PeopleWithMS.com Newsletter

October 7, 2006

PWMS chat ! - Update

Its been quiet in chat! Come join us. It's getting cooler here now so Red and I will be in chat more. If anyone has ideas as to how we can make chat more enjoyable, please share them with us. We share any new MS news that anyone has discovered in chat. We also share personal experiences on our M.S. challenges. Sometimes BIG challenges.  We can't forget that everyone in our chat needs to vent at one point or another. Listening is the best thing you can do for a friend. So be patient, supportive, and stay out of the ballistic trajectory.


PWMS Welcomes . . .

Any chatters touched by M.S. What this means is anyone with M.S., a family member of anyone with M.S., or simply a friend who wants to understand M.S. 


Click Here 

to enter Click Here to go to Discussion Board

our new chat

Click Here

Click Here to go to Discussion Boardto enter 

our new chat


PWMS & MS Bunch working together :) 

MS Bunch has a great new message board! We would like to join together with them and use their message board. They are sending their members over to our chat. Let's team up and make use of both web sites. Some of us work, some of us just don't have enough energy to keep up with it all alone. We have noticed that when MSERs  team up and work together on web sites, a message board, and chat that updated information flows more freely. 


Vitamin B3 May Help MS 

Vitamin B3 Protects Brain Cells -- Even in Late-Stage Multiple Sclerosis

While these results are just from mouse studies, they are encouraging.  Better yet, B-3 is something people are already taking as a regular old vitamin.  So there's a good track record; it's not some scary new chemical nobody has ever heard of. (more)

Early Results Promising for Oral MS Drug Fingolimod (FTY720)

Sept. 13, 2006 -- Patients with relapsing multiple sclerosis responded well to the experimental drug fingolimod, giving new hope for an oral MS drug, new research shows. 

The findings are published in the latest New England Journal of Medicine.

If the drug is shown to be both effective and safe in larger and longer studies, it could soon offer MS patients something they have not had in the past -- an effective treatment that is taken in pill form, instead of by injection or infusion.  (more)


OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Jeff, Rod and JackIL has room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 

Please help us remember to ask all chatters to sign the guest book.  It's our only way of sending them our  news letter.


Chat Hosting Schedule

We have no hosting schedule right now. Chat is always open and Guests are always welcome. Someone is in chat from 8 EST on. Feel free to drop in and join us. If you have any ideas please share them.  

If you come in and one of chatters is there, say Hi ! Please wait, they could be away for many reasons. Like getting coffee. Please be patient, they do return.

If you have any interest in hosting please contact us at PWMS@PeopleWithMS.com 


Montel Williams is promoting the new prescription program " Partnership for Prescription Assistance " :  https://www.pparx.org/

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs


New Stories and Pictures

 

 
Rod 

 We still need your story :(

 

This could be you !

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.


Recipes    

Check out all of the recipes on our web site. that chatters have shared with us    

Click here  

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 


Want to receive our Newsletter ?

Visit our site and sign our Guestbook, including your e-mail.  Or send us a request;  PWMS@PeopleWithMS.com


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