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 PeopleWithMS.com Newsletter


July 22, 2007

News
Chat Schedule Stories and Pictures
MS DownUnder ChatStar
MS Canada Birthdays
Go to Crafts Crafts Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

PWMS Chat Update: 

We have had a busy week in chat. Red had a Birthday Party in chat! Lots of cake and Birthday wishes. We want to thank Norma for keeping things so well organized as far as hosting is concerned.  (((HUGS)))  Norma, we know its not easy! It's so important for someone to already be in chat when someone comes in. Thank you all who have been hosting weekly. 

 News Flash

Steve from Florida is back and has visited us in chat. He's doing well. It was great chatting with him again. Hope we will get to chat more now!

Dream and Bill are back together again! Hope things work out this time. Ask about Bill when Dream's in chat.  

(click on the logo)

Breaking News

The PeopleWithMS NewsWire is now being updated on a daily basis.  But needs your help to spot all the latest from around the globe!  A big part of posting the news is finding actual, relevant news articles.  From the sources, not TV stations or self-promoting commercial product sites.  So if you see something, send the hyperlink and maybe a brief description to:

  NewsWire@PeopleWithMS.com

(click on the logo)


Trivia Night in the PeopleWithMS Chat

Marlene, the hostess for our Thursday Night Trivial Chat has the questions.  And the answers.  She's mostly right! RAGSJEWEL is our Trivia Queen this week! Runner up is Shelly WOW looks like us oldies better wake up here LOL. Rod will be our Trivia host this Thursday come join us.

Join us Thursdays at 8 pm EST for some fun.  


c

CRAFTERS


Debby is our craft coordinator. Please join her in our new craft room. Bring ideas with you. what do you know how to do. And what would you like to learn how to do.

Everyone will have a place to post there crafts so others can see them. We have a great start with some of Debby's great crafts she has made in the past. This week added are some great carolers from Sae What check her link out  This link will stay on our web site and also can be found on our links page. To post crafts EMAIL  deb@durgin.net

Click here for Debby's Craft's and more 

Debby's meetings will be on Tuesday's at 8PM EST for some fun!

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 11 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existance, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on webcam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own webserver, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Global Chat Schedule was comprehensive, but confusing. . . . . So it has been revised to break things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

 



Women Living with Multiple Sclerosis.

 BY Judith Lynn Nichols 

      

Has anyone read this book? Any thoughts on this book? Let's have some feedback. Do we want to start a book referral page or link? Help us out here? Email your thoughts. Or email some book reports and any suggestions. deb@durgin.net

Stories and Pictures

Shelley

My name is Shelley and I’m 53 years old. I live in Rockland County NY. I was dx in 1994 with RRMS. I am on Betaseron for 14 years. I am married with two daughters, ages 20 and 18. I have a puppy named Taylor. I am presently working as a speech therapist in the Bronx. I have been working in the same school for the past 27 years. I love my job! I like to read, watch soap operas, and make crafts. I also enjoy cooking, and gardening. I hope to make many new friends in this chat room!!    (more )

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 


Who do these dogs belong to? 

This box has no contents . . .

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  
 

 

 

 ThisWeek's ChatStar

Dreamcicle

 

Hi my name is Cheryl Heide but my friends call me "dreamcicle" or
"dream". I am a 53 year old single mom of a 23 year old daughter
(Becky) and 2 beautiful grand kids Alexandrea 3 years old and Bradley 2
years old. I live in Warren, Ohio but I am originally from New Haven,
Michigan all my life. I was dx with R/RMS in 1992. Right now I have
taken almost all of the ABC drugs with no improvements and I am seeking
a new doctor to see what other medications I can take to put me back
into remission. 
(more)

     
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
MS_Kitty70 August 11th
Shar September 25th
JEFF October 5th
Kanga 28 October

 

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 
     

 

Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


Chat access technical help!

The AddOnChat folks have made some substantial improvements in their support, knowledgebase, and help pages covering chat access and usage.  We'll be making some major updates to reflect this on our chat access help pages, as well as the Big Blue Button help in chat, and the macros.  Keep your eyes peeled. 


 Preface . . . 

"WE GO TO THESE ROOMS TO HELP THOSE THAT NEED IT AND TO FORGET OUR OWN TROUBLES.  IT IS NOT A REFERENDUM FOR POLITICAL, RELIGIOUS, OR MEDICAL DEBATE. HAVE AN OPEN MIND...WHAT WORKS FOR YOU MAY NOT FOR ANOTHER." ©copyright 2004 JLS (JEFFS)

 

 

Joke of the week! Thank you for sharing Rod 

Ten Rules of Dieting

If you eat something, but no one else sees you eat it, it has no calories. 

When drinking a diet soda while eating a candy bar, the calories in the candy bar are cancelled by the diet soda. 

When you eat with someone else, calories don't count as long as you don't eat more than they do. 

Foods used for medicinal purposes "never" count. e.g. hot chocolate, brandy, toast, Sara Lee cheesecake. 

If you fatten up everyone else around you, then you look thinner. 

Movie-related foods do not have calories because they are part of the entertainment package and not part of one's personal fuel. e.g. milk duds, buttered popcorn, junior mints and Tootsie Rolls. 

Cookie pieces contain no calories. The process of breaking the cookie causes calorie leakage. 

Late-night snacks have no calories. The refrigerator light is not strong enough for the calories to see their way into the calorie counter. 

If you are in the process of preparing something, food licked off knives and spoons has no calories. e.g. peanut butter on a knife, ice cream on a spoon. 

Food of the same color has the same number of calories. Examples are spinach and pistachio ice cream, mushrooms and white chocolate. Chocolate is a universal color and may be substituted for any other. 


MS DownUnder  MS Downunder

If you have any favorite links to resources, now's the time to mention it. . . Post us at PWMS@PeopleWithMS.com 
Support the Aussie Mid-Day chats, which follow directly from the North American evening chatsHang around chat a bit on those nights to help Snowdogs welcome newcomers. Wayno has been in chat alot more its so nice to chat with him. If your lucky you will get wayno and snowdogs in at the same time. Its crazy LOL !

 

 

 

MS Canada

If you are interested in lending a hand on the Canadian portiion of our site, let us know.  Or let us know where you have seen information we should add to help us build up the Canadian portion of the web site. 

PeopleWithMS - Canada

COME ON CANADA - HELP US OUT HERE! WE CAN'T BELIEVE NO ONE FROM CANADA WILL HELP OUT WITH INFORMATION. 


Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!


Poems     We need more Poems !


Someone Needed Me

Listening to this person of need
I felt a slight thinning of thought
They were not complaining you see
Just a friendly voice they sought

So we talked and chatted to find a new path
A light at the end of the tunnel
Serious then laughter was the course that I chose
Their thoughts and their fears they did funnel

By the end we were totally worn out
By our antics of verbal fun
Maybe tomorrow this person of thoughts
Will see something different in the sun

For my part, it made me rethink
Of my own chattering way
I just hope they know, from the depths of my heart
I look forward to chatter, day after day after day

  By Sue Eichelberger

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com 


Recipes        

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS   


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty, JeffS, JackIL,  Eddie, Sae What and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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Send us a request;  PWMS@PeopleWithMS.com

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