Sweet67
 WHERE TO BEGIN. HERE
IT GOES I GUESS .
IN JULY 1999 TOM AND I HAD A REAL BAD SUMMER FLU AND TOOK
OVER A MONTH
TO GET OVER. IN AUG. I STARTED TO HAVE SOME DIZZINESS AND JUST CHALKED
UP TO GETTING OVER THE FLU. THEN THAT WENT AWAY AND THE NEXT MONTH MY
FEET WENT NUMB AND STARTED TO TINGLE LIKE THEY WERE ASLEEP BUT DIDNT
HURT. I COULD STILL WALK AND ALL. I DIDNT TELL TOM TILL SOME TIME IN
NOV. BOUT MY FEET AND HE WANTED ME TO GO TO THE DR. THEN BUT, I REFUSED
. TOLD HIM THERE WASNT ANY SINCE IN GOING TO THE DR AND PAYING FOR ALL
OF IT CUZ I HADNT MET MY DECTUTABLE FOT THAT YR AND THEN HAVE TO TURN
AROUND AND DO THE SAME THE NEXT MONTH OR SO. SO I PROMISED I WOULD GO
AS SOON AS THE NEW YR WAS HERE.
JAN. 4, 00 WENT TO DR AND THEY DID THE USUAL BLOOD TEST AND
URINE TEST
AND EVERYTHING AND IT ALL CAME BACK THAT I WAS PERFECTALLY HEALTHY
WITCH WAS KINDA GOOD. SO THEY SENT ME TO SEE A NEURO.
HAD TO WAIT FOR 2 MONTHS TO GET IN TO SEE DR DAGEN HE WAS SO
BUSY, SO
WE WENT AND I TOLD HIM WHAT HAD BEEN GOING ON AND HE DID HIS EXAM AND
TOM THOUGHT HE WAS A PERV WATCHING ME DO "THE WALK". THEN HOOKED ME UP
TO THE ELECTODES AND WANTED ME TO TELL HIM WHEN I COULD FEEL IT. SO I
KEPT WAITING AND FINALLY I COULD FEEL IT. DR DAGEN SAID HE THOUGHT IT
WAS DEMYLONATING DISORDER BUT WANTED AN MRI TO MAKE SURE. HE SAID IT
COULD BE TREATED AND SAID IT WAS THE BEST WE COULD HOPE FOR. HE JUST
DIDNT TELL US WHAT DEMYLONATING DISORDER WAS.
MAR 5 I GO IN FOR THE MRI WITH AND WITH OUT CONTRAST. SCARED
TOM HALF
TO DEATH WHEN HE HEARD THE NURSE SAY OH SHIT AND RUN IN TO ME. I GUESS
I FELL ASLEEP AND SQUEASED THE PANIC BUTTON. I THOUGHT WE WERE DONE
WHEN SHE CAME IN. LOL
TOM WAS SO WORRIED THE WHOLE TIME WAITING FOR AN ANSWER. 2
DAYS LATER
MAR. 7,00 TOM CALLED DR DAGEN AND DR DAGEN TOLD HIM WHAT THE RESULTS
WERE. I HAD DEMYLONATING DISORDER SO TOM WAS HAPPY TILL DR DAGEN TOLD
HIM THE OTHER NAME FOR IT WAS MULTIPLE SCLEROSIS. TOM HAD TOLD ME HE
WAS GONNA CALL AND WOULD NOT COME HOME UNLESS IT WAS SOME THING
SERIOUS. SO WHEN I SEEN TOM DRIVE BY THE WINDOW I GOT SCARED AND
STARTED TO SHAKE AND WENT OUT SIDE AND STARTED TO CRY THINKING I WAS
GONNA DIE. THEN TOM CALMED ME DOWN AND EXPLAINED IT THE BEST HE COULD.
TOM CALLED THE SCHOOL OUR KIDS WENT TO AND ASKED THE SECERTARY IF SHE
WOULD MIND PRINTING OFF SOME INFORMATION ON MS FOR US. AND TOLD HER I
HAD IT. OF COURSE I GOT ALOT OF PITY FROM THE TEACHERS AND STAFF AT
SCHOOL AS I WAS A VOLENTEER THERE AND WAS AT SCHOOL 3 - 4 DAYS A WEEK
DOING WHAT EVER NEEDED DONE. WE WENT TO THE LIBRARY AND GOT A COUPLE
BOOKS ON MS AND WE EDUCATED OURSELVES FROM THE FIRST DAY AND WE KEEP
LEARNING MORE.
MAR 8 WAS MY UNCLES B DAY SO ITS EASY TO REMEMBER MY DX.
WENT TO
SEE DR DAGEN AGAIN AND HE GAVE US SOME INFO ON THE MEDS AND
SAID IT WAS EXPENSIVE MEDICATION. HE SAID I HAD TO GO OFF BIRTH CONTROL
AS THEY DIDNT KNOW WHAT THE MEDS WOULD DO MIXING WITH THE PILL. AND WE
DIDNT WANT ANY MORE KIDS SO I GOT FIXED.
MY FIRST BETA SHOT WAS MAY 10, 2000. I WAS SO SCARED SINCE I
AM SCARED
OF NEEDLES BUT IT DIDNT HURT. IT HAS BEEN A ROLLER COASTER RIDE THAT
TOM AND I AND THE KIDS HAVE TAKEN TOGETHER. TOM IS MY ROCK AND GIVES ME
STRENGTH TO GO ON. I DO HAVE MY DAYS AND I DO ALLOW MYSELF TO FALL
APART AND HAVE A PITY PARTY ONCE A YR AND THAT GIVES ME THE STRENGTH GO
FIGHT FOR ANOTHER YR OR MORE. I HAVE BEEN OPEN ABOUT MY MS AND HIDE IT
FROM NO ONE. I HOPE TO EDUCATE THOSE IN THE THIS PART OF THE WOODS THAT
MS IS NOT A DEATH SENTENCE LIKE WE THOUGHT IT WAS. WE DO LIVE IN THE
COUNTRY AND ITS BEAUTIFUL.
I HAVE HAD BATTLED OPTIC NEUROTIS AND VISION WENT FROM
20/800 TO A
SURPRISING 20/30. I HAVE LOST THE ABILITY TO WALK AND FOUGHT TO GET MY
LEGS BACK. I HAVE MY UPS AND DOWNS AND JUST DEAL WITH THEM THE BEST I
CAN.
WELL DEB THIS IS MY STORY AND HOPE U ENJOY IT.
THANKS,
TONI AKA SWEET67
|
