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 PeopleWithMS.com Newsletter


May 27, 2007

News
Chat Schedule Stories and Pictures
MS DownUnder ChatStar
MSGroup4You Birthdays
MS Canada Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

PWMS Chat Update:

Afternoon Chats Expand ! ! !
SAE What is now hosting the 1:00pm to 3:00 pm EST timeslot on Mondays, Tuesdays, and Thursdays.  RonB is in on Wednesdays, and PhilCT is in on Fridays
MS_Kitty70 is starting up a whole new chat timeslot; 3:00 pm to 5:00 pm EST, noon to 2:00pm on the West Coast.  Please join her to help make this a successful new chat.
Dreamcicle is now hosting the 5:00pm to 7:00pm EST timeslot 4 days a week.  Right after MS_Kitty's chat, so hang around !
Kanga and Debby's Chat time-slot is growing night & day!   They are hosting the late-shift nightly chats starting at 10:00pm EST, Which are also the mid-day Aussie chats (from noon to 2pm - Victoria Time)  We want to thank all those supporting from out west, in the Canadian midwest, and really way, way out west in Oz.
MS Downunder Snowdogs, also from the state of Victoria, downunder, is hosting Aussie-afternoon chats on Thursdays and Saturdays from 4 to 6 pm.  (That's an eye-opening 7am for the UK, and a perfect 11pm Wednesday and Friday for the West Coast Night Owls

Early-Bird Hosts:   Grab your coffee & danish and join our hosts!   Rod on Saturdays 8 to 10am.  Nancy on Monday's & Friday's from 9 to 11 am EST.   RonB on Wednesday from 9 to 11 am EST.  Tuesday & Thursday morning is calling someone's name for hosting => and it's probably you !


Techie Tips for Chat
 

Bigger Fonts, Fast Scrolling, and &)$&($)*$#)! !! !!! Flashing Avatars! &)$&($)*$#)! !! !!! Flashing Avatars!

Move your mouse cursor up into gray chat text area and right click your mouse to display a very useful pop up menu.  

  • Select a font face like Arial Black if you want to easily read everything.

  • Select a bigger font size

  • Rapid Scrolling chatter, caused partly by those big flashing images

is easily controlled by un-checking the avatars and emoticons items on this menu.


Marlene and Nancy have noted a slight problem with the new Java Version 6:  The font color is stays black, even when changed.  Often people set their response colors to stand out in chat.  This seems a version specific difficulty.  Deinstalling Version 6 simply resolves this, using Windows START - Settings - Control Panel - Add/Remove Programs.  Then re-install Java SE Runtime Environment 5, Update 10 to restore the colors.  Accept the License Agreement and pick either the online or offline version of the top item:  J2SE(TM) Runtime Environment 5.0 Update 10, from the Download Center  


Chat Hosting Schedule                                                                                                      *** Newly Revised ***

The Global Chat Schedule was comprehensive, but confusing. . . . . So it has been revised to break things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to some other timezone or country.    

Reading the schedule is easy: Just find your local time zone on top and scroll down to the day of the week => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! 

Contact us at PWMS@PeopleWithMS.com if you'd like to host on a regular basis. 


Trivia Night in the PeopleWithMS Chat

Who is this woman ?  How did she get the black eye ? What did she say ?  What did she do ?  And who did it ?   

Marlene, the hostess for our Thursday Night Trivial Chat has the questions.  And the answers.  She's always right.  

Join us Thursdays at 7 pm EST for some fun.  



Stories and Pictures

Misty Dawn

My name is Misty Dawn. I have Primary Progressive MS. I am 29 years old and was diagnosed at 27. My doctor told me I have very old lesions on my neck and spine and brain, so I may have had this all of my life. Honestly I just thought I was clumsy and getting old. I am very touched by all of your stories and I am glad I found this page.  (more) 
MS_Kitty70

My MS Journey

First let me introduce myself.  I am Terri House, the founder of the http://klearview.co.uk/ site.  I am 35 years young and I have MS (multiple sclerosis). I am a Daddy's girl (he is My Hero) and my Mom is my Best Friend. I was diagnosed in April of 1997 after only a year of testing and waiting, as well as some military doctors telling me I needed to go see a psychiatrist (thats seems to be a common theme with people being diagnosed with MS).  Well 9 years later I do have MS and I am having a bit of a hard time with it. Now you won't hear on my website about people who do miraculous things in spite of having MS.  What you will hear is about real people who have real issues and how they overcame them or even how they came to live with their problems.  I do think it is wonderful to see people out there who are carrying on with their everyday lives and only having minor problems with MS, but there are many more people out there who have gone through some trying times and survived or are still trying to survive.  But first let me tell you my story.     (more) 

Check out MS_Kitty70's addition to Poems, below

Marlene

 

Funny, but TRUE !!!!!!!

This was my hospital adventure that happened in Jan. 2006.

I went in the hospital on Tuesday and I got out of the hospital yesterday. What an adventure that was. I was in a civilian hospital, not the military one. I went in for a Lumbar Puncture and IV steroids. I had the LP about 9:00 pm and although my Neuro is a great doctor, I never want another one of those LP's again. The LP went well, a lot of discomfort and a few times I had some intense pain, but I made it through okay. Then came the IV steroids, I was waking up every 2 hours full of energy and not suppose to move around and just lay flat. Needless to say that was hard to do. Then, about 6:00am I figures I would be okay to get and decided I just had to have a smoke. So, let me set the scene.    (more) 

 

  MSers Meeting MSers

 

PhilNE & Shar meet Deb & MrRED

 

After PhilNE recovered enough from his cross-country adventure, Shar and Phil came to visit Deb and MrRED.  A great time was had by all.  Words of many syllables were exchanged in abundance, fine chicken consumed, and any dietary restrictions suspended by special proclamation.   

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 
We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.

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This Week's Chat Star

NRJ 

My name is Neville Johnson, I live in the foothills of the Rocky Mountains in the City of Calgary, Alberta Canada. I have been dealing with MS since the mid 1980’s. It has not bothered me much (nor I have I bothered “it”) until the past year. I’m not on any meds at the moment except Baclofen for spasticity of my legs. I have three great children, twin boys 29, and a daughter 27. I’m divorced, and was a single parent through my children’s teen years which accounts for the gray hair. I even have two sweet grand children aged 4 and 2. I believe in having a positive attitude and a good sense of humor.  (more) 


     
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
Debby June 5th
Lady June 9th
Lisa  June 14TH

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 
     

Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat



 Preface . . . 

"WE GO TO THESE ROOMS TO HELP THOSE THAT NEED IT AND TO FORGET OUR OWN TROUBLES.  IT IS NOT A REFERENDUM FOR POLITICAL, RELIGIOUS, OR MEDICAL DEBATE. HAVE AN OPEN MIND...WHAT WORKS FOR YOU MAY NOT FOR ANOTHER." ©copyright 2004 JLS (JEFFS)


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 


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Beat The Heat 

Cooling Equipment Distribution

Many people with multiple sclerosis are heat sensitive. MS research has proven that heat and humidity often aggravate common MS symptoms. MS research has also proven that cooling the body can help lessen the negative effects of heat and humidity on a person with MS.

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MSAA provides cooling vests (such as the one pictured above) to individuals with MS who qualify for the program.

Click here to apply
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MSAA’s Cooling Equipment Distribution Program is a highly successful branch of the Equipment Distribution Program. In association with the National Aeronautics and Space Administration (NASA), MSAA has conducted extensive research into the effects of moderate, controlled cooling on individuals with heat-sensitive MS. Along with other research studies, results have repeatedly shown that many individuals with heat-sensitive MS find temporary relief of certain symptoms by wearing active cooling garments. Among others, symptom relief may include improvements in energy level, cognitive processing, and motor function through the use of such cooling devices.

The Cooling Equipment Distribution Program provides special cooling apparel at no charge to individuals with MS. “Active Suits” have a separate cooling unit that circulates cool liquid through a vest and cap worn by the user. “Passive” cooling apparel includes vests, collars, bandanas, and wristbands that either hold cool inserts or contain special material that remains cool for up to two hours.

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Cooling Collars help regulate body temperature
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Active cooling is considered a therapy and requires both a doctor’s prescription and supervision for usage. Heat is extracted from the system by re-circulating the fluid through ice. Clinical research has shown that active cooling systems can significantly reduce the temperature in certain areas of the body. When areas of the central nervous system that have been demyelinated are cooled, the conductivity across the damaged area is greatly enhanced. This increased conductivity allows more effective transmission of signals, which can reduce some symptoms.

Passive cooling systems help maintain a cooler body temperature. These can be used outdoors in hot weather or during exercise regimens. These passive systems do not reduce body temperature, and are not considered a therapy. They do provide relief from heat for short periods of time.

 

 


PWMS Welcomes MSer's from all over

MS DownUnder  MS Downunder

Mentioning Stuff

Hold onto your hats ! ! ! The latest online edition of Kanga's Australian Newsletter, Mentioning Stuff, will be on our newstand shortly ! You can get it hot off the virtual printing press here http://PeopleWithMS.com/OZ/

This is the week we've started on the OzLinks page.  If you have any favorite links to resources, now's the time to mention it. . . Post us at PWMS@PeopleWithMS.com 
Support the Aussie Mid-Day chats, which follow directly from the North American evening chatsHang around chat a bit on those nights to help Kanga, Snowdogs, and Wayno welcome newcomers.
 

MS Canada

If you are interested in lending a hand on starting a Canadian Newsletter, let us know.  Or let us know where you have seen information we should add to help us build up the Canadian portion of the web site. 

PeopleWithMS - Canada

COME ON CANADA - HELP US OUT HERE!


Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!


Poems     


A twitch in my hand or a tingle in my toes

what happens next nobody knows.

Sometimes we can't remember what we want to say

but we have to carry on from day to day.

The pain we all endure is hard to comprehend

and all we can do is pray for a cure to make the pain end.

Fear of the unknown is always there

and the feelings that some people just don't care.

People can't see what we feel

and some even say it's not even real.

The sadness comes and strangles your heart

and makes the next day hard to start.

But don't give up hope there's always tomorrow

and don't give in to the heartache and sorrow.

We have to believe there's an end in sight

and for our health we'll continue to fight.

                                                                                                                                                Written by Terri House

 

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com 


 


Recipes        

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them (like 'The Wild West's Infamous Egg Poacher ' )  PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS   


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, JeffS, JackIL, PhilNE, Kanga, and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


(click on the logo)

Breaking News

Jeffs is at the helm of our bold new daily news effort for PeopleWithMS.  Jeffs energy in researching, digging, and news follow-up is amazing. 

If you spot something new before Jeffs gets it listed, send the link along to him: NewsWire@PeopleWithMS.com

(click on the logo)

 If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

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