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 PeopleWithMS.com Newsletter


August 12th, 2007

News
Chat Schedule
ChatStar
Stories and Pictures Birthdays
Go to Crafts Crafts Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

PWMS Chat Update: 

Dream is having more surgery Monday best of luck Dream. RonB did some XTRA hosting to help out this week Thank you RonB. We want to thank you all for any hosting you do. Its what keeps chat going, As soon as the kids go back to school it gets busier. Some of the hosting times that are slow now will get better.

We ran out of pet pictures and restored cars. It was fun.  Send me more and we will post them. Someone said 'baby pictures' - GUESS who it is. I also heard 'send in a picture of yourself from 10 or 20 years ago'. We will be changing are newsletter soon a whole new make over LOL. Any ideas of things you would like to see in it?

News Flash

Did I hear something said about a night for Woman's chat? Anyone want to host it, 8-9PM EST? It can be Monday,Wednesday, Friday, Saturday or Sunday. We can have a men's chat at the same time LOL. Ok, Men who will host?


Trivia Night in the PeopleWithMS Chat

Marlene, the hostess for our Thursday Night Trivial Chat has the questions.  And the answers.  She's mostly right!  Red is the Trivia King for the week!  He tried unsuccessfully to lose! But could not quite manage it this week LOL Citrine, Ron and BoardWalkAngel all runners up. Citrine - hang in there !  It's getting closer every week. We had 8 chatters this week in Trivia! Join us it is so much fun.

Thursdays at 8 pm EST for some fun.  


c

CRAFTERS


Debby is our craft coordinator. Please join her in our new craft room. Bring ideas with you. what do you know how to do. And what would you like to learn how to do.

Everyone will have a place to post there crafts so others can see them. We have a great start with some of Debby's great crafts she has made in the past. This week added are some great carolers from Sae What check her link out  This link will stay on our web site and also can be found on our links page. To post crafts EMAIL  deb@durgin.net

Click here for Debby's Craft's and more 

Debby's meetings will be on Tuesday's at 8PM EST for some fun!

 

Body Cooler Products 

Cooling vests and other cooling products by Body Cooler® are designed to safely and inexpensively keep you and your pets cool when heat is a problem.

We have Body Cooler® products designed for many different applications. Those with ailments that cause heat discomfort, such as multiple sclerosis, will receive cooling comforts.

This was news to us. This company sells ice vests with polymer beads in it. It is supposed to be much lighter than the gel ice pack vests. Take a look, see what you think.


Stories and Pictures

"Dr.Reham Megahed" 

 

Hi there!

MY NAME IS DR REHAM MEGAHED FROM EGYPT.  28 YEARS OLD.  DIAGNOSED DECEMBER 2002.  NOW I'M NOT TAKING ANY MEDS, ONLY VITAMINS & OMEGA3

I HAVE THE RELAPSING REMITTING TYPE BUT NOW I AM FREE FROM ATTACKS THANK GOD.  I GET SYMPTOMS OF FATIGUE, NUMBNESS , POOR CONCENTRATION ESPECIALLY IN HOT WEATHER.  (more)
GeorgieD

Hi Everyone, 

My name is Georgie aka GG and I'm from Bayside New York. I have had MS for 33 years now...my first MS exacerbation was when I was 27...it was very dramatic as I was paralyzed from the arms pits down...As you may know there were no meds for MS in 1977 and the only test they had was a spinal, so I was not diagnosed at that time. I was going through a lot of stress at the time and I believe that is what brought on that exacerbation. I divorced my husband and lost my father and brother- in- law all in a matter of 3 months. I have 3 small boys to take care of and a business to help run with my mother. Not a good time, I can tell ya...Anyway it took the exacerbation about 3 months to remit and I can only say I was blessed from that time on. My MS remained mild and I could function normally and raise my boys and I met a wonderful man named Joseph and we were married very happily for 23 years. (more )

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

Who do these Cars belong to? 

Strange pictures we take of our pets and very strange friends we pick for them LOL

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  

 

 

 ThisWeek's ChatStar

RagsJewel

 

Hi, my name is Julie.  I am 33 years old and I was diagnosed with M.S. in 1999 three months after my son was born...I am a single mother and am doing farely well with M.S. I walk with a cane mostly. Sometimes use a walker if I know I am going to do alot of walking.  I also have a scooter to be able to get outside and do more with my son in the summer months...I am very lucky to have my family's support, plus also helps I am living with them at the moment lol. Hopefully in another year I will be able to get my own place again.I feel sorry for my son tho right now cause he is living in a household with 3 generations of women who are all slow and usually go "ohhh ahhhhhhh owwwwwwww" and grab our backs or just complain of aches pains and so my son "Jake" seems to think it is ok for him to mimmick us and not have to do his "so-called" chores lol.. unfortunately we all know better since he is only 8 years old ...lol ... am waiting to see what else he comes up with in years to come... (more )

"Why dogs don't live as long"

Being a veterinarian, I was called to examine a ten-year-old Irish Wolfhound named Belker. The dog's owners, Ron, his wife, Lisa, and their little boy, Shane, were all very attached to Belker and they were hoping for a miracle.

I examined Belker and found he was dying of cancer. I told the family there were no miracles left for Belker, and offered to perform the euthanasia procedure for the old dog in their home. As we made arrangements, Ron and Lisa told me they thought it would be good for the four-year-old Shane to observe the procedure. They felt as though Shane might learn something from the experience.

The next day, I felt the familiar catch in my throat as Belker's family surrounded him. Shane seemed so calm, petting the old dog for the last time, that I wondered if he understood what was going on. Within a few minutes, Belker slipped peacefully away. The little boy seemed to accept Belker's transition without any difficulty or confusion.

We sat together for a while after Belker's death, wondering aloud about the sad fact that animal lives are shorter than human lives.
Shane, who had been listening quietly, piped up, "I know why."

Startled, we all turned to him. What came out of his mouth next stunned me. I'd never heard a more comforting explanation. He said, "People are born so that they can learn how to live a good life -- like loving everybody all the time and being nice, right?" The four-year-old continued, "Well, dogs already know how to do that, so they don't have to stay as long."

Live simply. Love generously. Care deeply, Speak kindly. Leave the rest to God.

Thank you for sharing this with us Vanessa

YOU WERE NOTICED
Today you were noticed, I don't think you knew
While laughing at something known only to you

You were noticed last week while hard a task
All covered with dust you wore like a mask

Last month you were noticed though silent I stood
Just staring, not speaking, amazed at your good

Noticed last year, another in life
Kept balanced again, despite of the strife

Noticed for so long by many you know
Who liked you and loved you, and all watched you grow

So when you feel that your life is not glee
Remember your noticed, especially by me

© 2006 saeich48 - Poets.com

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!


Poems     We need more Poems ! 

You Had the Gift of Happiness

You had the gift of happiness,
The unrelenting grace
To see the radiance of life
Within the ruthless face.

Cancer, heart attacks, and strokes,
Paralysis and pain,
A flood that left you penniless . . .
And still you smiled again.

It wasn't pure naivete
Or something just not there,
Or, even worse, an inner lie
That said you didn't care.

It was a certain blessedness
Attained by very few
That let you live within a love
Within the love in you.

by Nicholas Gordon

from Bill...... Newcastle, England.

Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com

A poem by Abigail Elizabeth McIntyre 


SHIT! 

It's Hot !



--
Wishing you love, light, and blessings always, 
(((Hugs)))
Marlene 

 


Chocolate Eclair Cake 

1 stick margarine

1 cup of water 

bring to a boil, slowly add 1 cup of flour stirring till it leaves the sides of the pan like a ball. 

remove from heat and beat in 4 eggs , one at a time. 

grease a 10 X 15 X 1 inch pan 

spread mix even 

bake 400 for 45 mins 

prepare 3 packages of instant pudding (flavor of your choice) you can use sugar free. 

spread over cooled crust......spread cool whip on that to thickness desired 

drizzle chocolate syrup over.

 

chill and serve

THANK YOU DEBBY

 

Recipes        

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
MS_Kitty70 August 11th
Pitchmonke August 17th
Shar September 25th

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 

 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existance, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on webcam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own webserver, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Global Chat Schedule was comprehensive, but confusing. . . . . So it has been revised to break things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty,  JackIL,  Eddie, Sae What and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


(click on the logo)

Breaking News

The PeopleWithMS NewsWire is now being updated on a daily basis.  But needs your help to spot all the latest from around the globe!  A big part of posting the news is finding actual, relevant news articles.  From the sources, not TV stations or self-promoting commercial product sites.  So if you see something, send the hyperlink and maybe a brief description to:

  NewsWire@PeopleWithMS.com

Chat access technical help!

The AddOnChat folks have made some substantial improvements in their support, knowledgebase, and help pages covering chat access and usage.  We'll be making some major updates to reflect this on our chat access help pages, as well as the Big Blue Button help in chat, and the macros.  Keep your eyes peeled. 

 

If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

Want to receive our Newsletter ?

Send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

Our Latest Newsletter Click Here to go to Discussion Board


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Missed something from an old Newsletter?  Find it here !


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