PeopleWithMS.com Newsletter

May 15, 2004


PeopleWithMS Welcomes 

Chat gets active most every night starting around 7PM EST.  This week, Gemlady started hosting a new daytime chat, with rousing response.

Daytime chat includes . . . 

GMATractor "GrandmaTractor" finally made it in when there were other chatters about, and renewed old friendships.  For those who hadn't met her before, she was dx'd about 4 years ago, though probably had it for much longer.  On Copaxone, married "forever", with three children.

SabrinaKaye joined us from Kentucky.  She has RRMS, is in her third try at approval for SSDI, and is on Copaxone, though having some trouble with site reactions.  

Wayne, chronic progressive MS, regaled us with an abundance of information about his carving, including a 22 foot totem pole, and an exquisite 1 inch eskimo dancer in ivory.  And a little of his philosophy.  Having carved 2 1/2 tons of moose and caribou antler in a year, this is far more than a minor hobby.  Wayne carves in bone, antler, horn, basswood, walnut, birch, cedar, and alder.  

SteveNL sent us his "Guitar Steve" debut shot, plus a couple of shots at work.  

Delbert is in Nebraska this week.  And it's a big state, so he'll be treking trough all week. Remember, WheelsofHope needs your support ! Track his progress across the 48 continental United States; http://www.wheelsofhope.net/  

PeopleWithMS.com needs chat hosts ! ! ! Donate a couple hours during the day or evening to host, on a regular basis, and we'll make you famous !  Lunchtime chat slots are open on Tuesdays and Fridays.  Or any other time you'd like !   If your focus is a particular topic or aspect of MS, just let us know and we'll post that in the Newsletter, too.  

Muff continues as our stalwart host for many hours during the day.  Just waiting for your visit.  Whenever you see her in chat, with an afk next to her name, she's probably off making herself some tea.  Just say hi, and she'll pop back.


PeopleWithMS.com Hot News Contest

This Month's Contest Prize

A Hand-Painted Cane from our sponsor, StumblinStyle

Something special for yourself, or someone you know who needs something to brighten every footstep in their day.  We'll be offering the winner their choice of a tasteful selection of men's or women's canes in derby or crookneck handle styles and various weights.

( Absolutely no cost to the winner - we even pay shipping ! )

The first sharp-eyed news maven to report the best new news or research of the month to PeopleWithMS wins a prize ! ! !  (click here for details . . .)


New Stories and Pictures

Jan aka Applebastic

I guess this story begins with a bit about me. I'm a 31 year old mother of 3 fantabulous children, ages 8 *Chantelle*,9 *Blaine*and 12*Shaelyn*. And I have a wonderfuly supportive husband named Ted, who has been with me through it all. MS isn't my only *snerk* as I like to call them, lol I also suffer from a few other things also, OCD, Depression, Anxiety Disorder, Myofacial Pain Syndrome (which is in the same family as Fibromyalgia) and now they are thinking I am Bi-polar. Hey, if your gonna do it, do it right! lol (more )
ThisCouldBeYou

?

Your name, story, and photo in the spotlight, right here in our weekly newsletter.  Just send it along to: PWMS@PeopleWithMS.com

New Link Sightings

The hot topic in chat this week, with the coming of summer, was cooling products.

Ice Vests

SteeleVest

SteeleVest

PWMS 5/13/04
This is the Mercedes of icevests, widely used by people with MS.  This is the first site to visit, at least as a basis for comparison.  

Coolsport

Coolsport

PWMS 5/13/04
A wide range for various uses, not just MS.  A very popular alternative. 

IceVest

First Choice Racing

PWMS 5/13/04
A specialized icevest application.  Maybe right for you?

TotalCool

MistCooling.com 

PWMS 5/13/04
This is very interesting for alternative cooling products. If you are low on funds, or handy with a sewing machine, this might be just the place. 

Every week we add new link sightings which may be of interest, as reported by our visitors.  This will highlight new links you may want to investigate, before they disappear into the obscurity of some huge link listing.  If you come across any site which you think may be of interest, please e-mail us PWMS@PeopleWithMS.com with the site address and a brief description of what you found interesting on the site.  We'll include it in the next Newsletter.


News Sightings

We're holding back on some news we've already found, in order to give everyone a chance in our contest.  So go hunting.  Where's your entry ? 

Bayer bids to market marijuana based multiple sclerosis treatment in Canada MSWatch Applebastic 5/15/04

21:27 EST

"TORONTO (CP) - Pharmaceutical giant Bayer HealthCare has applied to market a marijuana-based drug in Canada. If approved, it would be the first cannabis-based drug legally available in this country for the relief of debilitating symptoms of multiple sclerosis and severe neuropathic pain. Bayer and GW Pharmaceuticals of Britain announced Tuesday they had filed a new drug submission to Health Canada for Sativex, an oral spray developed by GW Pharmaceuticals and licensed to Bayer."

The paragraph above says it all.  No particular reason to think Health Canada would not approve this.  

Cholesterol medicine may slow MS The Lancet Lesley Anne 5/14/04

13:20 EST

"A cholestorol treatment that is already one of the world's top selling drugs may slow or even reverse the signs of multiple sclerosis, according to a new study published today . Researchers at the Medical University of S. Carolina found that treating multiple sclerosis patients with the statin Zocor slowed the progression of the lesions on the brain that are linked with the debilitating effects of the disease. Statins, medicines that lower blood cholesterol levels by blocking an enzyme needed to synthesize cholesterol are- currently used in millions of patients. They build levels of "good" cholesterol while lowering the levels of "bad" cholesterol that are blamed for buildup of plaque in the heart , which can lead to heart disease. The findings, published today in the medical journal " The Lancet" build on previous studies at Stanford University that found that the statin Lipitor reversed or prevented a type of paralysis that is similar to MS in mice. "

The link is only to the Lancet.  The published study is somewhere on the site.  

Tell John Kerry Your Health Care Hardship Democratic National Committee Susan 5/10/04

19:28 EST

"This week, John Kerry is taking his plan to provide affordable, reliable health care directly to the American people. With millions of Americans still uninsured, with job security nonexistent, with the costs of health care skyrocketing, ensuring that every American has access to quality health care is more important than ever."

Now this is obviously political, coming as it does from a presidential candidate.  


Tips & Tricks

Popsicles - The secret weapon for rapid personal cooling!  Once slightly thawed (to the mushy-ice stage), popsicles, or flavored ice tubes, can be consumed very quickly.  The key is fast cooling of the body core, rather than by surface evaporation. MrRED


New on the Website

DreamChat Trivia (repeated by popular demand)

  • New to Dreamchat and wondering how to make those neat little smileys and pictures in the text? Easy, here's the Cheat Sheet:

:) Smile   :* Kiss
:( Sad >-- Rose
;) Wink <love> Love
;} Wry <strobe> Strobe
:p Tongue <nuke> Nuke
:o Gasp <boom> Boom
:# Mad <star> Star
  • How do I copy and paste something?  Mark it as you usually would with the mouse.  Then use CTRL-C to copy it, and CTRL-v to paste it in the message window.

  • I'm a member.  I uploaded my avatar, and nothing happened.  What's up with that?  Even if your avatar is the specified 50 * 50 pixels, and no bigger than 15KB, there is no confirmation.  Apparently because DreamChat personnel review all permanent member's avatars to make sure they are acceptable.  (Whatever that means.)  If they are, they send back an approval in a day or so, and the next time you sign in, "poof" your new avatar appears.

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News Letter Archive

Missed something from an old Newsletter?  Find it here !

5-15-04 5-7-04
5-1-04 4-23-04 4-16-04 4-10-04
4-2-04 3-27-04 3-20-04 3-13-04
3-6-04 2-28-04 2-21-04 2-14-04
2-07-04 1-31-04 1-24-04 1-17-04

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