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 PeopleWithMS.com Newsletter


August 5th, 2007

News
Chat Schedule
ChatStar
Stories and Pictures Birthdays
Go to Crafts Crafts Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

PWMS Chat Update: 

Looks like we are going to have a Spring get together! We will have enough time now to plan it. Any idea's, please let us have them ! We will have a solid date after Xmas. That should be enough time. We would like it to be the week end before May 17th or the week end after. We will make all plans for Friday Saturday, and Sunday of that week end. 

Chat has been the best! We have grown weekly. Ragsjewel is not hosting join her make her welcome she's a sweetheart. Keep in mind if you are going to come into chat anyway it helps to pitch in and host. It is only a 2 hour span. 

Another 5 weeks of real summer for us and, chat will get busier. It always has in the past. If any of you have any idea's on things we do, like Trivia and Crafts, by all means suggest them.  It maybe a good idea to do more things so the rooms gets split up a bit on busy nights.

News Flash

Mondo had his gall bladder out and was in chat hours after! What a trooper! Way to go Mondo!

 

(click on the logo)

Breaking News

The PeopleWithMS NewsWire is now being updated on a daily basis.  But needs your help to spot all the latest from around the globe!  A big part of posting the news is finding actual, relevant news articles.  From the sources, not TV stations or self-promoting commercial product sites.  So if you see something, send the hyperlink and maybe a brief description to:

  NewsWire@PeopleWithMS.com

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Trivia Night in the PeopleWithMS Chat

Marlene, the hostess for our Thursday Night Trivial Chat has the questions.  And the answers.  She's mostly right! She will be our host this coming Thursday! Rod is the Trivia King for the week! Citrine and Red were tied for second, Your getting closer Citrine LOL. Come Join Us its so much fun! 

Thursdays at 8 pm EST for some fun.  


c

CRAFTERS


Debby is our craft coordinator. Please join her in our new craft room. Bring ideas with you. what do you know how to do. And what would you like to learn how to do.

Everyone will have a place to post there crafts so others can see them. We have a great start with some of Debby's great crafts she has made in the past. This week added are some great carolers from Sae What check her link out  This link will stay on our web site and also can be found on our links page. To post crafts EMAIL  deb@durgin.net

Click here for Debby's Craft's and more 

Debby's meetings will be on Tuesday's at 8PM EST for some fun!

 

Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existance, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on webcam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own webserver, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Global Chat Schedule was comprehensive, but confusing. . . . . So it has been revised to break things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

 



Body Cooler Products 

Cooling vests and other cooling products by Body Cooler® are designed to safely and inexpensively keep you and your pets cool when heat is a problem.

We have Body Cooler® products designed for many different applications. Those with ailments that cause heat discomfort, such as multiple sclerosis, will receive cooling comforts.

This was news to us. This company sells ice vests with polymer beads in it. It is supposed to be much lighter than the gel ice pack vests. Take a look, see what you think.

Stories and Pictures

pitchmonke

My name is Randy A.K.A. pitchmonke and I am 41 years old.

I was dx'd in may of 2003 with rrms. Got married in 2000 and was going to buy a new house and all that but now things have changed. I used to do commerical roofing, hot tar, rubber and the such, that's how I got my screen name (pitchmonke) one of my jobs as a roofer was running hot tar kettle's and a form of hot tar is called coal tar pitch and they called me monkey.
(more )
GeorgieD Hi Everyone, 

My name is Georgie aka GG and I'm from Bayside New York. I have had MS for 33 years now...my first MS exacerbation was when I was 27...it was very dramatic as I was paralyzed from the arms pits down...As you may know there were no meds for MS in 1977 and the only test they had was a spinal, so I was not diagnosed at that time. I was going through a lot of stress at the time and I believe that is what brought on that exacerbation. I divorced my husband and lost my father and brother- in- law all in a matter of 3 months. I have 3 small boys to take care of and a business to help run with my mother. Not a good time, I can tell ya...Anyway it took the exacerbation about 3 months to remit and I can only say I was blessed from that time on. My MS remained mild and I could function normally and raise my boys and I met a wonderful man named Joseph and we were married very happily for 23 years. (more )

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

Who do these dogs belong to? 

Who do these horse's belong to?

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  
 

 

 

 ThisWeek's ChatStar

Lisa aka GemLady

 

I was dx with (RR)MS in Feb.1995. I used Avonex injections once a week. Approximately once, and sometimes twice a year, starting around 1999 was on solumedrol intravenous for 5 days at a time, which seemed to work. However, my neurologist decided to put me on Rebif around August of 2002.Avonex was not working on me as well as he wanted it to work. I have been on solumedrol but not has often. Mom gave me the Avonex shots. My husband Jim gives me the Rebif shots. I do have pain from the rebif so I have to use a anesthetic patch two hours before the shot. I am mobile. I do use a wheel chair for malls and distance. during the day sometime I have to use a walker. I have a lot of support form all of my family. Most of you know My mom Deb in chat and step Dad Mr. Red. My grandmother also lives with us and it has been a lot of help when I am in a flare up. I love animals. I do read a lot. watch soap operas. One of my favorite places is the www.http://magicwings.com  I could just sit and relax and watch the biggest most beautiful butterflys I have ever seen. I do try and check in chat as much as I can. I do enjoy spending time with my husband watching TV and just being together. Be strong we  will have something to stop progression soon! God Bless. Love you all xxoo Lisa (more)

     
 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
MS_Kitty70 August 11th
Pitchmonke August 17th
Shar September 25th

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 
     

 

Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


Chat access technical help!

The AddOnChat folks have made some substantial improvements in their support, knowledgebase, and help pages covering chat access and usage.  We'll be making some major updates to reflect this on our chat access help pages, as well as the Big Blue Button help in chat, and the macros.  Keep your eyes peeled. 


 Ya gotta love kids!!!

DADDY'S GONNA EAT YOUR FINGERS ... (This one is worth passing on.)

This one is for everyone who ...a) has kids, b) had kids, c) was a
kid, d) knows a kid e) is going to have kids I was packing for my
business trip and my three Year old daughter was having a wonderful
time playing on the bed. At One Point she said, "Daddy, look at
this," and stuck out two of her fingers.
Trying to keep her entertained, I reached out and Stuck her tiny
fingers in my mouth and said, "Daddy's gonna eat Your fingers,"
>pretending to eat them. I went back to Packing, looked up again and
my daughter was standing on the bed Staring at her fingers with a
devastated look on her face.
I said, "What's wrong, honey?"
She replied, "What happened to my booger?"

DEB

Here's a chuckle for you! This is hi tech gone wild!!


A new supermarket opened near my house. It has an automatic water
mister to keep the produce fresh. Just before it goes on, you hear
the sound of distant thunder and the smell of fresh rain.

When you approach the milk cases, you hear cows mooing and experience
the scent of fresh hay.

When you approach the egg case, you hear hens cluck and cackle, and the
air is filled with the pleasing aroma of bacon and eggs frying.

The veggie department features the smell of fresh buttered corn.



....I don't buy toilet paper there any more.      

THANK YOU FOR SHARING WITH US GAIL XXOO

 



Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!

Poems     We need more Poems ! 

 Citrine sent this to Lisa she lost her 5 year old cat last week. Thank you Citrine.xxoo

The Rainbow Bridge


There is a bridge connecting heaven and earth
It is called Rainbow Bridge because of it's many colors.

Just this side of The Rainbow Bridge there is a land of meadows, hills, valleys with lush green grass,

When a beloved pet dies, the pet goes to this special place
There is always food and water and warm spring weather,

The old and frail are young again
Those who are maimed are made whole again,

They play all day with each other
There is only one thing missing...

They are not with their special person who loved them on earth
So each day they run and play until the day comes when one suddenly stops playing and looks up!

The nose twitches!
The ears are up!
The eyes are staring!
And this one suddenly runs from the group!

You have been seen, and when when you and your special friend meet, you take him or her into your arms and embrace
your face is kissed again and again
And you look once more into the eyes of your trusting pet

Then you cross the Rainbow Bridge together, never again to be separated.

Unknown Autho
r

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com 


Pumpkin Recipe! 

Don't throw out that old pumpkin, 
it has another use
Cut it like a jack-o-lantern,
clean out all the juice

Make the soup as follows,
potatoes, should be pared
Celery, onions, garlic,
this should be just layered

Stew meat for your pleasure,
I would boil first
Bay leafs to be added,
to make your senses burst

One can of tomatoes,
whole would be the choice
Now that, you can blend well,
the smell will be a voice

That you can share with others,
you may add your own
ideas to the mixture,
the recipe has grown

Pour in your pumpkin gently,
and put the lid on tight
Wipe pumpkin down with oil,
and don't worry it won't light

Put pumpkin in a deep pan,
and to the oven it goes
Three fifty for just two hours,
you'll swear that it just glows

You'll be the hit of the party,
for this centerpiece so fine
It came from someone close to me, 
it belongs to them, not mine

REAL RECIPE: Make any soup you want and put into a pumpkin shell, then put
the lid back on and wipe down with any oil..Cook for two hours on 350..until
brown and shiny (The soup will Not take on pumkin taste) ..it is so pretty
to look at for fall.. I have made pumkin pie in another dish and added to the
cleaned out pumpkin to finish and followed the same as the soup direction.
Then cut pie crust into squares and backed and use for dippers…toooo cute..

Thank You SAEWHAT

Recipes        

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS   


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty,  JackIL,  Eddie, Sae What and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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