PeopleWithMS.com Newsletter


Merry Christmas

December 2, 2006

Merry Christmas

 PWMS chat ! - Update

PWMS   Would like to welcome Ladycove! It has been a pleasure chatting with her. It has been getting busier in chat now. We have gained many new chatters.

BoardWalkAngel is having a birthday on Saturday.  If you see her, wish her the best. 

Please feel free to give us some ideas for chat. Hey, you can even take charge!  Do your own weekly, or whenever, chat. Just invite your friends in, have a party.  We have many rooms you can have your chat in your own room. 

 If anyone has anything they think ought to be added to the weekly news letter, please email me at deb@durgin.net.

PWMS Welcomes . . . 

Any chatters touched by M.S. What this means is anyone with M.S., a family member of anyone with M.S., or simply a friend who wants to understand M.S. 

And please, anytime you come in chat and the conversation is not MS related, just pipe up with your MS question, issue, or problem.  MS is our # 1 topic in chat. Most everything else is just background information on what and how people are doing, etc.  

We have chatters who are on Avonex, Beta, Rebif, Copaxone, and Tysabri. And myriad other medicines to address various symptoms.  So if you have any questions on any of these drugs ask away. Keep in mind everyone is different. Different drugs affect everyone differently. It is very frustrating to all of us but that's the way it is. 

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Chat Connections Room 

Click Here to go to Discussion Board " Tag . . . You're It ! ! ! "  Click Here to go to Discussion Board

Chat is always open. and guests are always welcome.  But they're never there when you log in !   The Chat Connections Room is intended to solve that problem.  It helps hook up people who want to chat, at whatever hour. . . 

When you come into the main chat room and nobody is there, double click on the Chat Connections Room listed in the column on the right side.  That will pop you into the room.  The last 10 messages from visitors are displayed.  Check to see if anybody else has recently popped in, looking to chat, and left a message.  Something like:

Nov 8 9:09 AM [CHUCK] I'M OFF WORK TODAY & HERE NOW .... GONNA HANG AROUND ON 'AWAY' IN THE MAIN ROOM FOR A BIT JUST IN CASE SOMEONE COMES IN.   I'LL CHECK BACK HERE BY 10:00.  SO LEAVE A ' TAG ' MESSAGES IF YOU'D LIKE TO JOIN ME THIS MORNING.

Nov 8 9:43 AM [JILL} TYPED YOUR NAME IN THE MAIN ROOM TO BEEP YOU.  NOBODY HOME, HA HA !  WILL BE BACK AT 10:00

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Chat Hosting Schedule

We have no hosting schedule right now. Chat is always open, so feel free to drop in with some friends.  If you have any interest in hosting please contact us at PWMS@PeopleWithMS.com 

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Click Here 

to enter Click Here to go to Discussion Board

our new chat

Click Here

Click Here to go to Discussion Boardto enter 

our new chat


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PWMS & MS Survivors working together :) 

MS Survivors has a great new message board, and a whole lot more ! JeffS and LadyCove are working hard to add all sorts of neat features.  We are joining together with them to use their message board and some of those other neat-o MSN facilities. They are sending their members over to our site and chat. So we're teaming up to make the best use of both the web and MSN Group sites. Some of us work, some of us just don't have enough energy to keep up with it all alone. We have noticed that when MSERs  team up and work together on web sites, a message board, and chat that updated information flows more freely. 

 

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Stories and Pictures

Rod
 JJ at Sydney's 1st Birthday
 Proud Grandfather Rod snapped this excellent photo at a recent birthday party . . . Click the image for a more detailed view . . . (moreBigger image)
LadyCove

LadyCove


WELL, AS THE STORY GOES... IN DEC. 2004 MY 16 YR OLD DAUGHTER PASSED AWAY VERY SUDDENLY. NEEDLESS TO SAY I WAS DEVASTATED WITH GRIEF. I RETURNED TO WORK 2 WEEKS LATER TO KEEP MY MIND BUSY. AS THE WEEKS PASSED I FELT THAT I WAS GETTING A GRIP ON MY LIFE. THEN IN JUNE OF 2005 I WAS OUT SHOPPING AND ALL OF A SUDDEN MY WHOLE RIGHT SIDE STARTED GOING NUMB. I FELT LIKE I WAS GOING TO PASS OUT, SO I HELD ON TIGHT TO THE BASKET I WAS PUSHING. (more )

This Could Be You !

This could be you !

Your name, story, and photo in the spotlight, right here in our newsletter.  Just send it along to: PWMS@PeopleWithMS.com

People like to read other stories about MS and dealing with the everyday life with MS. Everyone's M.S. is different and everyone's story is different. Get to know the chatters we chat with. 

Stories and Picture's 

We need pictures and stories of our new chatters. It helps new MSer's to see that they can do it also. It helps to know your not alone. So please help others - we need your pictures and stories. They can be emailed to PWMS@peoplewithms.com . Or, anyone who wants to add Pictures or update their story, please do so.

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OUR MISSION

Our objective is to provide an informal, supportive site for people seeking on-line information about  Multiple Sclerosis.  We aren't doctors, we aren't experts.  We just live it everyday.  We formed this site to share what we have learned, provide a focal point for exchange of information,  and give back to the community. 

Support is a very big word when it comes to MS.  Doctors can only tell you so much during an office visit.  Leaving unanswered questions, concerns and issues.  People with any disease can often learn best from each other.  To this end we provide a chat forum to share information and suggestions, posting of the latest news, and links to authoritative sources of information. 

There are many informative sites out there.  Visit them all!  You can never have enough information.  We do not intend to compete with any other sites.  Like coffee shops, each has it's own unique atmosphere and clientele.  There can never be enough of them.  

Our chat is open for anything that has to do with MS. Some topics are not pleasant. But need to be talked about. If you have a problem, no matter what it is, chances are there is someone in chat that can help you. The one thing that PWMS will not accept is being laughed at for any MS problem. We expect all chatters to be considerate of others. 

We have appointed Norma, JeffS and JackIL room administrators. They have been using the chat. They walked through the set up with us. They can help you if you need help. 

Please help us remember to ask all chatters to sign the guest book.  It's our only way of sending them our  news letter.

Merry Christmas Bar


Questions To Ask Your Doctor About Influenza

Are there risks in getting the vaccination?

Are there any symptoms that a doctor should be notified about?

What are the chances of developing a secondary infection?

Should I take amantadine or rimanadine?

Visit HealthCentral for the full scoop 


Check out this web site to learn more and find out if the flu is in your area:

fluFacts.com 

 



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News

MSPatientsForChoice.Org

An interesting new Tysabri oriented site has appeared on the horizon;  MSPatientsForChoice.org  While still in it's early stages of development, there is already enough food for thought for anyone interested in Tysabri or considering it as a therapy option.  Besides the obvious pitch from Biogen Idec & Elan, there's a good deal of coverage of the human element on the site.  Strongly Recommended 

Substance Inhibits Progress Of Multiple Sclerosis In Animal Model
Researchers at SUNY Downstate Medical Center have developed a substance that inhibits the progress of multiple sclerosis (MS) in an animal model. The agent, a novel calpain inhibitor, can be administered orally.

Calpains are a family of proteolytic enzymes naturally found in the human body. Inappropriate activation of calpain is associated with a number of neurodegenerative and autoimmune diseases such as MS. It is known to destroy the myelin sheath that coats and protects the nerves.

In a paper published in the Journal of Neuroimmunology, SUNY Downstate and Maimonides Medical Center researchers described the use of the calpain inhibitor for the treatment of a mouse model of MS. Whether administered by injection or by mouth, the inhibitor produced an almost complete cessation of the disease's progress.

The calpain inhibitor, developed at Downstate, was shown to reduce clinical illness signs and prevent demyelination and inflammatory infiltration in a dose- and time-dependant manner, and holds promise in treating both the acute and chronic phases of MS. The inhibitor may also prove beneficial for treating other degenerative illnesses, such as Alzheimer's, Huntington's and Parkinson's disease.

The research was conducted by Getaw Hassen, MD, PhD, as his doctoral thesis in SUNY Downstate's School of Graduate Studies. Faroozan Mokhtarian, PhD, MPH, associate professor of medicine and of microbiology and immunology at Downstate, developed the mouse model. The inhibitor was developed by Leo Kesner, PhD, professor emeritus of biochemistry, and Alfred Stracher, PhD, distinguished professor of biochemistry.



Merry Christmas Bar

 

Montel Williams is promoting the new prescription program 

" Partnership for Prescription Assistance " :  

https://www.pparx.org/

call 1-888-477-2669  /  1-888-4PPA-NOW

There are over 150 different programs that can help you get your meds for free, or at a low cost.  Check it out ! ! !

We also have some links up on our web site that may help. Check it outPatient Assistance Programs

 

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Recipes    

Granny  BJ provided the following tasty recipe . . . 

Cinnamon Raisin Bread
Preheat oven to 375 F

3 1/2 cups all-purpose flour
1/4 cup plus 1 Tablespoon Sugar DIVIDED
1 teaspoon salt
1 envelope (.25 ounce) active dry yeast

1/2 cup water
1/2 cup milk

1/4 cup (1/2 stick) plus 1 tablespoon butter, softened, DIVIDED

1 large egg
1 tablespoon cinnamon
1/2 raisins

makes 1 loaf

Combine 1- 1/4 cups flour, 1/4 cup sugar, salt, and yeast in a large bowl.
Heat water, milk, and 1/4 cup butter in a medium saucepan over medium heat to 120 degrees F.

Remove from heat. Whisk egg into milk mixture. Stir milk mixture into flour mixture. Beat with an electric mixer on low speed until combined (about 30 seconds). Beat on medium speed 3 minutes longer. Stir in remaining flour until dough forms a ball.

Knead dough on a floured surface until smooth and elastic (6-8 minutes). Place in a large greased bowl. Cover loosely with plastic wrap. Let rise in warm place until almost double in size (about 45 minutes).

Coat a 9x5 inch loaf pan with cooking spray. Punch down dough. Roll dough on a floured surface to a 14 x 8 inch rectangle. Spread with remaining butter. Combine remaining sugar and cinnamon in a small bowl; sprinkle over dough. Sprinkle 1/2 cup raisins over the cinnamon.

Roll up dough jelly roll fashion, starting with short edge. Press seam to seal. Place in prepared pan, seam side down. Cover loosely with plastic wrap. Let rise in warm place until almost double in size (about 30 minutes).

Preheat oven to 375 F. Bake until loaf sounds hollow when tapped (about 30-35 minutes). Remove from pan and cool on wire rack.

Check out all of the recipes on our web site. that chatters have shared with us   

Click here  

Please Email us with any recipes you would like to share with us PWMS@peoplewithms.com 

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