|
|
|
|
Lisa & Jim Boisvert
|
I
was dx with (RR)MS in Feb.1995. I used Avonex injections once a week.
Approximately once, and sometimes twice a year, starting around 1999
was on solumedrol intravenous for 5 days at a time, which seemed to
work. However, my neurologist decided to put me on Rebif around August
of 2002.Avonex was not working on me as well as he wanted it to work. I
have been on solumedrol but not has often. Mom gave me the Avonex
shots. My husband Jim gives me the Rebif shots. I do have pain from the
rebif so I have to use a anesthetic patch two hours before the shot. I
am mobile. I do use a wheel chair for malls and distance. during the
day sometime I have to use a walker. I have a lot of support form all
of my family. Most of you know My mom Deb in chat and step Dad Mr. Red.
My grandmother also lives with us and it has been a lot of help when I
am in a flare up. I love animals. I do read a lot. watch soap operas.
One of my favorite places is the www.http://magicwings.com
I could just sit and relax and watch the biggest most beautiful
butterflys I have ever seen. I do try and check in chat as much as I
can. I do enjoy spending time with my husband watching TV and just
being together. Be strong we will have something to stop
progression soon! God Bless. Love you all xxoo Lisa (more ) |
| Red
& Deb Durgin
|
After a
number of months of difficulties, I was MRI'd and swiftly diagnosed
with....surprise!!! Multiple Sclerosis. Multiple
whatsis? I
knew nothing, was scared, but resourceful. I sought out every
source of on-line information. One source being a woman whose
daughter had been diagnosed with MS a couple of years
earlier. We
shared information, and more. Fell in love. Were
married. Gained a stepdaughter, Lisa (above) and
stepson-in-law,
Jim. Started this website to share what we have
learned.
Have been living happily ever after, one day at a time. (more) |
| Delbert
Richardson
|
Currently
holed up in Shawnee, OK due to snow flurries. If any accumulates on the
trike I'll be adding those pictures as well. Today will be trying to re
route my trip so I can make up for lost time. Well wishes to my
extended family of MSers. Will keep in touch.
Delbert
Richardson - One the Road
again. (more |
| Dreamcicle
|
Hi my name
is Cheryl Heide but my friends call me "dreamcicle" or "dream". I am a 53 year old single mom of a 23 year old daughter (Becky) and 2 beautiful grand kids Alexandrea 3 years old and Bradley 2 years old. I live in Warren, Ohio but I am originally from New Haven, Michigan all my life. I was dx with R/RMS in 1992. Right now I have taken almost all of the ABC drugs with no improvements and I am seeking a new doctor to see what other medications I can take to put me back into remission. (more ) |
| Muff
aka sammiwammi |
I have
RR MS I was dx in 1990. I was rear ended real badly one
morning
on the way to work. Later that day my whole right side went
numb.
Since I was a volunteer EMT, I thought I may have had a stroke. My
chiropractor sent me for an MRI. That next week he said to me
“I have
good news for you and I have bad news for you.”
“The good news is you
did not have a stroke, the Bad news is you have MS. I said to him I
would much rather have MS than to had a stroke. As many people do not
recover well from a stroke. (more) |
| Donna
aka Spiceygrannie
|
I am a 50
year old female, diagnosed with MS in March of 1989. In January
(actually New Years Day) 1989... my husband left for his after noon
shift at work.... When he arrived back home some 12 hours later... I
was still in the chair I was in when he had left for work....as when he
arrived home after his shift;... I was not able to walk or talk at that
point and the doctors in their infinite wisdom decided that I had had a
stroke... it took 3 more very difficult months of hospitalization and
hundreds of tests to finally prove that I had MS.... NOT A
STROKE.......what a relief!!! I was at that time issued a cane and a
set of instructions to learn how to use the cane properly.... By
September of 1989 I was completely incapacitated. Bedridden , Incapable
of taking care of myself. .. In a wheel chair.. unable to feed
myself.... bathe myself ... unable to do any everyday functions of
everyday life. (more) |
| Gricey
|
I have
been suspect of MS since July 1999.......... 1st attack was double
vision that put me in hospital for a week on steroids, and over all
lasted for 3 months. I see my Neuro every 6 moths for check ups and my
Optomologist checks out my eyes. Basically no one says I have MS yet,
but signs show that it maybe MS. My symptoms now are fatigue and still
vision problems with double peripheral vision at all times.
(more) |
| Jack
|
My name is
Jack Halley and I live north of Chicago and have R-R MS. Back at the
outset I didn't have too many symptoms but ended up
taking ACTH from an infusion pump in the hospital for a week or so once
a year at the beginning. Later on when Solumedrol came became the med
of choice, went in and received it IV at the hospital. Since starting
Avonex I haven't had
an exacerbation since 5/1/98. My 34 year old lovely and energetic wife
that I was with for 15 years and married for ten passed away and left a
void in
my life. I try to not think about it and just move forward as we all
have to do with MS. I workout with weights still and stay busy so not
much time
for reflection. Some personal notes............ I was a captain in the
Army, have 6 years of college, Scuba diver, Private pilots
license etc. Just to give a look into my private life......Hugs to all
and pray for a cure (more) |
| Judy
|
My name is
Judy. I have a much longer story to tell you but this is just a short
version. I am 49 years old, married 30 years, 2 boys, 30 and 26, 2
grandsons, 7 and 3 1/2. My husbands name is Reed and he is also my best
friend. I have had MS for 13 years and have been on betaseron for a
little over 10 years now and I am doing great. I have been through hell
and back but with the support of my family and my positive thinking, no
one can tell I have MS. I refuse to let this monster get me and I know
most of you feel the same way I do. We are all in this till the
end...So lets keep smiling. (more) |
| Ronnie
|
We
live in the beautiful medieval town of Ross-on-Wye close to the
English/Welsh border, surrounded by stunning countryside. We moved here
from the city three years ago and have never looked back. The hustle
bustle and nose to tail traffic everyday was becoming stressful for Mel
and we were aware that any form of stress was aggravating his ms
condition. We had tried to cope with life since his dx, which came just
eight months after we got married, and decided we needed to be in a
more relaxed setting. Here the sky feels bigger, the sun shines
brighter and it feels easier to cope. From previous marriages we have
three beautiful children, three very special grandchildren (with number
four due anytime now).......they are all very precious to us.(more) |
| Steve
aka Sonic
|
I am
currently 40 years old and I have had MS since I was
13. At the age of 13 I had Pars Plantis and I was going blind. The
neurologist
treated me with a series of cortisone shots in my eyes to save my
vision, My
vision is fine now. I have gone blind many times over the last 9 years.
I have
had limbs paralyzed a few time but recovered thanks to IV Steroids. I
was
officially diagnosed in 1995 after 20 years of symptoms. I was so happy
to find
out I had MS I was finally able to get treatments for it. I now suffer
from
serious memory loss. I lost an entire year worth of memory and I suffer
from
short-term memory loss. I am also suffering from severe depression and
I am
being treated for it. I am currently disabled I suffered a serious MS
episode
and I was in a vegetative state for 2 weeks and it took me 6 months to
learn
how to function after I recovered. It took me 6 months to learn who I
was who
family members were. I also had to learn how to walk, talk, type and
drive
again. This episode forced me to go on disability. I am doing fine now,
much
better than I have been. I am currently in the middle of my Novantrone
Chemo
Therapy treatments and it is working very well for me. So the moral to
my story
is no matter how bad it gets keep FIGHTING you can over come anything.
Stay
positive and just learn how to adapt to new symptoms. (More) |
| SteveNL
|
The MS
hasn't changed or even changed me, I have always been positive about
things including life, what will be, will be, I started in 1990 with
progressive but after getting a heavy attack in December 2002 the
neurologist started me on daily Copaxone injections (not scared of
needles) I am please to say, he also re-graded my MS to R/R and now it
is as I write this March 2004, the MS seems suppressed, Copaxone seems
to be doing what it is supposed to do and me, well as always just
getting on with life and enjoying what I can do the best way I can,
life is fun, life can be fun, make the best of it and be
positive........ More
) |
| Share
& Husband
|
Hi my name
is Share and here is a tidbit about me! I was dx April 24, 2001. I was
given my dx over the phone by a terrible neurologist who was very
crude, rude, and matter-of-fact about this life changing information.
Luckily I am married to my gardian angel and have two wonderful sons
who just go with the flow of life. I have learned to slow down (ok I
had no choice) and smell the roses, watch the breeze thru the trees,
and look up to the clouds. WOW nature is facinating when you take the
time to really look at it. I am very optimistic and I will do whatever
it takes to overcome and eliminate this monster from my life and
irradicate it from the world so my children and future generations will
not have to suffer thru it. I run a support/self-help group in my
community and I find that very theraputic (much better than a shrink).
I am on Betaseron, baclofen, and celexa. I believe in complemetary
medicine therefore I do alternative treatments as well. My mantra in
life is every problem has a solution! (more) |
| Terry
aka Tee
|
HI , my
name is Terry aka Tee and my wifes name is Maryann, I am the caregiver
for my wife of 41 years. she has ms for the past 23 years. She uses a
w/c most of the time but can still walk a little with her walker. (more ) |
| Ali
|
I have
spent most of my life in Oregon, and I love it
here. I have 4 kids and a great husband. I had exacerbations several
times before in my life, but didnn't know what it was and just ignored
it.
When my mother died unexpectedly in May of 99' I had a major
exacerbation. Vision blurring, stumbling , vertigo, etc. I was
diagnosed with MS in late
June or early July of 99'. I have had major depression since my mothers
death. I have been on
Avonex, then Copaxone, then solumedrol IV
treatment for 3 days. Now I am on Rebif. I really like the group here
because it's nice to be able to talk to others that know what it's
like. Everyone is so nice. Thank you for inviting me here. Take Care,
Ali (more) |
| Diane
|
Hi my
name is Diane and I was RX with RR multiple sclerosis in June of 1983.
Some people think I might be a little whacky, but I was told over the
phone by my neurologist and all I could do was thank him over and over
again, as MS was much better then what I was worried my results would
be. In my mind I thought I had a brain tumor or ALAS, so I could deal
with this diagnosis. I am a fifty year old divorced woman, my choice
not his, which I did six years ago. I decided my life though scary on
my own with a disease would be much happier then with a person who put
me down
and made me so insecure about myself I had to look to others to
validate I was a good person. (more) |
| Joan
aka MSBunny
|
In Jan.
1986 I had my first mini stroke. Feb. saw ENT doctor (don’t
know his
name). Mar. had second mini stroke and saw an intern doctor (still
don’t know his name either). Went to see my sister, Kim, in
Boston and
had a seizure. June had third mini stroke. July stopped driving and saw
one doctor (still don’t know his name either) in Columbus, MD
and one
MS doctor (still don’t know his name either) in Towson, MD
and ATH in
St. Joseph Hospital. Sept. we decide to see Dr. Johnson, a MS
specialist. He said it could be MS but more likely strokes. Oct. stayed
at University of Maryland for 3 weeks saw Dr. Price, had a lot test,
had another seizure, and because of bad test result had penasine. In
August 1987 had symptoms of a seizure and went back to UofM and another
test found a hole in my heart. Sept. saw a cardiologist and surgeon at
St. Joseph Hospital and had open-heart surgery. In 1993 MS showed its
ugly head. Dx with relasing progression. In April 1999 started Beta.
August started Detrol LA. Sept. did not sleep for 3 weeks, depress,
went to St. Joseph Hospital Mental Section for help. Stopped Beta (made
me worse). Dec. got an E/W/C . In August 2001 started Novantrone. In
May 2003 stopped Novantrone. (more) |
|
Helen
|
I
firstly began with problems when I was
14, but they were to do with my back, so now there is total denial that
I have ms in my
back. I was diagnosed in around September 1999, I had a provisional
diagnosis in February 1999 and all the tests were done in October 1998
when I was taken into hospital for a week. Previously to that my back
had felt as though it had gone numb, I had lost all temperature on my
left hand side, my left leg kept feeling as though I was going to have
some sort of fit. My husband called out a doctor one night and he
diagnosed me with a trapped nerve in my foot. Gave me some sleeping
pills to allow me
to get some sleep and then told me to go and see my own GP the
following day. My own GP contacted a Neurologist and I had an
appointment and was in hospital all within 10 days. All the tests were
completed within the week that I was in hospital then a diagnosis given
within a year from that after
I suffered a bad form of Optic Neuritis. (more )
|
|
Gumdrops aka Candy
|
Gumdrops
is out of her wheelchair, after lots of hard work. She was
told; "THAT ANY TIME I COULD GO BACK INTO
A WHEELCHAIR,
SO ENJOY IT AND TAKE ONE DAY AT A TIME." She's
now back
to teaching Kindergarten. On top of her own 7 kids,
ages;
26, 24,24, 21,13,8, and 1-1/2 plus 5 grandchildren. (more)
|
|
Jan
aka Applebastic
|
I guess
this story begins with a bit about me. I'm a 31
year old mother of 3 fantabulous children, ages 8 *Chantelle*,9
*Blaine*and 12*Shaelyn*.
And I have a wonderfuly supportive husband named Ted, who has been with
me
through it all. MS isn't my only *snerk* as I like to call them, lol I
also
suffer from a few other things also, OCD, Depression, Anxiety Disorder,
Myofacial Pain Syndrome (which is in the same family as Fibromyalgia)
and now
they are thinking I am Bi-polar. Hey, if your gonna do it, do it right!
lol (more) |
| Deanna
aka GMATractor
|
WE LIVE IN
OHIO, HAVE 3 KIDS AND 5
GRANDKIDS. WE HAVE LIVED IN THAT HOUSE SINCE 1969, I WAS 17 WHEN WE
BOUGHT IT AND JACK WAS 18. SEEMS LIKE IT WAS JUST YESTERDAY, I HAVE HAD
MS SINCE 1998 THAT WE KNOW
OF, BUT SYMPTOMS DATE BACK TO 1979. LIKE SO MANY WITH MS, I WAS NOT
DIAGNOSED PROPERLY. I SEEM TO BE DOING FINE. I STILL WALK AND DO ALL
THE THINGS I DID BEFORE I WAS DIAGNOSED, SO NOTHING HAS CHANGED THERE. (more
|
| JeffS
|
My name is
Jeff. I have MS. The relapsing remitting type. You know, relapses come
and go, then back again someday. I was almost declared secondary
progressive. That never happened. Now for a little about me. I grew up in a small town and graduated high school with 68 students. So small that fun on Halloween was to take a tractor with a manuer spreader full of pumpkins down Main Street and toilet people’s car door handles. Woo hoo. Maybe MS is payback hahahha. I married the girl that went to school with me. It seems odd that were still together for so long. Must be true love. We’ve been thru hell and back, but I suppose its how you pick up the pieces and move on . . . (more )
|
| Betty Jo
aka GrannyBJ
|
Hello
everyone! My name
is Betty or you can call me Betty Jo or Jo or BJ. I might even answer
to HEY YOU! just to get my attention. I just wanted to tell a little
bit about myself. I am married and have been for 33 years. My husband
and I are high school sweethearts. I meet him at the first dance of my
freshman year. Sam was a junior. We attended Catholic schools. He went
to an all boy school and I went to an all girl school. (more
|
| James
|
This is about me and all my fun in life. I graduated from Architecture in 1983 and from Ottawa (Algonquin College), moved on to Kingston for Civil Engineering (St. Lawrence College). While at school in Kingston, I met a wonderful girl that is now my wife (18 Yrs this month). We loved life and freedom and both worked and traveled together every year. In 1994 we had twin boys, premature, but they are now 10 and healthy. They were 12 weeks early, 2-12 and 3-6. I have been Diabetic since 1970 and in 2001, I began having eye trouble. The Doctors determined that it wasn't diabetic related, but it wasn't until my legs got really weak, (I couldn't climb the stairs), I was admitted to a hospital in Ottawa (Canada) and they figured it out. Steroids put me back on my feet, but "Optic Neuritis" struck me and never left. > I
now have a "seeing eye
dog" and we rarely stay home. I have enclosed a picture of me and Jack.
I don' have one of us and the family. My wife and I have been together
for 18 yrs and we have twin 10 yr old boys. We also have a cat, but she
doesn't count. (more |
| CarolPA | I
have R/R Multiple Sclerosis. I was dx in 1991. I have been taking
Betaseron shots since 1997. My caretaker is my husband of nearly 39
years. I have two "children". A daughter who is a police
officer
and a son who works for Wal-Mart. My son is a single parent, living
with us with his 6 year old son, who is apple of our eye.
(more) |
| Dana
|
Hi, my
name is Dana I was dx with rrms in 1997 and about a year or so later
with epilesy as a result of my ms. I currenty take copaxone for my ms
and carbatrol for epilesy and provigil for fatigue. My good friend
Lesley Anne invited me to come to chat she is always looking out for me
like I do with her. I enjoy talking to other with ms trying to help if
I can and make some good friends (more
)
|
|
Rod
|
A few things about Rod . . .
)
|
|
Wayne
|
I'M A
SHADOW DANCER
I DANCE WITH CHANCE ON THE GREAT DIVIDE ' I DANCE ON THE EDGE OF LIGHT... IN THE SHADOWS OF THE NEITHER WORLD ITS
LIKE THE PLACE BEFORE DAWN
THE DARK LIGHT WHERE ALL THINGS ARE
STILL AND
QUIET (more
|
|
Crystal
|
Hi,
My name is
Crystal. I have had MS since 1987. I was married for 20 years and I am
now divorced. I have 2 girls and 2 grand kids. I live in Kansas but I
am originally from LA. I go by BoardWalkAngel in chat. My friends call
me Angel. I love to collect angels (fiberotic is my
favorite),
cats, unicorns, and other mystical creatures and animals. I try to go
by this moto: What not kills us makes us stronger. (More
)
|
|
PattiK
|
I was
diagnosed with multiple sclerosis in September of 1998. Thinking back
on all the signs given me, I feel so ignorant. I never heard any
information about this disease. I knew that my Father’s boss
had it and
used a cane to assist him when walking. My first clue was how clumsy I was.... (more )
|
|
Baggie
Boy
|
My name is
Bill, and I am a 48 year old living in the West Midlands, England. I
have been happily married to my wife Sue for 26 years, and we have a 22
year old son,
Matthew. He has just graduated from Wolverhampton University, and we
are very proud of him.
I was
diagnosed with Cerebral
Degeneration of the brain in 1990. My consultant informed me that this
condition is similar to Multiple Sclerosis. At this time I have a
mobility problem. I have a wheelchair which I occasionally use, but
prefer to use my elbow crutches.
(more
|
|
SandraUK
|
My name
is Sandra Emery known as UK Sandy x
x, i am 48 years old but i assure you i am very young at heart I am
married to Philip been married for 23 years now wow a long time ah l I
have RR MS wonderful thing ah. well lived with MS for 23 years now i
quess it is part of me part of who i am and i think we live together as
well as we can
although i would rather live with out this MS as i presume u all would
who have it (more
) |
|
BCTourbus
|
My name is Eddie, but I
also answer to BCTourbus, ThirteenthAngel and Crazy Uncle Fatedealer. I
am a 36 year old male from Fort Worth, TX with RR/MS I have two
daughters, Lauren 15, and Peyton 13, that live with their mom and
step-dad in Oregon. They are my pride and joy. I
currently use Rebif three times a week. (more
) |
|
Lonewolf
|
My name
is Bill, AKA Lonewolf. I am 52. DX 32 years ago. I live in Indiana. I
drove a truck for many years. Oh, and yes, motorcycles were a big part
of my life. I've lived with this rascal we call MS for many
years. I'm not "About" to give into it and I don't want you to either. (more) |
|
Zzipman
|
Hi I'm a
48/m/ live in Calgary Alberta, Canada I have RR ms I hate MS but it has
become part of my everyday life so I try stay positive for my self and
of coarse to others we are our strength
I'm Married with one 17 year old daughter I work full time I have bad days I do not take any meds anymore I see a Nero once a year I do light weight lifting I used to ski ride bicycle but MS stopped that so I try keep active as I can I'm
new to this room and
already met great people so I guess you'll have to put up with me
lol
(more
|
|
Bobbi
aka Bibbi
|
MY NAME
IS BOBBI JO, I WAS BORN IN 1976. MY PARENTS WERE VERY YOUNG,
AND
DIDN'T WANT TO GROW UP. BY THE TIME I WAS 3 MONTHS OLD MY
GRANDMA
TOOK LEGAL
CUSTODY OVER MYSELF AND 2 BROTHERS.
(more
)
|
| Stef
|
Stef is one of our young chatters from
Scotland, waiting on a diagnosis. His story is pending, but
he
sent us a couple of fine photographs to tide us over.
(more
) |
| Remo
|
Hi
there! MY NAME IS DR REHAM MEGAHED FROM EGYPT. 28 YEARS OLD. DIAGNOSED DECEMBER 2002. NOW I'M NOT TAKING ANY MEDS, ONLY VITAMINS & OMEGA3 I HAVE THE RELAPSING REMITTING TYPE BUT NOW I AM FREE FROM ATTACKS THANK GOD. I GET SYMPTOMS OF FATIGUE, NUMBNESS , POOR CONCENTRATION ESPECIALLY IN HOT WEATHER. (more ) |
| Linda
|
I AM 56
YEARS OLD, I LIVE IN OAKLAND COUNTY. I HAVE TWO SONS, JOHN AND JAMES,
JOHN IS 30 AND JAMES IS 28 AND I HAVE ONE GRANDSON, NATHAN. THE THINGS
I LOVE THE MOST IS TO FEEL THE WIND ON MY FACE, TO LOOK AT THE BLUE
SKI, AND TO SEE THE BEAUTY THAT GOD HAS GIVEN TO US. I LOVE TO BAKE AND
COOK, I HAVE COCKER THAT IS WHITE, HIS NAME IS BRANDY, HE IS THE JOY OF
MY LIFE. HE GIVES ME SUCH UNCONDITIONAL LOVE IF I WAS TO SAY ANYTHING
ABOUT MS, IT WOULD BE THAT IT MAKES YOU ENJOY THE SMALL THINGS IN LIFE.
I AM TRY TO LEARN NEW WAYS OF DOING THINGS AND TRYING TO LEARN TO SLOW
DOWN, I AM LEARNING TO SMELL THE ROSES, LIKE THE SONG SAYS ONE DAY AT A
TIME. LINDA (more)
|
| Robin
|
Hi,
my name is Robin I am 44 years old and I live in upstate New
York. I was diagnosed with MS September 29, 2005. It really
wasn't much of a shock to me because i figured on my own it was either
that or a brain tumor. It was a long hard battle trying to find the
doctor that would actually order the right tests and find out what was
wrong with me. It seemed like all they ever told me was, you don't have
this and you don't have that. I was starting to think I was going
crazy. I knew there was something definitely wrong with me cause I
could hardly walk and my hands and feet were so numb all the time. (more) |
| Norma
|
I
was dx'd with MS in July of 2000. I was to be married then, but he
couldn't deal with me having MS. I since then found my soul mate! I've
been married since Feb. 10, 2006 He is such a good guy! MS affected my
balance and my vision and my memory. I don't let it get me down! I have
not driven since I was diagnosed. Yes, that is what mainly ticks me
off. But you just do what you have to do. I do volunteer work at the MS
Society. I do Friendly Listening. I'm also a MS Support group leader. (more )
|
| KellyKat
|
I
was dx'd with R.R. MS in 1998 after experiencing optical neuritis and
many doctors appointments in a very short time. I grew up in Florida,
but a few months after I was dx'd, I moved to Georgia in order to
attend college. Two years after my dx, my mother was dx'd; she is still
in Florida with my younger brother and sister. I am still residing in
Georgia while I study and prepare to apply to law school. As for
treatments, I am now on Tysabri; prior to Tysabri, I was taking Avonex
and steroids on a regular basis. I was briefly on chemotherapy which
did stabilize me. I am currently living in Atlanta where I would like
to attend law school, so keep your fingers crossed! (more )
|
| Mikee
|
I'm
Mike, 46, diagnosed in 1991 with so called benign MS. since then, many
nuerologists have stated that i have RR, and secondary progressive, and
back. In 2000 was told by Oxford university professor that he wouldn't
expect me to live for another 12 months, as my MS was so rampant. Since
then, I've come off all medication under my own fruition, and have
successfully completed the Detroit Metro MS150 bike tour on two
occasions (except it was 186 miles in 2 days).
I'm planning on going back to work after a long gap, so fingers
crossed. (more )
|
| LadyCove
|
WELL,
AS THE STORY GOES... IN DEC. 2004 MY 16 YR OLD DAUGHTER PASSED AWAY
VERY
SUDDENLY. NEEDLESS
TO SAY I WAS DEVASTATED WITH GRIEF. I RETURNED TO WORK 2 WEEKS LATER TO
KEEP MY
MIND
BUSY. AS THE WEEKS PASSED I FELT THAT I WAS GETTING A GRIP ON MY LIFE.
THEN IN
JUNE OF 2005 I
WAS OUT SHOPPING AND ALL OF A SUDDEN MY WHOLE RIGHT SIDE STARTED GOING
NUMB. I
FELT LIKE I
WAS GOING TO PASS OUT, SO I HELD ON TIGHT TO THE BASKET I WAS PUSHING.
(more )
|
| Nancy
|
MY STORY BEGAN AS A CHILD IN GRADE SCHOOL... I HAD A LOT OF UTI's (URINARY TRACT INFECTION) AND HAD SLEEP DISORDERS TOO. I HAD SOME CHILDHOOD TRAUMA AS WELL, BUT THAT'S ANOTHER STORY. AS A RESULT, I WAS PUT INTO FOSTER CARE AT THE AGE 11. BY THE TIME
I WAS IN HIGH SCHOOL I
WAS ON THE TRACK TEAM AND IN GYMNASTIC SQUAD. I NOTICED I WAS HAVING
PROBLEMS WITH MY BALANCE. (EVEN THOUGH I WAS INTO SMOKING A LOT OF POT;
I STILL DID ALL OF THIS) I ALSO NOTICED A LOSS OF VISION AT TIMES. I
WENT COMPLETELY BLIND ONE TIME. (TEMPORARILY) (more
|
| kellie
|
Hello, my name is kellie
and i am 26 years old, I've only been DX since last Feb. I am
new
to PWMS and I love it! Everyone is so very nice and even
though
they are miles and miles away I feel like sometimes they're right there
giving me hugs. Thank you very much for being you!
(more
)
|
| Wayno
|
My name is Wayne ( Wayno
) & I live in Australia. I was dx with MS ( RR ) in December
1994.
I currently use Rebif - injections 3 times per week & have done
so
for a number of years now. I have previously tried LDN &
chemotherapy & I'm currently looking into trials that are being
undertaken here in Australia & awaiting approval of funding for
Tysabri here. I am 48 years of age, married to Yvonne & we have
have 3 sons, Anthony 23, Brendan 21 & Jason 19. I used to work
in
Sales, up until 2004, when I had to give away fulltime employment
&
now I do part time marketing work from home.(more
)
|
| Mags06
|
Hi my everyday name is
Marion. I live in NC near Raleigh. I have lived here for 18 years but
before that I lived in England, the land of my birth. I have been
diagnosed with Primary Progressive MS since January 2006. The long path
of getting a diagnoses was a horrible experience. I have a husband of
23 years Russ, and 3 sons. Trevor 30, Matt 22 and Kyle 20. Thank God
they are now grown up and turned into very decent young men. I was
married before at the age of eighteen which was great, but he got sick
with his heart and died young. So I was a young widow with a 1 year old
baby. I have great faith in God and He got me through. Now I am trying
to get the very most out of life as long as I can. Two years ago, while
still in limbo land I bought a horse for myself. (more
)
|
| Vanesr
|
My name is Vanessa.
I am 48 years old with 2 adult children. I
live in Pittsburgh, Pennsylvania. I have MS dxed 1989, unable to work
since 1996. I have the most bravest man there is, since I told him all
about my having MS it did not scare him away, he is the best. We have
been together 10 years. My MS sx's are all the usual stuff. I walk with
a cane in the house, scooter for outside use. My balance is affected
and my leg muscles are weak. I do intermittent catheterzations
daily. (more
)
|
|
RonB
|
ronb has been diagnosed
with MS for three years, and started out on
Copaxone. It wasn't quite working out, so he switched to
Rebif a
year ago. Early troubles with vision, memory, and balance became
6 months of blindness.
But he's fought back,
got his vision back,
and still driving. (more)
|
|
Hemastat
|
I am a Female 65 years old Widow. I
am on no ABCR drugs. Or any other treatment. I am living in Texas With
my CAT! My cats name is Mischief !
I was Dx in 1972, But I know I had it since at least 1964. I was 28 years old at the time of DX. I am doing very well. I felt like I was in Remission for about 20+ years! Not so much lately. I worked full time for many years! This past fall was the last time I had a Relapse. (more)
|
| Tara - Linda
H
|
Hello Everyone, I'm Linda from , Eastern Canada (
Nova Scotia
).Married to my high school hunny and we have two grown boys. One is
still at home and the other is now a daddy himself as of Sept 15th
/2007.My grandsons name is Ethan.
(more |
| IceBaby
|
Story to follow . . .
(more)
Meanwhile, read her Poem, Find Me
|
| Kim
|
I was diagnosed with MS when I was 24 . Yes
it was a huge blow but I dealt with it. Life goes on. I had no choice.
I had a baby girl that needed me and I could not and would not let her
down. My family doc is the one who dx'd me. I went through two neuros
before finding the best one I could ever have met. She has since moved
to Cape Cod. My Luck. I have been waiting for 11 months now to get back
into this new neuro. Relapses come and go I am tough. I live by the
grace of God and for the love of my daughter. I have been on many
therapies. First Copaxone, which caused me muscle atrophy. I tried
Avonex, and last I was on Rebif.
(more)
|
| Rick
|
Hi, my name is Rick…this is my
story
I’m 48 years old and was
diagnosed at 36 with RRMS. 1st exacerbation I lost all feeling in my
body, it steadily went numb. Almost a year later the feeling began to
return, in reverse of how it started. The end result being only my left
hand has remained numb. (Great when needing to get finger jabbed for a
blood sample.(more |
| NRJ
|
My
name is Neville Johnson, I live in the
foothills of the Rocky Mountains in the City of Calgary, Alberta
Canada. I have
been dealing with MS since the mid 1980’s. It has not
bothered me much (nor I
have I bothered “it”) until the past year.
I’m not on any meds at the
moment except Baclofen for spasticity of my legs. I have three great
children,
twin boys 29, and a daughter 27. I’m divorced, and was a
single parent through
my children’s teen years which accounts for the gray hair. I
even have two
sweet grand children aged 4 and 2. I believe in having a positive
attitude and a
good sense of humor. |
| Citrine
|
My
name is Carol, I was diagnosed with
RRMS in November of 1995, I am 51
years old and I live in southern Maine. My earliest awareness of an MS
symptom
occurred in 1983 while I was putting my shoes on to go out to an Autumn
Fair and
my feet felt "weird".. all evening long, some of the
sensation
was missing along with pins and needles feeling. The feelings went away
after a
nights sleep. (more)
|
| Spikers
|
Well, my MS story starts when I was thirty and got chicken pox for the first time.( I just turned 41 ) After being bed ridden for 2 months I slowly recovered. About3 years later i started haveing numbness in my fingers and toes. This progressed to one half of my body being numb. |
| PhilNE
|
My name is Phil Harris, better know as PhilNE
in the
chatroom. I was born and raised in Nebraska, near the center of the
United States. The State abbreviation of Nebraska is NE, hence
PhilNE. Many things have happen to me over the past 50+ years that I recall of my life. I have done many things with failures and successes, even started over from scratch a few times. I left college my first year, married and began to raise a family. Perhaps due to job failures among other things, the marriage didn't last, and I found myself raising two young children as a single father. (Lots More )
|
| BonBon1
|
I had my first bad ms attack August of 1993. Had a pain in my head for three days and I went blind while driving! I was dx'd 10 years later with r/r ms. I take Betaseron and try to stay positive." Hope" is the word I carry with me always. I am married and have two grown children. I live in Tennessee. Have all my life. I don't eat grits! I try to stay active. With my body and mind. I am very out going and have to watch that I don't do too much. I'm afraid if I don't use it I'll lose it. I love nature and try to be outside most times. If it's not too hot! I do crafts and make crystal bracelets. I have a
little shelty named
Richochet. He is my shadow. I love love people and love to talk. I love
chocolate! And eat it as often as I can. (more
|
| cbee
|
Hi there. I'm Claire (cbee on the site), from
Nottinghamshire UK. I am 27 now, but dx 6 years ago. I had a rough time
at the start and was kept in hospital for 4 months as I was paralised
down the left hand side of my body. During my stay in hospital I also
got married. I cant remember anything about the day really apart from
what I've been told and the video. My marriage didn't last long (not
even to 2nd anniversary). I have been on betaferon for a few years and it was working fine until my consultant decided having double the dose would benefit my health. That was a year ago and within that year I have gone down hill and now back at square 1. (more )
|
| shar
|
Hi, my
name is Sharon but 'Shar' (as in the word 'share'), for short. I was
dx'ed on Feb. 18th, 1997 (ironically my ex husband's birthday -
figures!). I was dx'ed with RR, I've been taking neuron tin for the
past 7 years and have been on/off of Copaxone. I have to admit I don't
like injections, but I know when PhilNE comes to stay with me soon,
he'll make sure that I take them. Ahh yes, the things we do for love. I have been divorced for 18 years, I have one son who will be 22 on April 10, 2007. I have a dog, a cat and a fish. I love just about all kinds of music, in my 'younger' years I had been a singer in a band. (more )
|
Snowdogs |
HI GLAD
TO BE ABOARD LOVE THE CHAT MY NAME IS GLENNIS TAYLOR I LIVE IN CENTRAL
VICTORIA AUSTRALIA AGE 52 WAS DIAGNOSED FOR R/R IN 20005 BUT I WAS
MIS-DIGANOSED WITH RSD IN 1998 AND LOOKS LIKE IT WAS M.S BUT THE DR
SAID EVEN THOUGH THE MRI SHOWED MS LESIONS CLINICALLY I DID NOT HAVE MS
IN 2000, SO WENT TO ANOTHER NERUO WHO TOLD ME I DO HAVE MS AND PUT ME ON BETAERFRON HAD A FEW ATTACKS BEFORE I WAS PUT ON INJECTIONS AND ALSO HAD A FEW WHILE ON INJECTIONS. (more )
|
|
Debby
|
I
am married, will be 30 years this july. Have 3 children and 2
grandchildren. I had been having problems off and on for years but
never connected any of it . In my teens (mid 60's) I started having
severe dizzy spells in school all Drs said nothing wrong, perfectly
healthy, so i just managed and continued with living. In the late 90's I started having trouble with my hands and arms. Was dropping a lot of things and sometimes after work couldn't get arms to do anything but hang there, like they weren't getting message from brain. Went to neuro, who insisted it was carpal tunnel and kept giving me pain meds even though I told him I had no pain or numbness. He finally gave me trigger point injections in wrist, now I have pain! Which lasted a few months. I never went back to him and refused to see another neuro. (Much More )
|
|
Misty
Dawn
|
My name is Misty Dawn. I have
Primary Progressive MS. I am 29 years
old and was diagnosed at 27. My doctor told me I have very old lesions
on my neck and spine and brain, so I may have had this all of my life.
Honestly I just thought I was clumsy and getting old. I am very
touched by all of your stories and I am glad I found this
page. (more)
|
|
MS_Kitty70
|
My MS
Journey
First let me introduce
myself. I am Terri House, the founder of
the http://klearview.co.uk/
site. I am 35 years young and I have MS (multiple sclerosis).
I am a
Daddy's girl (he is My Hero) and my Mom is my Best
Friend. I was
diagnosed in April of 1997 after only a year of testing and waiting, as
well as
some military doctors telling me I needed to go see a psychiatrist
(thats seems
to be a common theme with people being diagnosed with MS).
Well 9 years
later I do have MS and I am having a bit of a hard time with it. Now
you won't
hear on my website about people who do miraculous things in spite of
having MS.
What you will hear is about real people who have real issues and how
they
overcame them or even how they came to live with their
problems. I do
think it is wonderful to see people out there who are carrying on with
their
everyday lives and only having minor problems with MS, but there are
many more
people out there who have gone through some trying times and survived
or are
still trying to survive. But first let me tell you my
story. (more |
|
Shelley |
My
name is
Shelley and I’m 53 years old. I live in
Rockland County NY. I was dx in 1994 with RRMS. I am on Betaseron for
14 years. I am married with two daughters, ages 20 and 18. I have a
puppy named Taylor. I am presently working as a speech therapist in the
Bronx. I have been working in the same school for the past 27 years. I
love my job! I like to read, watch soap operas, and make crafts. I also
enjoy cooking, and gardening. I hope to make many new friends in this
chat room!! (more
 ) |
| RagsJewel
|
Hi, my name is
Julie. I am 33
years old and I was diagnosed with M.S. in 1999 three months after my
son was born...I am a single mother and am doing farely well with M.S.
I walk with a cane mostly. Sometimes use a walker if I know I
am
going to do alot of walking. I also have a scooter to be able
to
get outside and do more with my son in the summer months...Iam very
lucky to have my family's support, plus also helps I am living with
them at the moment lol..Hopefully in another year I will be able to get
my own place again..I feel sorry for my son tho right now cause he is
living in a household with 3 generations of women who are all slow and
usually go "ohhh ahhhhhhh owwwwwwww" and grab our backs or just
complain of aches pains and so my son "Jake" seems to think it is ok
for him to mimmick us and not have to do his "so-called" chores lol..
unfortunately we all know better since he is only 8 years old ...lol
... am waiting to see what else he comes up with in years to come...
(more
) |
| pitchmonke
|
My name is
Randy A.K.A. pitchmonke and I am 41 years old. I was dx'd in may of 2003 with rrms. Got married in 2000 and was going to buy a new house and all that but now things have changed. I used to do commerical roofing, hot tar, rubber and the such, that's how I got my screen name (pitchmonke) one of my jobs as a roofer was running hot tar kettle's and a form of hot tar is called coal tar pitch and they called me monkey.(more ) |
| GeorgieD
|
Hi Everyone,
My name is
Georgie aka GG and I'm from Bayside New York. I have had MS for 33
years now...my first MS exacerbation was when I was 27...it was very
dramatic as I was paralyzed from the arms pits down...As you may know
there were no meds for MS in 1977 and the only test they had was a
spinal, so I was not diagnosed at that time. I was going through a lot
of stress at the time and I believe that is what brought on that
exacerbation. I divorced my husband and lost my father and brother- in-
law all in a matter of 3 months. I have 3 small boys to take care of
and a business to help run with my mother. Not a good time, I can tell
ya...Anyway it took the exacerbation about 3 months to remit and I can
only say I was blessed from that time on. My MS remained mild and I
could function normally and raise my boys and I met a wonderful man
named Joseph and we were married very happily for 23 years.
(more
|
|
LFShaw
|
I'm
Lynne Frances Shaw, chat name LFShaw. I was diagnosed in July of 2005.
My worst attacks were after the birth of my second child. I could not
walk without holding on to anything in reach and I lost vision in my
right eye. An MRI was ordered and there was my companion for
life....Multiple Sclerosis. I finally got the explanations for all the
ill health. I was shocked, scared, but most of all relieved to finally
know what was going on with my body. Fortunately all of my "quirks"
seem to remit. (more
) |
| Gailpooh
|
Hello!
I’m Gail aka gailpooh MN—from Minnesota. I was
diagnosed with this MS thing in 1987. I was in a car accident the year
before (1986), which brought out all my symptoms. And by 1999, MS just
wasn’t enough for me so I took on breast cancer. And after a
mastectomy and some chemo, I’ve proven to be the winner so
far. I am presently not searching for anymore diseases, honest!!! I put
my faith in God and take it one day at a time. And I love the new
family I’ve found in PWMS chat. (more
)
|
| Ditto1
|
I was diagnosed
with RRMS in 1997. I worked as a processing supervisor in a commodities
yard from 1980 to 1988. Took the whole year of 1989 off to ponder my
predicament. Started driving a cab in 1990 and started an AUTOCAD class
in 1993. After the class was over I finally got a job as a detailer at
an engineering firm in
Feb 1995. Was promoted to Designer in Oct. 1995. Quit driving cab in
FEB 1995. Ultimately
ending up at DANA CORP in Jan 1998. (more) |
| .bette42
|
I AM BETTE. I
WAS DIAGNOSED @ 38 AND AM NOW 46. I HAD WHAT I BELIEVE MY FIRST ATTACK
@36 BUT THEY BASICALLY THOUGHT IT WAS JUST A VERY BAD MIGRAINE AT THE
MASS GENERAL IN BOSTON. I WAS EXTREMELY TIRED AND FAINTED. WHILE THERE
I HAD THE FIRST OF MANY MRI'S . THAT FIRST ONE SAID ?MS NOTHING WAS
SAID TO ME ABOUT ?MS I MOVED ON AND JUST KEPT WORKING MY 60-70 HOURS
WEEKS. I WAS A SINGLE MOM OF 2 SMALL GIRLS SO I HAD NO CHOICE BUT TO
WORK THAT MANY HOURS. IRONICALLY I WAS A RN WHO WORKED WITH MS
PATIENTS. I THOUGHT I KNEW EVERYTHING ABOUT MS THERE WAS TO KNOW!!!!
ARROGANT HUH?
(more ) |
| Kimberly
|
Where do I
begin? This seems like it has been a long journey. I am a single mother
of two teen boys. My oldest has Noonans Syndrome and required a lot of
care. I have raised my boys on my own now for 12 years. I am a
Correctional Officer in a Federal Institution. Before that I worked at
Costco. I guess that where it began. I would get so tired after a
shift. I thought I has a cyst in my wrist and had problems with my
knees and shoulders hurting. I went for many x- rays and nothing showed
up. I would get dizzy and see spots in my vision. My hands would shake
and when I went to put on my eye make up, my neck would shake. I knew
something was wrong. After going to see my family quack many times, he
just thought I was nuts and said I had suppressed trauma! What the heck
was that?? He is an idiot. (more) |
| Linda-NV
|
Hello my name
is Linda, and I live in Las Vegas. I moved here in 04 from Kansas City
Missouri. Before that I was born and raised in Michigan. I have been
married twice and have no children. However I do have an African grey
parrot name Miata. He has the brain function of a 7 year old. He talks
all the time. Tells me at night “it’s time To go to
bed” “good night” and will keep it up
till I cover his cage.
The first time the doctors told me I had MS I was in my early 20’s. However it didn’t rear its Ugly head until I turned 47.. It has changed my life as far as my athletic abilities. But really Who wants to bowl or golf, compete in gymnastics when There are so many casinos to go and play BINGO.. I am now 50 yrs old and loving it. I am also on SSDI After trying
for 2 and half years. (more |
| Helene
|
I
am 58 years old. I have primary progressive MS. I was diagnosed fifteen
years ago when I my legs suddenly became numb and fatigue was also a
sudden problem. I have gone from cane to walker and for the last seven
years a wheelchair. Now my hands are nearly as bad as my legs. This is
not fun. I am married to a wonderful, supportive man for 36 years, we have two grown and flown children. I was a graphic artist and an art teacher. Now that my hands are nearly useless I do my creating on my computer with Adobe programs, it helps keep me sane. I love art, gardening, reading and the beautiful world around me but I hate not being able to participate in it any more.' I hope I can get this chat-room thing right and look forward to meeting all of you. Helene :)(more ) |
| Vickey62
|
Hi my name is
Vickey. I am 45 years old. I live in southern
Illinois bout an hour east of St Louis. I was dxd 1/06. I have resigned
my job with the state I worked at it probably 15 years. I used to help
do car titles and registrations. I really didn't have to many prior
symptoms when I came down with ms. I was dragging my right leg a little
- I had it hurt that summer with a horse accident and i thought it was
from that, well surprise -> it wasn't. I have always been an
outside kind of person. I grew up on a farm and riding horses all time.
those days are over for me, I guess. I can't walk with out my walker
right now and I use chair for any distance. I also have lost most of my
vision in right eye, it has improved just a tad so I keep hoping it
will return. Time will tell. I am single , I have no children, I just
moved back to my own place, I was living with my boyfriend of 7 years,
thought we would always be together. Joke on me, guess he couldn't take
my ms, oh well.. well guess that's my story in a nutshell. think that's
all I can think of to write. (more)
|
| Melissa
|
My name is
Melissa and I was dx w/ RR when I was 27. For one year doctors muddled
around, said I needed a shrink. I said "well apparently I do cause my
body is
freaking out!" I had been an athlete my entire life. First,
coordination was gone,
then tingly in my hands and legs, I couldn't feel anything in my shaky
hands, and I
thought I was going blind. The pain can be unbearable, but I am
treating it any way
I can. Now 36, not back to work yet, I never used the amigo or cane the
doctor made
me get. I ride an adult tryke bicycle, I do yoga, stretch, and walk my
dog every day
1/2 mile. Rebif is currently my drug of choice. All the 40 other pills
they have me
on, are their bright idea. I have had my share of relapses but every
time I have
fought my way back. I believe it's because I pray, keep as positive as
possible,
stay physically active, and HOPE. Hope that some day they will quit
dragging their
ass and cure me, instead of maintaining me. I know how lucky I am, to
still be
where I am. I thank god everyday for giving me strength to endure.
Let's all keep
the faith. (more)
|
| Barry12311
|
I live in
Phoenixville, Pa. I'm 51, married, 2 children I was dx. May 2007. I was
a Firefighter until I was dxd. I'm on SSDI now. I enjoy chatting and
meeting people, I'm thru the the shock and being angry about this and
decided to continue to get on the best I can now. When i was diagnosed
i spent a week in the hospital getting steroids every night then spent
2 1/2 weeks in rehab. i had to learn to stand and walk all over again
as MS has effected my balance and my right side mainly my right leg. I
have toe drop and have a brace for my right leg, I'm mobile walking
with a quad cane most days (keeping my walker close by).
Hope to chat with with you all soon
in the room.. (more |
| Sumo
|
Hey folks, I
am sumo58. Here's my story. Back in April of '96 I woke up blind in my
right eye. I didn't have a clue what was happening. We called the Dr.
the next day, who sent me to an eye specialist. He examined me and said
I might have MS. Stating 50% of people with optic neuritis have MS. I
still didn't believe him.
(more)
|
| RJump
|
I HAVE HAD MS
NOW FOR 40+YEARS. I WAS DX'D AT THE AGE OF 34. BLADDER ISSUES WERE
FIRST SYMPTOMS AND ALSO FATIGUE AND MEMORY. WENT TO NEURO AT THE AGE OF
34 AND WAS DX'D WITH MS. HAS PROBLEMS WITH VISION AND IT ISN'T GETTING
ANY BETTER. STILL WORK AT A HOTEL. HE IS A BELLMAN/VAN DRIVER. COURTESY
VAN TO AIRPORT AND TAKE GUESTS TO PLACES IN THE AREA. REALLY
ENJOY DOING IT. MARRIED FOR 40+ YEARS. (more)
|
| Rebeka
|
Before my story
starts I was a typical twenty year old. I enjoyed dancing, going out to
clubs, shopping, hanging out with my friends. I had a serious
boyfriend, the best friends anyone could ask for, and a family that
backed me up no matter what.
I was sick quite often, had a lot of
back problems, headaches, and I was always tired. But that was normal
for a teenager...wasn't it? I remember the symptom that told me
something might be wrong. I was driving home from work one night, I
looked down and I got this weird tingling sensation down my spine. I
brushed it off as a pinched nerve. I didn't have medical insurance, as
I’d just started this job, so I waited to go in to the
doctor. (more |
| Andrea
|
I
am 46 now and have been living with MS for 4 years. I
was a cardio/thoracic surgical ICU nurse with the world ahead of me.
When
my mother died in 02 I grieved her death miserably. It wasn't long
before
the death grip of MS would encompass me and change my life forever.
My first symptoms were my legs bucking under me, then my eyesight went
and along came these excruciating
migraine headaches. I soon became
confused and lost my ability to form sentences, and walking was a
nightmare
as I had no balance and my legs were weak. MS seemed to hit me all at
once. (more
)
|
| Angela
|
My
name is Angela, I am 27, live in PA. I am married to a wonderful man,
and I have a beautiful 4 year old little girl, and one adorable pug.. I
just found out I have ms this past Wednesday, and I go to the doctor to
start treatment
this week..... (more
)
|
| RubySlipperedOne
|
My
name is Cindy. I am 45 years old. I'm the mother of 3 children, the
best things that ever happened to me, a daughter 27 and 2 sons 23 and
16. I was dx'd with ms in July of 2006, after over 15 yrs of being very sick, and lots of incompetent doctors. At first I was dx'd with postpartum depression, since my first big flare struck 2 months after the birth of my last child. No doctor could ever precisely pinpoint what the real problem was. I think my most favorite thing a doctor told me was, "You are the healthiest sick person I've ever seen". DOCTORS!!!! , Don't you just love em? Also, I find that people, doctors included, just love to tell you how "good" you look, I'll bet a lot of you have heard that one. I think that's why sometimes we are so often misdiagnosed. We just look so darn good , lol. (more )
|
| Flower45 | MY NAME IS SANDY AKA
FLOWER45. I LIVE IN DUBBERLY LOUISIANA (ABOUT 35 MIN FROM SHREVEPORT) I
HAVE RRMS DXS IN MARCH OF 2003 AFTER 5 YEARS OF THINKING I WAS GOING
CRAZY. I HAVE BEEN ON REBIF SINCE APRIL OF 2003. I HAVE BEEN VERY
LUCKY. AFTER GETTING STABLE I HAVE NOT HAD A RELAPSE SINCE JUNE OF
2006. I DID HAVE A MASSIVE HEART ATTACK AT THE AGE OF 45 ON JUNE 30
2006. NOT RELATED TO MY MS. I ADVICE EVERYONE TO BE CAREFUL. I THOUGHT
IT WAS MY MS AND REFUSED TO GO TO THE DOCTOR. AFTER GETTING TO ER THEY
TOLD MY HUSBAND 10 MINUTES LATER I WOULD NOT HAVE MADE IT. DO NOT PASS
THINGS OVER BECAUSE YOU THINK IT MIGHT BE YOUR MS. (more
)
|
| Glenda
|
MY NAME IS
GLENDA LEE I WAS DXED IN 83 24 YRS NOW. I'M 63 AND IN SCOOTER NOW. HAVE
6 GROWN KIDS THEY ARE IN PICTURE. YOUNGEST SON WAS 6 MO OLD WHEN I WAS
DXED. I LIVE NEAR PITTSBURGH PA. MY YOUNGEST DAUGHTER LIVES BEHIND ME
AND SHE IS MY HELPER. I HAVE 10 GRANDKIDS FROM 22 TO 7 YRS. I HAVE 3
DOGS 3 PYGMY GOATS A LOT OF BIRDS BIG AND SMALL AND ONE BALL PYTHON
NAMED LUCY. I ENJOY FLOWERS AND EVERYONE HELPS WITH THEM. (more
)
|
| PixieDust
|
My name is
Penny. I am 28 years old. I have a 2 year old son and we live in
Vancouver, Washington. I
was born and raised in Canada. I was born in Calgary, Alberta and spent
my life growing up in Ontario. I do not have an official diagnosis of MS yet, but I was told that it is highly possible. I am trying to find a better neuro to go to because the one I saw just didn't seem to care all that much. I have had symptoms since I was much younger, which when I think about it now seems indicative of MS. I never worried about it much then because I really thought it was all just a part of growing up. I started going blind when I was 15, but never for very long. The longest time that I ever was blind was 10 minutes, but of course I never bro |
