Chat Login   top

 PeopleWithMS.com Newsletter


July 29, 2007

News
Chat Schedule
ChatStar
Stories and Pictures Birthdays
Go to Crafts Crafts Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

PWMS Chat Update: 

 

Chat has been great many laughs. Nancy is back after being on Solumedrol IV treatments! Best of luck - get better, Nancy!  

Please, Men, bear with us: We get so crazy at night! 

Looks like we are going to have a Spring get together! We will have enough time now to plan it. Any idea's, please let us have them ! 

Another 5 weeks of real summer for us and, chat will get busier. It always has in the past. If any of you have any idea's on things we do, like Trivia and Crafts, by all means suggest them.  It maybe a good idea to do more things so the rooms gets split up a bit on busy nights.

News Flash

Happy Anniversary Sae What & Ike! 41 Years as on Monday! 

 

(click on the logo)

Breaking News

The PeopleWithMS NewsWire is now being updated on a daily basis.  But needs your help to spot all the latest from around the globe!  A big part of posting the news is finding actual, relevant news articles.  From the sources, not TV stations or self-promoting commercial product sites.  So if you see something, send the hyperlink and maybe a brief description to:

  NewsWire@PeopleWithMS.com

(click on the logo)


Trivia Night in the PeopleWithMS Chat

Marlene, the hostess for our Thursday Night Trivial Chat has the questions.  And the answers.  She's mostly right! She will be back this coming Thursday!

Rod was our Trivia Master this week! It was a tie between Ragsjewel & Shelly. That's a first! Even with a tie breaker question, the score remained a tie! Rod had a variety of questions so there was no advantage LOL. So Ragsjewel & Shelly are sharing the Crown this week.  

Don't fight ladies, share! ( at least til next Thursday's Face-off ! )

Thank you so much Rod for helping us out when Marlene needs to take a Thursday off. 

It should be very interesting this coming week to see what happens! Come and join us, it's so much fun!

Thursdays at 8 pm EST for some fun.  


c

CRAFTERS


Debby is our craft coordinator. Please join her in our new craft room. Bring ideas with you. what do you know how to do. And what would you like to learn how to do.

Everyone will have a place to post there crafts so others can see them. We have a great start with some of Debby's great crafts she has made in the past. This week added are some great carolers from Sae What check her link out  This link will stay on our web site and also can be found on our links page. To post crafts EMAIL  deb@durgin.net

Click here for Debby's Craft's and more 

Debby's meetings will be on Tuesday's at 8PM EST for some fun!

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 11 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existance, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on webcam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own webserver, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Global Chat Schedule was comprehensive, but confusing. . . . . So it has been revised to break things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

 



 

Stories and Pictures

RagsJewel

Hi, my name is Julie.  I am 33 years old and I was diagnosed with M.S. in 1999 three months after my son was born... I am a single mother and am doing fairly well with M.S. I walk with a cane mostly. Sometimes use a walker if I know I am going to do a lot of walking.  I also have a scooter to be able to get outside and do more with my son in the summer months...I am very lucky to have my family's support, plus also helps I am living with them at the moment lol.. Hopefully in another year I will be able to get my own place again..I feel sorry for my son tho right now cause he is living in a household with 3 generations of women who are all slow and usually go "ohhh ahhhhhhh owwwwwwww" and grab our backs or just complain of aches pains and so my son "Jake" seems to think it is ok for him to mimic us and not have to do his "so-called" chores lol .. unfortunately we all know better since he is only 8 years old ...lol ... am waiting to see what else he comes up with in years to come... (more )

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

 

Who do these dogs belong to? 

Debby went to her first MS group meeting and they shared this link with them. She thought it may be useful to many of us. We think it's worth sharing with you all. The link brings you to main page and if you type " multiple sclerosis " in the search box it brings up a lot of info about assistivew devices, where they can be bought, and for how much.

http://abledata.com/


Thank you Debby

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  
 

 

 

 ThisWeek's ChatStar

Citrine

 

 My name is Carol, I was diagnosed with RRMS in November of 1995, I am 51 years old and I live in southern Maine. My earliest awareness of an MS symptom occurred in 1983 while I was putting my shoes on to go out to an Autumn Fair and my feet felt "weird".. all  evening long, some of the sensation was missing along with pins and needles feeling. The feelings went away after a nights sleep.  (more)

     
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
MS_Kitty70 August 11th
Shar September 25th
JEFF October 5th
Kanga 28 October

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 
     

 

Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


Chat access technical help!

The AddOnChat folks have made some substantial improvements in their support, knowledgebase, and help pages covering chat access and usage.  We'll be making some major updates to reflect this on our chat access help pages, as well as the Big Blue Button help in chat, and the macros.  Keep your eyes peeled. 


 Preface . . . 

"WE GO TO THESE ROOMS TO HELP THOSE THAT NEED IT AND TO FORGET OUR OWN TROUBLES.  IT IS NOT A REFERENDUM FOR POLITICAL, RELIGIOUS, OR MEDICAL DEBATE. HAVE AN OPEN MIND...WHAT WORKS FOR YOU MAY NOT FOR ANOTHER." ©copyright 2004 JLS (JEFFS)

 

Thank you for sharing this important Medical Information, RJump 

A.A.A.D.D. - Age Activated Attention Deficit Disorder


Recently, I was diagnosed with A.A.A.D.D. - Age Activated Attention Deficit Disorder.
This is how it manifests:

I decide to water my garden.

  • As I turn on the hose in the driveway, I look over at my car and decide it needs washing.

  • As I start toward the garage, I notice mail on the porch table that I brought up from the mail box earlier.

  • I decide to go through the mail before I wash the car.

  • I lay my car keys on the table, put the junk mail in the garbage can under the table, and notice that the can is full.

  • So, I decide to put the bills back on the table and take out the garbage first.

  • But then I think, since I'm going to be near the mailbox when I take out the garbage anyway, I may as well pay the bills first.

  • I take my check book off the table, and see that there is only one check left.

  • My extra checks are in my desk in the study, so I go inside the house to my desk where I find the can of Coke I'd been drinking.

  • I'm going to look for my checks, but first I need to push the Coke aside so that I don't accidentally knock it over.

  • The Coke is getting warm, and I decide to put it in the refrigerator to keep it cold.

  • As I head toward the kitchen with the Coke, a vase of flowers on the counter catches my eye--they need water.

  • I put the Coke on the counter and discover my reading glasses that I've been searching for all morning.

  • I decide I better put them back on my desk, but first I'm going to water the flowers.

  • I set the glasses back down on the counter, fill a container with water and suddenly spot the TV remote. Someone left it on the kitchen table. I realize that tonight when we go to watch TV, I'll be looking for the remote, but I won't remember that it's on the kitchen table, so I decide to put it back in the den where it belongs, but first I'll water the flowers.

  • I pour some water in the flowers, but quite a bit of it spills on the floor. So, I set the remote back on the table, get some towels and wipe up the spill.

  • Then, I head down the hall trying to remember what I was planning to do.

At the end of the day:

  • the car isn't washed

  • the bills aren't paid

  • there is a warm can of Coke sitting on the counter

  • the flowers don't have enough water,

  • there is still only 1 check in my check book,

  • I can't find the remote,

  • I can't find my glasses,

  • and I don't remember what I did with the car keys.

Then, when I try to figure out why nothing got done today, I'm really baffled because I know I was busy all damn day, and I'm really tired.

I realize this is a serious problem, and I'll try to get some help for it, but first
I'll check my e-mail....


Do me a favor. Forward this message to everyone you know, because I don't remember
who the hell I've sent it to.


Don't laugh -- if this isn't you yet, your day is coming!!



Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!

Poems     We need more Poems !

The Nurse


The bread and butter of nursing home care
Is the lady or gentleman of clever affair
They waitress memorizing orders in explicit detail
Feed mouths that won't open, and rarely they fail
They councel a resident out of a blue mood, have no fear
Convincing that both breakfast and a 200 foot stroll is the residents idea.


They can recognize a particular set of dentures from across the hall
And predict what time of day a resident might fall.
One will have ten people ready for breakfast by seven
feed, toilet, bathe, dress, ambulate ten people by eleven
Taken in stride are bruises sustained from a walker,
Wielded by a confused lady as she talked her....
Out of hitchhiking two towns away.


They chuckle at the absurdity of the things they might say,
Good Morning! How about an enema today?
They manipulate equipment while wearing gloves more suited for feet.
A spontaneous bowel movement is really a treat.
They go home at night or morning disheveled and sore.
Wearing dietary supplements of all color consistency and odor.
They take the bad with the good and more bad on most days
The mystery is why he or she stays.
So lets take a moment to offer our praises
To the love and commitment of our great nurses


Carol Kimball


(Citrine)

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com 


Here is the recipe for "Poke Cake"....


2 baked 9" white cake layers
2 cups boiling water
1 package 8 serving size jello ( any flavor)
1 large tub cool whip


Bake cake as directed on box
Leave each layer inside pan to cool completely
Pierce each cake layer with large fork to make holes in 1/2 intervals
Stir boiling water into jello in bowl at least two minutes until totally dissolved
Carefully pour jello over cake layers
Refrigerate for 3 hours

Dip cake pans one at a time into warm water to unmold cake, place onto plate
Frost each layer with cool whip
Put in refrigerator for one hour before serving
Store in refrigerator


Carol
(Citrine)

Recipes        

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS   


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty, JeffS, JackIL,  Eddie, Sae What and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

Our Latest Newsletter Click Here to go to Discussion Board


News Letter Archive

Missed something from an old Newsletter?  Find it here !


StumblinStyle.com - Handpainted and Customized Canes

©copyright 2004 PeopleWithMS.com