PeopleWithMS.com Newsletter


December 16, 2006

Merry ChristmasMerry Christmas

 PWMS chat ! - Update

PWMS   Welcomes MSers from all over

Nancy

MY STORY BEGAN AS A CHILD IN GRADE SCHOOL... I HAD A LOT OF UTI's (URINARY TRACT INFECTION) AND HAD SLEEP DISORDERS TOO. I HAD SOME CHILDHOOD TRAUMA AS WELL, BUT THAT'S ANOTHER STORY. AS A RESULT, I WAS PUT INTO FOSTER CARE AT THE AGE 11.

BY THE TIME I WAS IN HIGH SCHOOL I WAS ON THE TRACK TEAM AND IN GYMNASTIC SQUAD. I NOTICED I WAS HAVING PROBLEMS WITH MY BALANCE. (EVEN THOUGH I WAS INTO SMOKING A LOT OF POT; I STILL DID ALL OF THIS) I ALSO NOTICED A LOSS OF VISION AT TIMES. I WENT COMPLETELY BLIND ONE TIME. (TEMPORARILY) (more ) 

Crystal

Hi,  My name is Crystal. I have had MS since 1987. I was married for 20 years and I am now divorced. I have 2 girls and 2 grand kids. I live in Kansas but I am originally from LA. I go by BoardWalkAngel in chat. My friends call me Angel.  I love to collect angels (fiberotic is my favorite), cats, unicorns, and other mystical creatures and animals. I try to go by this moto: What not kills us makes us stronger. (More )
MAGS06 Mags06 is a 53 year old North Carolina transplant, brought up in Northwest London.  She likes to ride, and got an Arabian Mare a couple of years ago as therapy.  We can't wait for the Story and Pictures.  
Catrinky

Is still broken and in pain from a horseback riding accident.  But in good enough shape to return to the PeopleWithMS Chat Therapy Program.

Please stop by the MSSurvivor MSNsite to see what Ladycove and Jeffs have been up to.  It is an informative and fun place to visit.  While you are there, sign up as a member.  It's easy !   

Please feel free to give us some ideas for chat. Hey, you can even take charge!  Do your own weekly, or whenever, chat. Just invite your friends in, have a party.  We have many rooms you can have your chat in your own room. 0

 If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

PWMS Welcomes . . . 

Any chatters touched by M.S. What this means is anyone with M.S., a family member of anyone with M.S., or simply a friend who wants to understand M.S. 

And please, anytime you come in chat and the conversation is not MS related, just pipe up with your MS question, issue, or problem.  MS is our # 1 topic in chat. Most everything else is just background information on what and how people are doing, etc.  

We have chatters who are on Avonex, Beta, Rebif, Copaxone, and Tysabri. And myriad other medicines to address various symptoms.  So if you have any questions on any of these drugs ask away. Keep in mind everyone is different. Different drugs affect everyone differently. It is very frustrating to all of us but that's the way it is. 

LDN - Vanessa, one of our newer chatters, has battled with different MS meds for many years. She has not found any that had any positive effects without leaving her with some very bad reactions.  LDN has helped a lot with her symptoms. Vanessa is in chat mostly every night with us. I am sure she would share with anyone who has any interest in LDN.  Vanesr flagged this interesting British site, which certainly seems worth a look.

Merry Christmas Bar

Click Here 

to enter Click Here to go to Discussion Board

our new chat

Click Here

Click Here to go to Discussion Boardto enter 

our new chat


Chat Connections Room 

Chat Sound Alert

It's really no surprise to land in an empty chat room -there are 24 hours in the day.  And it is also guaranteed that 5 minutes after you leave, someone else will pop in.  

Here's something you can do if you have speakers and are moderately familiar with Windows.  When you log into chat and discover no one to share your morning coffee with, don't give up !  Turn up the sound on your computer and stay logged in.  When someone else comes in, the ' Welcome ' sound will play.

(Pick an audicon 'soundie' off the "Music Note button' list to see if it's loud enough.)   

If you want to go do something else in Windows, MINIMIZE the chat window with a double click on the little underline box in the top right of the window.  You will still see the window listed on the start bar ('Tray').  When somebody comes in, click that window to open it again.

If People start using this, and find that the ' Welcome ' sound is an inadequate alert, give us an idea what might work better.

Click Here to go to Discussion Board " Tag . . . You're It ! ! ! "  Click Here to go to Discussion Board

Chat is always open. and guests are always welcome.  But they're never there when you log in !   The Chat Connections Room is intended to solve that problem.  It helps hook up people who want to chat, at whatever hour. . . 

When you come into the main chat room and nobody is there, double click on the Chat Connections Room listed in the column on the right side.  That will pop you into the room.  The last 10 messages from visitors are displayed.  Check to see if anybody else has recently popped in, looking to chat, and left a message.  Something like:

Nov 8 9:09 AM [CHUCK] I'M OFF WORK TODAY & HERE NOW .... GONNA HANG AROUND ON 'AWAY' IN THE MAIN ROOM FOR A BIT JUST IN CASE SOMEONE COMES IN.   I'LL CHECK BACK HERE BY 10:00.  SO LEAVE A ' TAG ' MESSAGES IF YOU'D LIKE TO JOIN ME THIS MORNING.

Nov 8 9:43 AM [JILL} TYPED YOUR NAME IN THE MAIN ROOM TO BEEP YOU.  NOBODY HOME, HA HA !  WILL BE BACK AT 10:00

 

 

Merry Christmas Bar

This Week's Chat Star 

JackIL

My name is Jack Halley and I live north of Chicago and have R-R MS. Back at the outset I didn't have too many symptoms but ended up taking ACTH from an infusion pump in the hospital for a week or so once a year at the beginning. Later on when Solumedrol came became the med of choice, went in and received it IV at the hospital. Since starting Avonex I haven't had an exacerbation since 5/1/98. My 34 year old lovely and energetic wife that I was with for 15 years and married for ten passed away and left a void in my life. I try to not think about it and just move forward as we all have to do with MS. I workout with weights still and stay busy so not much time for reflection. Some personal notes............ I was a captain in the Army, have 6 years of college, Scuba diver, Private pilots license etc. Just to give a look into my private life......Hugs to all and pray for a cure (more)


Chat Hosting Schedule

The schedule below shows the schedule of a group of regular chatters who are volunteering a couple of hours of their time to host chat on a regular basis.  This makes a chat more successful; people knowing there is someone available to provide support at dependable, specific times.  

Day Chat Host London
LST
Eastern
EST
Central
CST
Mountain
MST
Pacific
PST
Monday Deb & MrRED 1 - 3 am  8 - 10 pm   7 -9 pm  6 -8 pm 5 - 7 pm
Tuesday Norma & Rich (Pegasus)  4 -6 pm    11 am - 1 pm  10  - NOON    9 - 11 am    8 - 10 am
Tuesday Deb & MrRED 1 - 3 am  8 - 10 pm   7 -9 pm  6 -8 pm 5 - 7 pm
Wednesday Deb & MrRED 1 - 3 am  8 - 10 pm   7 -9 pm  6 -8 pm 5 - 7 pm
Thursday Marlene (aka LadyCove) & Nancy  4 -6 pm    11 am - 1 pm  10  - NOON    9 - 11 am    8 - 10 am
Thursday Deb & MrRED 1 - 3 am  8 - 10 pm   7 -9 pm  6 -8 pm 5 - 7 pm
Friday Norma & Rod 1 - 3 am  8 - 10 pm   7 -9 pm  6 -8 pm 5 - 7 pm
Saturday Deb & MrRED 1 - 3 am  8 - 10 pm   7 -9 pm  6 -8 pm 5 - 7 pm
Sunday Deb & MrRED 1 - 3 am  8 - 10 pm   7 -9 pm  6 -8 pm 5 - 7 pm

Note to New Visitors:  

When a scheduled host is logged in, say Hi and hang around a couple of minutes if the room isn't busy -> they're probably just grabbing a cup of coffee or reading e-mail in another window.  

When nobody is scheduled to host, take a look on the right side for any other names.  If so, say ' Hi' and type their name just as you see it => that'll 'beep ' on their speakers.  

Check the 'Connections' Room to see if anyone has stopped by, left a message, and is coming back soon.

Contact us at PWMS@PeopleWithMS.com if you;d like to host on a regular basis. 

Merry Christmas Bar

PWMS & MS Survivors working together :) 

MS Survivors has a great new message board, and a whole lot more ! JeffS and LadyCove are working hard to add all sorts of neat features.  We are joining together with them to use their message board and some of those other neat-o MSN facilities. They are sending their members over to our site and chat. So we're teaming up to make the best use of both the web and MSN Group sites. Some of us work, some of us just don't have enough energy to keep up with it all alone. We have noticed that when MSERs  team up and work together on web sites, a message board, and chat that updated information flows more freely. 

 

Merry Christmas Bar

Stories and Pictures

This Could Be You !

This could be you !

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.

Merry Christmas Bar

Recipes    

Deb's World Famous Chicken

6 chicken breasts (I use legs also)
1 cup fine bread crumbs (I use Italian flavored)
1 teasp. salt
1/4 teasp. pepper
1/2 cup orange juice
1/2 cup chicken broth
1/4 cup butter
1/2 cup honey

Combine bread crumbs, salt and pepper. Dip chicken in orange juice, roll in bread crumbs.
Place in greased shallow pan. Bake at 350 for 30 minutes.
Combine remaining ingredients and heat until butter is melted.
Pour over chicken. Continue baking 30 minutes basting occasionally.


MrRED's Infamous Christmas Cookie Recipe

1 cup of water
1 tsp baking soda
1 cup of sugar
1 tsp salt
1 cup of brown sugar
lemon juice
4 large eggs
1 cup nuts
2 cups of dried fruit
1 bottle Crown Royal

Sample the Crown Royal to check quality.
Take a large bowl, check the Crown Royal again, to be sure it is of the highest quality, pour one level cup and drink.
Turn on the electric mixer...Beat one cup of butter in a large fluffy bowl.
Add one teaspoon of sugar...Beat again.
At this point it's best to make sure the Crown Royal is still OK, try another cup.. just in case.
Turn off the mixer thingy.
Break 2 leggs and add to the bowl and chuck in the cup of dried fruit.
Pick the frigging fruit off floor...
Mix on the turner.
If the fried druit gets stuck in the beaterers just pry it loose with a dewscriver.
Sample the Crown Royal to check for tonsisticity.
Next, sift two cups of salt, or something.... who giveshz a sheet.
Check the Crown Royal.
Now shift the lemon juice and strain your nuts.
Add one table.
Add a spoon of ar, or somefink.... whatever you can find.
Greash the oven.
Turn the cake tin 360 degrees and try not to fall over.
Don't forget to beat off the turner.
Finally, throw the bowl through the window.
Finish the bottle of Crown Royal.
Make sure to put the stove in the dishwasher.

Cherry Mistmas


Check out all of the recipes on our web site that chatters have shared with us   

Click here  

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

Merry Christmas Bar

OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, JeffS and JackIL room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 

Please help us remember to ask all chatters to sign the guest book.  It's our only way of sending them our  news letter.

Merry Christmas Bar


Questions To Ask Your Doctor About Influenza

Are there risks in getting the vaccination?

Are there any symptoms that a doctor should be notified about?

What are the chances of developing a secondary infection?

Should I take amantadine or rimanadine?

Visit HealthCentral for the full scoop 


Check out this web site to learn more and find out if the flu is in your area:

fluFacts.com 

 



Merry Christmas Bar

News

Exercise Cuts Fatigue of Lupus, MS

In six studies, patients' fatigue improved to a degree that likely wasn't due to chance.  This week's Chat Star, JackIL, can provide a lot more insights into all the positive benefits to exercise.

Protein Linked to MS Relapse

High Levels in Brain Protect Haywire Immune Cells

Dec. 4, 2006 -- A protein abundant in multiple sclerosis patients during disease flare-ups may be a key culprit in this and other autoimmune diseases.

The protein is called osteopontin. Several years ago, Stanford researcher Lawrence Steinman, MD, and colleagues found abnormally high osteopontin levels in parts of the brain affected by MS flare-ups.

Now Steinman and colleagues find that in three different mouse models of MS, osteopontin causes disease relapse and makes disease symptoms worse.

BMJ Clinical Evidence

Vanesr flagged this interesting British site, which certainly seems worth a look.  Their overview:

"Welcome to the new, enhanced BMJ Clinical Evidence website. Our latest release of features and redesigned user interface have been developed to further support you in quickly accessing the very latest medical knowledge to inform your treatment decisions."

 



Merry Christmas Bar

 

Montel Williams is promoting the new prescription program 

" Partnership for Prescription Assistance " :  

https://www.pparx.org/

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs

Merry Christmas Bar

Want to receive our Newsletter ?

Visit our site and sign our Guestbook, including your e-mail.  Or send us a request;  PWMS@PeopleWithMS.com

If you have trouble reading HTML formatted e-mail, you can always view it as a web page on-line: 

Our Latest Newsletter Click Here to go to Discussion Board

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