PeopleWithMS.com Newsletter

November 27, 2004

 

 

What's new in chat ?

Chat is always fun! We have the best people online. Red and I can't wait till our Fall 2005 get together. It was a MS news week as we all found out Antegren aka Tysabri was FDA approved. Here is some official information Jeff shared with us from the very new site for this very new medication http://www.tysabri.com/ 

Dreamcicle shared this link from the National Multiple Sclerosis Society with us on Antegren aka Tysabri.  The link is to a PDF document, so you will need the Adobe Reader. 

In addition, JackIL received some really encouraging news from a Doctor friend about the encouraging results of using embryonic stem cells to stimulate the regrowth of myelin.  (The stuff MS eats away.)  Of course, these are the bad stem cells harvested by evil doctors from unborn, unwanted fetuses.  A practice which our President is morally opposes.  Nevertheless, it's news to the rest of the world, and you can read the press release.

Doctor Red has done all surgery on Muff's computer. At last its done. Red will ups it back to her Monday. So she will be back online soon.

Susan is now on IV Solumedrol, which works very well for many MS'ers.  Seems to be speeding her recovery.

Steve NL is doing much better. I must say he will think before eating corn flakes with milk and warm water and telling us. 

We want to welcome Share back! 

We had a new chatter, Arlette. Welcome! Come back soon. 

Please help us remember to ask all chatters to sign the guest book, its our only way of sending out weekly news letter. 

PWMS wants to offer our condolences to Dreamcicle; she lost her dog his week. Almost all of us chatters can relate to what that's like.

We need pictures and stories of our new chatters. It helps new MSer's  see that they can do it also. It helps to know your not alone. So please help others - we need picture's and stories. They can be emailed to PWMS@peoplewithms.com .

How to become a RA? Simply host and get a room going with enough chatters. Then you may need the extra capabilities of an RA. Our RA's use their judgment  as to what seems appropriate. So the wildly funny comments of one night, may not be as funny the next night when different chatters are present. Keep in mind who is in the room; respect others sensibility and feelings. We try to update our hosting schedule as fast as we get any changes. Check hosting schedule.click here 

If anyone has any ideas on hosting daily or nightly Topic chats please contact us at PWMS@PeopleWithMS.com 


Chat fun !

Host a Party !

We need someone to keep track of our chatters Birthday's!

Get involved ! 

If anyone wants to host a chat party, we provide the room, we clean up! We will send out invitations. We all have birthdays, some have anniversary's. Help make a friend feel very important. We are all important in chat! Throw a surprise party for a chat buddy. Thank your best friend for being there for you! He or she deserves a party!

Spreading
Christmas
Cheer !

Spreading Christmas cheer!

Steve NL  had the great idea that exchanging Christmas cards would be a very nice way of spreading cheer! What you can do is email us your address, We will make a list and will only share it with our active chatters,  if you don't mind others having it, We will pass it on. When we get them all back we will forward them to you.  Email your address to PWMS@peoplewithms.com   We have started a list already. Please don't be Scrooge!

We have emailed our list out. I am happy to say it was a great idea Steve. If anyone wants to add there name and address we can. This is the last week you can add your name.  


Chat Hosting Schedule

Our revised schedule can be always be found via the schedule link on the chat login page. 

We will keep it updated as soon as we get any change's. Hosting Schedule !

Keep in mind our chat is always open. Guests are welcome anytime of day or night. 

If you come in and one of our chatters is there, say Hi ! If it says AFK next to their name this means they are away from their keyboard. Please wait, they could be away for many reasons. Like getting coffee. Please be patient, they do return as soon as possible.  

If you have any interest in hosting please contact us at  PWMS@PeopleWithMS.com 

Preface . . . 

"WE GO TO THESE ROOMS TO HELP THOSE THAT NEED IT AND TO FORGET OUR OWN TROUBLES.  IT IS NOT A REFERENDUM FOR POLITICAL, RELIGIOUS, OR MEDICAL DEBATE. HAVE AN OPEN MIND...WHAT WORKS FOR YOU MAY NOT FOR ANOTHER." copyright 2004 JLS (JEFFS)


PeopleWithMS contest!

This contest will have a cane of your choice from:

StumblinStyle's Ebay Store   

We thank Bette for coming up with this idea for our contest!

Now that the holidays are fast approaching, how about asking " How do you handle the Holidays?" or "What do you do for the Holidays? Are you on the sidelines?" It can written with a funny tone or regular tone. What ever the person feels at the time.

The start date is now! We will announced the winner in our newsletter December 18th  2004.

All you have to do is email us your entry here  PWMS@PeopleWithMS.com

Bette submitted our first entry. click here Bette's Contest Entry


New Stories and Pictures

SandraUK

 

My name is Sandra Emery known as UK Sandy x x, i am 48 years old but i assure you i am very young at heart I am married to Philip been married for 23 years now wow a long time ah l I have RR MS wonderful thing ah. well lived with MS for 23 years now i quess it is part of me part of who i am and i think we live together as well as we can although i would rather live with out this MS as i presume u all would who have it (more )
 This

Could

Be 

You

Your name, story, and photo in the spotlight, right here in our weekly newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the Every day life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. Stories and Picture's  


Baggie Boy's experience with the Hyperbaric Chamber 

Dear Chatters 

This is a photo of the hyper baric chamber were I ( Baggie Boy ) and UK Sandy go for treatment for MS you sit in the air tight chamber and breath pure oxygen ( look's spooky but I assure you it isn't ) any way they say breathing pure oxygen knits muscle damage, Don't know if its true but i would not like to find out by stopping the treatment to find out.

The treatment last's for one hour and you just sit and read or listen to the radio and just chill out while you having the treatment then when we come out of the chamber we all sit and natter over tea/coffee, the centre we go to is near to Wolferhampton City centre in the UK, I like to attend the MS centre for the social aspect of it and its some were you go and you don't have to try and hide your disability because every one's been there or done it and got the T shirt.

So those of you who ever get the chance to go into a hyper baric chamber go and give it ago its worth a try ( because its only like an alternative medicine ) so any thing's worth ago if it helps. Let us know if you do 


( Baggie Boy )


Recipes

We're starting Recipes again,  If you have a favorite recipe you'd like to share, e-mail us;  PWMS@PeopleWithMS.com 


Chicken in Tomato and Basil Sauce

2 tbsp olive oil
1/2 tsp salt
1 large onion, finely chopped
1 clove garlic
1 can Italian stewed tomatoes
1/4 cup each fresh chopped basil and sliced black olives
4 chicken breasts
1/4 tsp pepper

Heat oil in large skillet. Sprinkle cutlets with salt and pepper. Brown in skillet and remove. Cook onion in skillet 3 minutes, then add garlic and tomatoes. Cover and cook 10 minutes, stirring occasionally. Stir in basil and olives and return meat to skillet. Cover and cook about 5 minutes more, or until meat is cooked through.

Thank you Lesley!


Key Lime Pie 


INGREDIENTS
2 cups graham cracker crumbs
1/4 cup sugar
1/2 cup butter or margarine, melted
3 (8-ounce) packages cream cheese, softened
1 1/4 cups sugar
3 large eggs
1 (8-ounce) container sour cream
1 1/2 teaspoons grated lime rind
1/2 cup Key lime juice
Garnishes: strawberry halves, lime slices, lime zest


INSTRUCTIONS
Stir together first 3 ingredients, and firmly press on bottom and 1 inch up sides of a greased 9-inch spring form pan.

Bake at 350 for 8 minutes; cool.

Beat cream cheese at medium speed with an electric mixer until fluffy; gradually add 11/4 cups sugar, beating until blended. Add eggs, 1 at a time, beating well after each addition. Stir in sour cream, rind, and juice. Pour batter into crust.

Bake at 325 for 1 hour and 5 minutes; turn oven off. Partially open oven door; let stand in oven 15 minutes. Remove from oven, and immediately run a knife around edge of pan, releasing sides.

Cool completely in pan on a wire rack; cover and chill 8 hours. Garnish, if desired, and serve with Strawberry Sauce.

Thank you Lesley

All of the recipes are served on our web site! Check for more here. click here 


New Link Sightings Latest Links 

News Sightings   Always check out the News Page for the latest, breaking news.

Every week we add new link sightings which may be of interest, as reported by our visitors.  This will highlight new links you may want to investigate, before they disappear into the obscurity of some huge link listing.  If you come across any site which you think may be of interest, please e-mail us PWMS@PeopleWithMS.com with the site address and a brief description of what you found interesting on the site.  We'll include it in the next Newsletter.


New on the Website

Message Board: We are slowly working on a message board. Crystal's Husband Daver has given us hope and help! This will give us a forum for discussion of MS topics. And fun stuff too. It really will come it's much more detailed them we expected ! There is so much time in a day.

*** We Need Your Help * * *

Helping Chatters Get Into Chat

People continue to have difficulties getting into Dreamchat.  Tell us in detail what you have to do to a firewall, anti-virus program, or Pop-Up blocker program in order to get in.  If you had to upgrade your Windows or Internet Explorer Service Pack, tell us from what, to what.  We will start a page devoted to all the different problems people have had, and how they have overcome them, as a resource page for new chatters.

*** One major trouble people have been running into recently is with their Internet Security & Firewall Programs.  Holding down the CONTROL key while entering seems to cure the problem.  So give it a whirl if you get stuck at the log-in page. *** 

DreamChat Trivia (repeated by popular demand)

  • New to Dreamchat and wondering how to make those neat little smileys and pictures in the text? Easy, here's the Cheat Sheet:

:) Smile   :* Kiss
:( Sad >-- Rose
;) Wink <love> Love
;} Wry <strobe> Strobe
:p Tongue <nuke> Nuke
:o Gasp <boom> Boom
:# Mad <star> Star
  • How do I copy and paste something?  Mark it as you usually would with the mouse.  Then use CTRL-C to copy it, and CTRL-v to paste it in the message window.

  • I'm a member.  I uploaded my avatar, and nothing happened.  What's up with that?  Even if your avatar is the specified 50 * 50 pixels, and no bigger than 15KB, there is no confirmation.  Apparently because DreamChat personnel review all permanent member's avatars to make sure they are acceptable.  (Whatever that means.)  If they are, they send back an approval in a day or so, and the next time you sign in, "poof" your new avatar appears.


Crystal's Corner 

 Crystal is back! We are waiting for more of Crystal's Corner!


Want to receive our Newsletter each week ?

Visit our site and sign our Guestbook, including your e-mail.  Or send us a request;  PWMS@PeopleWithMS.com

News Letter Archive

Missed something from an old Newsletter?  Find it here !

11-27-04
11-20-04 11-13-04 11-06-04 10-30-04
10-23-04 10-09-04 8-29-04 8-1-04
7-9-04 7-2-04 6-26-04 6-11-04
5-31-04 5-21-04 5-15-04 5-7-04
5-1-04 4-23-04 4-16-04 4-10-04
4-2-04 3-27-04 3-20-04 3-13-04
3-6-04 2-28-04 2-21-04 2-14-04
2-07-04 1-31-04 1-24-04 1-17-04

StumblinStyle.com - Handpainted and Customized Canes

©copyright 2004 PeopleWithMS.com