Hi to one and allMy name is Sandra Emery known as UK Sandy x x, i am 48 years old but i assure you i am very young at heart I am married to Philip been married for 23 years now wow a long time ah l I have RR MS wonderful thing ah. well lived with MS for 23 years now i quess it is part of me part of who i am and i think we live together as well as we can although i would rather live with out this MS as i presume u all would who have it
I used to be a secretary before i met Phil and as i said before i am married to Phil and have two wonderfull lads the oldest is Paul he is 23 ok note the age and how long we have been married lol but Phil and I lived together first planned to get married but Paul came a little earlier than we had planned while i was pregnant with Paul i went totally blind in my one eye OMG fightened the life out of me but after an x-ray on my poor little head t was told it was Optic Neuralgia ? had not got a clue what all that was about? my vision came back and i had a beautiful baby boy Paul when i went to the doctor for my pre natal check up the doctor asked me if i was ok after going blind and i said yes fine just a little tired that all, i suppose that is due to my night feeds and laughed, he said to me sandra no it is probably due to yr MS WAT i said he said the specialist had written to him and told him that was wat i had . OMG i got out of that surgery and cryed all the way home , i still feel sad about the way i was told i hated my doctor from that day to this but i knew from day one wat i had so ms from age 26 years old , When Phil came home and saw me crying with the baby he asked wat was wrong and i told him wat the doctor had said to me and it all started from there I have RR MS and every 6 months i was on steroids after attack after attack every 6 months they were so bad blindness again and weakness of the legs arms just so week i felt i wanted to die when an attack came felt so so bad. I am now on Avonex that same doctor that told me put me on it so i quess i have that to thank him for i have been on Avonex for over 8 years now and well i am the same as i was when i started on it so the specialist has told me so it is working for me the attacks have stopped and i am still a fairly active gal
I do not work like i said i have bought up my children oh forgot to tell u about the other lad he is 20 his name is Phil too mistake with the name i think
anyway, i enjoyed bringing them up being with them at every event of there life lucky really i am a kept woman so to say and i love life to the full
I am full of smiles and sometimes to much i think although, i have cryed many a tear with ms but i have learned that smile and the world will smile with u and cry and u cry alone so very true that is
I am positive well try to be although i am a bit dippie in mind but a very
loveable character i hope ok likeable well i go to a centre with ms and have HBO treatment i have done that for 16 years now and i am not
prepared to stop that treatment, i love the people i meet there and i love the fund raising i do for them
recently done an MS challenge with the RAF man carrying around Snowdonia wow that was terrific i saw sights i would never normally be able to see, i love the fund raising around the streets love to make people see people like us r normal well as normal as we can be lol
Ok i am mobile i do not use any walking aids and am so so grateful for that
although i have just acquired a wheelchair for the back of my car so i could go further that just half a mile and then back
I do hope this is ok and u get an idea of what life is like for me
Sandra UK sandy x x
