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 PeopleWithMS.com Newsletter


August 19th, 2007

News
Chat Schedule
ChatStar
Stories and Pictures Birthdays
Go to Crafts Crafts Famous People
Healthy Eating Poems
Recipes Rod's Music Shoppe

PWMS Chat Update: 

We want to thank SAE What,  AKA Sue and anyone else who helped with chat this week. Norma was out of chat most of the week. As you all know Bob, her husband, has been sick. Norma and I both were talking on the phone this week.  Chat has become the best thing that has happened in a long time to a lot of us. We have gained some very good friends. We are looking forward to the May, 2008 get ogether. Lots of smiles and lots of tears will be shared, I know. We will start this week with a Wednesday night WOMAN'S & MEN'S chat -> one hour in separate room's. This will be lots of fun! details below. 

Joke of the week!

Two Ways to Look at Everything.....

My wife and I were sitting at a table at my high school reunion, and I kept staring at a drunken lady swigging her drink as she sat alone at a nearby table. My wife asks, "Do you know her?" "Yes," I sighed, "She's my old girlfriend. I understand she took to drinking right after we split up those many years ago, and I hear she hasn't been sober since." "My God!" says my wife, "Who would think a person could go on celebrating that long?" 


Trivia Night in the PeopleWithMS Chat

Marlene & Rod have been the hosts for our Thursday Night Trivial Chat. They have the questions.  And the answers. This weeks winner was a tie between Shelly & Mags! Of  course the runners up were Citrine & Red. Citrine come on you go girl! We want to thank Rod for taking Marlene's place when she has something to do. It's great to have someone to help us out in case we have to do something.   

Thursdays at 8 pm EST for some fun.  


c

CRAFTERS


Debby is our craft coordinator. Please join her in our new craft room. Bring ideas with you. what do you know how to do. And what would you like to learn how to do.

Everyone will have a place to post there crafts so others can see them. We have a great start with some of Debby's great crafts she has made in the past. This week added are some great carolers from Sae What check her link out  This link will stay on our web site and also can be found on our links page. To post crafts EMAIL deb@durgin.net

Click here for Debby's Craft's and more 

Debby's meetings will be on Tuesday's at 8PM EST for some fun!

 

 Woman's night & Men's night! 

Starting this Wednesday we will have Woman,s chat in our WOMAN"S ROOM! AT the same time we will have Men's chat in the MEN"S ROOM. We will do this for one hour from 8PM till 9PM  EST. Then we can join in the main chatroom as always. Sue was nice enough to say she would host it. I belive Rod said ok he would host the mens chat as long as he can give baseball scores LOL! What's the topic? For now we will see if anyone has any Topics. Or do we want to just play it by ear. 


Stories and Pictures

 

This could be you*

Your name, story, and photo in the spotlight, right here in our newsletter.  

Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. 
Everyone's M.S. is different and everyone's story is different. 
Get to know the chatters we chat with. 

Stories and Picture's 

Who is this cowboy everyone is drooling over in chat?

What's this, more animal's? Who does the dog belong to and wow what a bird!

PWMS  Welcomes!   

Please, we have issued an All Points Bulletin for any new chatters !   Come in, ask them to send us their e-mail addresses at PWMS@PeopleWithMS.com ; it is the only way we can send them out our weekly newsletter.  Also, let them know about your stories and pictures, and perhaps ask if they'd like to submit one.! A great way to get instant recognition, by appearing in the newsletter.  Most of us love to know more about each other and see who we chat with. When no one is here and a new MSER comes in and reads our stories and poems it helps to read and see how MSers deal with life. 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.  

 

 

 ThisWeek's ChatStar

Sae What

 

Hello!, 

My name is Sue...

I am almost 59 June 14 (Flag Day, yeah). I was Dx'd in 2005, December, I thought I was just not aging well, and kept putting off going to the doctor. She said we are sending you to a Neurologist, I think you have MS. Didn't know anything about it. After all the test and MRI's he said, no doubt it is MS. Primary Progressive. I started treatment with the understanding we are just trying to hold it back. (more)

JackIL's 
X-Rated 
family 
shenanigans
 

TWO SCOTTISH NUNS 



Two Scottish nuns have just arrived in USA by boat and one says to the other, "I hear that the people of this country actually eat dogs." "Odd," her companion replies, "but if we shall live in America, we might as well do as the Americans do."  Nodding emphatically, the Mother Superior points to a hot dog vendor and they both walk towards the cart. "Two dogs, please," says one.  The vendor is very pleased to oblige, wraps both hot dogs in foil and hands them over. Excited, the nuns hurry to a bench and begin to unwrap their 'dogs'. 

The mother superior is first to open hers. She begins to blush and then, staring at it for a moment, leans to the other nun and whispers cautiously, "What part did you get?" 

Thank you Jack!

Rockin' Rod's

Music

Shoppe

Some of you have met Rod, one of our Florida chatters. He has been also been known as our DJ ! He has a very large collection of music. Rod has offered to do his best to find any song you're looking for, and email it to you. He needs the obvious: Name of singer ! Name of song ! He's not a mind reader LOL !   You can email him your requests at:  LINGRAM1@TAMPABAY.RR.COM  You can also meet Rod in a early AM chat on Saturday's!!!  Check times!

First Visit from the Tooth Fairy . . . ~

Poems     We need more Poems !

Crabby Old Man

What do you see nurses? ...What do you see?
What are you thinking...when you're looking at me?
A crabby old man...not very wise,
Uncertain of habit...with faraway eyes?

Who dribbles his food...and makes no reply.
When you say in a loud voice..."I do wish you'd try!"
Who seems not to notice...the things that you do.
And forever is losing ...a sock or shoe?

Who, resisting or not...lets you do as you will,
With bathing and feeding...the long day to fill?
Is that what you're thinking? Is that what you see?
Then open your eyes, nurse...you' re not looking at me.

I'll tell you who I am...as I sit here so still,
As I do at your bidding,...as I eat at your will.
I'm a small child of Ten...with a father and mother,
Brothers and sisters...who love one another

A young boy of Sixteen...with wings on his feet
Dreaming that soon now...a lover he'll meet.
A groom soon at Twenty...my heart gives a leap.
Remembering, the vows...that I promised to keep.

At Twenty-Five, now...I have young of my own.
Who need me to guide...and a secure happy home.
A man of Thirty...my young now grown fast,
Bound to each other...with ties that should last.

At Forty, my young sons...have grown and are gone,
But my woman's beside me...to see I don't mourn.
At Fifty, once more,...babies play 'round my knee,
Again, we know children...my loved one and me.

Dark days are upon me...my wife is now dead.
I look at the future...I shudder with dread.
For my young are all rearing...young of their own.
And I think of the years...and the love that I've known.

I'm now an old man...and nature is cruel.
Tis jest to make old age...look like a fool.
The body, it crumbles...grace and vigor, depart.
There is now a stone...where I once had a heart.

But inside this old carcass...a young guy still dwells,
And now and again...my battered heart swells.
I remember the joys...I remember the pain.
And I'm loving and living...life over again.

I think of the years...all too few...gone too fast.
And accept the stark fact...that nothing can last.
So open your eyes, people...open and see
Not a crabby old man. Look closer...see...ME!

Remember this poem when you next meet an older person
who you might brush aside without looking at the young
soul within.....we will all, one day, be there, too!
................................................. 
Bill........... ENGLAND.........
.

"Crabbit Old Woman"

What do you see nurses, what do you see?
What are you thinking when you are looking at me?

A crabbit old woman, not very wise
Uncertain of habit, with far away eyes
Who dribbles her food and makes no reply,
When you say in a loud voice "I do wish you'd try"

Who seems not to notice the things that you do,
And forever is losing a stocking or shoe,
Who unresisting or not, lets you do as you will,
With bathing or feding, a long day to fill.

Is that what you are thinking, it that what you see?
Then open your eyes nurse, you're not looking at me.
I'll tell you who I am as I sit here so still
As I use at your bidding
As I eat at your will....

I'm a small child of ten with a father and a mother,
Brothers and sisters who love one another,
A young girl of sixteen with wings on her feet
Dreaming that soon now a lover she'll meet

A bride soon a twenty, my heart gives a leap
Remembering the vows that I promise to keep
At twenty five now I have young of my own
Who need me to build a secure and happy home,

A woman of thirty,my young now grow fast
Bound to each other with ties that should last
At forty my young sons have grown, and are gone
But my man's beside me to see I don't mourn.

At fifty once more babies play round my knees
Again we know children, my loved one and me..
Dark days are upon me, my husband is dead,
I look at the future, I shudder with dread

For my young are all rearing young of their own,
And I think of the years and the love that I've known
I'm an old woman now and nature is cruel
Tis her jest to make old age look like a fool

The body it crumbles, grace and vigor depart
There is now a stone, where I once had a heart
But inside this old carcass a young girl still dwells
And now and again my battered heart swells

I remember the joys, I remember the pain
And I'm loving and living life over again
I think of the years all too few..gone too fast
And accept the fact that nothing can last

So open your eyes nurse, open and see!
Not a crabbit old woman, look closer....see me!


Carol

This poem appeared when an old lady died in the geriatric ward of Ashludie Hospital She left nothing of value, but a nurse going through her personal possessions found this poem.

Goodall Hospital where I worked, shared this poem with nurses at a mandatory inservice, there wasn't a dry eye in the room, and I think it made all of us better nurses!


You have never seen a clock like this before. 
Look real close and read what it is telling you.


http://www.poodwaddle.com/worldclock.swf 

Thank you for sharing this Rod! 


Check it out on our inspirational Poetry Pages

Please Email us with any poems you would like to share with us PWMS@peoplewithms.com


There are a lot of things I could do,
at least according to you.
Where there's a will, there's a way,

and I won't plan a strenuous day.

I appreciate the offer,
but I'm afraid I'm going to pass.
Like the gauge that reads empty,
the car starts, but soon runs out of gas.

I know it's hard to understand,
but some things are beyond me today.
At times I hardly make a move,
and just barely get through the day.

Sometimes walking across the room,
is a mental and physical strain.
I know I would enjoy myself,
but I wouldn't enjoy the pain.
You think I'm being difficult.
Believe me, that isn't true.
You can't begin to imagine,
all the things I'd like to do.

Nobody willingly gives up,
all the pleasures of the past.
We fight to hold on to them,
wishing forever they would last.

My life now has limitations,
far more than you can see.
If My "No" disappoints you,
Imagine, how it's affecting me! 

Thank you for sharing this poem with us

Randall Taylor (pitchmonke)

 


The Horse and the Cow

The horse and the cow live thirty years
and nothing know of wines or beers
The goats and sheep at twenty die
with never a taste of Scotch or rye.
The sow drinks water by the ton
And at eighteen is nearly done
The dog at fifteen cashes in
Without the aid of rum or gin.
The cat in milk and water soaks
and then at twelve short years it croaks.
The modest sober home dry hen
Lays eggs for years and dies at ten.
All animals are strictly dry
They simply live and simply die.
But sinful, ginful rum-soaked men
Survive for three score years and ten.
And some of them, the mighty few
Stay pickled 'till they're ninety two.

Bill...... England................


Recipes        

Chocolate Layered Pie

chocolate pudding pie in a pecan nut crust, topped with whipped topping.

prep time : appox 20 mins

cook time : appox 10 mins

ready in appox 2 hours 30 mins

make 1-9 inch pie(8-servings)

1/2 cup chopped pecans                     1 (5.9 ounce) package instant chocolate pudding mix

1/2 cup butter melted                           2/3 cup milk

1 cup all purpose flour                          2 cups frozen whipped topping thawed

1 cup frozen whipped topping thawed

1 (8 ounce) package cream cheese

1 cup confectioners sugar 

directions:

1: mix together pecans,melted butter , and flour.pat into the bottom and up the sides of a 9 inch pie plate.bake at 350 degrees F(175 degrees C)until lightly browned.Remove from oven . set aside to cool.

2:In a mixing bowl, blend 1 cup of whipped topping,cream cheese, and confectioners sugar till creamy.Spread into cooled crust.

3:whisk together pudding mix and milk. spread evenly over cheese layer.Spread remaining whipped topping on top.Cil 1 1/2 - 2 hours

Thank you Debby

Click here

for Recipes

 

Check out all of the recipes on our web site that chatters have shared with us  
Click here for 

Healthy Eating 

Recipes

 

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

 

NEW BIRTHDAY PAGE 

 CLICK HERE CLICK HERE   

Upcoming Birthday:  

PeopleWithMS - Birthdays, Anniversaries, Etc.

Who will be next ?
Shar September 25th

 

 * * * We need someone to keep track of our chatters Birthday's.  * * * 

If anyone wants to host a chat Birthday Party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have Anniversary's.  Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Book a room and tables for your ' Surprise ' Birthday party while there's still time by e-mailing
PWMS@peoplewithms.com

 

 
FAMOUS PEOPLE WITH MS PAGE   

We're making up a new Famous People Page and we need your input . . . .

So far, we have some semi-famous people.  Not really a lot, and not really terrifically famous.  Kind of a sad excuse for a list.  You're sure to know the name of one or more people that are way more famous.  Send us the name of any well known person with MS, and perhaps a one liner about them: PWMS@PeopleWithMS.com

 CLICK HEREFAMOUS  


Chat Etiquette Reminder

Please make a point to welcome any new chatter that comes in our room. Introduce yourself.  Ask if there is anything special they want to ask about, know about.  Don't ignore the new chatter.  Offer them coffee and a muffin.  Make them feel at home.  Don't keep chattering about peripheral MS stuff with others, or off-topic stuff.

Just keep in mind the one rule we have:  nobody gets to play Doctor in chat.  What we mean by that is;  don't go diagnosing chatters ailments or recommending medications.  Share your experiences, and what any of the drugs have done for you.  Don't encourage the idea that any medication is a miracle cure. Or dismiss any, or all, medicines as doing nothing.   Even the well known medications have a wide range of effectiveness.  The effectiveness of non-traditional and alternative medicines is even less certain.  So talk about your experiences, factual studies and medical trials.  Offer your opinions with care, and never recommend.  Third hand medical testimonials from a friend of your auto mechanic's wife aren't welcome, unless they are really funny.

Also keep in mind that Laws and Health Care options also vary widely both within countries and across the globe.  So be sensitive to the personal situations and tribulations chatters face.  Don't rub in how great things are for you. 

Between the laughs, a serious note:  We are a support chat. With that said, we can only help by listening; none of us are professionals. In our years of chatting with MSers online, one of the most common problems is depression.  This is a very serious problem. We do feel sometimes just being a good friend, listening, and kidding around can help. And sometimes is just the right thing to turn the a bad mood around.  But when things just don't appear to be getting any better in a reasonable amount of time, and chat is just a temporary fix, it is time to get professional help. Many times it's as simple as a medication change.  Or something else.

I have not told many, but when my daughter was dx'd 12 years ago, I had to learn as much as I could. I wanted to know what is the worst case scenario, and what is the best with MS.  What courses could it take? How likely one versus the other? I wanted no more surprises.  Having my one and only daughter dx'd with MS was enough of a surprise. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat. I went to Gaylord Rehab for a very long seminar on MS. It was the mental problems that really got most in a lot of troubles, because they were not ever taken seriously. I have seen this many times in my years online.  If you see someone in chat that seems headed down this road, try to cheer them up, focus on the positive, and give them some suggestions. If they come back just as bad off, try again.  If they keep coming back, let them know that they might be in need of some support beyond what any of us can provide in chat.

So, About Our Chat:  We try to maintain a positive, upbeat attitude.  We may have MS, but MS doesn't have us.  It's not the focal point of our existance, it's just one part.  So if there's a problem, no need to moan and groan - it just needs solving.  Go over it, around it, blow it up, or joke about it.  We won't ignore somebody's problem because it's gross, unseemly, or offends somebody else's sensibilities.  We'll help figure out a solution.  If somebody want's to wallow in their problem, we're not going to be too sympathetic.  

Don't feel bad if you visit our chat and don't like things:  The folks in it, what's talked about, the limited avatars and emoticons, the sounds, or anything else.  We don't have room for every MSer in the universe, and don't claim to cater to every taste.  If you want something different,  we encourage you to search out another chat room.  There are chats for those that want to wallow in pity, moan and groan. sing songs on a voice chats, fantasy-date, or do whatever comes after that on webcam chats. If you don't find what you need, or think you can do better, we encourage you to go buy your own webserver, start your own website, and run your own chat to cater to that unmet need.  Please let us know about your site and chat, so we can direct any like-minded folks your way.

Chat Coordinator!

Norma is coordinating all chats.  Please contact her for any changes. All you have to do is look at the schedule for and find a place that fits  when hosting is good for you.  If somebody is already hosting then, pop in to support them, and let them know you'll back-up, or buddy host with them.  Just let her know what you choose! Norma's email is NORMAJJOHNSTON@SBCGLOBAL.NET 

Or contact us at PWMS@PeopleWithMS.com  if you'd like to host on a regular basis.


Chat Hosting Schedule                                                                                                      

The Global Chat Schedule was comprehensive, but confusing. . . . . So it has been revised to break things down by day, and show the equivalent times in different time zones.  Hopefully this will make it a bit clearer how an Eastern Standard Time relates to your personal timezone or country.    

Reading the schedule is easy: Just click on the day of the week to jump down.  and then look down from your local time zone on top to the time you are interested in => bold times are when hosts have volunteered to be present.  

Knowing someone is available to provide support at dependable, specific local times makes a chat more successful.  

Please, if you go in chat and a host does not answer you right away, please wait,  Our hosts do a 2 hours stretch and need bathroom time and coffee time.  So if they're away right at the sec you arrive, be patient, they will come back.

Click Here to jump to the full Chat Schedule Page  
It is always the final word on who's hosting, when ! 

North America

http://PeopleWithMS.com/images/   

UK

 

Down Under

Pacific

Mountain Central Eastern London Western Central Eastern
DST DST DST DST DST      

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, Marlene, Debby, MS_Kitty,  JackIL,  Eddie, Sae What and Wayne room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 


Click Here 

to enterClick Here to go to Chat

our new chat

Click Here

Click Here to go to Chat !to enter 

our new chat


(click on the logo)

Breaking News

The PeopleWithMS NewsWire is now being updated on a daily basis.  But needs your help to spot all the latest from around the globe!  A big part of posting the news is finding actual, relevant news articles.  From the sources, not TV stations or self-promoting commercial product sites.  So if you see something, send the hyperlink and maybe a brief description to:

  NewsWire@PeopleWithMS.com

Chat access technical help!

The AddOnChat folks have made some substantial improvements in their support, knowledgebase, and help pages covering chat access and usage.  We'll be making some major updates to reflect this on our chat access help pages, as well as the Big Blue Button help in chat, and the macros.  Keep your eyes peeled. 

 

If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

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Send us a request;  PWMS@PeopleWithMS.com

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