PWMS chat ! - Update
PWMS would like to welcome Norma, Kelly Kat, and Mikee. It was a great week in chat. Red and I are very lucky - we do have the best in chatters :) More about KellyKat and Mikee in our Stories & Pictures section below
Holidays are around the corner. Make it simple and enjoy!
And everybody give KellyKat a big cheer as she prepares for the LSAT (Law School Admission Test) on December 2. This is the big one for her.
|Just to let you know. . . .
Rod hasn't been getting into trouble . . . .
He's got an angel on his shoulder.
|In case you didn't catch it in last week's Newsletter, Norma
was recently married.
Check out her Story and Picture Pagefor more photos.
Stories and Pictures
|I was dx'd with R.R. MS in 1998 after experiencing optical neuritis and many doctors appointments in a very short time. I grew up in Florida, but a few months after I was dx'd, I moved to Georgia in order to attend college. Two years after my dx, my mother was dx'd; she is still in Florida with my younger brother and sister. I am still residing in Georgia while I study and prepare to apply to law school. As for treatments, I am now on Tysabri; prior to Tysabri, I was taking Avonex and steroids on a regular basis. I was briefly on chemotherapy which did stabilize me. I am currently living in Atlanta where I would like to attend law school, so keep your fingers crossed! (more )|
|I'm Mike, 46, diagnosed in 1991 with so called benign MS. since then, many nuerologists have stated that i have RR, and secondary progressive, and back. In 2000 was told by Oxford university professor that he wouldn't expect me to live for another 12 months, as my MS was so rampant. Since then, I've come off all medication under my own fruition, and have successfully completed the Detroit Metro MS150 bike tour on two occasions (except it was 186 miles in 2 days). I'm planning on going back to work after a long gap, so fingers crossed. (more )|
Your name, story, and photo in the spotlight, right here in our newsletter. Just send it along to: PWMS@PeopleWithMS.com
We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.
PWMS Welcomes . . .
Any chatters touched by M.S. What this means is anyone with M.S., a family member of anyone with M.S., or simply a friend who wants to understand M.S. Vanessa, one of our newer chatters, has battled with different MS meds for many years. She has not found any that had any positive effects without leaving her with some very bad reactions. LDN has helped a lot with her symptoms. Vanessa is in chat mostly every night with us. I am sure she would share with anyone who has any interest in LDN. We have chatters who are on Avonex, Beta, Rebif, Copaxone, Tysabri. If you have any questions on any of these drugs ask away. Keep in mind everyone is different. Different drugs affect everyone differently. It is very frustrating to all of us but that's the way it is.
Chat Connections Room
Chat is always open. and guests are always welcome. But they're never there when you log in ! The Chat Connections Room is intended to solve that problem. It helps hook up people who want to chat, at whatever hour. . .
When you come into the main chat room and nobody is there, double click on the Chat Connections Room listed on the right side to pop in. The last 10 messages are displayed. Check to see if anybody else has recently popped in, looking to chat, and left a message. Something like:
Nov 8 9:09 AM [CHUCK] I'M OFF WORK TODAY & HERE NOW .... GONNA HANG AROUND ON 'AWAY' IN THE MAIN ROOM FOR A BIT JUST IN CASE SOMEONE COMES IN. I'LL CHECK BACK HERE BY 10:00. SO LEAVE A ' TAG ' MESSAGES IF YOU'D LIKE TO JOIN ME THIS MORNING.
Chat Hosting Schedule
We have no hosting schedule right now. Chat is always open, so feel free to drop in with some friends. If you have any interest in hosting please contact us at PWMS@PeopleWithMS.com
PWMS & MS Bunch working together :)
MS Bunch has a great new message board! We would like to join together with them and use their message board. They are sending their members over to our chat. Let's team up and make use of both web sites. Some of us work, some of us just don't have enough energy to keep up with it all alone. We have noticed that when MSERs team up and work together on web sites, a message board, and chat that updated information flows more freely.
Our objective is to provide an informal, supportive site for people seeking on-line information about Multiple Sclerosis. We aren't doctors, we aren't experts. We just live it everyday. We formed this site to share what we have learned, provide a focal point for exchange of information, and give back to the community.
Support is a very big word when it comes to MS. Doctors can only tell you so much during an office visit. Leaving unanswered questions, concerns and issues. People with any disease can often learn best from each other. To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information.
There are many informative sites out there. Visit them all! You can never have enough information. We do not intend to compete with any other sites. Like coffee shops, each has it's own unique atmosphere and clientele. There can never be enough of them.
Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others.
We have appointed Jeff and JackIL room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help.
Please help us remember to ask all chatters to sign the guest book. It's our only way of sending them our news letter.
Questions To Ask Your Doctor About Influenza
Are there risks in getting the vaccination?
Are there any symptoms that a doctor should be notified about?
What are the chances of developing a secondary infection?
Should I take amantadine or rimanadine?
Visit HealthCentral for the full scoop
Check out this web site to learn more and find out if the flu is in your area:
FDA Expands Approval of Betaseron® to Include Those at High Risk for Developing MS
(October 23, 2006) Berlex, Inc. (the U.S. affiliate of Schering AG) announced today that the U.S. Food and Drug Administration (FDA) has approved expanding the indication of Betaseron® (interferon beta-1b, Berlex, Inc.) to include patients at high risk for MS. These are individuals who have experienced a clinically isolated syndrome (a single clinical event that is indicative of demyelination, such as inflammation of the optic nerve or an episode of numbness on one side) and have MRI (magnetic resonance imaging) features consistent with MS.
This is the second treatment approved for treatment of people at high risk for MS. In 2003, the FDA expanded the labeling of Avonex® (interferon beta-1a, Biogen Idec, Inc.) to include this indication. Avonex is given once a week via intramuscular (into the muscle, 30 mcg) injection, and Betaseron is given every other day subcutaneously (under the skin, 250 mcg).
GENEVA, Switzerland, September 21 /PRNewswire-FirstCall/ -- Serono (virt-x: SEO and NYSE: SRA) announced today that oral cladribine has been designated a Fast Track product by the US Food and Drug Administration (FDA). This designation covers patients with relapsing forms of multiple sclerosis.
Serono's proprietary oral formulation of cladribine for the treatment of multiple sclerosis is currently being evaluated in a multi-center, multi-national Phase III study, CLARITY (CLAdRIbine Tablets Treating MS OrallY) . It is a two-year, double-blind, placebo-controlled study involving over 1,200 patients. Patient enrollment into this pivotal trial is planned to be completed by the end of 2006.
. . . . .
Fast Track programs are designed to facilitate the development and expedite the review of new drugs that are intended to treat serious or life-threatening conditions and that demonstrate the potential to address unmet medical needs. Under Fast Track designation oral cladribine is eligible for Priority Review and FDA may consider for review portions of the marketing application before the New Drug Application (NDA) is completed.
Montel Williams is promoting the new prescription program " Partnership for Prescription Assistance " : https://www.pparx.org/
call 1-888-477-2669 / 1-888-4PPA-NOW
There are over 150 different programs that can help you get your meds for free, or at a low cost. Check it out ! ! !
We also have some links up on our web site that may help. Check it outPatient Assistance Programs
Check out all of the recipes on our web site. that chatters have shared with us
Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com
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