PWMS chat ! - Update
Please welcome Vanessa and Laurafrog, our new chatters. We have enjoyed chatting with them.
Mr Red and I have been very busy due to surgery Mr Red had to have. We want to thank Jeff and Jack for keeping chat going nightly. We try our best to be in chat nightly by 7pm EST but sometimes the day is just not long enough with the great weather.
Chat has been fun as always. We look forward at the end of day to sitting back and chilling with our friends. Sharing our accomplishments, troubles, and even silly events of the day. Come join us ! It is very relaxing. We chat about everyday stuff. not just M.S.
PWMS Welcomes . . .
Any chatters touched by M.S. What this means is anyone with M.S., a family member of anyone with M.S., or simply a friend who wants to understand M.S.
Cooling Equipment Distribution
Many people with multiple sclerosis are heat sensitive. MS research has
proven that heat and humidity often aggravate common MS symptoms. MS research
has also proven that cooling the body can help lessen the negative effects of
heat and humidity on a person with MS.
|MSAA’s Cooling Equipment Distribution Program is a
highly successful branch of the Equipment Distribution Program. In
association with the National Aeronautics and Space Administration
(NASA), MSAA has conducted extensive research into the effects of
moderate, controlled cooling on individuals with heat-sensitive MS.
Along with other research studies, results have repeatedly shown that
many individuals with heat-sensitive MS find temporary relief of certain
symptoms by wearing active cooling garments. Among others, symptom
relief may include improvements in energy level, cognitive processing,
and motor function through the use of such cooling devices
The Cooling Equipment Distribution Program provides special cooling apparel at no charge to individuals with MS. “Active Suits” have a separate cooling unit that circulates cool liquid through a vest and cap worn by the user. “Passive” cooling apparel includes vests, collars, bandanas, and wristbands that either hold cool inserts or contain special material that remains cool for up to two hours.
Active cooling is considered a therapy and requires both a doctor’s prescription and supervision for usage. Heat is extracted from the system by re-circulating the fluid through ice. Clinical research has shown that active cooling systems can significantly reduce the temperature in certain areas of the body. When areas of the central nervous system that have been demyelinated are cooled, the conductivity across the damaged area is greatly enhanced. This increased conductivity allows more effective transmission of signals, which can reduce some symptoms.
Passive cooling systems help maintain a cooler body temperature. These can be used outdoors in hot weather or during exercise regimens. These passive systems do not reduce body temperature, and are not considered a therapy. They do provide relief from heat for short periods of time.
MSAA provides cooling vests (such as the one pictured above) to individuals with MS who qualify for the program.
Montel Williams is promoting the new prescription program " Partnership for Prescription Assistance " : https://www.pparx.org/
call 1-888-477-2669 / 1-888-4PPA-NOW
There are over 150 different programs that can help you get your meds for free, or at a low cost. Check it out ! ! !
We also have some links up on our web site that may help. Check it outPatient Assistance Programs
Tysabri Update: FDA approves resumed marketing
On June 5, 2006 the U.S. Food and Drug Administration (FDA) approved an application for resumed marketing of Tysabri (natalizumab). The full details related to the resumption of Tysabri availability from the FDA's perspective are available on the FDA's Tysabri Information Page.
Our objective is to provide an informal, supportive site for people seeking on-line information about Multiple Sclerosis. We aren't doctors, we aren't experts. We just live it everyday. We formed this site to share what we have learned, provide a focal point for exchange of information, and give back to the community.
Support is a very big word when it comes to MS. Doctors can only tell you so much during an office visit. Leaving unanswered questions, concerns and issues. People with any disease can often learn best from each other. To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information.
There are many informative sites out there. Visit them all! You can never have enough information. We do not intend to compete with any other sites. Like coffee shops, each has it's own unique atmosphere and clientele. There can never be enough of them.
Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others.
We have appointed Jeff, Rod and JackIL has room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help.
Please help us remember to ask all chatters to sign the guest book. It's our only way of sending them our news letter.
Chat Hosting Schedule
We have no hosting schedule right now. Chat is always open and Guests are always welcome. Someone is in chat from 8 EST on. Feel free to drop in and join us. If you have any ideas please share them.
If you come in and one of chatters is there, say Hi ! Please wait, they could be away for many reasons. Like getting coffee. Please be patient, they do return.
If you have any interest in hosting please contact us at PWMS@PeopleWithMS.com
New Stories and Pictures
This could be you !
Your name, story, and photo in the spotlight, right here in our newsletter. Just send it along to: PWMS@PeopleWithMS.com
People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with.
We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.
Check out all of the recipes on our web site. that chatters have shared with us
Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com
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Visit our site and sign our Guestbook, including your e-mail. Or send us a request; PWMS@PeopleWithMS.com
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