PeopleWithMS.com Newsletter

July 9, 2004


NewsFlash 

New UK Chat

PeopleWithMS Welcomes . . . . . 

GrannyBJ has returned from a special birthday gift.  Bearing another great inspirational story;  "Going Up And Away In A Hot Air BalloonProving that the sky's the limit !

SteveNL, returned from his Spanish vacation with 364 photo's.  He's doubtless preparing an evening of slides and stories for all of us.    Seriously, he's sent us a set of teaser photo's, and promised more, with commentary, when he returns home from work.  

Wayne has returned from Sundance.  With many stories.  As yet untold.  Ask him ! And visit his updated page.

GenVet1 was able to stop by briefly after a three week stint on IV.  He's still tired, and typing is tough.  So if you see him lurking, say hi, ask how he's doing.

CrystalAngel, dx'd in 1988, from Chickapee, Kansas, dropped by.  She used to have a very popular site;  "SoulTwin Sanctuary."  We hope to see a lot more of her in the future.

Danny, from Bar Harbor, Maine, stopped by.  He has a friend with MS, and just wanted to get a feel for things.  Helping others understand MS is part of why we are here.

Richard came in from Bruster, Ohio.  His brother has the early stages of MS, so he's visiting to learn a bit. Lets help him out.

SpiceyGranny, returned after a few harrowing weeks rearranging her daughter and grandchildren's living arrangements.  

Wendy, aka Unichickster, from Ontario, Canada, was dx'd in May '98 and on Betaseron three and a half years.  No longer, now on chemo - Novantrone for a year.  Mother of twin girls, 14.  

Judy has been scarce lately due to her husband's continuing medical problems.  Surgery was Friday, he's doing good and recovering.  So hopefully she will return soon with good news.  

Delbert has ripping towards the East Coast.  This week he's passing through West Virginia, western Pennsylvania and approaching New York!   WheelsofHope needs your support !  Track his progress across the 48 continental United States; http://www.wheelsofhope.net/  

Chats are most active every night starting around 7PM EST, and during the days around lunchtime EST.  However, feel free to drop by anytime, leave your window open for a bit, and somebody is sure to drop by.

Preface . . . 

"WE GO TO THESE ROOMS TO HELP THOSE THAT NEED IT AND TO FORGET OUR OWN TROUBLES.  IT IS NOT A REFERENDUM FOR POLITICAL, RELIGIOUS, OR MEDICAL DEBATE. HAVE AN OPEN MIND...WHAT WORKS FOR YOU MAY NOT FOR ANOTHER." ©copyright 2004 JLS (JEFFS)

New UK Chat

Paul G3PCT, one of our chatters from Kingswear, is starting up a UK oriented chat. It will be from 4-6 pm London time, on Tuesdays and Thursdays. This corresponds to 11am-1pm in eastern North America, or 8am-10am on the west coast.  Join Paul for some yacht-talk, radio, MS chatter, or just plain good times.  Read Paul's story

Buddy Hosting Nights

A Special Thanks 

Coming Attractions:

Special Notes:

Daytime Hosted Chat Schedule

Tuesday 4-6 London

11-1 EST

Paul G3PCT
Tuesday 2-4 pm  Dreamcicle
Wednesday 11-1 EST Lesley Anne
Thursday 4-6 London

11-1 EST

Paul G3PCT
Friday 12-2 pm Dreamcicle

PeopleWithMS.com needs chat hosts ! ! ! Donate a couple hours during the day or evening to host, on a regular basis, and we'll make you famous !  Or any other time you'd like !   If your focus is a particular topic or aspect of MS, just let us know and we'll post that in the Newsletter, too.  

You can informally host anytime you want.  No uniforms, caps, or badges.  Just be there for someone new when they pop in.  


New Stories and Pictures

Paul G3PCT

Let me introduce myself. I was born in Newport Pagnell Buckinghamshire England. It was in a stately home, I hope to get the picture  on my website. http://www.paul.hurst.org/, soon. No I donít come from the English aristocracy unfortunately. My mother like others was evacuated there from London for their splashdown. This was for safety reasons because of the war. Damb! Iím giving my age away now.

To continue, I was raised (or should I say dragged up) in London. Deptford & New Cross in the East end up to the age of 6. Hence a twang of Cockney in my voice.From there, having been kicked out by my GP. Due to suffering badly from bronchitis & asthma. Maybe due to the London smog. Fortunately every trace disappeared by the age of 11 like a switch being thrown. (more)

Your name, story, and photo can be right here in the spotlight, in our weekly newsletter.  Just send it along to: PWMS@PeopleWithMS.com


New Experiences

GrannyBJ aka Betty Jo has graced us with another excellent article on her recent birthday balloon trip;  "Going Up And Away In A Hot Air BalloonGreat motivational stuff to read and share with your friends.  


New Link Sightings

We're reprinting this list of links on Patient Assistance Programs.   These programs, often from the drug companies, provide financial subsidies for the cost of medications.   So there's something to fall back on, just in case you or someone you know doesn't hit that big Medicare Jackpot.

Patient Assistance Programs

NeedyMeds MS Foundation PWMS ** 6/29/04
"This site is designed to provide information about patient assistance programs which provide no cost prescription medications to eligible participants"
Helping Patients.org PWMS ** 3/6/04
The Pharmaceutical Research and Manufacturers of America (PhRMA) sponsor this site.  There is a simple form to fill out to determine eligibility for financial aid in acquiring medicines manufactured by these sponsoring companies.  A handy tool!
NORD National Organization for Rare Diseases Muff ** 2/2/04
NORD has information on a number of financial assistance programs to meet the medication needs of those not covered by insurance. 
The Avonex Access Program BIOGEN PWMS ** 6/29/04
Patient Prescription Financial Assistance for Avonexf
Foundation of Caring Berlex Laboratories PWMS ** 6/29/04
Patient Prescription Financial Assistance for Bertaseron
Serono Connections for Growth Serono PWMS ** 6/29/04
Patient Prescription Financial Assistance for Rebif
The Copaxone Patient Assistance Program Teva Neuroscience PWMS ** 6/29/04
Patient Prescription Financial Assistance for Copaxone

Every week we add new link sightings which may be of interest, as reported by our visitors.  This will highlight new links you may want to investigate, before they disappear into the obscurity of some huge link listing.  If you come across any site which you think may be of interest, please e-mail us:   PWMS@PeopleWithMS.com with the site address and a brief description of what you found interesting on the site.  We'll include it in the next Newsletter.


News Sightings

 Always check out the News Page for the latest, breaking news.  

Research Bulletin

UK MS Society

PWMS 7/9/04

The latest UK MS Society Research Bulletin covers;  

  • Beta Interferon - What effect does Beta Interferon have on MRI Measures?
  • Primary Progressive MS
    • Mitoxantrone for PPMS ?
    • A trial of Beta Interferon in PPMS
  • Sexual Problems
    • Responses to Viagra Treatment
    • Viagra for Women ?
  • Genetics - Susceptibility to MS in Siblings ?
  • Pain - Is TENS effective for Pain in MS ?
  • Injection Site Reactions - Injection site reactions in Beta Interferon and Copaxone users

Look at the May 2004 issue in Adobe PDF format, or grab it directly from this link.  If you haven't read the prior Bulletins, there's interesting information in the back issues, too.


Warning for your animal's health:

I recently had a neighbor who had to have their 5-year old German Shepherd dog put down due to liver failure. The dog was completely healthy until a few weeks ago, so they had a necropsy done to see what the cause was.

The liver levels were unbelievable, as if the dog had ingested poison of some kind. The dog is kept inside, and when he's outside, someone's with him, so the idea of him getting into something unknown was hard to believe.

My neighbor started going through all the items in the house. When he got to the Swiffer Wetjet, he noticed, in very tiny print, a warning which stated "may be harmful to small children and animals." He called the company to ask what the contents of the cleaning agent are and was astounded to find out that antifreeze is one of the ingredients.(actually he was told it's a compound which is one molecule away from antifreeze). Therefore, just by the dog walking on the floor cleaned with the solution, then licking it's own paws, and the dog eating from its dishes which were kept on the kitchen floor cleaned with this product, it ingested enough of the solution to destroy its liver.

Soon after his dog's death, his housekeepers' two cats also died of liver failure. They both used the Swiffer Wetjet for quick cleanups on their floors. Necropsies weren't done on the cats, so they couldn't file a lawsuit, but he asked that we spread the word to as many people as possible so they don't lose their animals

Robin Bonewicz
Nichols &Associates, Inc.
1650 Arch Street, Suite 2703
Philadelphia, PA 19103
Telephone: 215-587-1200
Fax: 215-587-1201
Email: robin@nichols-associates.com


Recipes

We're starting a new section for recipes, since they are a popular chat subject.  And we're starting a new links page, Recipes, to capture them for posterity.  This week, we're featuring a couple of Lesley Anne's favorites.  If you have a favorite you'd like to share, e-mail it to us;  PWMS@PeopleWithMS.com 

Apple Crisp Lesley Anne

4 cups pared, cored sliced baking apples
2/3 to3/4 cup packed brown sugar
1/2 cup flour
1/2 cup rolled oats
3/4 tsp cinnamon 
1/3 cup soft butter
3/4 tsp nutmeg
3/4 tsp cinnamon
1/3 cup soft butter

Place the apples in a greased 8 inch pan or casserole dish. Blend the brown sugar , flour rolled oats, cinnamon nutmeg and butter, until crumbly . Spread over apples . Bake in a 375 degree oven for 30 to 35 minutes. Serve with whipped cream or ice cream.


DANAS CHICKEN Lesley Anne

8 boneless chicken breasts
8 slices swiss cheese
8 slices of ham
1 can cream of mushroom soup
1/4 cup white wine
1/4 cup orange juice
1 teaspoon honey dijon mustard
2 cups finely crushed stuffing mix
2 tablespoons butter

preheat oven to 350
lightly grease bottom of pan and lay chicken on it. put a slice of cheese and ham on each breast. 

in a bowl mix oj,soup.wine and mustard well. then pour over chicken. spread bread crumbs over chicken. melt the butter then pour it over the stuffing. bake in oven for 45 minutes then enjoy. it goes good with corn and biscuits


DRUMSTICK CAKE Lesley Anne

BASE

1 1/2 cups of oreo cooky crumbs
1/2 cup of chopped nuts
1/4 cup of melted butter
2 tablespoons of smooth peanut butter

( I heated 8 tablespoons of the chocolate sauce..and knifed it through the filling when it is on top of the base.)

Combine these ingredients together....press mixture into a 9x13" pan....refrigerate

FILLING

8 ounce package of Philadelphia cream cheese ( room temperature)
4 ounce package of Philadelphia cream cheese
1/2 cup of icing sugar
2 teaspoons of vanilla
1/4 cup of peanut butter
1 quart ( 1 litre ) container of Cool Whip ( frozen whipped topping)
1/4 cup of chocolate syrup ( I used Smuckers)
1/2 cup of unsalted chopped peanuts

With electric mixer, beat together in large bowl ---cream cheese, icing sugar, vanilla, and peanut butter until smooth. Fold in the thawed whipped topping...spread over the base. If you want to .....then knife the heated chocolate sauce through the filling...(trust me..it is worth it)

Drizzle the 1/4 cup of chocolate sauce over top. Top with the peanuts....

Freeze...then take it out of the freezer 30 minutes before serving ...

Here is a hint...just take out what you need..then put the rest back in the freezer.


New on the Website

* * * We Need Your Help * * *

Helping Chatters Get Into Chat

People continue to have difficulties getting into Dreamchat.  Tell us in detail what you have to do to a firewall, anti-virus program, or Pop-Up blocker program in order to get in.  If you had to upgrade your Windows or Internet Explorer Service Pack, tell us from what, to what.  We will start a page devoted to all the different problems people have had, and how they have overcome them, as a resource page for new chatters.

DreamChat Trivia (repeated by popular demand)

  • New to Dreamchat and wondering how to make those neat little smileys and pictures in the text? Easy, here's the Cheat Sheet:

:) Smile   :* Kiss
:( Sad >-- Rose
;) Wink <love> Love
;} Wry <strobe> Strobe
:p Tongue <nuke> Nuke
:o Gasp <boom> Boom
:# Mad <star> Star
  • How do I copy and paste something?  Mark it as you usually would with the mouse.  Then use CTRL-C to copy it, and CTRL-v to paste it in the message window.

  • I'm a member.  I uploaded my avatar, and nothing happened.  What's up with that?  Even if your avatar is the specified 50 * 50 pixels, and no bigger than 15KB, there is no confirmation.  Apparently because DreamChat personnel review all permanent member's avatars to make sure they are acceptable.  (Whatever that means.)  If they are, they send back an approval in a day or so, and the next time you sign in, "poof" your new avatar appears.

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News Letter Archive

Missed something from an old Newsletter?  Find it here !

7-9-04 7-2-04 6-26-04 6-11-04
5-31-04 5-21-04 5-15-04 5-7-04
5-1-04 4-23-04 4-16-04 4-10-04
4-2-04 3-27-04 3-20-04 3-13-04
3-6-04 2-28-04 2-21-04 2-14-04
2-07-04 1-31-04 1-24-04 1-17-04

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