Stories and Pictures
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Lisa & Jim Boisvert
|I was dx with (RR)MS in Feb.1995. I used Avonex injections once a week. Approximately once, and sometimes twice a year, starting around 1999 was on solumedrol intravenous for 5 days at a time, which seemed to work. However, my neurologist decided to put me on Rebif around August of 2002.Avonex was not working on me as well as he wanted it to work. I have been on solumedrol but not has often. Mom gave me the Avonex shots. My husband Jim gives me the Rebif shots. I do have pain from the rebif so I have to use a anesthetic patch two hours before the shot. I am mobile. I do use a wheel chair for malls and distance. during the day sometime I have to use a walker. I have a lot of support form all of my family. Most of you know My mom Deb in chat and step Dad Mr. Red. My grandmother also lives with us and it has been a lot of help when I am in a flare up. I love animals. I do read a lot. watch soap operas. One of my favorite places is the www.http://magicwings.com I could just sit and relax and watch the biggest most beautiful butterflys I have ever seen. I do try and check in chat as much as I can. I do enjoy spending time with my husband watching TV and just being together. Be strong we will have something to stop progression soon! God Bless. Love you all xxoo Lisa (more)|
& Deb Durgin
|After a number of months of difficulties, I was MRI'd and swiftly diagnosed with....surprise!!! Multiple Sclerosis. Multiple whatsis? I knew nothing, was scared, but resourceful. I sought out every source of on-line information. One source being a woman whose daughter had been diagnosed with MS a couple of years earlier. We shared information, and more. Fell in love. Were married. Gained a stepdaughter, Lisa (above) and stepson-in-law, Jim. Started this website to share what we have learned. Have been living happily ever after, one day at a time. (more)|
holed up in Shawnee, OK due to snow flurries. If any accumulates on the
trike I'll be adding those pictures as well. Today will be trying to re
route my trip so I can make up for lost time. Well wishes to my
extended family of MSers. Will keep in touch.
Delbert Richardson - One the Road again. (more)
|Dreamcicle||Hi my name
is Cheryl Heide but my friends call me "dreamcicle" or
"dream". I am a 53 year old single mom of a 23 year old daughter
(Becky) and 2 beautiful grand kids Alexandrea 3 years old and Bradley 2
years old. I live in Warren, Ohio but I am originally from New Haven,
Michigan all my life. I was dx with R/RMS in 1992. Right now I have
taken almost all of the ABC drugs with no improvements and I am seeking
a new doctor to see what other medications I can take to put me back
into remission. (more)
|I have RR MS I was dx in 1990. I was rear ended real badly one morning on the way to work. Later that day my whole right side went numb. Since I was a volunteer EMT, I thought I may have had a stroke. My chiropractor sent me for an MRI. That next week he said to me “I have good news for you and I have bad news for you.” “The good news is you did not have a stroke, the Bad news is you have MS. I said to him I would much rather have MS than to had a stroke. As many people do not recover well from a stroke. (more)|
|I am a 50 year old female, diagnosed with MS in March of 1989. In January (actually New Years Day) 1989... my husband left for his after noon shift at work.... When he arrived back home some 12 hours later... I was still in the chair I was in when he had left for work....as when he arrived home after his shift;... I was not able to walk or talk at that point and the doctors in their infinite wisdom decided that I had had a stroke... it took 3 more very difficult months of hospitalization and hundreds of tests to finally prove that I had MS.... NOT A STROKE.......what a relief!!! I was at that time issued a cane and a set of instructions to learn how to use the cane properly.... By September of 1989 I was completely incapacitated. Bedridden , Incapable of taking care of myself. .. In a wheel chair.. unable to feed myself.... bathe myself ... unable to do any everyday functions of everyday life. (more)|
|Gricey||I have been suspect of MS since July 1999.......... 1st attack was double vision that put me in hospital for a week on steroids, and over all lasted for 3 months. I see my Neuro every 6 moths for check ups and my Optomologist checks out my eyes. Basically no one says I have MS yet, but signs show that it maybe MS. My symptoms now are fatigue and still vision problems with double peripheral vision at all times. (more)|
|Jack||My name is Jack Halley and I live north of Chicago and have R-R MS. Back at the outset I didn't have too many symptoms but ended up taking ACTH from an infusion pump in the hospital for a week or so once a year at the beginning. Later on when Solumedrol came became the med of choice, went in and received it IV at the hospital. Since starting Avonex I haven't had an exacerbation since 5/1/98. My 34 year old lovely and energetic wife that I was with for 15 years and married for ten passed away and left a void in my life. I try to not think about it and just move forward as we all have to do with MS. I workout with weights still and stay busy so not much time for reflection. Some personal notes............ I was a captain in the Army, have 6 years of college, Scuba diver, Private pilots license etc. Just to give a look into my private life......Hugs to all and pray for a cure (more)|
|Judy||My name is Judy. I have a much longer story to tell you but this is just a short version. I am 49 years old, married 30 years, 2 boys, 30 and 26, 2 grandsons, 7 and 3 1/2. My husbands name is Reed and he is also my best friend. I have had MS for 13 years and have been on betaseron for a little over 10 years now and I am doing great. I have been through hell and back but with the support of my family and my positive thinking, no one can tell I have MS. I refuse to let this monster get me and I know most of you feel the same way I do. We are all in this till the end...So lets keep smiling. (more)|
|Ronnie||We live in the beautiful medieval town of Ross-on-Wye close to the English/Welsh border, surrounded by stunning countryside. We moved here from the city three years ago and have never looked back. The hustle bustle and nose to tail traffic everyday was becoming stressful for Mel and we were aware that any form of stress was aggravating his ms condition. We had tried to cope with life since his dx, which came just eight months after we got married, and decided we needed to be in a more relaxed setting. Here the sky feels bigger, the sun shines brighter and it feels easier to cope. From previous marriages we have three beautiful children, three very special grandchildren (with number four due anytime now).......they are all very precious to us.(more)|
|I am currently 40 years old and I have had MS since I was 13. At the age of 13 I had Pars Plantis and I was going blind. The neurologist treated me with a series of cortisone shots in my eyes to save my vision, My vision is fine now. I have gone blind many times over the last 9 years. I have had limbs paralyzed a few time but recovered thanks to IV Steroids. I was officially diagnosed in 1995 after 20 years of symptoms. I was so happy to find out I had MS I was finally able to get treatments for it. I now suffer from serious memory loss. I lost an entire year worth of memory and I suffer from short-term memory loss. I am also suffering from severe depression and I am being treated for it. I am currently disabled I suffered a serious MS episode and I was in a vegetative state for 2 weeks and it took me 6 months to learn how to function after I recovered. It took me 6 months to learn who I was who family members were. I also had to learn how to walk, talk, type and drive again. This episode forced me to go on disability. I am doing fine now, much better than I have been. I am currently in the middle of my Novantrone Chemo Therapy treatments and it is working very well for me. So the moral to my story is no matter how bad it gets keep FIGHTING you can over come anything. Stay positive and just learn how to adapt to new symptoms. (More)|
|SteveNL||The MS hasn't changed or even changed me, I have always been positive about things including life, what will be, will be, I started in 1990 with progressive but after getting a heavy attack in December 2002 the neurologist started me on daily Copaxone injections (not scared of needles) I am please to say, he also re-graded my MS to R/R and now it is as I write this March 2004, the MS seems suppressed, Copaxone seems to be doing what it is supposed to do and me, well as always just getting on with life and enjoying what I can do the best way I can, life is fun, life can be fun, make the best of it and be positive........ More )|
|Share & Husband||Hi my name is Share and here is a tidbit about me! I was dx April 24, 2001. I was given my dx over the phone by a terrible neurologist who was very crude, rude, and matter-of-fact about this life changing information. Luckily I am married to my gardian angel and have two wonderful sons who just go with the flow of life. I have learned to slow down (ok I had no choice) and smell the roses, watch the breeze thru the trees, and look up to the clouds. WOW nature is facinating when you take the time to really look at it. I am very optimistic and I will do whatever it takes to overcome and eliminate this monster from my life and irradicate it from the world so my children and future generations will not have to suffer thru it. I run a support/self-help group in my community and I find that very theraputic (much better than a shrink). I am on Betaseron, baclofen, and celexa. I believe in complemetary medicine therefore I do alternative treatments as well. My mantra in life is every problem has a solution! (more)|
|Terry aka Tee||HI , my name is Terry aka Tee and my wifes name is Maryann, I am the caregiver for my wife of 41 years. she has ms for the past 23 years. She uses a w/c most of the time but can still walk a little with her walker. (more )|
|Ali||I have spent most of my life in Oregon, and I love it here. I have 4 kids and a great husband. I had exacerbations several times before in my life, but didnn't know what it was and just ignored it. When my mother died unexpectedly in May of 99' I had a major exacerbation. Vision blurring, stumbling , vertigo, etc. I was diagnosed with MS in late June or early July of 99'. I have had major depression since my mothers death. I have been on Avonex, then Copaxone, then solumedrol IV treatment for 3 days. Now I am on Rebif. I really like the group here because it's nice to be able to talk to others that know what it's like. Everyone is so nice. Thank you for inviting me here. Take Care, Ali (more)|
|Diane||Hi my name is Diane and I was RX with RR multiple sclerosis in June of 1983. Some people think I might be a little whacky, but I was told over the phone by my neurologist and all I could do was thank him over and over again, as MS was much better then what I was worried my results would be. In my mind I thought I had a brain tumor or ALAS, so I could deal with this diagnosis. I am a fifty year old divorced woman, my choice not his, which I did six years ago. I decided my life though scary on my own with a disease would be much happier then with a person who put me down and made me so insecure about myself I had to look to others to validate I was a good person. (more)|
|In Jan. 1986 I had my first mini stroke. Feb. saw ENT doctor (don’t know his name). Mar. had second mini stroke and saw an intern doctor (still don’t know his name either). Went to see my sister, Kim, in Boston and had a seizure. June had third mini stroke. July stopped driving and saw one doctor (still don’t know his name either) in Columbus, MD and one MS doctor (still don’t know his name either) in Towson, MD and ATH in St. Joseph Hospital. Sept. we decide to see Dr. Johnson, a MS specialist. He said it could be MS but more likely strokes. Oct. stayed at University of Maryland for 3 weeks saw Dr. Price, had a lot test, had another seizure, and because of bad test result had penasine. In August 1987 had symptoms of a seizure and went back to UofM and another test found a hole in my heart. Sept. saw a cardiologist and surgeon at St. Joseph Hospital and had open-heart surgery. In 1993 MS showed its ugly head. Dx with relasing progression. In April 1999 started Beta. August started Detrol LA. Sept. did not sleep for 3 weeks, depress, went to St. Joseph Hospital Mental Section for help. Stopped Beta (made me worse). Dec. got an E/W/C . In August 2001 started Novantrone. In May 2003 stopped Novantrone. (more)|
|Helen||I firstly began with problems when I was 14, but they were to do with my back, so now there is total denial that I have ms in my back. I was diagnosed in around September 1999, I had a provisional diagnosis in February 1999 and all the tests were done in October 1998 when I was taken into hospital for a week. Previously to that my back had felt as though it had gone numb, I had lost all temperature on my left hand side, my left leg kept feeling as though I was going to have some sort of fit. My husband called out a doctor one night and he diagnosed me with a trapped nerve in my foot. Gave me some sleeping pills to allow me to get some sleep and then told me to go and see my own GP the following day. My own GP contacted a Neurologist and I had an appointment and was in hospital all within 10 days. All the tests were completed within the week that I was in hospital then a diagnosis given within a year from that after I suffered a bad form of Optic Neuritis. (more)|
Gumdrops aka Candy
|Gumdrops is out of her wheelchair, after lots of hard work. She was told; "THAT ANY TIME I COULD GO BACK INTO A WHEELCHAIR, SO ENJOY IT AND TAKE ONE DAY AT A TIME." She's now back to teaching Kindergarten. On top of her own 7 kids, ages; 26, 24,24, 21,13,8, and 1-1/2 plus 5 grandchildren. (more)|
|Jan aka Applebastic||I guess this story begins with a bit about me. I'm a 31 year old mother of 3 fantabulous children, ages 8 *Chantelle*,9 *Blaine*and 12*Shaelyn*. And I have a wonderfuly supportive husband named Ted, who has been with me through it all. MS isn't my only *snerk* as I like to call them, lol I also suffer from a few other things also, OCD, Depression, Anxiety Disorder, Myofacial Pain Syndrome (which is in the same family as Fibromyalgia) and now they are thinking I am Bi-polar. Hey, if your gonna do it, do it right! lol (more)|
|Deanna aka GMATractor||
WE LIVE IN
OHIO, HAVE 3 KIDS AND 5
GRANDKIDS. WE HAVE LIVED IN THAT HOUSE SINCE 1969, I WAS 17 WHEN WE
BOUGHT IT AND JACK WAS 18. SEEMS LIKE IT WAS JUST YESTERDAY,
I HAVE HAD MS SINCE 1998 THAT WE KNOW OF, BUT SYMPTOMS DATE BACK TO 1979. LIKE SO MANY WITH MS, I WAS NOT DIAGNOSED PROPERLY. I SEEM TO BE DOING FINE. I STILL WALK AND DO ALL THE THINGS I DID BEFORE I WAS DIAGNOSED, SO NOTHING HAS CHANGED THERE. (more )
|JeffS||My name is
Jeff. I have MS. The relapsing remitting type. You know, relapses come
and go, then back again someday. I was almost declared secondary
progressive. That never happened. Now for a little about me.
I grew up in a small town and graduated high school with 68 students. So small that fun on Halloween was to take a tractor with a manuer spreader full of pumpkins down Main Street and toilet people’s car door handles. Woo hoo. Maybe MS is payback hahahha.
I married the girl that went to school with me. It seems odd that were still together for so long. Must be true love. We’ve been thru hell and back, but I suppose its how you pick up the pieces and move on . . . (more)
|Betty Jo aka GrannyBJ||
Hello everyone! My name is Betty or you can call me Betty Jo or Jo or BJ. I might even answer to HEY YOU! just to get my attention. I just wanted to tell a little bit about myself. I am married and have been for 33 years. My husband and I are high school sweethearts. I meet him at the first dance of my freshman year. Sam was a junior. We attended Catholic schools. He went to an all boy school and I went to an all girl school. (more )
This is about me and all my fun in life. I graduated from Architecture in 1983 and from Ottawa (Algonquin College), moved on to Kingston for Civil Engineering (St. Lawrence College). While at school in Kingston, I met a wonderful girl that is now my wife (18 Yrs this month). We loved life and freedom and both worked and traveled together every year. In 1994 we had twin boys, premature, but they are now 10 and healthy. They were 12 weeks early, 2-12 and 3-6. I have been Diabetic since 1970 and in 2001, I began having eye trouble. The Doctors determined that it wasn't diabetic related, but it wasn't until my legs got really weak, (I couldn't climb the stairs), I was admitted to a hospital in Ottawa (Canada) and they figured it out. Steroids put me back on my feet, but "Optic Neuritis" struck me and never left. >
I now have a "seeing eye dog" and we rarely stay home. I have enclosed a picture of me and Jack. I don' have one of us and the family. My wife and I have been together for 18 yrs and we have twin 10 yr old boys. We also have a cat, but she doesn't count. (more)
|CarolPA||I have R/R Multiple Sclerosis. I was dx in 1991. I have been taking Betaseron shots since 1997. My caretaker is my husband of nearly 39 years. I have two "children". A daughter who is a police officer and a son who works for Wal-Mart. My son is a single parent, living with us with his 6 year old son, who is apple of our eye. (more)|
|Dana||Hi, my name is Dana I was dx with rrms in 1997 and about a year or so later with epilesy as a result of my ms. I currenty take copaxone for my ms and carbatrol for epilesy and provigil for fatigue. My good friend Lesley Anne invited me to come to chat she is always looking out for me like I do with her. I enjoy talking to other with ms trying to help if I can and make some good friends (more )|
A few things about Rod . . .
I DANCE WITH CHANCE ON THE GREAT DIVIDE '
I DANCE ON THE EDGE OF LIGHT...
IN THE SHADOWS OF THE NEITHER WORLD
ITS LIKE THE PLACE BEFORE DAWN THE DARK LIGHT WHERE ALL THINGS ARE STILL AND QUIET (more )
|Crystal||Hi, My name is Crystal. I have had MS since 1987. I was married for 20 years and I am now divorced. I have 2 girls and 2 grand kids. I live in Kansas but I am originally from LA. I go by BoardWalkAngel in chat. My friends call me Angel. I love to collect angels (fiberotic is my favorite), cats, unicorns, and other mystical creatures and animals. I try to go by this moto: What not kills us makes us stronger. (More )|
diagnosed with multiple sclerosis in September of 1998. Thinking back
on all the signs given me, I feel so ignorant. I never heard any
information about this disease. I knew that my Father’s boss
had it and
used a cane to assist him when walking.
My first clue was how clumsy I was.... (more )
|Baggie Boy||My name is
Bill, and I am a 48 year old living in the West Midlands, England. I
have been happily married to my wife Sue for 26 years, and we have a 22
year old son,
Matthew. He has just graduated from Wolverhampton University, and we
are very proud of him.
I was diagnosed with Cerebral Degeneration of the brain in 1990. My consultant informed me that this condition is similar to Multiple Sclerosis. At this time I have a mobility problem. I have a wheelchair which I occasionally use, but prefer to use my elbow crutches. (more )
|SandraUK|| My name
is Sandra Emery known as UK Sandy x
x, i am 48 years old but i assure you i am very young at heart I am
married to Philip been married for 23 years now wow a long time ah l I
have RR MS wonderful thing ah. well lived with MS for 23 years now i
quess it is part of me part of who i am and i think we live together as
well as we can
although i would rather live with out this MS as i presume u all would
who have it (more
|BCTourbus||My name is Eddie, but I also answer to BCTourbus, ThirteenthAngel and Crazy Uncle Fatedealer. I am a 36 year old male from Fort Worth, TX with RR/MS I have two daughters, Lauren 15, and Peyton 13, that live with their mom and step-dad in Oregon. They are my pride and joy. I currently use Rebif three times a week. (more )|
|Lonewolf||My name is Bill, AKA Lonewolf. I am 52. DX 32 years ago. I live in Indiana. I drove a truck for many years. Oh, and yes, motorcycles were a big part of my life. I've lived with this rascal we call MS for many years. I'm not "About" to give into it and I don't want you to either. (more)|
|Zzipman|| Hi I'm a
48/m/ live in Calgary Alberta, Canada I have RR ms I hate MS but it has
become part of my everyday life so I try stay positive for my self and
of coarse to others we are our strength
I'm Married with one 17 year old daughter I work full time I have bad days I do not take any meds anymore I see a Nero once a year I do light weight lifting I used to ski ride bicycle but MS stopped that so I try keep active as I can
I'm new to this room and already met great people so I guess you'll have to put up with me lol (more )
|Bobbi aka Bibbi||MY NAME IS BOBBI JO, I WAS BORN IN 1976. MY PARENTS WERE VERY YOUNG, AND DIDN'T WANT TO GROW UP. BY THE TIME I WAS 3 MONTHS OLD MY GRANDMA TOOK LEGAL CUSTODY OVER MYSELF AND 2 BROTHERS. (more )|
|Stef||Stef is one of our young chatters from Scotland, waiting on a diagnosis. His story is pending, but he sent us a couple of fine photographs to tide us over. (more )|
MY NAME IS DR REHAM MEGAHED FROM EGYPT. 28 YEARS OLD. DIAGNOSED DECEMBER 2002. NOW I'M NOT TAKING ANY MEDS, ONLY VITAMINS & OMEGA3
I HAVE THE RELAPSING REMITTING TYPE BUT NOW I AM FREE FROM ATTACKS THANK GOD. I GET SYMPTOMS OF FATIGUE, NUMBNESS , POOR CONCENTRATION ESPECIALLY IN HOT WEATHER. (more)
|Linda||I AM 56 YEARS OLD, I LIVE IN OAKLAND COUNTY. I HAVE TWO SONS, JOHN AND JAMES, JOHN IS 30 AND JAMES IS 28 AND I HAVE ONE GRANDSON, NATHAN. THE THINGS I LOVE THE MOST IS TO FEEL THE WIND ON MY FACE, TO LOOK AT THE BLUE SKI, AND TO SEE THE BEAUTY THAT GOD HAS GIVEN TO US. I LOVE TO BAKE AND COOK, I HAVE COCKER THAT IS WHITE, HIS NAME IS BRANDY, HE IS THE JOY OF MY LIFE. HE GIVES ME SUCH UNCONDITIONAL LOVE IF I WAS TO SAY ANYTHING ABOUT MS, IT WOULD BE THAT IT MAKES YOU ENJOY THE SMALL THINGS IN LIFE. I AM TRY TO LEARN NEW WAYS OF DOING THINGS AND TRYING TO LEARN TO SLOW DOWN, I AM LEARNING TO SMELL THE ROSES, LIKE THE SONG SAYS ONE DAY AT A TIME. LINDA (more)|
|Robin||Hi, my name is Robin I am 44 years old and I live in upstate New York. I was diagnosed with MS September 29, 2005. It really wasn't much of a shock to me because i figured on my own it was either that or a brain tumor. It was a long hard battle trying to find the doctor that would actually order the right tests and find out what was wrong with me. It seemed like all they ever told me was, you don't have this and you don't have that. I was starting to think I was going crazy. I knew there was something definitely wrong with me cause I could hardly walk and my hands and feet were so numb all the time. (more)|
|Norma||I was dx'd with MS in July of 2000. I was to be married then, but he couldn't deal with me having MS. I since then found my soul mate! I've been married since Feb. 10, 2006 He is such a good guy! MS affected my balance and my vision and my memory. I don't let it get me down! I have not driven since I was diagnosed. Yes, that is what mainly ticks me off. But you just do what you have to do. I do volunteer work at the MS Society. I do Friendly Listening. I'm also a MS Support group leader. (more )|
|KellyKat||I was dx'd with R.R. MS in 1998 after experiencing optical neuritis and many doctors appointments in a very short time. I grew up in Florida, but a few months after I was dx'd, I moved to Georgia in order to attend college. Two years after my dx, my mother was dx'd; she is still in Florida with my younger brother and sister. I am still residing in Georgia while I study and prepare to apply to law school. As for treatments, I am now on Tysabri; prior to Tysabri, I was taking Avonex and steroids on a regular basis. I was briefly on chemotherapy which did stabilize me. I am currently living in Atlanta where I would like to attend law school, so keep your fingers crossed! (more )|
|Mikee||I'm Mike, 46, diagnosed in 1991 with so called benign MS. since then, many nuerologists have stated that i have RR, and secondary progressive, and back. In 2000 was told by Oxford university professor that he wouldn't expect me to live for another 12 months, as my MS was so rampant. Since then, I've come off all medication under my own fruition, and have successfully completed the Detroit Metro MS150 bike tour on two occasions (except it was 186 miles in 2 days). I'm planning on going back to work after a long gap, so fingers crossed. (more )|
|LadyCove||WELL, AS THE STORY GOES... IN DEC. 2004 MY 16 YR OLD DAUGHTER PASSED AWAY VERY SUDDENLY. NEEDLESS TO SAY I WAS DEVASTATED WITH GRIEF. I RETURNED TO WORK 2 WEEKS LATER TO KEEP MY MIND BUSY. AS THE WEEKS PASSED I FELT THAT I WAS GETTING A GRIP ON MY LIFE. THEN IN JUNE OF 2005 I WAS OUT SHOPPING AND ALL OF A SUDDEN MY WHOLE RIGHT SIDE STARTED GOING NUMB. I FELT LIKE I WAS GOING TO PASS OUT, SO I HELD ON TIGHT TO THE BASKET I WAS PUSHING. (more )|
MY STORY BEGAN AS A CHILD IN GRADE SCHOOL... I HAD A LOT OF UTI's (URINARY TRACT INFECTION) AND HAD SLEEP DISORDERS TOO. I HAD SOME CHILDHOOD TRAUMA AS WELL, BUT THAT'S ANOTHER STORY. AS A RESULT, I WAS PUT INTO FOSTER CARE AT THE AGE 11.
BY THE TIME I WAS IN HIGH SCHOOL I WAS ON THE TRACK TEAM AND IN GYMNASTIC SQUAD. I NOTICED I WAS HAVING PROBLEMS WITH MY BALANCE. (EVEN THOUGH I WAS INTO SMOKING A LOT OF POT; I STILL DID ALL OF THIS) I ALSO NOTICED A LOSS OF VISION AT TIMES. I WENT COMPLETELY BLIND ONE TIME. (TEMPORARILY) (more )
|kellie||Hello, my name is kellie and i am 26 years old, I've only been DX since last Feb. I am new to PWMS and I love it! Everyone is so very nice and even though they are miles and miles away I feel like sometimes they're right there giving me hugs. Thank you very much for being you! (more )|
|Wayno||My name is Wayne ( Wayno ) & I live in Australia. I was dx with MS ( RR ) in December 1994. I currently use Rebif - injections 3 times per week & have done so for a number of years now. I have previously tried LDN & chemotherapy & I'm currently looking into trials that are being undertaken here in Australia & awaiting approval of funding for Tysabri here. I am 48 years of age, married to Yvonne & we have have 3 sons, Anthony 23, Brendan 21 & Jason 19. I used to work in Sales, up until 2004, when I had to give away fulltime employment & now I do part time marketing work from home.(more )|
|Mags06||Hi my everyday name is Marion. I live in NC near Raleigh. I have lived here for 18 years but before that I lived in England, the land of my birth. I have been diagnosed with Primary Progressive MS since January 2006. The long path of getting a diagnoses was a horrible experience. I have a husband of 23 years Russ, and 3 sons. Trevor 30, Matt 22 and Kyle 20. Thank God they are now grown up and turned into very decent young men. I was married before at the age of eighteen which was great, but he got sick with his heart and died young. So I was a young widow with a 1 year old baby. I have great faith in God and He got me through. Now I am trying to get the very most out of life as long as I can. Two years ago, while still in limbo land I bought a horse for myself. (more )|
|Vanesr||My name is Vanessa. I am 48 years old with 2 adult children. I live in Pittsburgh, Pennsylvania. I have MS dxed 1989, unable to work since 1996. I have the most bravest man there is, since I told him all about my having MS it did not scare him away, he is the best. We have been together 10 years. My MS sx's are all the usual stuff. I walk with a cane in the house, scooter for outside use. My balance is affected and my leg muscles are weak. I do intermittent catheterzations daily. (more )|
|RonB||ronb has been diagnosed with MS for three years, and started out on Copaxone. It wasn't quite working out, so he switched to Rebif a year ago. Early troubles with vision, memory, and balance became 6 months of blindness. But he's fought back, got his vision back, and still driving. (more)|
| I am a Female 65
years old Widow. I
am on no ABCR drugs. Or any other treatment. I am living in Texas With
my CAT! My cats name is Mischief !
I was Dx in 1972, But I know I had it since at least 1964. I was 28 years old at the time of DX. I am doing very well. I felt like I was in Remission for about 20+ years! Not so much lately.
I worked full time for many years! This past fall was the last time I had a Relapse.(more)
|Tara - Linda H||
I'm Linda from , Eastern Canada ( Nova Scotia ).Married to my high school hunny and we have two grown boys. One is still at home and the other is now a daddy himself as of Sept 15th /2007. My grandsons name is Ethan. (more)
name is Jennifer, but to most of my online friends I am kanga, the gal
from down under! Like most people with MS, diagnosis was a long time
Symptoms had been going on for years and years and a variety of
were given. Being a hairdresser was blamed for the “funny feelings” in
hands, then later on “Oh, you’re a busy Mum of 4 -under 6 (at the
course you are tired/bleary eyed/achy etc”, so it was no Surprise (and
truthfully, a bit of relief) when I was diagnosed 8 years ago. Now,
don’t think because of that comment, that I wished for MS, I just
a name so I could understand, research and DEAL with this horrible
Hubby Update: My
hubby Geoff was diagnosed with MS in late November - very
our neurologist that we both have this. Bit of an adjustment to our
lives as he is supposedly my carer :)
He is a very private person so you won't find him coming into chat ... a typical aussie bloke - - tough! (more)
|IceBaby|| Story to
follow . . . (more)
Meanwhile, read her Poem, Find Me
|Kim||I was diagnosed with MS when I was 24 . Yes it was a huge blow but I dealt with it. Life goes on. I had no choice. I had a baby girl that needed me and I could not and would not let her down. My family doc is the one who dx'd me. I went through two neuros before finding the best one I could ever have met. She has since moved to Cape Cod. My Luck. I have been waiting for 11 months now to get back into this new neuro. Relapses come and go I am tough. I live by the grace of God and for the love of my daughter. I have been on many therapies. First Copaxone, which caused me muscle atrophy. I tried Avonex, and last I was on Rebif. (more)|
|Rick|| Hi, my name
is Rick…this is my
I’m 48 years old and was diagnosed at 36 with RRMS. 1st exacerbation I lost all feeling in my body, it steadily went numb. Almost a year later the feeling began to return, in reverse of how it started. The end result being only my left hand has remained numb. (Great when needing to get finger jabbed for a blood sample.(more)
My name is Neville Johnson, I live in the foothills of the Rocky Mountains in the City of Calgary, Alberta Canada. I have been dealing with MS since the mid 1980’s. It has not bothered me much (nor I have I bothered “it”) until the past year. I’m not on any meds at the moment except Baclofen for spasticity of my legs. I have three great children, twin boys 29, and a daughter 27. I’m divorced, and was a single parent through my children’s teen years which accounts for the gray hair. I even have two sweet grand children aged 4 and 2. I believe in having a positive attitude and a good sense of humor.
|Citrine||My name is Carol, I was diagnosed with RRMS in November of 1995, I am 51 years old and I live in southern Maine. My earliest awareness of an MS symptom occurred in 1983 while I was putting my shoes on to go out to an Autumn Fair and my feet felt "weird".. all evening long, some of the sensation was missing along with pins and needles feeling. The feelings went away after a nights sleep. (more)|
|Spikers||Well, my MS story starts when I was thirty and got chicken pox for the first time.( I just turned 41 ) After being bed ridden for 2 months I slowly recovered. About3 years later i started haveing numbness in my fingers and toes. This progressed to one half of my body being numb.|
|PhilNE|| My name is
Phil Harris, better know as PhilNE
chatroom. I was born and raised in Nebraska, near the center of the
United States. The State abbreviation of Nebraska is NE, hence
Many things have happen to me over the past 50+ years that I recall of my life. I have done many things with failures and successes, even started over from scratch a few times. I left college my first year, married and began to raise a family. Perhaps due to job failures among other things, the marriage didn't last, and I found myself raising two young children as a single father. (Lots More)
I had my first bad ms attack August of 1993. Had a pain in my head for three days and I went blind while driving! I was dx'd 10 years later with r/r ms. I take Betaseron and try to stay positive." Hope" is the word I carry with me always. I am married and have two grown children. I live in Tennessee. Have all my life. I don't eat grits! I try to stay active. With my body and mind. I am very out going and have to watch that I don't do too much. I'm afraid if I don't use it I'll lose it. I love nature and try to be outside most times. If it's not too hot! I do crafts and make crystal bracelets.
I have a little shelty named Richochet. He is my shadow. I love love people and love to talk. I love chocolate! And eat it as often as I can. (more )
|cbee|| Hi there.
I'm Claire (cbee on the site), from
Nottinghamshire UK. I am 27 now, but dx 6 years ago. I had a rough time
at the start and was kept in hospital for 4 months as I was paralised
down the left hand side of my body. During my stay in hospital I also
got married. I cant remember anything about the day really apart from
what I've been told and the video. My marriage didn't last long (not
even to 2nd anniversary).
I have been on betaferon for a few years and it was working fine until my consultant decided having double the dose would benefit my health. That was a year ago and within that year I have gone down hill and now back at square 1. (more )
|shar|| Hi, my
name is Sharon but 'Shar' (as in the word 'share'), for short. I was
dx'ed on Feb. 18th, 1997 (ironically my ex husband's birthday -
figures!). I was dx'ed with RR, I've been taking neuron tin for the
past 7 years and have been on/off of Copaxone. I have to admit I don't
like injections, but I know when PhilNE comes to stay with me soon,
he'll make sure that I take them. Ahh yes, the things we do for love.
I have been divorced for 18 years, I have one son who will be 22 on April 10, 2007. I have a dog, a cat and a fish. I love just about all kinds of music, in my 'younger' years I had been a singer in a band. (more )
|Snowdogs|| HI GLAD
TO BE ABOARD LOVE THE CHAT MY NAME IS GLENNIS TAYLOR I LIVE IN CENTRAL
VICTORIA AUSTRALIA AGE 52 WAS DIAGNOSED FOR R/R IN 20005 BUT I WAS
MIS-DIGANOSED WITH RSD IN 1998 AND LOOKS LIKE IT WAS M.S BUT THE DR
SAID EVEN THOUGH THE MRI SHOWED MS LESIONS CLINICALLY I DID NOT HAVE MS
SO WENT TO ANOTHER NERUO WHO TOLD ME I DO HAVE MS AND PUT ME ON BETAERFRON HAD A FEW ATTACKS BEFORE I WAS PUT ON INJECTIONS AND ALSO HAD A FEW WHILE ON INJECTIONS. (more )
am married, will be 30 years this july. Have 3 children and 2
grandchildren. I had been having problems off and on for years but
never connected any of it . In my teens (mid 60's) I started having
severe dizzy spells in school all Drs said nothing wrong, perfectly
healthy, so i just managed and continued with living.
In the late 90's I started having trouble with my hands and arms. Was dropping a lot of things and sometimes after work couldn't get arms to do anything but hang there, like they weren't getting message from brain. Went to neuro, who insisted it was carpal tunnel and kept giving me pain meds even though I told him I had no pain or numbness. He finally gave me trigger point injections in wrist, now I have pain! Which lasted a few months. I never went back to him and refused to see another neuro. (Much More )
|Misty Dawn||My name is Misty Dawn. I have Primary Progressive MS. I am 29 years old and was diagnosed at 27. My doctor told me I have very old lesions on my neck and spine and brain, so I may have had this all of my life. Honestly I just thought I was clumsy and getting old. I am very touched by all of your stories and I am glad I found this page. (more)|
|MS_Kitty70|| My MS
First let me introduce myself. I am Terri House, the founder of the http://klearview.co.uk/ site. I am 35 years young and I have MS (multiple sclerosis). I am a Daddy's girl (he is My Hero) and my Mom is my Best Friend. I was diagnosed in April of 1997 after only a year of testing and waiting, as well as some military doctors telling me I needed to go see a psychiatrist (thats seems to be a common theme with people being diagnosed with MS). Well 9 years later I do have MS and I am having a bit of a hard time with it. Now you won't hear on my website about people who do miraculous things in spite of having MS. What you will hear is about real people who have real issues and how they overcame them or even how they came to live with their problems. I do think it is wonderful to see people out there who are carrying on with their everyday lives and only having minor problems with MS, but there are many more people out there who have gone through some trying times and survived or are still trying to survive. But first let me tell you my story. (more)
|My name is Shelley and I’m 53 years old. I live in Rockland County NY. I was dx in 1994 with RRMS. I am on Betaseron for 14 years. I am married with two daughters, ages 20 and 18. I have a puppy named Taylor. I am presently working as a speech therapist in the Bronx. I have been working in the same school for the past 27 years. I love my job! I like to read, watch soap operas, and make crafts. I also enjoy cooking, and gardening. I hope to make many new friends in this chat room!! (more )|
|RagsJewel||Hi, my name is Julie. I am 33 years old and I was diagnosed with M.S. in 1999 three months after my son was born...I am a single mother and am doing farely well with M.S. I walk with a cane mostly. Sometimes use a walker if I know I am going to do alot of walking. I also have a scooter to be able to get outside and do more with my son in the summer months...Iam very lucky to have my family's support, plus also helps I am living with them at the moment lol..Hopefully in another year I will be able to get my own place again..I feel sorry for my son tho right now cause he is living in a household with 3 generations of women who are all slow and usually go "ohhh ahhhhhhh owwwwwwww" and grab our backs or just complain of aches pains and so my son "Jake" seems to think it is ok for him to mimmick us and not have to do his "so-called" chores lol.. unfortunately we all know better since he is only 8 years old ...lol ... am waiting to see what else he comes up with in years to come... (more )|
|pitchmonke||My name is
Randy A.K.A. pitchmonke and I am 41 years old.
I was dx'd in may of 2003 with rrms. Got married in 2000 and was going to buy a new house and all that but now things have changed. I used to do commerical roofing, hot tar, rubber and the such, that's how I got my screen name (pitchmonke) one of my jobs as a roofer was running hot tar kettle's and a form of hot tar is called coal tar pitch and they called me monkey.(more )
My name is Georgie aka GG and I'm from Bayside New York. I have had MS for 33 years now...my first MS exacerbation was when I was 27...it was very dramatic as I was paralyzed from the arms pits down...As you may know there were no meds for MS in 1977 and the only test they had was a spinal, so I was not diagnosed at that time. I was going through a lot of stress at the time and I believe that is what brought on that exacerbation. I divorced my husband and lost my father and brother- in- law all in a matter of 3 months. I have 3 small boys to take care of and a business to help run with my mother. Not a good time, I can tell ya...Anyway it took the exacerbation about 3 months to remit and I can only say I was blessed from that time on. My MS remained mild and I could function normally and raise my boys and I met a wonderful man named Joseph and we were married very happily for 23 years. (more )
Lynne Frances Shaw, chat name LFShaw. I was diagnosed in July of 2005.
My worst attacks were after the birth of my second child. I could not
walk without holding on to anything in reach and I lost vision in my
right eye. An MRI was ordered and there was my companion for
life....Multiple Sclerosis. I finally got the explanations for all the
ill health. I was shocked, scared, but most of all relieved to finally
know what was going on with my body. Fortunately all of my "quirks"
seem to remit. (more
|Gailpooh||Hello! I’m Gail aka gailpooh MN—from Minnesota. I was diagnosed with this MS thing in 1987. I was in a car accident the year before (1986), which brought out all my symptoms. And by 1999, MS just wasn’t enough for me so I took on breast cancer. And after a mastectomy and some chemo, I’ve proven to be the winner so far. I am presently not searching for anymore diseases, honest!!! I put my faith in God and take it one day at a time. And I love the new family I’ve found in PWMS chat. (more )|
|.bette42||I AM BETTE. I WAS DIAGNOSED @ 38 AND AM NOW 46. I HAD WHAT I BELIEVE MY FIRST ATTACK @36 BUT THEY BASICALLY THOUGHT IT WAS JUST A VERY BAD MIGRAINE AT THE MASS GENERAL IN BOSTON. I WAS EXTREMELY TIRED AND FAINTED. WHILE THERE I HAD THE FIRST OF MANY MRI'S . THAT FIRST ONE SAID ?MS NOTHING WAS SAID TO ME ABOUT ?MS I MOVED ON AND JUST KEPT WORKING MY 60-70 HOURS WEEKS. I WAS A SINGLE MOM OF 2 SMALL GIRLS SO I HAD NO CHOICE BUT TO WORK THAT MANY HOURS. IRONICALLY I WAS A RN WHO WORKED WITH MS PATIENTS. I THOUGHT I KNEW EVERYTHING ABOUT MS THERE WAS TO KNOW!!!! ARROGANT HUH? (more)|
|Kimberly||Where do I begin? This seems like it has been a long journey. I am a single mother of two teen boys. My oldest has Noonans Syndrome and required a lot of care. I have raised my boys on my own now for 12 years. I am a Correctional Officer in a Federal Institution. Before that I worked at Costco. I guess that where it began. I would get so tired after a shift. I thought I has a cyst in my wrist and had problems with my knees and shoulders hurting. I went for many x- rays and nothing showed up. I would get dizzy and see spots in my vision. My hands would shake and when I went to put on my eye make up, my neck would shake. I knew something was wrong. After going to see my family quack many times, he just thought I was nuts and said I had suppressed trauma! What the heck was that?? He is an idiot. (more)|
|Linda-NV|| Hello my name
is Linda, and I live in Las Vegas. I moved here in 04 from Kansas City
Missouri. Before that I was born and raised in Michigan. I have been
married twice and have no children. However I do have an African grey
parrot name Miata. He has the brain function of a 7 year old. He talks
all the time. Tells me at night “it’s time To go to
bed” “good night” and will keep it up
till I cover his cage.
The first time the doctors told me I had MS I was in my early 20’s. However it didn’t rear its Ugly head until I turned 47.. It has changed my life as far as my athletic abilities. But really Who wants to bowl or golf, compete in gymnastics when There are so many casinos to go and play BINGO.. I am now 50 yrs old and loving it.
I am also on SSDI After trying for 2 and half years. (more)
am 58 years old. I have primary progressive MS. I was diagnosed fifteen
years ago when I my legs suddenly became numb and fatigue was also a
sudden problem. I have gone from cane to walker and for the last seven
years a wheelchair. Now my hands are nearly as bad as my legs. This is
I am married to a wonderful, supportive man for 36 years, we have two grown and flown children. I was a graphic artist and an art teacher. Now that my hands are nearly useless I do my creating on my computer with Adobe programs, it helps keep me sane. I love art, gardening, reading and the beautiful world around me but I hate not being able to participate in it any more.'
I hope I can get this chat-room thing right and look forward to meeting all of you. Helene :)(more)
|Vickey62||Hi my name is Vickey. I am 45 years old. I live in southern Illinois bout an hour east of St Louis. I was dxd 1/06. I have resigned my job with the state I worked at it probably 15 years. I used to help do car titles and registrations. I really didn't have to many prior symptoms when I came down with ms. I was dragging my right leg a little - I had it hurt that summer with a horse accident and i thought it was from that, well surprise -> it wasn't. I have always been an outside kind of person. I grew up on a farm and riding horses all time. those days are over for me, I guess. I can't walk with out my walker right now and I use chair for any distance. I also have lost most of my vision in right eye, it has improved just a tad so I keep hoping it will return. Time will tell. I am single , I have no children, I just moved back to my own place, I was living with my boyfriend of 7 years, thought we would always be together. Joke on me, guess he couldn't take my ms, oh well.. well guess that's my story in a nutshell. think that's all I can think of to write. (more)|
|Melissa||My name is Melissa and I was dx w/ RR when I was 27. For one year doctors muddled around, said I needed a shrink. I said "well apparently I do cause my body is freaking out!" I had been an athlete my entire life. First, coordination was gone, then tingly in my hands and legs, I couldn't feel anything in my shaky hands, and I thought I was going blind. The pain can be unbearable, but I am treating it any way I can. Now 36, not back to work yet, I never used the amigo or cane the doctor made me get. I ride an adult tryke bicycle, I do yoga, stretch, and walk my dog every day 1/2 mile. Rebif is currently my drug of choice. All the 40 other pills they have me on, are their bright idea. I have had my share of relapses but every time I have fought my way back. I believe it's because I pray, keep as positive as possible, stay physically active, and HOPE. Hope that some day they will quit dragging their ass and cure me, instead of maintaining me. I know how lucky I am, to still be where I am. I thank god everyday for giving me strength to endure. Let's all keep the faith. (more)|
I'm Jim. I'm 30 years old now. I've been married to my lovely wife for over 7 years now. She and I had a wonderful little boy at the end of April last year. I work for the University, running their "supercomputers". I was diagnosed at the end of January - its been bumpy! More
| I live in
Phoenixville, Pa. I'm 51, married, 2 children I was dx. May 2007. I was
a Firefighter until I was dxd. I'm on SSDI now. I enjoy chatting and
meeting people, I'm thru the the shock and being angry about this and
decided to continue to get on the best I can now. When i was diagnosed
i spent a week in the hospital getting steroids every night then spent
2 1/2 weeks in rehab. i had to learn to stand and walk all over again
as MS has effected my balance and my right side mainly my right leg. I
have toe drop and have a brace for my right leg, I'm mobile walking
with a quad cane most days (keeping my walker close by).
Hope to chat with with you all soon in the room.. (more)
|Sumo||Hey folks, I am sumo58. Here's my story. Back in April of '96 I woke up blind in my right eye. I didn't have a clue what was happening. We called the Dr. the next day, who sent me to an eye specialist. He examined me and said I might have MS. Stating 50% of people with optic neuritis have MS. I still didn't believe him. (more)|
|RJump||I HAVE HAD MS NOW FOR 40+YEARS. I WAS DX'D AT THE AGE OF 34. BLADDER ISSUES WERE FIRST SYMPTOMS AND ALSO FATIGUE AND MEMORY. WENT TO NEURO AT THE AGE OF 34 AND WAS DX'D WITH MS. HAS PROBLEMS WITH VISION AND IT ISN'T GETTING ANY BETTER. STILL WORK AT A HOTEL. HE IS A BELLMAN/VAN DRIVER. COURTESY VAN TO AIRPORT AND TAKE GUESTS TO PLACES IN THE AREA. REALLY ENJOY DOING IT. MARRIED FOR 40+ YEARS. (more)|
|Rebeka||Before my story
starts I was a typical twenty year old. I enjoyed dancing, going out to
clubs, shopping, hanging out with my friends. I had a serious
boyfriend, the best friends anyone could ask for, and a family that
backed me up no matter what.
I was sick quite often, had a lot of back problems, headaches, and I was always tired. But that was normal for a teenager...wasn't it? I remember the symptom that told me something might be wrong. I was driving home from work one night, I looked down and I got this weird tingling sensation down my spine. I brushed it off as a pinched nerve. I didn't have medical insurance, as I’d just started this job, so I waited to go in to the doctor. (more)
|Andrea||I am 46 now and have been living with MS for 4 years. I was a cardio/thoracic surgical ICU nurse with the world ahead of me. When my mother died in 02 I grieved her death miserably. It wasn't long before the death grip of MS would encompass me and change my life forever. My first symptoms were my legs bucking under me, then my eyesight went and along came these excruciating migraine headaches. I soon became confused and lost my ability to form sentences, and walking was a nightmare as I had no balance and my legs were weak. MS seemed to hit me all at once. (more )|
|Angela||My name is Angela, I am 27, live in PA. I am married to a wonderful man, and I have a beautiful 4 year old little girl, and one adorable pug.. I just found out I have ms this past Wednesday, and I go to the doctor to start treatment this week..... (more )|
name is Cindy. I am 45 years old. I'm the mother of 3 children, the
best things that ever happened to me, a daughter 27 and 2 sons 23 and
I was dx'd with ms in July of 2006, after over 15 yrs of being very sick, and lots of incompetent doctors. At first I was dx'd with postpartum depression, since my first big flare struck 2 months after the birth of my last child. No doctor could ever precisely pinpoint what the real problem was. I think my most favorite thing a doctor told me was, "You are the healthiest sick person I've ever seen". DOCTORS!!!! , Don't you just love em? Also, I find that people, doctors included, just love to tell you how "good" you look, I'll bet a lot of you have heard that one. I think that's why sometimes we are so often misdiagnosed. We just look so darn good , lol. (more )
|Flower45||MY NAME IS SANDY AKA FLOWER45. I LIVE IN DUBBERLY LOUISIANA (ABOUT 35 MIN FROM SHREVEPORT) I HAVE RRMS DXS IN MARCH OF 2003 AFTER 5 YEARS OF THINKING I WAS GOING CRAZY. I HAVE BEEN ON REBIF SINCE APRIL OF 2003. I HAVE BEEN VERY LUCKY. AFTER GETTING STABLE I HAVE NOT HAD A RELAPSE SINCE JUNE OF 2006. I DID HAVE A MASSIVE HEART ATTACK AT THE AGE OF 45 ON JUNE 30 2006. NOT RELATED TO MY MS. I ADVICE EVERYONE TO BE CAREFUL. I THOUGHT IT WAS MY MS AND REFUSED TO GO TO THE DOCTOR. AFTER GETTING TO ER THEY TOLD MY HUSBAND 10 MINUTES LATER I WOULD NOT HAVE MADE IT. DO NOT PASS THINGS OVER BECAUSE YOU THINK IT MIGHT BE YOUR MS. (more )|
|Glenda||MY NAME IS GLENDA LEE I WAS DXED IN 83 24 YRS NOW. I'M 63 AND IN SCOOTER NOW. HAVE 6 GROWN KIDS THEY ARE IN PICTURE. YOUNGEST SON WAS 6 MO OLD WHEN I WAS DXED. I LIVE NEAR PITTSBURGH PA. MY YOUNGEST DAUGHTER LIVES BEHIND ME AND SHE IS MY HELPER. I HAVE 10 GRANDKIDS FROM 22 TO 7 YRS. I HAVE 3 DOGS 3 PYGMY GOATS A LOT OF BIRDS BIG AND SMALL AND ONE BALL PYTHON NAMED LUCY. I ENJOY FLOWERS AND EVERYONE HELPS WITH THEM. (more )|
name is Penny. I am 28 years old. I have a 2 year old son. I live in
Thorold, Ontario Canada. Reading, writing, having fun and hanging out
with my friends are the things that I do to help me feel better about
I was born and raised in Canada. I was born in Calgary, Alberta and spent my life growing up in Ontario.
I do not have an official diagnosis of MS yet, but I was told that it is highly possible. I am trying to find a better neuro to go to because the one I saw just didn't seem to care all that much. I have had symptoms since I was much younger, which when I think about it now seems indicative of MS. I never worried about it much then because I really thought it was all just a part of growing up.
I started going blind when I was 15, but never for very long. The longest time that I ever was blind was 10 minutes, but of course I never brought it up because I thought it was just because I wasn't feeling well and had pushed myself too much. (more )
Hi, my name is Audrey and I am from and live in North Carolina. I was diagnosed with MS in June '04. I woke up on a Friday morning with the right side of my tongue feeling numbness. After a week of the numbness still on the right side of my tongue, I got worried. I starting looking around on the internet for some things that could cause numbness of the tongue.
MS popped up...I said OH NO. MS is in my family. I have two genetically close relatives with MS. I went to my MD and told him of my concern. He just patted me on my shoulder and told me the best medicine he could give me was reassurance.....(more )
|I was diagnosed with MS in October 1991, was in denial of the disease for ten years after that until I had to wade out out of the Denial due to continuing medical MS related problems; I now know to know my limits, take care of myself (good nutrition and lots of good rest) sleep at least 7 hours a night; try not to drink too much or stay out too late. (more )|
|Petsrus||My theory on how I got MS, My ex husband gave it to me!!! June 28Th, 2001, I kicked my husband out, because he wouldn't get a job. The next day at work, I was standing there talking to a client and all on a sudden my left side went numb and I felt really strange, I must have looked odd to, because the client asked "Are you O.K.? I said "hum...I don't know?" After she left I started staggering all over and couldn't hardly pick up me feet to walk. I told my boss something is very wrong, I'm going to finish my work (I still had 2 dogs to finish grooming) and then I need to go home. I barely finished those dogs and went home, I laid down on the sofa, and couldn't get back up, no energy what so ever . I literally crawled to the bathroom to go! (more )|
Hi I am Diane a.k.a. wcgirl. I am 40 yrs. young live in NJ & have SPMS that has paralyzed my body, but not my life.
I had lots of symptoms as a child & saw lots of specialists in N.Y.C. but never told anything. My exacerbation in ‘88 paralyzed my left side just 6 months before my wedding. My Dr. assured me it was safe to go ahead with my wedding plans, my spinal fluid was negative & M.R.I. was thought to be a stroke. I recovered to walking with a straight cane in 6 months, it was a huge challenge but I honestly believe that “If God brings you to it, God will bring you through it.” I got married to my high school sweetheart in ’89. In ’93 I had an exacerbation that paralyzed my right side.
My husband left in ‘95 after my Dx. While I was still in rehab. This fact is of no importance to me, I included it just to let others know they aren’t alone. (more )
|Diane||story to follow . . . (more )|
|JolyRox||HI EVERYBODY!!!! I'M JODIE aka JOLYROX, AND THE OTHERS IN THE PIX ARE MY HUBBY MIKE, AND OUR GIRL, ALEX. I WAS DX'D JULY 6TH AND STOPPED WORKING AS A NAIL TECH ON 7-9-04. I WAS DENIED THE FIRST TIME, BUT AFTER SEEING THE PSYCHOLOGIST FOR S.S., I PASSED. HAVING AN AUTOIMMUNE DISEASE WAS NOT REALLY NEW TO ME...MAYBE BECAUSE I HAVE BEEN DIABETIC SINCE I WAS 5 YEARS OLD, AND ANOTHER SHOT WOULDNT BE ANY BIG DEAL. I AM 39, AND NOT DOIN SO BAD. I'VE HAD RETINAL DETACHMENT IN MY RIGHT EYE, AND AN ARTERY BYPASS IN MY RIGHT LEG--BUT THE BEST KIND OF SURGERY I HAD WAS TO BRING MY BABY GIRL INTO THE WORLD. I LOVE ALL THE FRIENDS I HAVE MADE IN THE CHAT ROOMS, AND FEEL VERY FORTUNATE TO HAVE AS MANY AS I DO-- I JUST WANNA SAY "THANX" FOR ALL THE CONCERN AND COMPASSION I HAVE RECEIVED KNOWING SUCH A GROUP OF VERY UNDERSTANDING AND WONDERFUL PEOPLE !! WE HAVE CERTAINLY FOUND THE PLACE WHERE WE ARE MEANT TO BE!! Jodie (more )|
|Ted||My Name is Ted Breslin I will start medicare in January. I’ve been married to my wife Jane for 39 years. We don’t have any children. I was dxed with late onset MS in Nov of of ’05. I was immediately put on Copaxone. I have not had any flares since. (more )|
|Waterfalls2||story to follow . . . (more )|
|Nellie|| I remember
sitting on my bed, when the phone rang. I was expecting this call. The
voice on the other end, informed me that I was 99% diagnosed with MS. I
asked him what was that 1% going to do for me? He found that a bit
humorous, and said, ok, your diagnosed is 100%, you have MS. These are
words that still echo in my head after three years. I was Dx'd June 04
Even before that day I had started looking for people that shared my systems, hoping I would find someone that would tell me that it wasn't anything serious, I was going to be ok. Found too many people with my first system, Optical Neuritis. Commonly found in people with MS. I was catapulted into a world, I knew nothing about, I became scared. Oddly enough those people that I had reached out in MS chat room, and MS boards, were the ones that reached out to me. This is where I found my good friend Audrey. Like me, she didn't know what was going on. We were diagnoses weeks apart. We communicated often, and talked about mostly everything about our fears of the unknown. I must admit, she was stronger than I was, knowing something about MS. I on the other hand knew Nothing, only that Montel Williams was afflicted with this disease. (more )
|story to follow . . . (more )|
|Hi guys, my nickname is Deena, given to me by my oldest sister when I was brought home from the hospital from birth, It seems to fit me better then real name Bernadine. I have primary progressive ms for about 13 years, but I remember a few problems way before that (like falling on level ground) thought it was me and my walking. I was dx 4-13-01 with PPMS after 7 yrs of not knowing what was wrong, went to lots of drs they saw damage in brain but none thought ms, finally went to a DR who wanted spinal tap done and proved ms, PPMS from start. I have all the symptoms like the rest of you guys but mine is always with me (some days better then others). (more )|
|Bobby Gene||My name is My name is Rob a.k.a Bobby Gene born of Chicago, raised in Southern Illinois. I served 18 years in the U.S. Navy on submarines, before being DX'd with MS. I was DX'd with MS Nov 1995 after going blind in the right eye (long since corrected with IV steriods). I have been blind in the left eye, it too was corrected with IV steriods. Currently my legs are going numb, in combination with poor vertigo, I find myself needing to walk with a cane more often to keep from falling. Beside having a wonderful Care Giver and Personal Assistant, I have five Grand Children (ranging from 1 year old to nine), all of which helps keep my attitude positive and striving to do my best to overcome my disability. (more )|
|Hi. My name is
Thanks for reading about my ms “career”. It goes back a few years like most of us. In my late teen’s I’d have numbness or tingling but I wrote it off as having too much “fun” since it would always go away. In 1976 I woke up one day with sharp pain and no sight in my left eye. This was NOT going away even for a guy who thought he was bullet proof. After a visit to the doctor I find out I have optic neuritis. All the doctor could tell me was that I had a virus in my system that settled in my eye. The treatment was prednisone and a pirate patch which was ok by me since I had just bought a boat. (lots more )
|My name is vickie . . . I'm 42 single with 3 kids. live in the poconos, sells candles and have a candle site , love nascar country music. (more)|
|story to follow . . . (more )|
|Apache Gal|| My
name Sha'na (apache gal and tw) I am 39 years but feel much older.
I am a ex-cop, ex-preschool teacher, ex-torpedomans mate, ex-assisted living aid, ex-janitor and now a full time TV watcher and ms suffer with attitude.
I had sx for 14 years but only dx this year. I am an exosted gym rat. I go to gym 6 days a week when I don't have doctor appointments. I do this to help with fatigue but that plan is not working for me. It is helping with the stress of MS.
I also have Celiac Sprue and had a Gastric Bypass on 1 October 2007 this year for Gastorperisis. (not for weight loss)
I hate doctors!!!!! (more )
|Dora||My name is Dora Laudenslager. I am 42 yrs old, I’ve been married for 15 yrs,and I have one wonderful son, who is 19. I had my first symptoms 3 yrs ago...all neurological...no short term memory, dizziness, ringing in the ears, eyes super sensitive to light, walking like I was drunk, eyes bulging like I smoked a pound of weed lol. I WAS TESTED FOR EVERYTHING KNOWN TO MAN...except MS. After 2 months, they determined that I had Lyme Disease (even though both Lyme tests came out negative). A year later, I started having issues with my right leg...I just figured it was residuals from Lyme Disease. (more )|
|Aries||Story to follow shortly (more )|
|story to follow . . . (more )|
|DennisWW||I'm not good at this stuff but I'll give it my best shot. And you will read it sometime soon . . . . . (Much more|
|Grace||Hi, my name is Grace and I was diagnosed with PPMS in June of 2003. I was involved in a water aerobics class and at the end of class got out of the pool and couldn't feel my left leg. It was as thought it weren't even there, not even a part of my body. I didn't think too much about it and then severe headaches began. I went to my local physician who said, let's run some tests...it could be ALS, leukemia, a lot of different things. We won't know until all these tests come back. Sent me to a neurologist who did all the tests, including the lumbar puncture. That neuro sent me to another who was a complete jerk. His attitude was so awful and he made me feel like I was nothing more than the dirt under his fingernails. He told me that it was all psychological and that there was nothing wrong with me and sent me home. I was in tears when I left his office. I called my local physician and he told me to come right into the office. His nurse scheduled an appointment right away with Mayo Clinic. The team of neurologists concurred that I did indeed have MS and said we were just going to watch and see what happened. So for 2 yrs I waited and watched...had a couple exacerbations that hospitalized me. In Nov. 2006 was the worse one. After being released from the hospital, I contracted an upper respiratory infection then in Feb. had a kidney stone. I have been out of work most of this year. I began injection therapy with betaseron in January of 2007. After getting my health back to baseline, I started working part time as a secretary again and it felt so good. (Much more )|
|HarleyVickie||I'm Vickie, I live in west central Pennsylvania with my dog Princess. I was dx'd in 1999 with RR MS. Like most of us I had symptoms for a long time before that. When I was a child I had leg problems that no one could explain. But like all of you we learn to live with the cards we are dealt. I'm a firm believer in nothing is by chance. There is a plan for us. I've said often to others who struggle with MS or anything for that matter. "If the reason I have MS is to meet you then I'm glad i have it". (Much more )|
| Hello ya'll!
My name is KT & I was diag. with RRMS. 3 year's ago. I have
been on Betaseron for 21/2 year's.
Let's see I really can't recall any problem's till I woke up one day with a very blurry left eye. Went to a eye doctor (OD, FAAO) & he said "Well it's either a braintumor or MS" I said "OH Boy do I get to chose?" He sent me for an MRI & to a Neuro. The first Neuro. was very abrupt about telling me about MS. He didn't make me feel hopeful....So I found a new doctor who comes up to our little town from Atlanta twice a month. He is great! I use a cane out of the house & a WC for mall's car show's, ect.
My name is Joy and I was diagnosed with MS
in November 2005. It
started out with numbness in hands and feet. So far I’m
well with it but I do have my days as you probably well know. I have a
supportive family and friends and that is what keeps me from freaking
out LOL. I live in Florida and I am still working full time so
thankful for that. I have tried two MS therapies Rebif and Betaseron
and could not tolerate them well because of elevated liver enzymes.
Plus I felt pretty awful most of the time that I was on them.
Right now I am on an investigative drug study (FTY720) Fingolimod which is a MS modifying drug in pill form. The study I am in is a pill (Fingolimod) once a day and injection once a week (Avonex). One of them is Placebo. I honestly can’t tell which one is Placebo. It would be great to just take a pill once a day wouldn’t it. Well I hope to make lots of friends here at People with MS. I will be chatting with you. (More )
My name is Cir aka MO. Sometimes, but rarely, do I use Tobor. I'm 48 years old. I've been married for 25 years. We have 3 children. two girls and one boy. Oh yesm how can I forget my two lady friends. My bass guitars Mya and Amy. I love music. My friends and my bass guitars are a joy to me and a great help for me in so many ways.
I was dxed in the fall of '92. It wasn't a shock to me mainly because there was something wrong with me and now I had a name to it. You see, my first notice of something not right is during a gun safety course I was taking when I was about 17 years old. I can remember taking the physical portion of the exam and barely getting through it because of extreme weakness and imbalanced feelings. I did pass and boy I was glad of that and also grateful no one got hurt. We had to shoot clay pigeons as a part of the test. It seems like I remember reading where one of our vice presidents shot one of his pals on a hunting trip hmmmmm lol. The man is ok thank goodness. (More )
My MS story starts in Jan. 2004 when I was first having these weird sx…..slurred speech, off balance, missing words when I read aloud to my class etc. We had just gone through a hairy time with some foster kids and their parents and my doc said “you are depressed…let me give you an anti depressant.” Of course I said ok….I mean he is the doctor right!?
Well in June of that year I was still having the same sx except they were worse…..I just happen to be at the doc for a sinus infection and mentioned that my other problems had not gotten any better so he sent me for an MRI. I didn’t tell my DH as he would only worry and I didn’t see any reason for that! So I called my sister instead and she, once again, became my confidant. So I went for the MRI and really didn’t think anything about it until the next week when my doctor’s nurse called and said….we need to see you in the office….this sent up a number of red flags as they always in the past have told me results of all tests either by letter or on the phone so immediately I called my sister in a panic. We talked and decided to still not tell my DH but go to the appt. We were both sure that it was a brain tumor and mapped out how we would handle it. Well I went to the appt. and my doctor looked at me so sadly and said, “I am afraid you have MS. I want you to see a neuro. Next week I have already set up the appt.” Well I was floored….in fact speechless! ( much more . . . )
Hello, my name is Jen, aka stampingtowardsacure. I was diagnosed with MS in June of 2001. It has been a long journey thats for sure. The doctors had a hard time in the beginnng detecting what it was that was wrong with me.
The first signs I did have was the sensation in my legs were all backwards I guess you could say. I would notice when I was in the shower the water would be warm, but as soon as it hit my legs it felt cold. Then, just the opposite with cold water, I was out in our driveway washing the car using the hose outside the house, and that water felt hot when it hit my legs, and it really was very cold water. Well, my sister said, it sounded like a pinch nerve problem and I should go see the chiropractor. So, I made an appointment, and he looked me over. Seeing it was my first time ever at the chiropractor, there was lots to be done. So, he had me come in every week three times. Some aggressive ajustments he put me threw too. Well, the first week was the worse, I was in more and more pain, every time he worked on me. Well, I was eventually to the point where I was bedredden. My chiropractor then, ordered a MRI and I went to that; results came back they didn't spot anything unusual. So, I was back home, tried to see the chiropracter, but that was very unlikely with the pain I was in. So, thing began to get worse even yet, now I was experiencing my abdomenal balloning out, and my legs were getting weaker, starting to have bladder problems. (not being able to pass urine). So, my chiropractor saw me at home, saw what kind of shape I was in. (more )
|Hi everyone! My name is Randy aka ryansdad, I live in Ohio, 40 miles north of Dayton (near Piqua). I'm happily married and have 2 wonderful kids, a 27 year old daughter and a 10 year old son. My son is what keeps me going! He's a "Gift from God"! When our daughter was born we were told we wouldn't be able to have any more kids so we just accepted that and went on. So needless to say we were "SHOCKED" when we found out we were expecting a baby, 18 years later! Our daughter was ready to enter college! (more )|
To start off
I'm 31 F live in GA
|My name is CindyD. I live in Caledonia, Michigan which is a little south of Grand Rapids. I am a 46 year old divorced mother of two girls who was dx'd with PPMS in 04. I am not on any of the ABC drugs, I do have a lot of scripts for symptoms though. I am an always happy, glass 1/2 full kind of girl. If anyone has any more questions please ask in the room ok? (much more )|
|I am 67 years old and have Progressive MS. Worked as a teacher in NYC for 34 years, married to my wife for almost 46 years. I was dx'd in 1988. At the present time I use a chair 24/7 (not true what about when I'm in bed?) during the Winter time I spend a lot of time at home but have quite a few hobbies: Ham Radio call's N2GKI, Shortwave listening, used postage stamps and reading. The last months I worked was a real trial, fell down the stairs in the subway and that was what really made me think twice about "putting the papers in". We have 3 children all out of the nest but they keep in touch with me on a daily basis. I am not using any of the DMM's now in the last worsening my left side was affected. Can only use the index finger of my left hand. I believe that creating a good and happy environment, keeping in touch with good friends and having a family that cares do make a great difference. Stay calm, one day at the time, don't get upset, do Meditation and breathing exercises, take your medications and don't do what you know is going to affect you. Good luck to all, thanks you for all! (more )|
my MS friends!!!!!! My
name is Vanessa from SW Missouri. I am 31 years old, single mother of 2
wonderful daughters... Ages 9 & 7. I am currently a welder...
I have been for 9 years.. & I would like to share a little
& how I was first diagnosed with the stuff, they call MS.
It all started in June of 06.. I was sound asleep in the middle of the night, when the phone rang. I jumped up suddenly to go answer it.. noticing a complete numbness on my right side. First thought, that came to my mind, was I just slept on that side to long. Well, needless to say, I kept geting attacks from there on out. I would have like 15-20 attacks/ day , where my hand and foot would draw up and the whole right side completely numb. I continued to work for the following week, until it was just to painful & I just knew it was time to seek some medical attention. I went to my family doctor and he ordered an MRI of my brain, where they did find lesions and so he referred me to a neurologist. During all this time, I started going to a chiropractor also and the pain finally stopped before they even started me on the injection I now use, which is Betaseron. I finally got in to see a neurologist.. and he ordered an MRI of the spine as well as a few other testings... to be sure that MS was the answer & indeed, August 11th 2006, I got my final answer. (more )
I enjoy the company on the board very much great place to sneak away to.
I'm 48yrs old hopping I'm still kissable LOL. Was dx'ed in 1990 my
sister Sue and I both have MS. I divorced five yrs have two daughters
ANGELA 26 Marielena 17. I am a RN though not worked as one for 16 yrs.
I do a lot of advocacy work as a volunteer for the NMSS ravel to DC and
ALBANY all over Long Island NY where I live.
|My story – much the same as yours I suspect. Life was moving along as it should; married to a wonderful man, two children – a girl and a boy, great job and a dog. One day in 1998 I noticed numbness in my leg. Not too concerned really I put off any tests until after my “first ever” two week summer vacation. Returning from holidays I began notice weird things happening with me. The overwhelming tiredness was unable to ignore. I found a normal day in the salon to be quite challenging. My eyesight began to give me problems. I soon discovered my blurred vision was displaying at least two of everything. Other parts of my body like my face - became numb. Scary – for sure! (more )|
|Well. I'm not sure how to start. I guess my journey started when I was 26 or 27, I am 30 now. It kind of starts out like the lights flickering and then finally going out. I had, had problems with my eyes first before anything else started and took EYE BRIGHT and went about my business. I was part of a electrician apprenticship and I was having a tough time getting off a ladder and I had parted ways with the electrician after 3 months and took a job at a catering business that I am still at and I love. When symptoms started to show I thought nothing of them, plus I didn't have health insurance so I was not in a good spot at all. I was driving a manual transmission at the time and on my way home from work some nights my legs would be numb, so all my motions and actions were to over compensate. I once lost my balance and fell down the stairs, My pops and I loved to throw the ball around and I could not pick up the ball, I was shying away from the ball and I chalked it up to the sun being in my eyes, when I went out drinking with my best friend I could not consume as much as I could before and finally after 1 or 2 beers I would stumble and I would get the question "are you ok man?" so to stop hearing that all together I stopped drinking. (more )|
|I've had 4 definite flares with MS since 81 but wasn't dxed till Nov. 2001. The 1st episode was terrific fatigue and numb feet for several wks that eventually eased up over several mths then optic neuritis in 83 in both eyes. Then in 88 vertigo from hell with flipping vision, it was horrible. Then in 2001 I was under a terrific amount of stress. Well actually the entire decade had been stressful. Both parents had died from cancer, got married again, had 2 more children, personal troubles, etc. & kids were telling me I seemed to be sleep walking. Then 1 early morning I had a grand mal seizure & was taken to emerg. CT scan shows possible stroke but they want to send me for an MRI. Later that day neuro walks in to tell me it's not a stroke but I do have MS. I always suspected I had MS & even said MS at the same time he did. So now it's confirmed. (More)|
|Easter sunday 2003 Junior and I went for a walk around the lake. I didn't know about the rocks in the area cause we were new here. I stepped on the wrong rock, leave it to me, lol. It crumbled under me and I went down the embankment . The rest of the rock stayed in the ground. When I went down I hit my back on it. When I woke up 2 days later my legs were tingly half way down. The next day the tingling was further down and felt like I was wearing tight, too tight panties. lol. So I went to the chiropractor. He adjusted me and I felt great for a few hours, then the tingling was worse and now in my left arm. So I went to the ER. They gave me pain killers and muscle relaxers, Didn't help but I was feeling no pain, lol. A few weeks later I went back, they set me up with a local doc. He sent me for an MRI. Results in he said I see no problem so I am sending you to a neuro, that is where my trouble started. He was not a good doc. No bed side manner. I have learned the hard way if you don't have good feelings about a doc, do not go back to them. Anyway, so he sent me for another MRI with contrast this time. Went back to see him on my 2 year wedding anniversary. The test came back positive. He put me on Rebif and told me nothing. I didn't even know I would walk again, when I left his office. 1 1/2 years later the doc disappeared with no word and never treated the first attack. Only told me to not let anybody put me on prednisone or I would wind up in the mental ward. Only saw him a total of 4 times then went 2 years with no doc. I started having alot of attacks again so I figured it was time to see a new one. now I have to drive 2 and a half hours to see him, Oh boy, he must be good. lol, he is and he is a keeper, cute too and from Ireland, lol. (more)|
|My name is Judy and I go by the name of Boomer Girl on chat. I am 57 years old and have been diagnosed with ms since 1979 which makes it 29 years that ms has been with me. I have been married for 34 years and have 4 children. I quit working in 2004 and I'm now on disability. I love watching movies, reading and in the summer working with my flowers, which I never had the time to do before. I have been blessed so far with being able to live an active life and was able participate in my children's lives. I have progressive ms and so far can still walk (although gimpy) and drive. My ms had alway affected my right side, especially my leg. I have always love exercising so when ms came upon me I just learn to adapt and change my routine so that I could still exercise. I always try not to dwell on that which I cannot do anymore and be oh so thankful for that which I can do. I have ms but ms does not have me (More)|
Sharon (sea2006), and I was dx'd with Chronic Progressive MS in
1989. From the time they started it took five years to get my
diagnosis, but had a lot of problems even before that.
I have a husband of 40 years and two great "kids" - (ages 34 & 37), and a wonderful little Granddogter who just turned two on the weekend.
I live in a rural area of New Brunswick, Canada where the deer roam around my backyard and nature is all around me. Birds, racoons, deer, meese (the plural of moose), the odd fox, and lots of bunnies. (Photos)
I was diagnosed with Chronic Progressive M.S. in 1980 (soon after I got working full-time). I’ve been paraplegic since 1985, I was fortunate to find full-time night shift work with insurance before my diagnosis. I was a solo telephone operator at Philadelphia’s Graduate Hospital responsible for assembling code, trauma, and operating room teams. I drive a converted van (my third ) right from my wheelchair. I used quiet moments at night to write and work on my award-winning disABILITY resource web site at http://www.netreach.net/~abrejcha/ or http://disabilityhelper.org/ (first better as otherwise .org site keeps showing in URL window). In terms of writing, I started with newspaper and magazine work and my first three books were published in 2004 and they & other work of mine is listed on my bibliography at http://www.netreach.net/~abrejcha/biblio.htm (including links to reprints). My employer of 27 years (23 in wheelchair) closed 2007 and I was unable to find another accessible night shift job - necessary due to my attendant care availability – but I was fortunate to get approved for S.S.D. – admittedly happy to stop a 66 mile daily commute. Now I write motivational pieces and some fiction and do peer counseling. (More)
BIRTH WAS 04/29/60. 2ND TRIP TO HOSPITAL WAS 9 MO LATER. FROM WHAT I WAS TOLD HIGH FEVER. LAST CHILD OF 6 DYSFUNCTIONALS ( BUT AREN'T WE ALL? )
MS REARED IT'S UGLY HEAD ( OBVIOUSLY ) OR I WOULDN'T BE WRITING THIS. AS MANY DO, ALWAYS BLAME ANYTHING BUT MS ON THE SYMPTOMS.
MET IAN ONLINE FROM A MUTUAL FRIEND IN A CHAT RM. AS GETTING ALONG WITH ANYTHING IS DIFFICULT, THINK OUR 5YRS IS WORTH AT LEAST 10! GUESS KNOWING YOU NEED SOMEONE HELPS THAT WELL
THINK I SAID IT ALL - WANNA KNOW ANYTHING MORE ? ASK ME IN CHAT (More Pics)
|I am a 35 year old male from NC, diagnosed in 2008 after optic neuritis showed up. It turned out that I had been missed diagnosed for many years. After 2 wks of testing my neuro, optic neuro and another neuro that my neuro called in, confirmed in April of 2008 I have RRMS. I was scared at first as a career firefighter I didn't want to loose my job that I dearly love. I just put my faith in God and accepted the fact that I have MS. My wife of 12 yrs Kathryn had a harder time accepting it than I did, we are still learning. Doc has me on steroids to get a handle on my ON. As my wife says I need to slow down, but I don't know how to. So I am going back to built furniture in my spare time, you don't rush craftsmanship and my 8 year old son enjoys being in the shop with me. (Action Pic)|
||I'm Ken. I've had MS for 12 years or so. Stress from a few different things seemed to bring on my symptoms, which were mild at first, but a few years after my dx, my symptoms were so mild (and the idea of injecting myself scared me) so I blew off available injectable meds... then I had my first major exacerbation. I spent 6 days in the hospital getting IV Solumedrol. Suddenly, injecting meds didn't seem like such a bad idea. I started on Copaxone, then after neuro (I think of him as the Yoda of neuros) interviewed me for a couple of hours, he showed me research demonstrating that Beta Seron took effect sooner, so I switched to Beta. Not long after that, Beta didn't seem to work so well, so I switched to Rebif, which I've been on since December of 02. After I started shooting up (I like to be as dramatic as possible) I learned of MSWatch, a cool website that also had a chatroom I started visiting regularly. Eventually the MSWatch chatroom shut down, and a friend started her own chatroom called GG's Place. Lots of friends from MSWatch gravitated toward GG's place, and now some of us come here, to PeopleWithMS, which has the best emoticons I've ever seen! lol... and the people here are pretty darn cool too!!! (More)|
IS TAMMY AKA TAZZY69 AND I LIVE IN WISCONSIN. I AM MARRIED,
HAVE 2 BOYS LUCAS 13, WILLIAM 19, AND A BOSTON TERRIER, BRUTUS, 7 YRS
I WAS DIAGNOSED WITH MS MARCH 14, 1997 THE DAY I FINALLY HAD AN ANSWER. IT TOOK THE DR'S OVER 3 YRS TO REALIZE THAT THERE WAS SOMETHING REALLY WRONG WITH ME, AND IT WASN'T ALL IN MY HEAD! I STARTED ON BETASERON THE WEEK FOLLOWING MY DIAGNOSIS. THAT LASTED ABOUT A YEAR OR SO. MY BODY REACTED TO THE POINT WHERE I WAS PUT IN THE HOSPITAL AND IN A COMA FOR 9 DAYS. AFTER RECOVERING, I THEN WENT ON AVONEX, WHICH WAS A HUGE NONO , AS I LASTED ONLY 1 MONTH(4 INJECTIONS) ON THAT. (More)
|Well I started having these weird numbness in my left arm and left leg and they lasted for only about 30 seconds or so for about a month or so and this was about 7-8 years ago and I didn’t think much of it; I mean I was a teenager 17 or 18 years old and all I thought about was how to have fun and stuff so I didn’t want that to get me down. I saw a physician whom diagnosed with depression at that time and put me on Paxil. I took Paxil for a month and I was fine and back to normal so I figured oh it was nothing and I really was just depressed. Some years passed and I was just fine for the next 5 upcoming years of my life until the year of my 25th birthday. In October 2008 just two months before I turned 25, one day I woke up getting ready for work and I felt this light pain in my left leg’s calf and I just thought it was only a soar muscle so I got ready and left for work . This continued for a week and half except that my muscle became more soar and my ability to walk with my left leg was decreasing quickly. (More)|
|Story to follow|
was diagnosed with R.R MS in 1/94, after falling in the bathroom
after showering and shaving. Had a difficult time being diagnosed. the
GP didn't know what it was and then a high school friend I should see a
neurologist. I was a computer programmer since high school and had to
stop working 10/98. Been on Avonex since it was available but since I
have always had a strong reaction to it have stopped using it;
to talk with my neurologist about trying something else.
Male, 40 YO, North Carolina (More)
|Hi my name is Jodie. I am 26. I have 4 children and loving husband. I first started this journey 3 years ago. I lost vision in my right eye. No one could find anything wrong. Then a couple months later the other eye went. Still no answers. Finally all that went away my doctors gave me a pretty good chance that I would have MS within 5 years. Well this past year it went all down hill. My legs started doing funny things. Then other things like my face, side, back and several other weird tingling sensations. I really got scared when my legs felt like they could give out. So back to the doctor I went had another brain MRI and nothing. So finally they done a mid spine MRI and found the lesions there. One thing I have to say is thank GOD they did find what was wrong. I was starting to think I was crazy. So he went ahead and put me on predisones, which has really helped. I am to start copaxone any day now. One thing is for sure I will not let MS control me. I will kick its butt. My kids and husband need me and I intend to stay healthy and strong for them and myself. (More)|
|will send more of a story when i make up some interesting stuff to lie about.....i appreciate all whom i've chatted with so far and find the kinship similar to the environment at MGH ms chat where i chatted from '96 to '02.....i am down to one working hand as i have a virulent strain of chronic-progressive ms.....it has indeed been a disease of attrition for me.....my children and grandchildren are my delight....i am a glad man....thang que, kc (More)|
my name is Deanna. I live in Ohio with my 2 children.
I am 36. This is my MS story. It all started back in 1995. I had met my
now ex-husband, we were a young couple just starting out when I got
pregnant with our first child. In November of that year we were blessed
with a little girl.
Shortly after coming home with her I noticed that my left leg was going numb. It had lasted any where from a few hours to a few days. Not knowing why it was happening, I went to see the doctor. He said that the baby had put a lot of pressure on my leg and it would go away, just to give it time. So I did. After a while, I kept noticing that it would come back. Again a new visit to the doctors. After many tests I was just told it was nothing. (More)
||Story to follow|
|Hello my name is Karen, I'm from Quebec Canada I am 44. I have secondary progressive ms and use a walker and wheelchair. I have been on 2 interferon meds, Betaserone and Avonex and have also been treated with solumedrol aka corticosteroids for flares. I have 2 children; a daughter 20 and son 18. I was probable for many years before i got a firm dx in 1997. MS has changed my path of life - not always what I expected or wanted, But site's like this that help make it a little easier to get through the unbearable days..knowing we are not alone. =) More|
Hi My name is Virginia,aka Ginny
I am 52, married mother of 3 (boys 32 and 26,girl 31) grandmother of 3 (boys 10 and 6,girl 6) I live in Australia in a beautiful country area close to the mountains but grew up in Sydney.
I was diagnosed with MS at 48 in 2004 on my son's birthday,so I always remember the date.
I definately started getting symptoms back in the 90's but I may even be able to go back further with cognitive problems. My feet use to flap when I was walking for exercise and my friend use to say "your feet are bad today" of course I checked it out but because I have a back condition and long term Raynards Disease (from a teenager) the Dr put it down to that. When shopping I would feel off balance if I went up or down escalators,so tried to shop in flat centres( when told to the dr I was told I was suffering anxiety,I knew I wasn't) (much more )
name is Katy (mrsmel). I'm 64 years old. I'm from Cedarcreek, Missouri.
I have 3 married children, and 5 grandchildren. I am
married (33 years) to my very best friend and supporter -- Mel. We owned and operated a family restaurant for 18 years in Wichita, KS. I have "different" ideas from many MSers, but feel that I've learned a few things over the years, and think I can offer hope to some of the younger members who might fear that life is over, or on the downhill slide because of an MS diagnosis.
My MS history goes back to my teenage years (puberty?). I didn't know at the time that the strange "episodes" that I had were either abnormal, or indicative of long-range problems. The secondary & progressive phase of my disease began with a sudden and violent vertigo in March of 1990 (menopause?). I have been dizzy ever since. But, the scariest part of the progression was not the gradual loss of use of my legs, but the diminishing use of my arms! Life in a wheelchair I considered to be tolerable. But, not without the ability to feed myself, turn the pages of a book, wipe myself, or hold my loved ones. More
JULY 1999 TOM AND I HAD A REAL BAD SUMMER FLU AND TOOK OVER A MONTH
TO GET OVER. IN AUG. I STARTED TO HAVE SOME DIZZINESS AND JUST CHALKED
UP TO GETTING OVER THE FLU. THEN THAT WENT AWAY AND THE NEXT MONTH MY
FEET WENT NUMB AND STARTED TO TINGLE LIKE THEY WERE ASLEEP BUT DIDNT
HURT. I COULD STILL WALK AND ALL. I DIDNT TELL TOM TILL SOME TIME IN
NOV. BOUT MY FEET AND HE WANTED ME TO GO TO THE DR. THEN BUT, I REFUSED
. TOLD HIM THERE WASNT ANY SINCE IN GOING TO THE DR AND PAYING FOR ALL
OF IT CUZ I HADNT MET MY DECTUTABLE FOT THAT YR AND THEN HAVE TO TURN
AROUND AND DO THE SAME THE NEXT MONTH OR SO. SO I PROMISED I WOULD GO
AS SOON AS THE NEW YR WAS HERE.
JAN. 4, 00 WENT TO DR AND THEY DID THE USUAL BLOOD TEST AND URINE TEST AND EVERYTHING AND IT ALL CAME BACK THAT I WAS PERFECTALLY HEALTHY WITCH WAS KINDA GOOD. SO THEY SENT ME TO SEE A NEURO. More
|ITS DIFFICULT TOO TALK ABOUT THESE LAST TWENTY ONE YEARS OR MAYBE EVEN MORE. BEFORE MULTIPLE SCLEROSIS I WAS IN PRETTY GOOD CONDITION. I THOUGHT SOMETHING WAS DEFINITELY WRONG I WAS GETTING DIZZY A LOT AND I COULDN'T FIGURE OUT WHY SO I WENT TOO THE CLINIC, THEY RAN A SERIES OF TESTS ON ME. THE NURSES WERE STUMPED. More|
||My name is Richard and I reside in the state of Missouri. I'm a single father of three awesome kids who are my motivation to get out of bed each day! I was diagnosed in 1997 and experienced a flare up every now and then until around 2002 it just seemed to never leave me alone. In 2006 I lost my job of twenty years due to my disability and the high cost of healthcare I was becoming to the company. I was then forced to file for disability and apply for Medicaid. After the anger, hurt and feeling of betrayal, I have become a self advocate for healthcare reform and disability rights. We can all make a difference because everyone matters! More|
|Escape01||A man of few words . . . More|
||I was born in
Dundee, Illinois. I was on Copaxone.
It stopped working for me, so now I am on Tysabri.
( more to come)
||Ok, let’s get to the DX. I really never had any symptoms at any time in my life. I was not an athlete or any thing like that but I was pretty active. My father was in the Military, we moved around a lot as I was growing up. I think that the only corner of the US that I didn’t live in was north east. Of all the places I lived, Alaska was the most memorable. Cold there? Um, yaw. I remember it getting to 82 deg below zero once, we almost froze to death. I really never put any thought into it at the time, that some day down the road that this incident could have an impact on my life. I am not sure that it ever did for that matter. But I do feel it still today. The cold really bothers me. It wasn’t until I had a child that the symptoms started, my newborn son was just 3 weeks old, I was numb and tingly all over, it was really hard to hold my new baby. I even fell once while holding him, he wasn’t hurt, and neither was I, just my ego maybe. And no one saw it, as I was at home, and it was private. I went to the Dr, they ran just about every test they could, that were not MS related, at least I don’t think so, and they didn’t even mention MS. The only thing the Dr could say was, I see a problem, but I just can’t quite pinpoint it. I am sure that this saying is in the Dr Dictionary, I decided that I needed a second opinion, so I went to another Dr, this Dr wasn’t much better. But he says Multiple Sclerosis, and a couple of other things, but I only heard the Multiple Sclerosis. They did a battery of blood tests and hooked me up with wires on machines me among other testss, They did MRI’s of my back, brain and neck, they came up with their DX. I had Multiple Sclerosis. Wow. That was just about the worst news I had, my son was now 10 months old, and it was 2 weeks before Christmas. It was a shock. I still didn’t really need any medicine as of yet, but I did have my DX. They gave me some meds to take as I was dealing with depression, and hadn’t really gotten over the postpartum depression due to the struggle of what my life was dealing me. (Lots More|
name is Mike (AKA Mike)...there are a few that know me as Bunny,
but that ID in chatrooms can cause complications, attention from males or scare some if I sit too close to them.
I was born in Wales UK on 3rd april 1954, hanging on for 2 days to avoid making a fool of myself, but since then I have made a fool of myself on numerous occasions.
I had a normal childhood but with lots of freedom, made my own explosives at the age of 10 and burnt both my eyebrows off perfecting the formular for gunpowder....I would wave to my mother from the top of 100ft trees and go for walks on my own into the wilderness at the age of 3...my mothers hair went white at a young age. (Tons More )
||I'm Dana. I have MS since 01. I take Copaxone since 02. My father commited suicide in Oct 21st, 2000. 1 year later I was dx with MS. Also a Katrina survivor. Lived it, don't know how, must be here for a reason. I have a great husband and very supporting. been together 16 years, will be married 10 years in Nov 7th. Also have a son who will be 21 years old in May. Also have a kitty cat named Menew. Hubby is also disabled awww... We are the blind leading the blind. We have faith. It's great to be in this room, due to Cookie , etc xxxxxxxxxxxxxxoooooooo More|
||My name is Joseph Zimmett. I have been in the army for the last 11 years. I deployed to Kosovo in 1999 with the 82nd Airborne Division and was there for 6 months. In 2001 I was stationed in Vicenza, Italy. While assigned to the 173rd Airborne Bridgade. while in the 173rd I deployed to Iraq in 2003-2004, Afghanistan in 2005-2006, and then again to Afghanistan in 2007-2008. Near the end of my first Afghanistan deployment I started having problems with my right ankle and knee. I had broken my ankle before so I was convinced that it was the pins still in my ankel causing the problem. When we returned from the deployment I went to see the orthapedic surgeon and he said that there was nothing wrong with me. Throughout the entire year of 2007 I continued to go to sick call about my ankle and knee. Eventually I was no longer able to preform my duties as an infantrymen. They put me in another position where I sat behind a desk all day. In 2007 we deployed to Afghanistan again where I worked in our battalion's Tactical Operations Center. In March of 2008 the symptoms started to get worse. I went to the medics and they sent me to Bagram Air field for further treatment. While I was in BAF I talked to a neurologist and she could not find anything wrong with me but I was showing signs of Multiple Sclerosis. She sent me to Landsthul Regional Medical Center in Germany where I was diagnosed with MS in April 2008. Since then I have had to alter my life style dramatically. Now only now only 7 months into this process I am starting to accept the changes that I have had to make. More|
Hi, I am Keller AK.... I havent been diagnosed yet, but have been living with my symptoms for over 4 years. I have had numerous tests done and hopefully will get a diagnosis soon. I am recently married. My husband and I have 5 wonderful kids. They are my reason.Thanks ahead of time for all of your support!! More
||Hi, my name is Sarah. I am 31 years old and the mother of a beautiful 3 1/2 year-old little girl. I live in STL (St. Louis). I am divorced, but in a relationship w/ a wonderful man. I'm kind of starting over with my life. I FINALLY finalized my divorce in January, and am about to graduate from Culinary School in January of 09. I am also newly diagnosed (1 week today) and consider myself pretty lucky so far. I was diagnosed because I had meningitis in August of this year (08) and the Neurologist treating me at the time saw an extremely small amount of excess white matter on my MRI. It took me almost 8 weeks to get a follow-up w/ my Neurologist to find this out, but less than one month later I have been diagnosed w/ RRMS. More|
|My name is Mary (caliegirl). I live in
Wisconsin with my husband of 33
yrs. We have a son, a daughter, son-in-law and 2 grandsons.
I was diagnosed with MS in 2004
after having a spinal tap. I had symptoms
for about 4 years before. Some of the symptoms I had were legs being
walking, balance issues and double vision in one eye.
Hearing the words "you have MS" were
very deviating to hear but at the same time I was
very relieved to
finally get an answer after so many years of searching. The neurologist
on Rebif but not for long because of the irregular blood test I had
while on it.
Then I went on copaxone but that drug didn't work for me. I went on
had 13 infusions of this before I stopped it. I had to change
because of insurance reasons. I was off all MS drugs until I got
not being on any shots so I told my current neurologist of my concerns
suggested going back on Tysabri or do plasma exchange. I opted to give
another chance. So now I'm back on Tysabri (restarted Oct, 2008) for 6 mo. to see how I do. Before going back
on Tysabri I
had a antibody
blood test for Tysabri.
I worked for 17 yrs. as a day care
provider before I had to quit due to
the MS. When you work at a day care it is very stressful and you need
to be on
your "toes" all the time which is why I had to quit. I'm sure all you
parents understand what I mean. :)
||UnityNow 's short
" i'm 22, I grew up on computer very computer literate, have don't these things prior to me bringing collective complaint........
||story to follow . . . (more )|
I received my diagnosis, March10, 2007. By April 18th I had to leave work on disability. By June, I had to move home with my aging parents to be taken care of. For the next six months or so I was totally bed ridden.(*note The symptoms that I suffered due to the MS is not typical of someone that has MS, nor is it an eventuality.)
In those months, I had plenty of time to reflect on the life I had led before my diagnosis and while I had plenty of aspirations, plenty of talents and dreams I was not pursuant of any of those talents and or dreams. I vowed that if there was a drug that got me half the way back to the person I was before, I would do what was necessary to pursue those dreams. (more )
||HELLO, MY CALL NAME
IS SLYSTER, REAL NAME MYRA. I
HAVE MS, DX
MAY OF 2008.
ABOUT 10 YEARS AGO I WAS HELPING MY SISTER-IN-LAW OUT, SHE HAD MS.
I CAN REMEMBER SAYING I HOPE I NEVER GET THIS DISEASE. I JINX MYSELF.
WHEN I WAS YOUNGER I PLAYED SOFTBALL, BASKETBALL, AND VOLLEYBALL, ALL IN COLLEGE TOO. SO I CAN'T REMEMBER EVER HAVING PROBLEMS.
THEN I HAD BEEN WORKING AT A FACTORY AND I GOT HURT. HAD 2 BACK SURGERIES. AND A KNEE REPLACED SO THE DOCTORS NATURALLY THOUGHT MY PAIN AND BALANCE PROBLEMS WAS FROM MY BACK. I COULD NOT GET THE DOCTORS TO SEND ME TO A NERO. LIKE EVERYONE ELSE YOU START SEARCHING THE WEB PUTTING ALL YOUR SYMPTOMS IN TO SEE WHAT MIGHT POP UP. WELL I ALWAYS GOT THE MS DX. SO I WOULD SAY, FOR OVER A MONTH I THOUGHT OR KNEW I HAD MS. (more )
Hi, my name is David. I'm SPMS dx coming up 14yrs now. I am married.
MS hit me right out of the blue. I went to bed one night as usual and woke up next morning to find that I was seeing double. In that instant my life changed for ever. I was sent for an MRI scan the results of which showed that I had four areas of damage on my spinal cord. Although the Doctors knew that it was MS, I was not told it was until I had a major relapse almost 5 years later, even then they said that although it probably was MS it could not be confirmed until I had a second relapse which I duly did have. I was in bed one morning and felt a cramp in my leg and then within 90 mins it felt like a line had been drawn down the centre of my body with no feeling of any kind on one side of it. The Doctors told me that ' hopefully I would recover' and after about 4 months I started getting feelling back again but it never came back to anything like it was. I was told at the Hospital that they (at that time), didn't have any information they could give me about MS and that the best place for me to get any was the internet. I was not even told that in the same town that the hospital was in there was a local branch of the MS Society. I wrote to as many places that I could find to get as much information as I get about MS. (more )
||.... I was honestly thrown into it... I woke up one morning with the worst case of vertigo in my life in fact I had never had it before at all... We went to urgent care and they said I had an inner ear infection hahahah five days later with vertigo I went to the er... The doc at desert banner said I don't have an inner ear infection to be safe let's do a ct scan ... They found this tumor sent me to st joes... They did an mri saw the tumor and these lesions then told me they wanted to start me on steroids and do some tests aka a friggin lumbar puncture omg it hurts!!! I was sent home.. Three days later I was back ... Had another attack... More lesions and they came in with a box of tissue and a book on "living with ms" and they sat down and told me... (more )|
||HI MY NAME IS SCOTT ALSO KNOWN AS SOULWON.IM 47 YO NATIVE AMERICAN ,IM A MUSICIAN AND A CONTRACTOR. I TEACH PERCUSSION IN PRIVATE LESSONS. I HAVE TWO AWESOME KIDS 16 AND 21.I AM MARRIED 23 YRS BUT ITS SHAKY TO SAUY THE LEAST . MS IS TAKING ITS TOLLON IT.HOWEVER I DO CONTINUE TO PRAY FOR WISDOM AND GUIDANCE. JESUS CHRIST IS MY SAVIOUR AND BEST FRIEND. I HAVE AN INSANE SENSE OF HUMOR AS YOU MIGHT HAVE ALRESDY FOUND OUT ,IM REALLY HARMLESS MUAHHH !!! (more )|
||Story to follow
||I am the librarian53. My name is Libby. I have asked the room to call me Lib. I am in Arkansas 40 miles from Graceland Elvis's home in Memphis, TN. I was dxed in July, 2005. As I was hit I was effected by the light alot. I couldn't walk without holding on to something. (The wall or anything.) I didn't need the strength, just the touch. I was normal in everyway except I did fall alot 6 months before I was dxed. I was taking care of my mom and didn't want to break anything, so I became the best faller!! My dad passed away in 2003 on Christmas Eve so I was taking care of my mom. She passed away Jan. 20, 2005, I was dxed with MS that July. I was married for the 2nd time June, 2004. I got divorced in the year 2000, so I never had MS during my first marriage. I use a walker or an electric wheel chair to get around now. I was an elementary librarian up until this June at which I retired on disabilities. I enjoy talking to people with the same problems like MS as I do. I am 53 now and have went through the adjustments of having MS. My husband supports me and is very caring towards me. I have 2 daughters 23 and 25. I have 2 grandsons 1 year and 6 months. I am on Tysabri infusions monthly. I took my 6th one 1/08/2008 Thursday. I think it is an amazing drug. Many that I have talked to have been helped out of the wheelchair and walking. I live in hopes in time it will help me too! The only other medicene I have taken for MS is Avonex. It did nothing for me and messed my mind up badly. My quality of life was bad. The only pain that I have is in my right arm and my bladder has been effected..............So for those two things I take medicene for. My sleep has been effective alot. That's my story!! (more )|
||I was born and raise in Rockford, Illinois been married twice the first one only last a year. Then my high school sweet heart mother came in hte store where i work and told me that she was getting a divorce and I told her I was too. So she gave her number and it took me 2 weeks to get the nerve to call her, because I was afraid she wouldn't want to go out with me. She only lived about 1 hour from my home town. We went through different high school she went to a high school that had some mixed people. My high school had some snotty kids that there butt didn't stink and there parents were rich and better off all of us. I didn't have nothing to with them at all my parents were rich too, but I just didn't believe in being a real stuck kid in high school. I was very different in my parents mind and my brother & sister mind. I just didn't want to hang out those kind of people at all. I really didn't believe in a lot money at all. When you have a lot of money people seem to look down on you and put you in a catagory of rich snotty kid. My wife now grew up on the west side of town where all the low income and poor people live. I spend a lot of time at my wife high school because her friends fit into my life style that I wanted to be. I told parents it was too bad that's the way I wanted to live and until this day they still do it I should keep our last name and keep up with our family image. So when my Uncle fired me from the family business that my Dad father started. My Dad and his 3 brother and their Dad before my grandfather death had 6 big grocery store I started working when I was 14. I was fired, because my Uncles was mad at my Dad for breaking up the family and leaving the business. (more )|
all know me as IQTEETH or some may
know me as Noelle. I am a
married mother of two beautiful girls that are 14 months and 2 1/2,
Amanda and Lillia. I am a stay at home mom who has put her career in
dentistry on hold to give my family all I can.
I have had RRMS since 2004 and have had a rough go at it. I have been on copaxone, betaseron, and neither gave me any relief from constant flares. I have now been on Tysabri for about 14 months and have been pretty much flare free and I swear by the drug.
I have been through a lot, the multiple doses of Iv steroids caused me to develop a rare complication called AVN = avascular necrosis which ate away at my hip bones and in 2008 I had 2 hip replacements. I Am now doing much better from that and I know there will not be anymore steroids in my future.
If anyone ever has any questions about anything I'm easy to approach so feel free to ask me anything. (more )
I'M LORRI A DISABILITY PARALEGAL FROM MAINE.
|My story actually begins seven years before I was diagnosed with MS. On July 11, 1977 I was working 3 to 11 shift in my job as a police officer. A very severe storm hit a tree. A limb that weighed over 2 tons was hung up on a small branch and down across the road. They sent my partner and I to see if we could get the limb down so that we could get traffic moving around it instead of under it. To make an extra long story a bit short I grabbed one branch to pull and my partner grabbed another to push; we figured if we could move the limb just a little it would fall and then we could move traffic around it. Instead of just falling the limb snapped and flew down hitting me right on my knees and going down to my feet crushing just about everything. Between 1977 and 79 I had seven major surgeries on my knees to my ankles from then to date I have had 30+ surgeries on my legs not to mention the surgeries that have resulted on other parts of my body directly resulted from the 1977 injury.. (more )|
AM FROM THE BIG CITY
OF CLEMSON, SOUTH CAROLINA, HOME OF THE INFAMOUS CLEMSON TIGERS. I GUESS MY MS STORY GOES A LITTLE SOMETHING LIKE
IN OCTOBER OF 2007 I STARTED HAVING A SHOOTING PAIN IN THE LEFT SIDE OF MY HEAD. I WOULD FEEL PRESSURE BUILD UP AND THEN RELEASE. WELL ME BEING THE STUBBORN GUY THAT I AM, I DIDN'T GO TO THE DOCTOR RIGHT AWAY. THE PAIN BECAME MORE AND MORE FREQUENT. I DID FINALLY GET TO THE DOCTOR, AND HE SAID OK TIME FOR A CT SCAN OF MY BRAIN.
ONCE MY CT SCAN WAS DONE I WENT BACK TO MY FAMILY DOCTOR. ALL HE COULD TELL ME WAS WE NEED TO DO AN MRI TOO MAKE SURE EVERYTHING IS OK BECAUSE SOME QUESTIONS AROSE FROM THE CT SCAN.BY THIS TIME A DX OF HIGH BLOOD PRESSURE HAD BEEN CONFIRMED AND MEDICATIONS STARTED. THE HEADACHES WERE GONE.
TWO DAYS LATER MY DOCTOR CALLS ME AND SAYS, "YOU NEED TO MEET A NEUROLOGIST IN THE EMERGENCY ROOM TOMORROW (SATURDAY). TALK ABOUT ANXIETY.....NOT GONNA LIE ABOUT IT I WAS SCARED. WHAT COULD BE SO BAD THAT I HAVE TO MEET A NEURO ON SATURDAY IN THE ER???
||I WAS BORN
IN WASHINGTON STATE DECEMBER 4,
1976. I MARRIED MY WONDERFUL
HUSBAND JOHN, MAY 11, 1996. WE HAD OUR FIRST BABY RACHAEL, AUGUST 6,
1996, BUT SHE PASSED AWAY JUST TWO SHORT WEEKS LATER, DUE TO
PREMATURITY. WE WENT ON TO HAVE FOUR MORE BEAUTIFUL KIDS SOON AFTER.
TIMMY, JUSTIN AND TWIN'S, MCKAYLA AND MCKENZIE.
WE MOVED TO ANCHORAGE, ALASKA, DECEMBER 7, 2001 AND HAVE MADE THIS OUR NEW HOME. IT WAS A WONDERFUL LIFE CHANGE FOR US ALL.
I WAS DIAGNOSED WITH MULTIPLE SCLEROSIS DECEMBER 31, 2007 AND STARTED BETASERON JANUARY 1,2008. WE CAN DATE THIS ALL BACK TO AROUND 1997, THE FATIGUE PART. I HAD MY FIRST BOUT WITH OPTIC NEURITIS IN 2006, WHICH DOCTORS TOLD ME NOT TO BE ALARMED WHEN I READ ON THE INTERNET ABOUT IT, BECAUSE M.S. WILL POP UP. WHEN I READ THE SYMPTOMS OF THAT, I HAD QUITE A FEW ON THE LIST. MUCH OF WHAT I HAD ALREADY COMPLAINED ABOUT. (more )
|I was diagnosed with RRMS in 1997. I worked as a processing supervisor in a commodities yard from 1980 to 1988. Took the whole year of 1989 off to ponder my predicament. Started driving a cab in 1990 and started an AUTOCAD class in 1993. After the class was over I finally got a job as a detailer at an engineering firm in Feb 1995. Was promoted to Designer in Oct. 1995. Quit driving cab in FEB 1995. Ultimately ending up at DANA CORP in Jan 1998. Lost that job in April 2001. The official reason was I was let go for making threats against a co worker. I was working on the PDGS cad system and training a 20 year old to use the system while I was taking classes for the SDRC cad system. (more )|
||IT ALL BEGAN ON A COOL AUTUMN MORNING. THE AIR WAS THICK WITH ANTICIPATION, DO I OR DO I NOT HAVE THIS DREADED MONSTER. IF I HAVE IT, ONLY THE NEUROLOGIST CAN SLAY THIS BEAST..... OR CAN HE? I WAS OFFICIALLY DIAGNOSED ON NOVEMBER 15, 2005, THREE DAYS PRECEEDING THE BIRTH OF MY SECOND DAUGHTER (RILEIGH) I HAVE TWO BY THE WAY THEIR AGES ARE 3 AND 6, CAITLIN BEING THE OLDEST OF THE TWO. THAT I SUPPOSE IS THE MOST IMPORTANT "CHAPTER" IN MY SAGA CALLED MS SUCKS. I WAS INITIALLY DIAGNOSED AS RRMS, BUT TWO YEARS AFTER THAT I GOT THE WONDERFUL UPGRADE TO SPMS!!!! SCORE ONE FOR JOHNSON!!!! THAT IS THE BASIC "CLIFFS NOTES" VERSION OF MY MS STORY, I WILL GET INTO MORE DETAIL AT A LATER TIME AND DATE THOUGH..... SO........ STAY TUNED (more )|
||I've been married for almost 14 years and we have 3 daughters and 1 son. I'm blessed to be a stay at home Mom. I love to cook, scrapbook, sharing coffee with a friend and taking care of the ones I love. I was diagnosed with MS in Feb 2004 at the age 29. I thought I was going blind. I couldn't see very well out of my Left eye. The eye doctor said it was a blind spot and then he sent me to a specialist and he said I had optic neuritis. I went to see a Nero doc and he told me they thought I had MS but wanted me to wait for another relapse to diagnosed it. I had a friend that told me I didn't need to wait. I went to get a second opinion. This doctor said I had it after looking at my MRI. I found out later he is the best doctor for MS in my area. I had to take steroids by IV for a week and the oral for another week to help with my vision. I have most of my vision back in my eye. (more )|
||My name is Butch. Born
and raised in Florida. 54 years old. Was in the Army 10
Gulf War veteran 89 to 91. It was sarin nerve gas while in war. Experienced a myriad of symptoms, with final diagnosis being, multiple sclerosis. I am currently living in Murfreesboro with Tennessee. Near Nashville. (more )
|I was diagnosed with MS on October 23, 2008 after a bout of Optic Neuritis. I had thought that I possibly had a dog hair stuck down in my eye (after a week + of my sight going in my right eye), so I had left work early and went to the ER. The doctor asked if I knew I had “floaters” in both of my eyes, not just one. I told him I didn’t and he said that this was bigger than they could take care of and set me up an immediate appt with the eye doctor. I went there, he did all his tests and said you have optic Neuritis and needed an MRI ASAP. He said it was a good chance I had MS, but wanted to be sure with the MRI. My son took me to the eye doctor praying I wasn’t going blind, poor kid. Next day, MRI completed, it was confirmed. I had MS lesions all over my brain and was set up with an appt with the neurologist 2 weeks later. Of course I had to go through all the steroids prior, which to me was hell. Granted, my house was never cleaner, but I could seriously do without the 10 lbs I gained! I seen the neuro, very nice man, who wants me to get some good insurance before starting any treatment and getting a spinal tap and blood work. Needless to say, I have no insurance as of yet, despite all of my searching. (more )|
||I WAS DXED IN 1995 BUT LIKE MANY OTHERS I COULD HAVE BEEN DXED 6 YEARS EARLIER AT THE AGE OF 29. I HAVE DONE PRETTY MUCH EVERYTHING TO FIGHT MY MS ,FROM AVONEX 2+ YEARS AND COPAXONE 2+ YEARS ALONG WITH 1 YEAR OF PLASMAPHERICES, ACUPUNCTURE, DIET,VITAMINS,JUICING MY FOOD YOU NAME I PRETTY MUCH TRIED IT. I FOUGHT HARD TO BEAT MS PROBABLY TO HARD AND ONCE I GAVE IN TO THE FACT THAT MY RIDE WAS NOT GOING TO BE A GOOD ONE AND I ADMITTED TO MYSELF THAT I HAD MS AND THERE IS A BIGGER PICTURE ALONG WITH THINGS HAPPEN FOR A REASON MY MS WENT ON HOLD. FIGHTING SO HARD I FEEL WAS FUELING MY MS AND ONCE I JUST DECIDED TO ENJOY TODAY FOR IT MAY BE THE BEST DAY OF YOUR LIFE MY MS jUST CHILLED OUT BUT NOT BEFORE IT PUT ME IN A WHEELCHAIR.I WAS A MAILMAN FOR 17 YEARS BEFORE HAVING TO GIVE IT UP DUE TO MY MS. I WAS AN AVID WEIGHTLIFTER FOR 20 YEARS AND REALLY MISS THE OPPORTUNITY TO PUSH MY BODY. AT THE AGE OF 35 I ACTUALLY ENTERED 2 BODYBUILDING CONTESTS AND WINNING THEM BOTH.OK NOW ON TO THE BEST PART MY FAMILY. I HAVE MARRIED TO MY HIGH-SCHOOL SWEETHEART FOR 27 YEARS AND I HAVE 3 BEAUTIFUL DAUGHTERS AND A GREAT FAMILY. I ALSO HAVE MY 2 GERMAN SHEPHERDS THAT KEEP ME COMPANY ALL DAY. WHEN WEATHER PERMITS WE ARE OUTSIDE 80% OF THE TIME CUZ I HAVE TO STAY BUSY. "HENCE WINTERS SUCK".I AM KNOWN AS THE DOG-WHISPER AND I LOVE TO COOK AND DRINK MY WINE. (more )|
||Hello every one. My
name is Terry Warren I am 45 years young and live in Winsford Cheshire
England. I am separated; I have 2 kids Andrew 24 and Kathleen 20 and 2
beautiful grandkids Callum 6 months and Ameila 5 months.
I was DX in April 2008 after having 2 MRI and a spinal trap; I was told I had PPMS and when I move hospitals I was told is RRMS I have not had an attack since September 2005 when I lost most of the feeling in my legs and was out of work for 10 weeks. Since them I have problems with my legs on a daily basis I do use a working stick if I go out for the day and doing a lot of walking. I also have problems with my balance and I have daily headaches and I do find a get confused quite often. (more )
In November of 07, I lost consciousness and was in a coma for 3 days, then was told I had a stroke.I was hospitalized for one month. Upon release I was able to walk 3-4 miles before tiring, and MS had not been diagnosed as of yet, I was able to take buses around and for a shot period i seemed to be recovering nicely, I was able to shop for myself etc. Then the falling, freezing of the legs began. around February of 08 i was given the MS diagnosis, and that i would be able to live a somewhat normal life using copaxone. Relapsing/remitting was the call, these last 6 months it seems to relapse only. Yesterday the MRIs shown no progression of lesions and yet my condition grows worse. The spinal MRI shows 2 compressed discs narrowing my spinal cord and I will be seen at the spine center soon. My strongest ally is my hope as i am fortunate to live in San Francisco close to the bio tech center of the country, We have many stem cell research centers, and UCSF hospital has all the latest meds. To me hope, good doctors, and hope keep me going, as well as this site. (more )
||Hi my name is Robin. I have 2 boys one who is 23 and the other 16. Both are joys in my life. They are into music and the performing arts. My oldest just graduated in Musical Theatre Performance and we are waiting to find out if he gets an agent. My youngest sings and is Drum Major for the Marching Band at his High School. He plans to go to school for History and possibly teach. Mike and I have been married 26 years this year. I started this journey about 2 years ago in 2007 when my vision started getting blurry and double. I saw the eye doctor who ordered the 1st MRI. I was seeing a PMR doc at the same time for Fibromyalgia and had the report sent to him too. Eye doc said I needed to see a neurologist. PMR had already set up the appt the week before when he saw the report. I still don’t have a conclusive diagnosis yet even with all of the testing they have done for other health problems to make sure if it is or isn’t MS. (more )|
||Hi everyone, my name is Belinda (Wilbelle in chat) I live in rural Indiana. I am 40 yrs old, married to my best friend William, and have two terrific daughters, 19 & 16, who make me proud every day. On Sunday February 25, 2007 I awoke with a gray smudge on my left eye, thinking it was nothing I chose to ignore it and went about my day. I didn’t have any pain or real problem with it, I just couldn’t see clearly out of that eye, I was certain it was probably some kind of infection and would clear up in a day or two. I told my husband about it that night insisting that it was nothing to worry about, he mentioned it to his mother the next day and Monday night my mother-in-law called me and convinced me that I should get it checked out. I called my regular optometrist to make an appointment for later in the week (when it would be convenient), when I explained what I was experiencing he said it could be something serious and wanted me to come in right away. When I got there he said it might be a detached retina and sent me to an ophthalmologist right then. Even at this point I didn’t think it was all that serious, I had my mom go with me because I figured they would dilate my eyes and I didn’t want to drive afterward. The doctor that I was sent to diagnosed Optic Neuritis and sent me to have an MRI that very day. Next day he called to tell me the MRI showed markers of MS and he referred me to a neurologist. My neurologist ordered several labs and explained the various mimickers of MS and sent me home to await the verdict. April 10, 2007 the diagnosis was official and the roller coaster began its decent! (more )|
||I am like a nut that fell from the MS Tree and planted myself in the PeopleWithMS dirt and now I am growing strong. (more )|
||My name is Kim. I live in the Buffalo NY area. Was DX in 2004 after 14 years in limbo. First Sx was On. Went blind in left eye for a month. Doc never said a thing about MS. FancyKim|
|Hi all my
name is Jen. I have SPMS. I was dx in February of 2003. It all started
while i was pregnant with my son, I was constantly complaining of
numbness on my left side, esp my arm. Of course they blamed it on the
pregnancy which at the time seemed plausible. Then in December of 2002
I lost vision in my left eye. I want thru MRIs, steroid treatments and
finally a spinal tap. I was then dx with RRMS the following February.
When the docs told me I had MS I immediately thought i was a "Jerry's
kid", obviously I didn't know what MS was.
I started taking Avonex, which i hated!! The neuro I had at the time was constantly pushing steroids into me which caused dangerously high eye pressures, and as a result I am legally blind. I have had laser surgery on each eye to relieve pressure, but the damage was already done. ( more )
|I was diagnosed at the age of 21, I have had full body numbness, double vision, opt nirirous, but now that I am on tysabri those things have not been a problem (more )|
||I have multiple sclerosis. I must have stolen it from someone. I am willing to return it so if anyone knows who's it belongs to, I aam will return it it. I have 2 beautiful girls. my eldest is almost 8 (spina bifida) and my youngest is 4. My eldest has taught me a lot. Her pearls of wisdom include " I have spina bifida, what's your problem" snd when I whine about something to do or have done medically... "Dad, ya gotta do what ya gotta do" My kids mean the world to me. The most pressing on my mind right now is them. It is hard right now because I stayed with someone that I loved but, did not have the love to give back to me. I am coming to the conclusion that I hung on to my relationship because that is what I wanted to do or needed to do. I did not see the fact that I was alone and fighting MS by myself. I now know that one of the spinoffs of MS is a relationship killer or it can be if people let it. Even with that I have the rosiest outlook for the future. I have a plan, get healthy and get my kids. What else is there. I have great friends and supportive parents. What else do I need. Onwards and upwards. Everyday looking down on the flowers and not up at them is a day full lof possibilities. Life has a way of challenging you and now that i have figured out what the challenges are...Look out. Don`t ever think or feel that you are alone, you may be physically but don`t be in your heart. more|
||HELLO MY NAME IS DAVID HERBSTRITT I'M 52 NOW I WAS DXED IN 3/98 AFTER GOING TO 6 DRS.I WAS ADMITTED TO A NUTHOUSE VOLLUNTARILY FOR A WEEK CAUSE ONE DR SAID I WAS MENTALLY CHALLENGED.AFTER THAT WK I WENT TO THERAPIST AND TOLD THEM I'M NOT NUTS JUST STUPID.THAT WAS THE VA DR THAT TOLD ME I WAS NUTS.AFTER GETTING OUT I WENT TO ANOTHER DR AND SAID I DONT MIND PAYING BUT AOMETHING IS WRONG WITH ME JUST FIND IT.HE SENT ME DIRECTLY FOR A MRI AND BINGO I WAS DXED.6DRS AND 8YRS LATER.AFTER ALL THAT MY WIFE DIVORCED ME CAUSE I COULDNT WORK ANYMORE.BUT OH WELL LIFE GOES ON.I HAVE 2 KIDS A 17YR OLD DAUGHTER AND 13YR OLD SON. more|
||Story to follow ( more )|
||Story to follow ( more )|
||I have been recently diagnosed with MS. It all started in April when I started to suffer from double vision, it took me 2 weeks until I went to the doctor to have an eye test, the doctor said that I had weakness in the muscles of my eyes. However I did ignore the whole thing and the double vision soon went away. 15th of April I headed to Essex for the last term to sit for my exams. During the term I spent most of it studying and getting little sleep. I was tired most of the time but blamed it on the lack of sleep. 6th of June I was back in Amman and everything was pretty normal the first day. The next day I was invited to a party. I did notice that most things were blur when I looked at and some were double, didn’t pay much attention for the whole thing not that I improved but I just thought that all I need is sleep. On the 10th of June I found it a bit difficult to walk in a straight manner and on this very day my left leg was so weak that I couldn’t move it normally. Things stayed the same and all I heard from my Mom and Dad is you should get more sleep or this is malnutrition and when my father saw me the way I used to walk he used to have a go at me. Maybe because all the symptoms I suffered from were Brain Tumor symptoms and he was scared and indenial. However around the 20th of June Baba took me for a C-T Scan and thank GOD everything was normal, it wasn’t what my dad and I thought, Brain Tumor. On the day of my birthday I went again to a different doctor to check my eyes and again he said that there was nothing wrong but advised us to go see a neurologist. I did go and he told me that there was definitely something wrong after examining me but couldn’t tell what it was until I went for an M.R.I, we did tell him that the C-T Scan shows no sign of a tumor so its not that and he answered “I hope not”. I think this was the most depressing moment of my life when I didn’t know what to expect the next day, the unknown is always scary. ( much more )|
||My name is Graham. I live North Carolina. I am 34 and I was diagnosed with MS 11 years ago. I have used it all; cane, walker, manual wheelchair, and now a power chair. I always say, I have MS, but MS doesn't have me! ( more )|
|Bonniecat17||( Bonniecat17 )|
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