue <nuke> Nuke
:o Gasp <boom> Boom
:# Mad <star> Star
  • How do I copy and paste something?  Mark it as you usually would with the mouse.  Then use CTRL-C to copy it, and CTRL-v to paste it in the message window.

  • I'm a member.  I uploaded my avatar, and nothing happened.  What's up with that?  Even if your avatar is the specified 50 * 50 pixels, and no bigger than 15KB, there is no confirmation.  Apparently because DreamChat personnel review all permanent member's avatars to make sure they are acceptable.  (Whatever that means.)  If they are, they send back an approval in a day or so, and the next time you sign in, "poof" your new avatar appears.

  • That DreamChat Discussion Board . . . . . is a real nice idea.  However, visitors have discovered, as we did, that you must be a DreamChat Community Member to post.  That's not too nice.  You can visit in chat as often as you like, for free, and there's no reason you should have to pay them to express your opinion.  So we're thinking on workarounds or alternatives.  If you have any suggestions of non-commercial Discussion Boards or Forums, let us know.    

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Visit our site and sign our Guestbook, including your e-mail.  Or send us a request;  PWMS@PeopleWithMS.com

News Letter Archive

Missed something from an old Newsletter?  Find it here !

5-1-04 4-23-04 4-16-04 4-10-04
4-2-04 3-27-04 3-20-04 3-13-04
3-6-04 2-28-04 2-21-04 2-14-04
2-07-04 1-31-04 1-24-04 1-17-04

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