PeopleWithMS -Sumo58

Hey folks, I am sumo58. Here's my story. Back in April of '96 I woke up blind in my right eye. I didn't have a clue what was happening. We called the Dr. the next day, who sent me to an eye specialist. He examined me and said I might have MS. Stating 50% of people with optic neuritis have MS. I still didn't believe him.My regular Dr. sent me for a MRI, and that was when then confirmed the diagnosis. I still thought they were wrong. I can't even spell it, so I can't have it. The doc didn't believe me. I believe it now. I haven't had it rough as some, right now it is mostly cognitive problems. A little nerve damage in right eye, etc. I was first treated with steroids, which I hated (Barry Bonds can have mine). It does explain a lot, I never could stand heat, crappy balance and stuff. After having this for years, Dr Sumo (I am not a real Doctor I just play on on TV - HAHA) believes we don't just get it, I think we have it all along and it takes time to appear. I was under a little stress at time it appeared. I tried to for a while to think that was cause also slipped in the driveway on ice, which knocked me out. Though I thought it might be concussion related, I excused my symptoms for a few years. The docs in a effort to slow down the lesions, started me on Avonex. I didn't care for the neurologist, so I took the next one to who moved into area. Nice guy but I had a hard time understanding him (he is from Pakistan) and he seemed to care. He had me try Rebif, which like the Avonex was rough on me and my family (I became a miserable person with both). Then hew switched me to copaxone. I did the Copaxone for about a 1.5 years. I went off that and did 9 rounds of Novantrone. My nice Dr recently moved out of the area, just as I was having my last Novantrone treatment. Another great doctor has moved in. He has a great sense of humor (which is normally surgically removed from most doctors in med school - he must have played hookey that day). He said I am good for the next year but we are talking over possible treatments in the future. So here I am, a 47 year old dad with two girls (both in college), I'm not pertty and don't have rhythm but I am doing ok. Mr. doc sumo 58 alias jaychoward

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