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 PeopleWithMS.com Newsletter


June 24, 2007

News
Chat Schedule Stories and Pictures
MS DownUnder ChatStar
Birthdays
MS Canada Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

PWMS Chat Update:    

It was a great week at PWMS. Lots of laughs. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 11 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep comining back, let them know that they might be in need of some support beyond what any of us can provide in chat.

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existance, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on webcam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own webserver, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

READ BELOW Chat Etiquette Reminder


Trivia Night in the PeopleWithMS Chat

Marlene, the hostess for our Thursday Night Trivial Chat has the questions.  And the answers.  She's mostly right! Citrine is our Trivia QUEEN for this week. We learned some interesting facts about TURTLES and how some people become very close with them. Chinchilla's are not reptiles LOL LOL.                                      JOIN US ITS A HOOT!

Join us Thursdays at 7 pm EST for some fun.  

 


CRAFTERS

 
Debby is our new craft coordinator. Many MSers have some crafts they do to keep busy. Please join her in our new craft room. This week will be a exchange of email addresses, tips and tricks for those who can see very well. Just a chat on ideas for the up coming weeks. Bring ideas with you. what do you know how to do ? and what would you like to learn how to do.

Debby's first meeting will be on Tuesday at 8PM EST for some fun!

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 


Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Global Chat Schedule was comprehensive, but confusing. . . . . So it has been revised to break things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

 


Trivia Night in the PeopleWithMS Chat



Stories and Pictures

BCTourbus

 

My name is Eddie, but I also answer to BCTourbus, ThirteenthAngel and Crazy Uncle Fatedealer. I am a 36 year old male from Fort Worth, TX with RR/MS I have two daughters, Lauren 16, and Peyton 14, that live with their mom and step-dad in Oregon. They are my pride and joy.  I currently use Rebif three times a week. (more )

PWMS  Welcomes!   

Brad, Feather,

Please, we have issued an All Points Bulletin for these new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  
 

 

This Week's Chat Star

 

In Memory

Theresa Kedzierski, Muff aka Muffaroni

I have RR MS I was dx in 1990.  I was rear ended real badly one morning on the way to work.  Later that day my whole right side went numb. Since I was a volunteer EMT, I thought I may have had a stroke. My chiropractor sent me for an MRI. That next week he said to me “I have good news for you and I have bad news for you.” “The good news is you did not have a stroke, the Bad news is you have MS. I said to him I would much rather have MS than to had a stroke. As many people do not recover well from a stroke.  (more IN MEMORY OF (click here)

     
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
Gailpooh MN                 July 15th
Red JULY 16TH
Steph July 20th

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 
     

Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


Chat access technical help!

The AddOnChat folks have made some substantial improvements in their support, knowledgebase, and help pages covering chat access and usage.  We'll be making some major updates to reflect this on our chat access help pages, as well as the Big Blue Button help in chat, and the macros.  Keep your eyes peeled. 


 Preface . . . 

"WE GO TO THESE ROOMS TO HELP THOSE THAT NEED IT AND TO FORGET OUR OWN TROUBLES.  IT IS NOT A REFERENDUM FOR POLITICAL, RELIGIOUS, OR MEDICAL DEBATE. HAVE AN OPEN MIND...WHAT WORKS FOR YOU MAY NOT FOR ANOTHER." ©copyright 2004 JLS (JEFFS)

 
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PWMS Welcomes MSer's from all over

MS DownUnder  MS Downunder

Mentioning Stuff

Hold onto your hats ! ! ! The June online edition of Kanga's Australian Newsletter, Mentioning Stuff,  You can get it hot off the virtual printing press here http://PeopleWithMS.com/OZ/

If you have any favorite links to resources, now's the time to mention it. . . Post us at PWMS@PeopleWithMS.com 
Support the Aussie Mid-Day chats, which follow directly from the North American evening chatsHang around chat a bit on those nights to help Kanga and Snowdogs welcome newcomers.

Meanwhile, Wayno is hoping to bail out of rehab by June 26th.  Please give him your vote of confidence for the lead in the new movie;  " Escape From Rehab " 

 

MS Canada

If you are interested in lending a hand on the Canadian portiion of our site, let us know.  Or let us know where you have seen information we should add to help us build up the Canadian portion of the web site. 

PeopleWithMS - Canada

COME ON CANADA - HELP US OUT HERE! WE CAN'T BELIEVE NO ONE FROM CANADA WILL HELP OUT WITH INFORMATION.


 

Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!

Poems     We need more Poems !

Not Just Another Day

First morning and its air so fresh
Was the first reward I would take
Blue sky, soft wind, birds’ chirp, and pure smell
Ducks nesting around the lake

Those bunnies came out from their hiding place
And clover for breakfast they ate
Little humming bird in flight never landing it seems
Sips nectar from the flowering plate

Mid-day bees buzzing so hard at their task
Their job they will do all day

Don’t know if these creatures of God’s special plan
Consider this work or just play

By nightfall I am wondering as I look to the sky
Will tomorrow be cloudy or bright
Don’t matter, look close, you will find something new
Be glad of a new morning light

Thankful indeed, is this person of want
Up to me just where to begin
Not just another day, it is one of a kind
My senses will be tested again

"sue eichelberger" (Sae What)

 

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com 


 

Recipes        

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them (like 'The Wild West's Infamous Egg Poacher ' )  PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS   


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty, JeffS, JackIL,  Eddie, Sae What and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


(click on the logo)

Breaking News

The PeopleWithMS NewsWire needs your help!  A big part of posting the news is finding actual, relevant news articles.  From the sources, not TV stations or self-promoting commercial product sites.  So if you see something, send the hyperlink and maybe a brief description to:  NewsWire@PeopleWithMS.com

(click on the logo)

 

If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

Our Latest Newsletter Click Here to go to Discussion Board

 


Experimental NewsFeed  

MS_ Kitty has suggested incorporating a newsfeed feature on the site.  The newsfeed would supply a page of links to current medical news of interest ( ' tuned ' for our test purposes to be wide open, as opposed to MS or neurologically specific).  As a commercially provided service, this carries some advertising baggage not present on the PWMS site, and some risk of user-hostile java.  As they say in their disclaimer:

The health news headlines shown above are provided courtesy of Medical News Today and are subject to the terms and conditions stated on the Medical News Today website.

We would still keep be keeping our news on the wire, which is a more permanent news repository. However, this could add a broader current flavor of medical news to our site.  Useful ?  Confusing ?   Please try it at the link below: 

Experimental NewsFeed LinkClick Here to go to Discussion Board

 and email us what you think. PWMS@PeopleWithMS.com


News Letter Archive

Missed something from an old Newsletter?  Find it here !


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